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Anyone hear from Rakendra?
Has anyone heard from Rakendra lately? I dont necessarily agree with Rakendra's religious views, but right now, he could have some very good input into some of the controversy in this forum. I am guessing he could give some sage advice on how to deal emotionally with circumstances that are beyond one's control. Does anyone…
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Working Out While on Hormone Suppression (Firmagon) - Need Your Experiences
Hi Everyone - I'm new here after recently being diagnosed with Gleason 7 prostate cancer in 1/4 of my prostate. (see my profile for more details). My main concern about the Firmagon injections is that it will seriously impact my workouts. I've worked hard over the last year to get in shape -- losing nearly 100 lbs. I don't…
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RRP followed by PSA Rise
HI all So I went in on Thursday morning for my RP. Spinals and catheters were a bit of a drama but got there in the end. Don't even remember going down or waking up. Felt woozy for the remainder of the day which made getting used to the catheter fun. Consultant said the surgery went well and that he managed full nerve…
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GOING FOR PROTON
Since getting the Dx from my physician, it has been a roller coaster of emotions; worries, grief, and relief, all bundled up together on a seemingly endless free ride. I could wait and don’t have to do anything at this stage, but my own unique situation forces me to make a decision and be clear of PC now. I am hopeful that…
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AS vs treatment in young patients
Previous post was with wrong link. https://pcnrv.blogspot.com/2017/08/the-myth-that-younger-men-should-not.html
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AS vs treatment in young patients
The mith that younger patients should not pursue active surveillance https://pcnrv.blogspot.com/
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Prognosis
So here it is just three months after my partners diagnosis of prostate cancer, Ive written twice before. I appreciated the feedback in August. His PSA was at a 11 July 2015. A bioposy wasnt done until May 2016. Today he has Stage 4 Prostate cancer -Stage 11B ( Tic,NO,MO,G 8) Final Gleason =10 "multiple bone metastases in…
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Good Day
Today might be a good day to remember that we cancer survivors, new cancer people heading to or under treatment...we can rise above this! Sure, we all will die someday...from something. But not today, and we hope not tomorrow. We will survive as long as we believe that we can live longer and better lives...despite cancer!…
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side effect from taxotere treatment on Prostate Cancer
Gleason score of 8; Currently my psa is at 1.0 13 weeks after RP; Lympth node negative. Doctor proposed Lupron for HT and RT in parallel possibly followed by Taxotere Treatment. Does anyone know the side effect from Taxotere (Docetaxel) chemo.
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New member
Hello to everyone. I am new to the board but I have been in the active surveillance program at MD Anderson (Houston) for going on 2 years. I am 52 years old, married with 2 kids (one in college, one in second grade). My medical info is as follows: Stage 1 (stage T1c, Gleason 6 (3+3), PSA of 6.9 originally but at 5.6 as of…
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Lifelong Transformation Through Lifestyle Medicine
Lifelong Transformation Through Lifestyle Medicine UCLA Health cardiologist Tamara Horwich, MD, and special guest Dr. Dean Ornish discuss the healing and transformative power of the UCLA Health Lifestyle Medicine Program This is appropriate to reverse heart disease and early prostate cancer disease as well as other…
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No defined lesion, is Cyber Knife possible
I finally got a copy of my 3T MRI report and as my urologist told me, the results showed "No MRI demonstation of any lesion in the prostate that is specifically suspicious for prostate carcinoma." As posted below, my confirmational second biopsy showed two small areas (3 & 7%) of Gleason 3+4 whereas my original biopsy was…
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Pathology Report from RP (Sorry for Blank Posts)
Sorry for the extra posts, trying to figure out how to delete them. My catheter is out having fun with that process. I am in good spirits. I will sleep with my wife and dog in my bed tonight. Smile, I am. Surgical Pathology Report * Final Report * Final Pathologic Diagnosis 1. ANTERIOR BLADDER NECK MARGIN, EXCISION: BENIGN…
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PSA rise with ADT
I was diagnosed for Prostate malignancy in 2013. I had radical prostactomy in 2014. Two years later I was started on ADT. This year, despite ADT every three months, the PSA shows a rising trend, reachig currently a level of 2.9. The current testosterone level is 29 ng/dl. The PSMA scan is unable to pick up any areas where…
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Daughter Taking Me
My daughter is taking me to get my catheter out today and pick up my pathology report. I cannot say enough about her and my wife , my best caregivers. This is the human side of this. The side that cannot be measured or dissected. She is giving her mother a break. I have had a lot of support through this including this…
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ED treatment
A doctor has recomended I explore the use of devices like high end vibrators and pumps designed specifically for survivors of radical prostate surgery to help with ED. Can anyone with experience using these give me their thoughts and recommendations?
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Disappointing News
Greetings. I joined the Forum in November after being diagnosed with PCa. At that time the diagnostic data were as follows: One core positive, 10% of the core, Gleason 3+3 PSA 3.7 MRI negative Oncotype DX PHI Score 19 Based on this data, the plan was to follow Active Surveillance. As part of the AS protocol I had a…
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My surgeon called yesterday
My surgeon called me yesterday to check up on me. First he said he had great news from the pathologists. The samples around the prostate and margins all negative for PC. He said when I come for my appointment Thursday, he would provide me with a copy. Just waiting for Thursday to see how that goes. Will scan and post…
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impotence
I am 44 years old and had a radical prostatectomy 6/4/03. Now, 14 months later, I still cannot achieve an erection on my own. I do, however, get an erection when I use caverject injections. It is not the same though, and the erection I get from this medication is painful. Do you think I still have hope in recovering the…
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Husband just diagnosed with Prostrate cancer
Hello. I just joined this group and hope that I am able to get different insight other than what it her sources we've been reading. My husband had two surgeries for colon cancer about seven yrs ago. He had part of his colon removed. All went well and his recent colon check revealed only a few polyps which were removed. He…
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Description of procedure RP 3/20/2018
I know a lot of you folks like the details. I am posting this Description of Procedure of my RP. I am feeling better everyday. I get the catheter removed this coming Thursday. I know you folks know that this operation is major surgery. Just thought I would post this so if someone wanted to see what happened during my robot…
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Lupron & Zytiga (Abiraterone) Side Effects
Hello All, Happy New Year and a health 2018 to all of us. Just wondering about side effects of Lupron & Zytiga and when they "really" kick in. I am Stage 4, G9, locally advanced (no bones metastasis thank goodness)...Cancer in all 12 cores, outside the prostate and in a few surrounding lymphs nodes....That was the…
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After prostate removed
hi , 61 male. Not good at typing. But I’m trying. Had prostate removed. High psa. And Gleason scored. Like 9. Did all the test, cant find cancer anywhere else. 2 weeks bag was removed. Had Lupron shot that day also. Wants me to have 1 every 6 months for 2 yrs. biggest issue from that is nite sweats, Like coming out of a…
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PSA TEST
Hi - my name is Andrew.I had my surgery radical prostatectomy Dec 28th 2017 2 days ago I did my first PSA test (Roche Eclia methodology). The result shows prostate ag,serum <0.1 My question is - Should I do more sensitive PSA test than the one I did?? Thank You
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Complications after surgery, in germany
This article, (Repeat prostate biopsies do not raise the risk of post-prostatectomy complictions) found on page one of the Feb 2018 ustoo hotsheet mentions information that have been a focal of discussion at this board: "Results showed that 45.9%, 57.9% and 60.9% of men achieved potency at one, two and three years after…
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sex life
can anybody say they went through the devinci method and at somepoint returned to a normal sex life. I have not decided upon doing radiation or surgery yet, but I am 49 and my wife and I have a great active sex life. I had so much cancer in my family history (colon, pancreatic, brain) I feel something will get me before 60…
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cialis following radical prostatectomy
Information on Peer review or clinical trials on the interim use of Cialis for restoration of erectial function following radical prostatectomy
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CyberKnife Treatment
As more men come here for help, I thought I would start a new thread for those considering treatment options. I see my RO this week for my six month follow-up following CyberKnife treatment last September. I'm not here to advocate for any particular treatment option, CyberKnife included. Every man will have to make the…
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Husband Newly Diagnosed
My husband was told last week that he has prostate cancer. He had an abnormal DRE and his PSA was >30. We have no further information but I’ll go with him on Wednesday December 20th to see the urologist. One of the most crazy-making facts thus far is that he had a PSA of 9 in the Summer of 2016 but his primary doctor…
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