Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

A suggestion to the moderators regarding the data loss
Hi As you can see there have been a few posts expressing discomfort with the the situation and the lack of information. My past experience of such situations is that up front detailed transparancy about the what and why of a problem actually staves off more complaints and bad PR in the ling run than being vague or not…
One Year Update...Thankful!
My husband's surgery was 1/31/18. Fast forward to a year later, and he is doing fantastic! Cancer Free. Best physical shape of his life. Full recovery with very minimal side affects that I feel really aren't side affects! It's amazing to look back at the journey we've been on. I am hopeful this story will help anyone new…
Hard to Believe
Well, in today's times hard to believe 3 months of current data could be loss. Obviously, there is a single point of failure that was not identified. Hopefully this short coming will be corrected. Looks like our site was not being backed up for whatever reason for 3 months. This in itself may be another issue. Best case,…
Backup or disc failure
Hi Everybody Dusting off and putting on my IT Manglers hat it looks like they suffered a back up, disc failure or similar catastrophe so they had to go back to the last back up or the last good back up. Hopefully they have improved their back up policy. Horrors like this happen in IT from time to time. I saw a branch of a…
A suggestion to all forum members regarding the data loss
Hi all What is done is done regarding the actual loss of data. It may well never be recoverable. May I suggest a way to go forward sor us all is to post a snapshot of your history, current situation and open challenges / questions in your existing post or create a new one. That will help to bring focus back to the here and…
Disappointing
This is so disappointing! Of the three prostate cancer forums that I have been watching, this one has been the worst from a SOFTWARE viewpoint. Really a shame on the American Cancer Society! And now this loss of three months of data. Personally, I doubt I will be back. Wishing my colleagues all the best in their lives and…
prostate cancer DX January 2017 stage 4 metastatic
well looks like it's comming up on January 2019 and average life according to the doc that i dropped was 2 !/2 years.. ****, am I running out of time.. iv'e had a round of chemo and xgeva, lupron and that ended fall of 2017 and my PSA went from 550 to 45.. the chemo was not as bad as I had been led to believe, but was not…
Lupron Injections
Have been on Casodex for a week. Next week I will be having a Lupron injection (my first), prior to going to Europe for three weeks. I have heard that the side effects are not to be taken lightly---brutal it sounds like (hot flashes, irritability, sleeplessness). Can anyone who has done so enlighten me on this? Thank you.
7 Months Post RP
Well, I had my 2nd PSA test on 10/15/2018. The result is <0.1. It is my understanding that <0.1 is undetectable. Smile, I am. PSA, TOTAL <0.1 The total PSA value from this assay system is standardized against the WHO standard. The test result will be approximately 20% lower when compared to the equimolar-standardized total…
Cipro red alert
I have mentioned side effects of ciprofloxacin before, black tongue (temporary) and neuropathy in my feet (permanent). Every time I took it, the neuropathy got a little worse, so eventually I refused to take it anymore. I do occasionally have unexplained muscle tears and ligament damage. I urge everyone to read this lady's…
recently started Erleada
I've had PC for 14 years and aside from the usual incontinence and loss of libido and sexual function my life has been relatively side effect free and good. I've been on lupron for several years and the PSA started to rise in the past 12 months. Dr. tried a suppliment to the Lupron which did not work (scared me) and, now,…
Hormone deprivation and depression
Hello gentleman. I am a concerned wife asking for advice. My husband, age 67, was Dxed prostate cancer (4+3) in Dec 2017. He opted for external radiation/hormone deprivation over 8 weeks, ending early May 2018. He refused the second hormone deprivation shot mid- treatment, because he was feeling very depressed, nearly…
First PSA Test Came Back Elevated
Ok, so I was having problems with painful urination and discomfort in my groin area. As a result, my PCP ordered a PSA and it came back at 5.11. Now, he has referred me to a Urologist that I can't see until late December. Also, he wants me to do a urinalysis. I have been very active this year and dropped almost 70 lbs. I…
Rising PSA
Hi all. I shared a few weeks ago that my husbands PSA was rising. Started at 1550 and over 6 months of tx with Casodex and Lupron came down to 22. then went up to 24, then 26 and yestready was 96. We're trying not to panick but scary to see that big of a jump. Clearly the current meds aren't working and am sure he'll know…
First post
I had my annual physical the day before Independence Day and although all bloodwork was clear and my PSA was 1.4, my doctor noticed some nodules during the digital exam and referred me to a specialist. One month later, (the day after Labor Day) I had a robotic RP by a local urologist and have had an unremarkable recovery…
Prostate surgery and relationships
Diagnosed in February 2018, with surgery in March. Spent a lot of time looking for info pre-surgery, and then reading everything I could find describing what life would/might be like post-surgery. At 7 months out, my doc says I'm doing great and my physical therapist is my biggest cheerleader. Back at work in 3 weeks, and…
Newly diagnosed 47- year old
Hey all, I was diagnosed this week with prostate cancer Intermediate stage. 8 positive cores 3 cores = 7 5 cores = 6 PSA = 4.2 I am flabbergasted, because I had no risk signs. I have been taking Testosterone supplements (very low testosterone in the low 200s since I was 38), which definitely contributed to the early…
Worried over decision
i serioudly don’t think ,my RO was looking after my best interested ...that’s my fsult ..now that I have done all treatments 25 EBR and hdr brachytherapy..I’m physically felling s bit better ....but emotionally a wreck ...very depressed..one haunting dilemnac...lymph node damn it ..my urgeon was going to take a dissection…
PSA 10.50 Free PSA 2.20 as of 8/31/2018 Do I have cancer or prostate enlargement?
2/29/2004 PSA Free PSA Free % Calc 1.9 6/14/2010 3.52 4/29/2013 5.59 H 12/4/2013 6.96 H 6/18/2014 6.93 H 1.55 22% 12/8/2014 8.31 H 1.87 23% 6/10/2015 7.44 H 1.68 23% 12/10/2015 9.07 H 1.81 20% 7/14/2016 7.79 H 1.80 23% 5/19/2017 9,65 H 1.92 20% 12/15/2017 9.52 H 1.87 L 20% L 8/31/2018 10.50 H 2.20 H I am 73 years old from…
Busy 5 days
It' been a busy five days visiting a number of health care professionals. Last Thur. I had a tube placed in my left ear to open up a eustachian tube. Last Fri. I had my 18 month prostatectomy check which was great for the most part. My psa. was undetectable. However, because of my history of poor bladder control my…
Enough
First of all I do not want to offend anyone. And respect everyones choices because there is no right or wrong. Some of the knowledge a few of these guys have certainly help alot of people. I myself with metastatic disease at 41 had to do alot of soul searching and spent alot of time to decide my decision. I've decided no…
Experimentation
Well, today is my 6th month post RP. For the last day and night or so, I have been wearing nothing but underwear with no thin shield (please do not take that literally, I am not walking around in just my underwear). I have been wearing gray, blue, green, underwear so that I could easily detect a leak upon visual…
Update
Tuesdays bone scan reads as follows. Findings: interval development of foci of moderate increased uptake bilateral iliac bones, right aspect of sacrum, l1 vertebral body, distal left clavicle, manubrium sterni and right parietal bone, suspicious for metastatic disease, given history of prostate carcinoma. Physiologic…
Decifer test question
So I hsve a question ..let’s discuss this ...why di you really need this test done if your going to do surgery...it seems like all it does is predict any chances of future reoccurance. Why would you want to know that to besides worry about it ...just do the surgery get the path report and move on and hope it’s gone fir…
Space Oar
I went to the UNM Cancer Center for the SpaceOar injection on Monday. This was because my local hospital cancer centre doesn’t do the procedure. If it wasn’t for the 120 miles round-trip drive I would have selected the UNM Cancer Center for my radiation treatment as it was 39 zaps. Similarily if it wasn't 750 miles away I…
Diagnosed with prostate cancer and worried!!!
Dear all, I was diagnosed with prostate cancer a few days ago and my urologist says, after introducing the results of the biopsy, that I need treatment. My last PSA was 5.76 and out of 12 cores, I have 6 cancerous cores. All are grade T2 and their Gleason scale score is 3+3=6. My urologist says all these cores are located…
Please be honest
anyone ever been cured of prostate cancer by the combo treatment of 25 external and 1 hdr internal ...I stil having s tough time dealing with the mistake I did ...I feel like a shell of what I was 4 months ago ....I’m so worried I can’t at all going to see a cancer psychologist hopefully he can shed some light ..he is also…
need imput on hormone therapy
My husband has been diagnosed with prostate cancer. Psa was 25. Dr didnt tell us the Gleason score. His recommended treatment plan is combined therapy of Hormone therapy and radiation. Cancer is contained to the prostate. Bone and ct scan was clear. We are currently getting a second opinion. We would like to know the…
Surgery or Proton therapy? What do you think?
Looking for best treatment option surgery or proton therapy, so far I have completed one consult with a radiation oncologist who suggested I start hormone treatment that day. I didn’t think this was the best idea since I had other consults with two University based cancer centers scheduled. MD Anderson Proton Center has…
Fear is a liar!
Cancer is a physical illness and does not have to be a mental or spiritual illness. I have only been dealing with PC for 1 year and at times I let it darken my spirit and my thinking. I have been selfish and inconsiderate to those around me. I have allowed the disease to take away some of todays because I was worried about…

Prostate Cancer

Discussion List

Discussion Boards