Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

After surgery. Follow up appointment
My husband is a week out from his robotic radical prostatectomy. It went swimmingly. According to the dr. it was a text book surgery. Now we are just taking it easy waiting for his follow up and the removal of his catheteR. His PSA was 2 at the last doctor visit and his Gleason score was 6. Just nervous for the pathology…
testosterone after treatment for prostate caner
First PSA Test
Well, I got the results of my first PSA test today. I go to see my doctor on August 3. I will be 4 months post RP this July 20th. My Gleason was 4+3=7. For your reading enjoyment and comments, here are the results: PSA, TOTAL <0.1 < OR = 4.0 ng/mL The total PSA value from this assay system is standardized against the WHO…
Need some advice-Update
Hi All: I just wanted to drop in and give an update w.r.t. my dad's situation and I could not find my previous thread, so started a new one. History: Back in March my dad got diagonised with a Gleason Score 4+5=9 PCa. He has taken 2 doses of Degarelix and has been on catheter ever since. Update: Two attempts to remove the…
Cyberknife Treatment side effects
I completed my cyberknife treaments for prostate cancer on Dec. 19, 2016. I had no side effects for 6 weeks until I went in for my first checkup. after having a DRE I developed a rectal issue that has caused problems ever since. The oncologist continues to believe it is caused by a reaction to the substrance injected…
Supplements for the (Finally!) Surrendered
Hi to all you wonderful folks! My spouse was diagnosed 12/2017 with PSA 34 and Gleason 10,with 3 enlarged pelvic lymph nodes. He has locally advanced PCa. He started Casodex and Lupron 2 weeks later. Radiation began in May. He has 8 more sessions of EBRT to go. He is doing very well with ADT and has had minimal side…
Casodex: Taken at Morning or Night?
Greetings, I just started Casodex for the first time yesterday (at 4:00 pm) and I'm curious about the preferred timeframe chosen by others for taking this particular medication? Unlike many other meds, the side effects of a single 50mg daily Casodex tablet seem to persist for me well into the next day, such that they…
Incontinence
What I learned about incontinence and prostate surgery and how to help overcome it, if not prevent it. I was incontinent as a result of prostate surgery. I did not expect this at all from the pre-surgery research I did and from discussions with my doctor and his staff. This is not to say anything went wrong; I am fairly…
High Doses of Testosterone
To All Has any one seen this? Use of extreme high doses of Testosterone and then cutting to extreme low levels of testosterone as a treatment for PCA. It's done in cycles. Testing from John's Hopkins. http://www.telegraph.co.uk/science/2016/11/30/man-cured-prostate-cancer-doctors-shock-tumour-death-testosterone/…
Newly Diagnosed as "High Risk" and Confused Beyond Words
Greetings to All, I am a 66-year old, newly diagnosed "high-risk" prostate cancer patient, that has only just begun the overwhelming research and learning processes associated with this wildly complex disease, and its many forms of potential treatment, based upon ones own unique biopsy/PSA particulars. Hence, I'm posting…
lymphocell
Any of you ever got a lymphocell that had to be drained? Getting one drained now and hope to get drain out July 6. It was pressing on bladder and my incontinence is already better.
Still leaking and now heart issues
It's been 15 months since my prostatectomy/divertiulotomy, and I'm still leaking...sometimes a little, sometimes a lot. As a result, I still wear diapers. I guess I'm to the point that wearing a diaper isn't that bad. I'm even not as embarrassed/anxious beeing seen in one by any nurses or doctors. Now, however, I've been…
Update from Graycloud - almost 5 months post surgery
Hey everyone: It's been awhile since I've posted on my husband' progress. In a nutshell, he's doing fantastic! We just got back from a 3 week trip to Europe - walking miles everyday through 7 countries! You would never know he had surgery less than 5 months before we started this vacation. He packed his suitcase prepared…
stable psa with t-level drop
I am pretty much symptom free. No pain, fully continent and physically active. Follow up PSA's are good (see below). My last t-level has dropped from 311 to 202. I have no low t symptoms at this time. Pretty normal sex drive for a 71 year old (I think) but a 33% drop seems a little strange. I would appreciate any feedback…
Signet Ring Cell Cancer~~ HELP!
My father was diagnosed Friday with prostate cancer. Needless to say I am devastated and desperately seeking information. I will tell you what I know and excuse me if I am not speaking same language, but this is new to me. Learning as quickly as I can!!! Some background... he has been going regularly to same urologist for…
Biopsy – Concerns with lack of information from doctor
During my regularly scheduled physical exam as a fire fighter, the doctor found a nodule on my prostate during a DRE and referred me to an urologist. My PSA is 0.3 for three consecutive years, but he felt a follow up with an urologist was warranted. The first urologist did a DRE and based on my age (56) and lack of family…
hair lose
I had radition treatment and lost the hairs in my private area will it grow back
New Member Intro & Question
i was diagnosed with PC in 2016. Initially found during my annual physical where my PSA had risen to 5.7 from 4.2 in one year. (I should note my PSAs were always high because I’m a former competitive bicycle racer, however my year on year increases had never exceeded 0.1 - 0.2. No nodules on the prostate could be felt…
Shocking PSA = 30
Dear all, I'm writing in a state of shock and something very close to desperation. I am not the actual sufferer of prostate cancer, it's my husband who got these results: PSA = 30, Gleason = 7, no methastasis, no evidence of dispersion to any organ, bones included, according to computed tomography and other scannings. PSA…
Anyone on Myrbetriq?
Since I have chosen to go with AS for the time being to treat my PCa, I still have the problems associated with BPH to deal with. I have been taking Flomax for about 8 months now and it seems to help, but because my urge is so sudden and strong, my urologist thinks I may have an overactive bladder as well. She said there…
Vaxil Immunotherapy
Hi al Has anyone heard about Vaxil, the Isreali company? They have been doing trials in immunotherapy for cancer the reports say look promising. It seemed they got scepticism a few yeas ago for showing positive results too early in the trials, then fairly recently the trials showed very odd results then they say 6 years to…
Conflicting Pathology Reports
I have a call into John Hopkins to discuss an interesting situation. John Hopkins did a second opinion of my biopsy slides confirming a 3+4=7 and increasing the percentage from 15% to 20% from my Santa Fe Pathology Report. However the MD Anderson Proton Center Oncologist is adamant that it is a 4+3=7 based on their…
After radiation
Having hard time understanding. After proton and brachytherapy, 3 month follow psa is 74ng/ml. The prostate was nearly 100% covered in cancer, so even with micrometasis you'd think a lot of cancer was killed, therefore psa would drop quite a bit, just like surgery would debulk most of it. Guess I need help understanding…
radium 223 and zytiga
I have been checking the use of aberatoron (zytiga) and radium 223 together, looks like it might be a fit for me and I might hang around a little longer.. Of course the cost would probably be to high.. oh well, so it goes ! ;~}
Is Treatment Delay Harmful?
An MRI last month showed I have prostate cancer. A fusion biopsy requiring general anesthesia was scheduled, but I had a TIA (blood clot in vessel leading to eye) a week before. Due to anesthesia concerns--general anesthesia shortly after a stroke increases the risk of a recurrent stroke--the biopsy has been delayed 3…
Casodex monotherapy
I have been successfully treating my cancer with Casodex (bicalutemide) monotherapy 50 mg daily for four years. I'm on intermittent treatment two months on, three months off. however, I have now reached the stage where the cancer mutates and apparently feeds off the drug. So I have stopped taking it and instead of PSA…
Your thoughts about Total HIFU treatment as a viable option
I am finally at the place in my journey from being diagnosed in 2011 with prostate cancer to where I will be making a decision about treatment. I would like to know where to go to find out the best treatment centers (Stanford?) and where I might find the best research on long term survival. I understand that it is…
52 Year Old - 5.9 PSA
Hi, 52 year old. Recently told by my urologist that my PSA is 5.9. Said I should wait 2 to 3 weeks and get retested. Do no ejaculate for 48 hours. Of course I am royalling freaking out and just know it’s cancer. Blood was drawn on Tuesday, June 12th at 8:30AM. I had had sex on Friday evening and again late Saturday night,…
Prostrate cancer and Multiple Sclerosis
I have been recently diagnosed with Prostrate Cancer and I am 67 years old. I also have MS. I was diagnosed with MS 4 years ago. In doing my research on what is the best way to treat my Cancer, I ask how does MS effect the choice of treatment. I have not been able to get a satisfactory responce to my question. So here I am…
Surgery 3.9.2018 - My story - New Video 23 hours later
------------- Video added 6.19.2018 https://youtu.be/VT5ThDnq0Kk March 2018: I'm a normal Kansas guy employed as a barber. 5'10" 210 pounds...I drink beer, eat beef jerky, pickled eggs and I can walk 2 miles no problem. So pretty much I'm a normal midwest fellow. I'm 59 and my PSA had bounced to 4.0. Gleason 4+3 on biopsy.…

Prostate Cancer

Discussion List

Discussion Boards