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Diagnosed and conflicted on treatment options
Hi all, I'm new to this forum and hope I can receive feedback from this helpful forum. I'm 56 and just diagnosed with PC in December 2017 using MRI guided biopsy. In total, 2 cores out of 20 had cancer. 2 lesions were targeted in the biopsy: Lesion #1 (right anterior mid transition zone) had 2 of 5 cores with cancer in 20%…
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little to no sensation
It has been 14 months since my prostatectomy/diverticulotomy. Since my surgery, I have little to no sensation that my bladder is filling. In additon, when I do pee, I have little to no sensation in my penis. There have been times when I have been wet, and not know it...it just comes out on its own. I thought I was making a…
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Emotion help
hey guys, it's just about more than I can handle now. I'm sure it's the Lupron along w/ taking Zytiga in the middle of the night, but I'm an emotional wreck. What Rx you got out there to help? Xanax? I'm not much on these depression meds, but I"m ready for some help.
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Psa 0.04 after 4 and a half y after RP
Hello, My dad had rp at age 57 in 2013 Sept, pt3a I think and I think Gleason 7 (dont know if 3+4 or 4+3). Dont know the details, but there are no seminal vesicles and node lymph involved... Psa has been for the first one or two years below 0.02, after that 0.02, then in Autumn 2017 0.04. three months after that 0.02, then…
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Daily Cialis
My doc finally was able to get approval from my insurance Aetna for daily use of Cialis 5 mg after about 5 months of battle with insurance company. Few days ago, I was called by mail in pharmacy and asked how I want to pay for my mail in order? I gave her credit card number then I was told I have to pay $937.50 for 90 days…
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Joining the club no one wants to belong to.
Hello, My husband was diagnosed with cancer in February. We actually were informed that he had a small shadow on his PET scan for head and neck cancer back in January of 2017. But we had to get through those treatments before we checked out what the dr saw. Fast forward to Feb of 2018. He finally had a biopsy done and two…
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Recently diagnosed with prostate cancer, gleason 10
Hello All, I came across this forum by searching the internet, and reading the posts here gives me some hope and courage. My dear father was recently diagnosed with prostate cancer. Case history as follows: 1. He was having trouble with urine flow, and saw an urologist who gave prostate ultrasound and PSA to test. USG…
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Proton scatter beams, pencil beam (G3)or Photon Treatment
My final consult today was with a radiation oncologist at UNM Cancer. I also had a follow up question to MD Anderson. My question to MD Anderson was can I have a varied schedule so that I can travel home for a 3 day weekend. The answer is that would depend on what machine I was recommended for the Proton scatter beams,…
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First MO Appointment After Treatment Start
Hello to all. After the flurry of activity and anxiety following my husband’s PCa dx in December 2017, it now seems like “not much” is happening. Of course there’s a lot happening but as the wife, my initial role of research and dealing with insurance issues has been fulfilled. It feels like a lot of waiting now. Paul has…
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catheters
Anybody here using intermittent catheters?
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3 yrs 2 failed tx.What should I expect
My husband was diagnosed 2016 with gleasonn 7 prostate ca (psa 11)and tx with external beam radiation and inplaqnt seeds.22 2017 bpsa up 22 and pelvic lymph nodes involved.tx increased strength radiatiom and lupron. after tc psa 1.7 2018 psa back up 3.4. we have a bone scan and CT scan ordered for next week and then see…
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Going with Proton Treatment after 3 months of research, consults and tests
After a very short AS (3 months) I started hormone treatment last week at MD Anderson Proton Center in Houston (3 month shot of Lupron and 50 mg Bicalutamide). During that time I was able to read most research and could write a short book on PC. I will have to do 48 Proton treatments with a low dose proton to protect the…
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First PSA Test
My pathology report reflected confined disease. Had surgery February 15, 2018. Lymp nodes clear, seminal vesicles clear, no extraprostatic extension, bladder neck clear, negative margins. Gleason 6/7 4+3 5% tumor volume. Went for first psa test May 16, 2018, which revealed a 0.18. the doctor would like to see me for a…
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Recurrence, PSA on the rise
For two years after Prostatectomy PSA undetectabl, starting third year PSA started a slow rise. Going into the fifth year PSA .29 I have been treated at NIH under a study,you cannot get better treatment anywhere else. They have made a decision under a new study to start radiation everyday except Saturday and Sunday for a…
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Actually Felt Normal
I was laying down on the couch and I actually felt nothing as far as the urinary tract was concerned. Totally normal. I thought for a second that I had broke something. So I took in 16 ounzes of water just to make sure everything was still working and it was. Today, while I was cleaning up some things, I felt a normal urge…
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Long term side affects of EBRT
well thought I was heading for mono treatment ..until 3 weeks ago...now it’s it’s either surgury which they feel very confident it will be successful..or it’s radiaTion combo ..1 hi dose internal and 25 low dose external.havent had the chance to talk to radiologist yet hsve app on 23rd..anyone know where I can find out…
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5+4=9
My post-op pathology indicated 5+4 Gleason score. (Surgery on 2/12/2018) I have stage T3b and positive magins. I also have Perineural Invasion. My pre-op PSA was 8.0 and after RP is 0.1. I've been reading a lot online and most info seems outdated. However 9 + T3b + PM + Perinueral Invasion seems to equal that I am at very…
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Guards in underwear
Well, I actually tried just a guard in a pair of under armour boxer/jockey underwear. Then I went ouside and staretd getting my camper ready for the beach (clean the awning; clean windows, clean grill). I had no leakage onto my underwear or shorts. I did have leakage into the guard, but it was contained (no pun intended…
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prostrate containment
started a small thread about containment...been seeing surgeons and radiologist,,,have had alot of opinions..2 out of 3 very qualified surgeon tell me i shouldnt have the prosatrate removed..looking at brachytherapy as well as cyberknife....my question is how can one tell if the cancer is really all contained...i know that…
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Post surgery PSA: 0.1 or <0.1 the target?
My post surgery PSA was 0.1. My doctor, who wants me to have follow up radiation, says the magic number is <0.1, that 0.1 says there is something there to measure. I've read other places that >0.1 says there is possibly something there. I'm having another PSA soon but wonder if 0.1 is something to worry about. Because I…
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PSA
Hi everyone, my man is a 3 years Prostate cancer survivor in good health, 64 years old And a wonderful person. Today his GP called him to tell him that his PSA when from 0.01 to 4.0 in 6 months He had his annual physical at the beginning of april and he just got notify of the results today. I’m feeling very upset with him…
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PSA rising 6.2 points in one month
Hey folks I'm new to the forum, I'm 65 diagnosed with Prostate cancer 3 years ago, Gleason score of 8, I've had 43 IMRT treatments, PSA decreased to 0.18, at end of treatment, then began to rise, 3 month intervals 1.6, 2.4, 8.80 and now in one month has gone from 8.80 to 15.0 I've just had a second bone scan and MRI both…
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just saw on TV - new guide lines for prostate cancer screening
seemed to me that PSA should not be chec ked before 55 or after 70 ;; that is what i heard on NBC news.. Seems to me that is what doomed me to stage 4 metastatiic prostate cancer.. i would get medicare and insurance in Kentucky then when i went to Florida for the winter my insurance and medicare didn't work well.. Sp, i…
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How does your treatment change if you find out you have mets
This you may find as a odd question but this is what my Ortho Oncologist asked me. About a year ago after complaining about hip pain After prostate radiation I was refered to a Orthopedic. They he did xrays and said I had atheritis in my hip and I should have it replaced. But said that he wanted me to have a bone scan I…
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non-toxic therapies to consider adding to standard of care
Provided below are some video links below to a presentation by a Stanford trained oncologist and two researcher who have developed overlapping non-toxic therapies that appear promissing. There have been limited clinical testing and a few small trials which indicate that low carbohydrate diets, restricted ketogetic diets in…
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T3 MRI ACTIVE SURVEILLANCE
Just got my MRI results back and this is what was found. 1Moderate BPH and gland enlargement. 2. A couple of small lesions within the left transition zone and left posterior peripheral zone in the mid gland that shows low t2 signal and only subtly restricted diffusion. These are marked in DynaCAD and may correspond to the…
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The prostatic urethra
Will someone please educate me on the prostatic urethra and TURP? This is a membrane that passes from the bladder neck through the prostate, where the ejaculatory ducts and prostatic ducts empty into the membrane, the membrane then joins the urethral membrane at the base of the prostate. But what happens in TURP?... I can…
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Crispr
Did anyone see 60 minutes last night? Anyone on Crispr trials? Looks promising.
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Is it just me?
Going on 8 months since robotic prostatectomy and all is as expected. It hasn't been a picnic and there are still incontinence issues but PSA is still less than .01. The incontinece is improving. Faster at first,but then I never even see the improvement except in retrospect. Three to six weeks will go by and I realize that…
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Prostate cancer Please help
Hello, My dad has been diagnosed with stage one prostate cancer. He has a Gleason score of 7. We are looking at all our options and doing our research. One of our options is MRI Guided Focal Laser Ablation. Has anyone here have that done? If so, could you please tell me your experiences. Dates are important. How long ago…