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Prostate Cancer

Just Diagnosed with Prostate Cancer
I just came back from the doctors today and my biopsy shows I have prostate cancer. My PSA is at 9, but my gleason scores came in at 6,8 and 9. Getting a CT scan and Bone Scan to determine if it has spread. I have not any any issues nor has my PSA been above 4 prior to last October when it came in at 6, the 7 and now 9. No…
Allergic reaction to xtandi?
Has anyone experienced an allergic reaction to Xtandi? My dad has broke with with a rash/hives.
Metastatic prostate cancer
My 82 year if father had a psa test that came back at 49.2 and doctor ordered a bone scan . The bone scan showed that the prostate cancer cells have spread into his hips , legs, arms , spine , he has him scheduled to see an oncologist and urologist . Has anyone else ever experienced this that can share some knowledge or…
Zoloft for Anxiety and Depression?
Hi all, Background: diagnosed 2009 with Gleason 3+4, PSA 89, one affected lymph node. No bone mets. I did 42 sessions of IMRT and hormone therapy (Degarelix for 6 months and Vantas for 2 years). PSA hovered around 0.2 until late 2015 when it started climbing. I started Zoladex and Casodex in mid-2016 and have been on…
3 months post op RP. My thoughts and concerns.
Hello all. My story. I had a younger brother that passed away at 55 from prostate cancer. I was 57 at the time. Even though my doctor was monitoring my PSA yearly, I requested more frequent checks. He agreed, and sure enough, my PSA started to slowly rise when I turned 60. Continued every 6 month checks, then when it hit…
Post suprapubic prostate
I am new and have a few questions 1 month post surgery I had prostate surgery for bph no cancer found The doc did not remove all my prostate but about 80% to what I was tol. i had no Ed thank God but have retrogrmade ejaculation. It feels way better and last way longer is Retrograde temporary or permanen. I am still…
Eligard Hormone Treatments
Hello, after prostate surgery i underwent Radiation and hormone treatments. The hormone was Eligard, injected every 6 months for 2 years. my last and final injection was August 1, we are in mid March and i feel still tired, i used to be a fast runner (60 years old) and now i can hardly jog. I would like to know from those…
Enzalutamide
Hi everyone, Can't find my previous posts. But to summarize quickly my husband has Psa 28, has been diagnosed with prostrate cancer. JC Ca prostate T3N1M1, and he's been diagnosed as recently having secondary cancer in the bones. He has been recieving Firmagon injections every month and his PSA went down to 3 but now…
Low Gleason, not aggressive, mets to bone?
Hello, new here. I am 53 years old and in June I had my yearly check up and found to have a PSA blood test of 5.56. Was refered to a urologist and she wanted to do a biopsy. This biopsy showed 1 of 12 cores positive with a gleason score of 3+3 .... After finding this out I went to my doctor again to keep him up to date. Me…
Radiology and Medical Oncology Doctors
hello, good people. on wednesday, march 20th, i go to see a dr. bruce hershatter. he's a doctor of radiation. to be very honest, i trust the forums much more than a lot of these so-called "doctor review" web sites. my question to you is what are YOUR thoughts on, dr. hershatter? yesterday, i call'd to schedule an appt.…
PSA Different Standards
Good Evening Gentlemen, I'm 61, non-tobacco user, non-drinker, retired military (had exams every 3-4 years), PSA levels always below 2.4, diagnosed with BPH about 4 years ago and no family history of prostate cancer. In March 2018, I had my annual exam with my urologist. Results were tPSA 7.9, fPSA 2.3, %PSA 29. He put me…
Test for NSD2 Gene
Oncotype DX has informed me they have no plans to incorporate the NSD2 gene into their 17 gene assay anytime soon. This link tells of the importance of this gene in a study published by Rutgers University.…
Energy Loss
Hi hopefully your all doing OK I recently had a major Pancreatitis attack,, They were dumbfounded of the cause and assume its the cancer that is all throughout my abdomen.,, Now Im on a no fat diet between that and the 35mg of pain meds I take.. I was told before the cancer feeds off your food intake,, so Im getting much…
Newly diagnosed or about to hsve biopsy check this out ....very informative
https://www.health.harvard.edu/blog/understanding-your-prostate-pathology-report-200903106
Just diagnosed and confused about options
I am 57, just diagnosed, 4 cores with cancer found, 3 with gleason of 6 and one with 7. I simply picked a dr in my plan, and he happens to a robotic surgeon, so his reccomendation was surgery. I have an appt with a cyberknife specialist, and i am guessing he will reccomend that. My concern with cyberknife is there is very…
Treating the prostate gland for metastatic cancer.
A quick update-- My dad has failed Zytiga after a new lesion has shown up in the shoulder blade (diagnosed with bone metastasis, so this isn't a huge surprise), but more curiously, a new tumor visible to MRI has shown up on the prostate after not being able to really ever see one before this (two pre-diagnosis biopsies…
Metformin
Hi everybody, As I am high end prediabetic due to the Firmagon I have managed to get Dr Pooh to put me on metformin with a three month supply of two times 850mg per day to start. I tried the full strength the first day and had a nasty experience so I did a fortnight on half tablets. I have now stepped up to the full monty…
Prostate Cancer Risk Assessment and the UCSF-CAPRA Score
Hi there, This is a method for guessing how long you will live and how likely you are to develop metastases. I get a 10 with a 3% chance of dying in 5 years and a 32 % chance of developing metastases, statistically I am a high risk case but I have personal reasons to believe that I will do better than that.…
Rob Lee
Rob, well known on this Board, is undergoing a procedure today. Keep him in your thoughts! Let him know it.
Use of testosterone to build up uretha for AMS800 Surgery
I went in for an evaluation to see if the AMS800 would be right for me. I had Prostate cancer surgery in 2012 and 3 months later I had to radiation therapy, 44 sessions. I had mild incontinence first and Kigels didn't help but I was getting by on light pads. A year ago, I had a kidney stone and they went in to break it.…
Foundation testing?
My original post about this was lost in the outage, so I'm asking again! My dad will be getting a biopsy on Tuesday of a new tumor in his shoulder blade that showed up on a bone scan a few weeks ago (after a 0.25 then .50 rise in PSA from 1.99) while on Zytiga. The treatment facility (which is excellent, I have been…
liquid biopsy usage
Does anyone have any color on the use of liquid biopsies (e.g. ExoDx IntelliScore) to grade PC post an initial positive needle biopsy? According to my research this technology is not yet accepted pending additional research and testing. I am currently being monitored at MSK under their active surveillance protocol. My PSA…
Outage and Data Loss
EDITED: I initially posted a response based upon emotion, rather than objective thought. Lost 3 months of data?? Very unfortunate and disappointing. What I as a Member would like to know is.................................... More details on what happened? More details on what are you doing to ensure that this does not…
A suggestion to the moderators regarding the data loss
Hi As you can see there have been a few posts expressing discomfort with the the situation and the lack of information. My past experience of such situations is that up front detailed transparancy about the what and why of a problem actually staves off more complaints and bad PR in the ling run than being vague or not…
One Year Update...Thankful!
My husband's surgery was 1/31/18. Fast forward to a year later, and he is doing fantastic! Cancer Free. Best physical shape of his life. Full recovery with very minimal side affects that I feel really aren't side affects! It's amazing to look back at the journey we've been on. I am hopeful this story will help anyone new…
Hard to Believe
Well, in today's times hard to believe 3 months of current data could be loss. Obviously, there is a single point of failure that was not identified. Hopefully this short coming will be corrected. Looks like our site was not being backed up for whatever reason for 3 months. This in itself may be another issue. Best case,…
Backup or disc failure
Hi Everybody Dusting off and putting on my IT Manglers hat it looks like they suffered a back up, disc failure or similar catastrophe so they had to go back to the last back up or the last good back up. Hopefully they have improved their back up policy. Horrors like this happen in IT from time to time. I saw a branch of a…
A suggestion to all forum members regarding the data loss
Hi all What is done is done regarding the actual loss of data. It may well never be recoverable. May I suggest a way to go forward sor us all is to post a snapshot of your history, current situation and open challenges / questions in your existing post or create a new one. That will help to bring focus back to the here and…
Disappointing
This is so disappointing! Of the three prostate cancer forums that I have been watching, this one has been the worst from a SOFTWARE viewpoint. Really a shame on the American Cancer Society! And now this loss of three months of data. Personally, I doubt I will be back. Wishing my colleagues all the best in their lives and…
prostate cancer DX January 2017 stage 4 metastatic
well looks like it's comming up on January 2019 and average life according to the doc that i dropped was 2 !/2 years.. ****, am I running out of time.. iv'e had a round of chemo and xgeva, lupron and that ended fall of 2017 and my PSA went from 550 to 45.. the chemo was not as bad as I had been led to believe, but was not…

Prostate Cancer

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