The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Need answers from others in same situation ....

Hello all,

 

I had prostatectomy in Sept 2015. The surgery lasted over 5 hours; the "normal" is about 3. After release from the hospital, I of course had to use the Foley catheter. As of this writing , I still am using the Foley, because (1) there is scar tissue in the bladder (2) I have issues breathing so the urologist is fearful that I will not make it thru the tissue removal surgery.

It looks like I will have the Foley til I die...........any others w/this situation ?? Anyone w/ possible ideas or solutions ??

I know that even if the scar tissue is removed, it will most likely return, so .......

 

PS - I know I will be incontinent even if the Foley can be removed, and I have tried a penile clamp to no avail ( for a week or so when the Foley was removed for a "trial" ). Has anyone used a catheter valve with success ??

 

Thanks for any replies and help !!

Comments

  • G53
    G53 CSN Member Posts: 33
    Anastomotic stricture
    The is most likely an anastomotic stricture, a common complication with prostate surgery. In this article it says:
    http://hellenicurology.com/index.php/Hellenic-Urology/article/download/114/85

    "In conclusion, stricture of the vesico - urethral anastomosis after bladder - neck sparing RRP is not a rare complication, but can usually be successfully managed with one graduated dilatation. All patients seemed to be stabilized satisfactorily without recourse to more extensive surgical procedures. Patients should be informed of the possibility of stricture before and after surgery."
  • VascodaGama
    VascodaGama CSN Member Posts: 3,788 Member
    AUS

    I am sorry for the situation. Several guys in this forum have reported about the apparatus AUS (artificial urinary sphincter) which improved their condition and quality living. You can try contacting them via CSN mail.

    Here are links about AUS with information;

    https://csn.cancer.org/node/188931

    https://csn.cancer.org/node/291761

    Best wiishes,

    VG