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Chemo
Gleason 9 , proton , brachytherapy failure. Where do I go from here, more scans, more money, chemo, hormone therapy with chemo? The way I see it I'll never get my life back, so how far should a person be willing to take it. I don't wanna leave my wife with a pile of debt either. I just don't have the answers, at age 41 I'm…
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Increasing PSA after RP/SR
Been a while since I have been here, so hello again to the group - VG, Max, et al. RP in 2016 after PSA 22, 4+3. PSA detectable a few months after surgery, had SR (37 fractions up to 70 GY) at PSA 1.0 with 6 months of Firmagon. Testosterone and PSA undetectable starting a few weeks into Firmagon and for about 6 months…
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My MRI Results Are In
I jest received my MRI results. Can someone PLEASE help me understand? What's good and bad about what you see here? "FINDINGS": "please note diffusion imaging is limited at the mid glad and apex due to artifact from adjacent bowel gas" THE PROSTATE GLAND overall size prostate dimensions = 4.7 X 3.5 X 4.3cm {maximum…
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Scans?
Gleason 9, proton, brachytherapy, failure. First follow up psa was 74, 3 months later it is 132. Started casodex and pc spes. See Dr Tuesday to discuss lupron and possible chemo. Is there a reason for more scans, we know it's in bone because of my increasing pain, sometimes severe but not always. Any benefit to having more…
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Very Concerned
Good Evening... I just recieved the results of my MRI....my prostate is 110ml....apparently thats pretty large - they also detected some lesions. My PSA is 11.8 and has been rising the past few years. Im 58 years old. I had a biopsy 4 years ago which was negative....doctor wants to do another. My unexperienced brain tells…
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use of hemp (Rick Simpson) oil
I have come to learn about the sometimes miraculous results in treaating cancer with hemp oil. I started a regimen about 2 weeks ago. I am interested to know if anyone has heard of hemp oil as a treatment or better yet, if anyone has used it./ What were the results?
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weight gain
I have gained about 7 lbs. since my prostatectomy 18 months ago. Is that normal? I haven't changed my diet. Eat about the same amount, and exercise. I believe that I have read somewhere that weight gain can occur after a prostatectomy, but don't know why. I am also experiences some heart issues. Could that be a reason?…
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Blood in seaman 4 months after radiation
Hello I had prostate radiation treatment for 8 weeks ended in May, I was not having any blood in seaman until now 4 months out I am experiecning a more than normal amout of blood in seaman. has anybody else had this problem there is so much to read about this but no articles really get to the cause. seems like a lot of…
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I now have another cancer
I've posted this in a couple of other prostate forums, so forgive me if I repeat myself. This has all happened just within the past month. My GP ordered a CT scan three weeks ago because my pancreatic enzymes were off. The CT revealed a golf ball sized mass in the small bowel mesentary, which is a structure within the…
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PSA result came back with 0.2 ng/ml - 3.5 year after RP
I went through RP (DaVinci robotic surgery) in October 2014. I was diagnosed with PC after biopsy results. at the time (Sept 2014): PSA= 5.2, positive biospsy cores: 3, T grade: T1c, Gleason score: 3+4 /3+3. PSA has remained <0.1 since the surgery. Update added the following PSA history. * 4/28/16 * <0.1 * 4/28/17 * 0.1 *…
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Need answers from others in same situation ....
Hello all, I had prostatectomy in Sept 2015. The surgery lasted over 5 hours; the "normal" is about 3. After release from the hospital, I of course had to use the Foley catheter. As of this writing , I still am using the Foley, because (1) there is scar tissue in the bladder (2) I have issues breathing so the urologist is…
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Path report & Robotic Surgery - help please?
Age 70. From the recent prostate biopsies: * acinar adenocrcinoma * involving five of seven biopsy sites * highest Gleason ISUP grade group 3, GleasonSscore 4 + 3 = 7 * ISUP group 2, Gleason Score 3 + 4 = 7 * perineural infiltration present Tumour from 60%, 75%, 80% and 95% of the core tissue removed. Also, comment, 'No…
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AMS800
An earlier thread posted some of my history dealing with the aftermath of Prostate Cancer Surgery. After living ten years (age 71 - 81) with <.01 PSA I decided to explore an artificial system to eliminate or slow gravitational drippage using 2.3 Depends Pads per day. The head of Urology at U.C.Med-Davis, in Sacramento…
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In and Out RARP
I was in preop at 3:00 last Tuesday afternoon and was home by 6:00 Thursday evening. I live 22 miles from MDA Houston. I am just now starting to believe they sent me home so quickly. I meet with the surgeon this Thursday for a Cystogram and hopefully removal of the two catheters implemented. The wound catheter drainage is…
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Firmagon and the libido
Has anyone had an experience similar to mine? I have had a prostatectomy in which both nerves were cut and I have been on Firmagon for five months now but my libido in my head continues unabated; I still look at women in the street, I want to have sexual intercourse with my wife, etc. Bizarrely I still have intense erotic…
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anyone stop treatment with Gleason of 9 after long term
I have been treated with hormones and phosphates for 14 years after a radical prostectomy found cancer cells in my lymph nodes and gleason of nine. I was also treated with radiation. My psa has remained at less than 0.1! Its been recomended that I stop the hormone and phosphate treatment. I would like to hear from anyone…
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7 months post surgery....test in 30 days...fear is creeping back
His surgry was 1/30/18, he's is continuing to do great! It's been an amazing recovery process for him. Thankful beyond measure. We're 30 days away from having his follow up testing at Memorial Sloan Kettering in NY. Last visit was March - tests were great. Do you start having the "unknown" fear creeping back right before…
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Anyone ever returned to normal after EBR
I am worried sick that I will never ever regain the strength I had before EBR ...I was a jogger and want to know if I will ever be able to jog again
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Aching testicles, anyone?
Hi, my partner, Bob has been diagnosed with prostate cancer. He has had a bone scan (results not known yet) and he has an appointment with an oncologist on April 27. Bob had his ultra-sound and about 10 samples taken for biopsy on March 9. I'm not sure how long after that that his testicles started aching. Not every day,…
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Latest psa post prostate removal
I just received my latest Psa results and I guess I need to know whether to start worrying. My prostate was removed last October. My first Psa in January was <0.02. My second test in April was again <0.02. In July, my Doctor ordered the wrong Psa test, which came back <.1. He had me take another last week which came back…
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update
Prior discussions the new guy - a candidate 26 Oct 2016 first contact 30 Oct 2016 initial resistance 9 Nov 2016 Primary tabs 1.5T vs 3 T mp-MRI rationale 4 Dec 2016 I did get an insured 3T mpMRI in 2016. It came out PIRADS 3. I could not get a fusion biopsy. I waited for a brand new fusion biopsy option that did not arrive…
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Anyway to delete old posts
I see that some posts are gone to hsve been deleted ..I would like to delete old posts if I can
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PSA numbers
Do PSA numbers ever go down without treatment? My I had a biopsy in April. 12 cores - 4 with various staged of inflamation, 1 with HGPIN, 1 with ASAP and 6 benign. The pathology report also stated that it was "highly suspicious for adenocarcinoma." My PSA at the time was 4.27. I'm a 64 year old man.
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Gleason Score 9 PSA 24
Help with info on newly diagnosed with PC in May '18. Husband's PSA is 24 - GS is 9. Bone Scan and MRI have Stage 4 on them as it has metastisised to the bone/anterial wall of the rectum/seminal visicles/thorasic spine. Immediatley went on Lupron and Casodex. One month later PSA dropped to 7! Additional 6 month Lupron…
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Dating/Intimacy
Hi everyone...I am an 8 year Prostate Cancer survivor...I am proud and thankful to the High Heavens for that...I finally started dating ater all this time...so...how do you tell someone you had it...and that you have ED because of it...? I have not been able to get an erection since my surgery...not that I've…
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bone fractures
Hello, all! My dad was diagnosed in October after a spine fracture sent him to the ER, caused by bone metastasis. Surgery and radiation on the spine eliminated the pain. Last week, discovered a stress fracture in the hip. No surgery recommended, 15 rounds of radiation ordered. He is on quarterly Lupron and daily Casodex.…
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Should I be concerned....
RRP in August 2005 by Alan Partin at Johns Hopkins. 4+3 Gleason, T2b with no spread. PSA undetectable for 13 years since RRP, using same lab each time. However, in Fen 2018, PSA registered <.04 so local urologist in SC wanted to retake again in 6 months. Test was earlier this week and now it registers <.05. I realize <.05…
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What next?????
Would like to hear comments, suggestions, advices, could do, should do things? I was not fortunate enough in my recovery after RP. At almost 21 months post RP, I still did not experience any sign of spontaneous response from my penis. Still using Cialis, Viagra, VED and BIMIX, normally not at the same time. BIMIX is also…
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Radiation Therapy and Travel
Hi: My dad is undergoing 33 sessions of Radiation Therapy (he is on his 25th session as of today) in India. So far he says he doesn't have any side effects during RT. The thing is, my wife and I are expecting our second kid anytime next month and my parents want to come here (US) during that time. We would love to have…
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Hello just diagnosed and very frightened
I was just diagnosed Thursday by my urologist . PSA 7.8 ..had 5.5 for many years with 3 biopsy’s and were all good. This last one not sooo good.2 out of 12 showed some cancer .thsts all I know until I see the specialist next Thursday.thoughmy urologist did give me encouragement saying we caught it very early whatever that…