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My MRI/Ultrasound Fusion Targeted Biopsy Experience
hello, good people. i would like to share with you my MRI/Ultrasound fusion targeted biopsy experience. as some of you may know, there were three lesions found on my prostate during my 3T mpMRI. one was a PI-RADS 4 and the other two were a PI-RADS 3. well, my uro recommended i have a MRI/Ultrasound fusion targeted biopsy.…
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Rising PSA
I amlooking for some advise from someone who may have experienced what I am going through. I had Prostate Surgery in March of 2001. Clean Margins and no Lympth none involvement, but Gleason 8. My PSA has been 0.1 until this July when it rose to 0.3. My doctor told me to wait and test gain in 3 months. If still rising he…
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Prostate cancer SRT+ADT combo for how long post biochemical recurrence after RP
There is a previous thread that begins this journey. For full backstory please see the following: https://csn.cancer.org/node/303384? Current status: Diagnosed Pca in 2016, PSA 23, Gleason 5+3=8, no metastasis to lymph node and bones. Neoadjuvant ADT for 1.5 months then underwent Radical Prostatectomy: "Pathology: 4+4=8,…
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My PSA Is 18.67, Deciding Treatment
thursday, i went to meet with my radio onc. he told me that i was his most knowledgeable patient in the area of PCa he's had in a long time. i attribute that to all of you who've been a huge help to me. so, anyhow, i went to discuss radiation therapy in more detail, esp. after i told him john epstein downgraded my PSA to…
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My Happy Story
My name is Guy. 59 years old and I am 6 treatments away from finishing my 20 Radiation Visits. My first visit was strange. One of the three machines was not working and their were a few people not so happy. This was a little bit much for me. One hour delay, full waiting room and a cart that had very little to offer. My…
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WHICH COMES FIRST WHEN PROSTATE CANCER HAS SPREAD ?
Which usually comes first when prostate cancer has spread: a fast, high-rising PSA or pain at the site where the cancer has spread?
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Overwhelmed and feeling like I am missing something
My husband is 63 and was diagnosed with PC in March with a PSA of 408.3 and Gleason 9. It has metastasized to lymph nodes & bones. A colonoscopy is needed because a mass was found during the prostate exam & is scheduled later this month and an appointment with MD Anderson for a second opinion will be after that…
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Enlarged Prostate after brachytherapy
I had brachytherapy 7 years ago, psa results every 6 months showing .001 score, excellent. Recently I had urinary problems and had a cystocopy done in which the urologist removed a stricture going into my bladder and all is good now. He advised me that my prostrate was enlarged and put my on Proscar to help shrink it. I…
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bacterial correlation and connection, "marker"?
I came across this potential bacterial "marker" with other biological aspects, so I'm noting the papers. B193 Propionibacterium acnes infection of the prostate gland as a risk-factor and biomarker of prostate cancer. Andrew McDowell…
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My Laparoscopic removal story
Don't fret about getting it removed. Just do it. In and out of KU Med in 23 hours. Dr. William Parker. Margins clear. Only compaint was that dam catheter I had to run for 10 days. November 2014 - 1.81 November 2915 - 2.32 November 2016 - 2.95 November 2017 - 3.23 December 2017 - 4.11 January 2018 - 3.99 Surgery Feburary…
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Father with PSA 477.4 ng/ml
t3zureislnz Posts: 1 Joined: Mar 2019 Mar 28, 2019 - 1:19 am Father with PSA 477.4 ng/ml and Gleason 3+4=7 Been researching since I saw my father’s dxs couple of days ago. He has nuclear med appt nextweek and CT Scan the week after. We’re all in shock bec my father is healthy, does not smoke, drink and no other vices.…
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I'm still alive ,, with stage 4 metastatic prostate cancer
Dx'd Jan 2017 !! did a round of docetaxtal ,, PSA from 550 to 76 --- PSA now at 17.6 after a year of zitiga !! I have many good days ,, all i have to say after a couple of years with the bandit is keep on truckin..
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Wow you can’t trust doctors
most of you know my story ..I opted for combo radiation treatment instead of surgery ...which I regret now very much ...too many drs with too many opinions...that was my biggest mistake ...along with having a fear of surgery which didnt help ....anyway things are getting better starting to deal with it better and then…
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Retrograde ejaculation
I had surgery Feb 2019 I had a partial prostate removal I know this might sound petty but I did not have any issue except retrograde ejaculation how long does it take to get use to the feeling is the same I just miss the end am I the only one that feels this way
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Prostate cancer treatment trial uses gold nanoparticles
Interesting clinical trial taking place. https://www.tmc.edu/news/2019/04/prostate-cancer-treatment-trial-uses-gold-nanoparticles/
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Jevtana
Hi all, We found out that xtandi has failed and my dad's PSA has risen from 16 to 44 within two weeks. The oncologist has said we're now headed to jevtana. We meet with the oncologist wed and dad will also start first treatment with jevtana. After all the research and discussions it appears we are at the end. My heart is…
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AUS
could anyone recommend a name of a skilled surgeon at Cleveland Clinic who performs the artificial urinary sphincter procedure, it would be appreciated, I am at last beginning the process and it would be comforting to have a recommended name from someone who has gone through the same procedure. Thanks.
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For my spouse
My husband was a frequent user of the forum. He was initially diagnosed with prostate cancer in November 2010. Gleason 9, most cores positive with cancer --initial PSA 59, Negative bone scans. He stopped using the forum when he became severely disabled from MS. I used to read his posts and the replies. He made many friends…
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Recently diagnosed - questions about treatment
Hello, I'm new to the prostate cancer forum and would like to start out by thanking all the members here for their kindness and generosity in helping out so many in need. I was recently diagnosed with prostate cancer. I'm 61, don't smoke, don't drink, eat a healthy diet, get a moderate amount of exercise and maybe about 10…
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Study the Survivors
Nice editorial in Nature this week on the need to study cancer survivors https://www.nature.com/articles/d41586-019-01095-9 Here is a little if the link doesn't give you access When Gregory Aune was 16, he wasn’t particularly concerned about the lasting effects of the drugs and radiation that he was given to treat his…
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Penile Length After Surgery
Boy I bet that is an attention grabber...seriously, I have read a few post on this subject and according to Dr. William J. Catalona about Penile Length after Surgery …In connecting the bladder to the urethra, there often is some retraction of the penis, but the true length of the penis is unchanged. No penile tissue is…
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Am I opening a new chapter?
Hello friends, For those of you who do not recognize me, I am 91 years old and a 26-year prostate cancer sur4vivor. I had radical prostectomy in 1991, underwent radiation treatments in 2005, and went on hormone treatment in 2008. My annual PSA readings were undetectible (<0.1) in 2009 through 2015. The undetectible symbol…
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What's next?!?
Hi all, Just curious if anyone can give any additional insight to my dad's treatment. He has now failed zytiga and xtandi. We went to a new oncologist last week and was told we are at the end of options. The oncologist mentioned Provenge but from my research I do not think my dad is a candidate as he is taking oxycodone…
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Back to work blues
So the dreaded moment came and I had to start back to work after six months off. I have to pay the bills but as with many places I have worked the new place is a bit of a childrens playground (gossip, cliques, etc.). Sadly a permanent job as I need the benefits but it takes a lot out of me dealing with it. This plus the…
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Testosterone rise rate after stopping HT (Firmagon)
I had temporary ADT during IMRT Radiation, 3 months. Anyone know how long it takes for Testosterone level to go back up. Cant find anything on this here or on the web. Even Firmagon company (Ferring Pharma) cant tell me. I know its different with each person, but some ball park idea would be helpful. I've had enough of no…
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From a friend at UCSF who is a cancer scientist
Here is some information on celastrol---I have looked at it for brain cancer and got very good observations--- Abstract Background: Treatment failure of prostate cancer (PCa) is often due to bone metastasis. Celastrol, an active constituent of Tripterygium wilfordii roots, has shown anti-tumor effects in previous studies…
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PSA doubling time
i found a chart and tried to post it here, but it was too large. Here is the link — http://urology.jhu.edu/newsletter/prostate_cancer52.php As a 20 year survivor after a Radical Prostate operation my interest is in what future treatment I should consider as my PSA level has slowly increased in recent years. MD’s and I are…
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True Beam Radiotherapy System
Has anybody heard of or is familiar with the True Beam Radiotherapy System? A Cancer center in my area is installing this $4.5 million dollar machine and stressing this as a new extremely safe and offers pin point accuracy for treating cancer.
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Zytiga for Stage 4
Hello, I have posted before, I apologize for not finding my thread to continue on with . I think it's been at least a year since Ive posted. My partner was diagnosed with Stage 4 in 2016 . Has done the chemo, then had quintuple heart bypass, then had a large part of his jaw removed from I believe the drug given to help…
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Looking for hope in similar situation with parent (new to forums)
Hi there, First off I'm so appreciative of any one taking the time to read this and offer their thoughts or similar experiences - it really means a lot. My Dad was diagnosed just last Oct. 2018 with prostate cancer. I scoured through these boards then and reading other's stories really helped. But a recent setback with my…