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Facing possible SRT, PSA .068 3 1/2 years post RALP
I had Robotic Prostatectomy in Jan 2015. PSA at the time was 4.3. Surgical pathology upgraded me from G6 to G7(3+4), EPE, SV, LN (9), all negative. PNI Positive (it was negative on biopsy). Margins were “negative Final margins”, meaning my surgeon does frozen section as routine, my frozen section showed positive apical…
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Newly diagnosed prostate cancer
So I was recently diagnosed with prostate cancer and the doctor is being vague regarding what exactly is going. I’m hoping I can get a few questions answered. I fully trust my doctor and he does want to sit down with me in person and explain. This is what is going on so far. I am 47 years old with no family history of…
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AUS800 and scar tissue
Hello, posted this to wrong site I think, anyway here I go again. So sorry for repeating myself. I have had surgery for scar tissue removal in the urthra / bladder area. Hopefully this procedure will allow me to go ahead with the aus800 fitting in the coming months. I am in Canada so who knows how long that will be. I am…
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gleason 8 and hormone treatment
is there anyone out there with a gleason 8 and who is on hormone...I was cancer free for two years and now it is back, I was wondering how long someone with a high gleason can be on hormones before they quit working, I'm considering intermitten therapy, thanks for any imput
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PSA Rising: NOW What??
I have metastatic castrate-resistant prostate cancer. Brief summary follows, with details on my "About Me" page: Journey started April 2013. Had radical prostatectomy in June 2013. At time of surgery, cancer also found in 4 of 12 extracted lymph nodes. But when PSA began rising in fall of 2013, I have followed that surgery…
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New medication, Apalutamide (a handrogen receptor inhibitor)
Is anyone currently on Apalutamide? My doctor wants me to start on this new durg and I'm not sure about it. Brief history: 66 years old, with Gleason Grade 4+5=9. Had Radical Prostatectomy in 2016 and radiation treatments for seven weeks starting 5/17. The cancer is Non-metastatic and am currently on hormone treatments…
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PC spread to para-aortic lymph node-where to go for 2nd opinion-Pa.
My 64 y/o husband was diagnosed with PC in May, 2018. PSA of 9.46. Gleason 7 (4 + 3) per biopsy. CT found it has spread to a lymph node in para-aortic area. Bone scan is negative for bone involvement. We are in the S/E area of Pa. & treating with a local oncologist who has recommended ADT with bicalutamide & Lupron…
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Stem Cell Injections for ED post Robotic Prostactemy
Wanted to know if anyone on this board has or knows someone who has tried stem cell injections for post surgery ED. Results claim improvement from severe to mild ED issues. Thanks.
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Radiation Fatigue
Hello All, It's been a while since writting or read here. I was diagnosed with Stage 4 locally advanced PC last Sept. Went on a trial of Lupron, Zytiga for 6 months then RP. Everything went well. Because of my Lymph node involvement (3 still had cancer) they suggested 8 weeks of radiation followed by 18 weeks of Docetaxal…
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Ode to Prostate Cancer
I found this on a Prostate Cancer website in the UK. It has "British humor" written all over it... . ....Poem by Chris Boothby We've had to learn a whole new lexicon New words and medical babble With such increased vocabulary We should be bloody great at Scrabble! A new website for our ailments To help that constant toilet…
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A Minor Victory
I have made it 48 hours since my second biopsy and do not have a fever. This may sound minor and insignificant but having had Sepsis from my first prostate biopsy I am ecstatic. This second 3T MRI Fusion biopsy was deemed needed enough to risk a second bout of sepsis by my Uro team lead.... Now the wait for results and…
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Circumcision and cancer
I don't know if anybody has been following the outrage on social media over circumcision, but I thought this might add a curious element to the discussion... Circumcision reduces the risk of prostate cancer by up to 60% - but is most effective when done after the age of 35 * Men circumcised as babies have a 14% reduced…
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Recently diagnosed
I was recently diagnosed with PC. Gleason score of 6 (one core positive), PSA 18. Had a bone scan and MRIboth came back excellent. My prostate is enlaged and accordig to the doctor hard in one area and my doctor believes that my prostate sufferes from a cronic infection (the hardness) and that may be contributing…
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IMRT?
My dad’s got a new oncologist who is switching his radiation plan to IMRT for bone metastases. I’ve done some reading and it does seem like the better option— anyone have success stories they’d like to share with me? His cancer is still responding to Lupron/Casodex, and bone scans had shown some improvement about two…
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Surgery to stop Incontinence
I had my prostate removed 2 years ago. I had incontinence right from the beginning. I was leaking, it started to improve, then i did 30 days of radiation, and my incontinence got worse only slightly, then hospital offered me Optional chemo (which i took) 5 treatments every 3 weeks. During this period my leaking got worse…
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68-Ga-psma-pet/CT scan
Wondering if anyone has any info on the availability of this scan. My reachsearch so far says it's only in clinical trials. Thanks in advance guys.
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Moved my PSA Appointment
I had to change my appointment from August 3 to today. The surgeon who took my prostate out, pretty much told me what I already knew. My PSA is undetectable. I will go back to see him in October and have another PSA test. If that one is undetectable, they will enroll me into a Survivorship Program. Also, I got invited to…
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TIP Testosterone inactivating pharmaceuticals Treatment Option
One of my consults will be with the Dr. Turner of the Mark Scholz group in L.A. (The Key to Prostate Cancer, 2018 and The Prostate Snatchers). I am also meeting with Radiation Oncologists at MD Anderson for Proton and UNM Cancer for Photon therapies. I was recommended not to have surgery and RT may also have some extra…
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Eligard treatments
I am just winding up my first four months of an Eligard implant and will get the results of my first post implant PSA test tomorrow. My PSA was over 30, Gleason 9 and a biopsis indicated some spread to the lympth nodes, although the CT scan did not detect the spread. So far, I have not seen any references to Eligard…
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Space OAR Hydrogel by Augmenix Pharmaceuticals
I am supposed to get cyberknife for intermediate risk prostate cancer (Gleason 3 + 4 = 7) and one radiation oncologist recommended Space OAR as standard in his practice and a second radiation oncologist said he never uses Space OAR because in over 5 years of doing cyberknife he has never had a patient who developed serious…
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After surgery. Follow up appointment
My husband is a week out from his robotic radical prostatectomy. It went swimmingly. According to the dr. it was a text book surgery. Now we are just taking it easy waiting for his follow up and the removal of his catheteR. His PSA was 2 at the last doctor visit and his Gleason score was 6. Just nervous for the pathology…
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testosterone after treatment for prostate caner
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First PSA Test
Well, I got the results of my first PSA test today. I go to see my doctor on August 3. I will be 4 months post RP this July 20th. My Gleason was 4+3=7. For your reading enjoyment and comments, here are the results: PSA, TOTAL <0.1 < OR = 4.0 ng/mL The total PSA value from this assay system is standardized against the WHO…
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Need some advice-Update
Hi All: I just wanted to drop in and give an update w.r.t. my dad's situation and I could not find my previous thread, so started a new one. History: Back in March my dad got diagonised with a Gleason Score 4+5=9 PCa. He has taken 2 doses of Degarelix and has been on catheter ever since. Update: Two attempts to remove the…
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Cyberknife Treatment side effects
I completed my cyberknife treaments for prostate cancer on Dec. 19, 2016. I had no side effects for 6 weeks until I went in for my first checkup. after having a DRE I developed a rectal issue that has caused problems ever since. The oncologist continues to believe it is caused by a reaction to the substrance injected…
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Supplements for the (Finally!) Surrendered
Hi to all you wonderful folks! My spouse was diagnosed 12/2017 with PSA 34 and Gleason 10,with 3 enlarged pelvic lymph nodes. He has locally advanced PCa. He started Casodex and Lupron 2 weeks later. Radiation began in May. He has 8 more sessions of EBRT to go. He is doing very well with ADT and has had minimal side…
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Casodex: Taken at Morning or Night?
Greetings, I just started Casodex for the first time yesterday (at 4:00 pm) and I'm curious about the preferred timeframe chosen by others for taking this particular medication? Unlike many other meds, the side effects of a single 50mg daily Casodex tablet seem to persist for me well into the next day, such that they…
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Incontinence
What I learned about incontinence and prostate surgery and how to help overcome it, if not prevent it. I was incontinent as a result of prostate surgery. I did not expect this at all from the pre-surgery research I did and from discussions with my doctor and his staff. This is not to say anything went wrong; I am fairly…
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High Doses of Testosterone
To All Has any one seen this? Use of extreme high doses of Testosterone and then cutting to extreme low levels of testosterone as a treatment for PCA. It's done in cycles. Testing from John's Hopkins. http://www.telegraph.co.uk/science/2016/11/30/man-cured-prostate-cancer-doctors-shock-tumour-death-testosterone/…
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Newly Diagnosed as "High Risk" and Confused Beyond Words
Greetings to All, I am a 66-year old, newly diagnosed "high-risk" prostate cancer patient, that has only just begun the overwhelming research and learning processes associated with this wildly complex disease, and its many forms of potential treatment, based upon ones own unique biopsy/PSA particulars. Hence, I'm posting…