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XTANDI dosage question
Last winter about February I was able to get a GRANT to help pay for my XTANDI medication. I had STAGE THREE PROSTATE CANCER my COUNT WAS 20.9 after a long period of treatments my PROSTATE CANCER came back not long after my treatments stopped. My CANCER specialist prescribed XTANDI for me however it cost with our plan etc…
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Help! On the other end of a prostatectomy and it's all hitting me now.
Condensed Background: Had the procedure on 10/10/19. Post op pathology showed 55% of my prostate was tumor, so this had to be taken care of sooner than later. Now that the procedure is done, working through the recovery piece. Unfortunately I have not taken any time to work through the emotional impact of this whole thing.…
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AMS800 Medic Alert for Medical Personnel
I have worn a medic alert bracelet since getting my first of several AMS 800 systems many years ago. It states “STOP-STOP DO NOT CATH” on the front and lists an 800 number to call for a web site listing all of my health data – including how to lock the unit open before urinary catherization. Recently I had to be ambulance…
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Question about supplements
Prostate cancer is a paradox: Its typically slow growth rate makes it possible to treat if discovered early, but once it has metastasized, it is often lethal. The combination of four widely-recognized cancer-fighting foods, pomegranate, green tea, turmeric, and broccoli, in a single twice-daily pill has now been shown to…
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Question about Post op PSA
My syrgery was on 9/30/ My 6 week post op PSA was undetectable.I have my 2dd 6 week PSA in 1O DAYS. ANYTHING TOworry about? icemantoo
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Question about post RP PSA
I've been on this board sporadically since my diagnosis in Frb 2018, and my RP in March 2018. I am taken aback by what some of the posters have been through, and are continuing to fight. So I'm almost hesitant to post this...... My post RP readings were 0.00 for a few tests, up to 0.01, then back to 0.00 until July of this…
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Just Diagnosed Gleason 8
Hello all, I'm new to the forum and here looking for anything that's going to help me down the road. About a month ago I finally went to go see a Primary Physician after feeling only what i can describe as "off". I'm 48 yo and pretty active and usually felt pretty healthy for the most part. Aches and pains and a slight…
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Dark blood in the semen after cyberknife
Hello, I completed my cyberknife treatments about 16 months ago. After the initial biopsy (before CK), there was dark blood in the semen. Now it has returned. Does anyone have a similar experience with this dark coloring of the semen after CK? My PSA continues to drop (now at 2.09) and no other symptoms to speak of. I…
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Just got my MRI Results. Am I Doing the right thing?
I had the follow up from the advanced MRI I had last week I had Gleason 3-3 cancer show up on the pathology results when I had a TURP this summer. They waited for me to heal before doing the MRI The MRI did not find any lesions/spots to biopsy. (This is good news). It is possible that the MRI, as advanced as it is, missed…
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Graduation
I am 51 months out from my prostatectomy and latest testing shows undetectable PSA. Things are looking good so far. Problem is that I am schedueled for a partial nephrectomy of my right kidney because of a 4.6 cm mass discovered as a result of abnormal levels of liver enzymes. Luckily I will have the same surgeon, who I…
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Docetaxel update!
Dad received his 5th infusion of docetaxel yesterday, but the oncologist has added carboplatin for the remaining cycles. PSA has fallen from 172 at the start of chemo, to 56 at yesterday's blood draw. Platelets, white blood cells, red blood cells, hemoglobin, etc. has all been improving throughout chemo, which has been a…
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Exercises...PRE Surgery
My husband has recently been diagnosed with Prostate Cancer and we have opted to have it totally removed. We have an appointment with MD Anderson here in Houston. He has no symptoms and is in good health. Other than Kegel exercises... are there any other exercises that you would recommend?
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Testosterone supplementation after treatment for prostate cancer
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New Kid on the Block
Greetings from Georgia, Had RP on 8/19/19, got picked off by my GP after my annual physical detected a PSA of a 4.2, had a biopsy 7/3/19 and 5/12 positive Gleason 7 (4+3). 3rd week post op and dealing with incontinence, up to about 6 pads per day, just getting use to my new way of life (TEMP). Doing my Kegels, other than…
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Pain After Surgery
Hi guys. I had surgery about 3 months ago and I'm still feeling some pain and tenderness. The pain is in my stomach muscles, which I expected, but I also I have have pain in what seems to be the bladder area (above my penis and below my bellybutton). But the worst is the tenderness in the perineum area. Whenever I sit…
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How to exercise after Prostate removal
Begin by standing at a comfortable surface where you have plenty of room at each side. With a 5lb. potato bag in each hand, extend your arms straight out from your sides and hold them there as long as you can. Try to reach a full minute and then relax. Each day you will find that you can hold this position a little bit…
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bone tumor after removal, radiation, and hormones
I had prostrate removed 10 years ago. I am 71 years old. Two years ago, I had a hormone shot and prostrate bed radiation. Now, my psa is rising about 1 point every six months (currently 2.0). A recent bone and cat scan has discovered a small tumor on my rib at the center of my back. I have an appointment with my cancer…
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Inguinal Hernia Post RARP
Well, I had my hernia repaired last Thursday. In some cases, hernias can be caused by a RARP. My surgeon was going to see if she could do it laparscopically, but gave me the choice of open surgery also. She told me she had just done a person that had had their RARP about 2 years ago and that when she went in to look, she…
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Looking for EXPERT surgeon @ MD Anderson (Houston)
My husband has just been diagnosed with PC...looking to remove total prostate. Want the BEST surgeon to hopefully have a GREAT outcome. Has anyone had this done at MD Anderson?
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I stopped by for a quick visit.
After 17 years of bf being Cancer free after a nephrectomy, a boopsy showed me with a Gleedon 8/My Uro sent me tp his friend in Orlando, Dr.Patel. Eight weeks later I met Devinci. A much, much easier recovery than Kidney Cancer and an undetectanle PSA after 6 weeks, Back to the Kicney Cancer board heloing the newbies.…
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Husband just diagnosed with PC
My husband was just diagnosed with PC. He was having issues with increasing PSA. DRE’s were all good. Prostate size 34 cc. PSA first check 3 years ago in 2016 was 2.6, 2017 3.5, 2018, 4.1 so he was sent to see urologist. The Dr we saw said no reason not to re-check in 6 months. At the 6 month check up his PSA was 4.73,then…
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Colonostopy one year after radiation treatment
Well it’s been about 14 months since I had external beam and high-dose Breaky therapy. Course I have had all the side effects. Tomorrow I go for a colonoscopy and I must admit I am pretty nervous. Not about the procedure about what they might find. I had three hemorrhoids banded. And anal Fisher. I have not had a decent…
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Three cycles of docetaxel...
Quick update: Dad gets the regular expected chemo side effects, of course, and got one unit of packed red blood cells a few days after the third infusion (which helped with fatigue and pain), and the PSA has fallen from 172 (day of first chemo) to 67 at yesterday's check in. Imaging scheduled for next week. Looks like…
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Genetic testing price
Would like to know if anyone has done genetic testing with Myriad Laboratories and how much it cost without insurance? I appreciate your response. MK
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Update after hormones and radiation
Latest update. I hope this helps some of you with the decision making process. Be happy to answer any questions. Age 68 at diagnosis 2/2009 PSA 4.3 Biopsy negative 2009-2016 PSA climbed from 4 to 6 DRE all negative 2/2016 PSA 7.5 Ultrasound and DRE indicate nodule Biopsy with 6 of 12 cores pos Two 4+3 Four 3+3 5/11/16 Gold…
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Active Surveillance continues; this is the way to go
Hi Fernando and others, I updated my CSN space to include, my lastest Free PSA, PSA and this months targeted biopsy results. I was diagnosed March 09 with a 3+3=6 less than 5% in two cores out of 12 random cores taken. Afterward I entered into a research project where a series of directed biopsies were given; making use of…
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Decisional regrets
Here is one of the best reviews on topic of “decisional regret on prostate treatment by prominent doc. https://www.afr.com/life-and-luxury/health-and-wellness/regret-after-surgery-for-prostate-cancer-is-widely-understated-20160502-gojrg3 MK
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Cyberknife Five Year Update
When I reflect upon my journey since coming to the forum in 2013, it's hard to believe it's been 5 years since I completed SBRT (commonly known as Cyberknife) treatment in 2014. Many years ago, my now 95 year old father would remind me how quickly times passes with every year. And yes...he was right...again!! I've been…
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AUS op my turn
My turn tomorrow for the AUS800 Procedure. I have a good idea what to expect day to day. I was in touch with a member who has just gone through the op and he gave me a day to day which is great, thanks Vince. I’m in at 6.00 am for an 8.00 am start. I am hoping I can get out to return home, but the way here in Canada is an…
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Haven't updated in a while...
Long story short: Dad diagnosed October 2017 with stage 4 PCa with bone metastases. Had a fresh biopsy done in February of this year after "flunking" both Lupron/Casodex, then Zytiga fairly quickly. Immunotherapy trial attempted in April after Foundation Medicine discovered a mutation in the ATM gene. Lots of radiation…