Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Wow you can’t trust doctors
most of you know my story ..I opted for combo radiation treatment instead of surgery ...which I regret now very much ...too many drs with too many opinions...that was my biggest mistake ...along with having a fear of surgery which didnt help ....anyway things are getting better starting to deal with it better and then…
Retrograde ejaculation
I had surgery Feb 2019 I had a partial prostate removal I know this might sound petty but I did not have any issue except retrograde ejaculation how long does it take to get use to the feeling is the same I just miss the end am I the only one that feels this way
Prostate cancer treatment trial uses gold nanoparticles
Interesting clinical trial taking place. https://www.tmc.edu/news/2019/04/prostate-cancer-treatment-trial-uses-gold-nanoparticles/
Jevtana
Hi all, We found out that xtandi has failed and my dad's PSA has risen from 16 to 44 within two weeks. The oncologist has said we're now headed to jevtana. We meet with the oncologist wed and dad will also start first treatment with jevtana. After all the research and discussions it appears we are at the end. My heart is…
AUS
could anyone recommend a name of a skilled surgeon at Cleveland Clinic who performs the artificial urinary sphincter procedure, it would be appreciated, I am at last beginning the process and it would be comforting to have a recommended name from someone who has gone through the same procedure. Thanks.
For my spouse
My husband was a frequent user of the forum. He was initially diagnosed with prostate cancer in November 2010. Gleason 9, most cores positive with cancer --initial PSA 59, Negative bone scans. He stopped using the forum when he became severely disabled from MS. I used to read his posts and the replies. He made many friends…
Recently diagnosed - questions about treatment
Hello, I'm new to the prostate cancer forum and would like to start out by thanking all the members here for their kindness and generosity in helping out so many in need. I was recently diagnosed with prostate cancer. I'm 61, don't smoke, don't drink, eat a healthy diet, get a moderate amount of exercise and maybe about 10…
Study the Survivors
Nice editorial in Nature this week on the need to study cancer survivors https://www.nature.com/articles/d41586-019-01095-9 Here is a little if the link doesn't give you access When Gregory Aune was 16, he wasn’t particularly concerned about the lasting effects of the drugs and radiation that he was given to treat his…
Penile Length After Surgery
Boy I bet that is an attention grabber...seriously, I have read a few post on this subject and according to Dr. William J. Catalona about Penile Length after Surgery …In connecting the bladder to the urethra, there often is some retraction of the penis, but the true length of the penis is unchanged. No penile tissue is…
Am I opening a new chapter?
Hello friends, For those of you who do not recognize me, I am 91 years old and a 26-year prostate cancer sur4vivor. I had radical prostectomy in 1991, underwent radiation treatments in 2005, and went on hormone treatment in 2008. My annual PSA readings were undetectible (<0.1) in 2009 through 2015. The undetectible symbol…
What's next?!?
Hi all, Just curious if anyone can give any additional insight to my dad's treatment. He has now failed zytiga and xtandi. We went to a new oncologist last week and was told we are at the end of options. The oncologist mentioned Provenge but from my research I do not think my dad is a candidate as he is taking oxycodone…
Back to work blues
So the dreaded moment came and I had to start back to work after six months off. I have to pay the bills but as with many places I have worked the new place is a bit of a childrens playground (gossip, cliques, etc.). Sadly a permanent job as I need the benefits but it takes a lot out of me dealing with it. This plus the…
Testosterone rise rate after stopping HT (Firmagon)
I had temporary ADT during IMRT Radiation, 3 months. Anyone know how long it takes for Testosterone level to go back up. Cant find anything on this here or on the web. Even Firmagon company (Ferring Pharma) cant tell me. I know its different with each person, but some ball park idea would be helpful. I've had enough of no…
From a friend at UCSF who is a cancer scientist
Here is some information on celastrol---I have looked at it for brain cancer and got very good observations--- Abstract Background: Treatment failure of prostate cancer (PCa) is often due to bone metastasis. Celastrol, an active constituent of Tripterygium wilfordii roots, has shown anti-tumor effects in previous studies…
PSA doubling time
i found a chart and tried to post it here, but it was too large. Here is the link — http://urology.jhu.edu/newsletter/prostate_cancer52.php As a 20 year survivor after a Radical Prostate operation my interest is in what future treatment I should consider as my PSA level has slowly increased in recent years. MD’s and I are…
True Beam Radiotherapy System
Has anybody heard of or is familiar with the True Beam Radiotherapy System? A Cancer center in my area is installing this $4.5 million dollar machine and stressing this as a new extremely safe and offers pin point accuracy for treating cancer.
Zytiga for Stage 4
Hello, I have posted before, I apologize for not finding my thread to continue on with . I think it's been at least a year since Ive posted. My partner was diagnosed with Stage 4 in 2016 . Has done the chemo, then had quintuple heart bypass, then had a large part of his jaw removed from I believe the drug given to help…
Looking for hope in similar situation with parent (new to forums)
Hi there, First off I'm so appreciative of any one taking the time to read this and offer their thoughts or similar experiences - it really means a lot. My Dad was diagnosed just last Oct. 2018 with prostate cancer. I scoured through these boards then and reading other's stories really helped. But a recent setback with my…
Axumin PET scan-What's Next?
I have been a long-time observer of this forum and decided it is time to become a participant. I was diagnosed with prostate cancer in 2008 at age 51 with a PSA of 6.2. After biopsy, my diagnosis was T1cNoMo, Gleason 7 (4+3). RRP quickly followed. Pathology kept Gleason at 7 (4+3) but stated that some areas were 10. There…
Doubling down on cancer
My first session with cancer was with prostate cancer surery in 2004. Numbers were good for a long time, but last Nov (2018) PSA was 10, chcked again in February and it was 15. OK, so that is the good part. I did not have time to worry about PC, because on February 8th, I had the Whipple procedure done for pancreatic…
First Nuclear Medicine Appt— How to prepare and What to Expect?
My father has his first appt tomorrow. Anyone can share how you prepared for this appt? Any side effects? Thank you
First chemo this week
Dad’s first docetaxel (of 6) is on Wednesday! For you Taxotere veterans— do you have any tips or advice?
Post-Op 1 Year PSA Result
Well, I got the results of my post-op RP 1 year PSA result. My PSA is undetectable. PSA TOTAL <0.1 The total PSA value from this assay system is standardized against the WHO standard. The test result will be approximately 20% lower when compared to the equimolar-standardized total PSA (Beckman Coulter). Comparison of…
Test Results
Just got back from meeting with my surgeon. Went over the test results, from the MRI and Bone Scan, My gleason scores were in the 7,8,9, my PSA high was 9. The positive thing is the tests show that nothing has advanced past the prostate. Doctor felt I was and excellent candidate for prostate surgery. He was concerned that…
PSA Total was 12
Just had a blood test for PSA and it was 12. My PSA free was 9. I have an enlarge prostrate and have had the Joe Theisman sympton for years. On the morning of my lab test I just finished colonoscopy prep and had my colonoscopy after the test. I also had sex two days prior to the PSA test. In 4 weeks I go back for another…
Lupron or Firmagon
I am 57 and had my prostate removed 6.5 years ago...Gleason 7...PROSTATIC ADENOCARCINOMA, GLEASON SCORE 7 (4+3) WITH TERTIARY GLEASON GRADE 5. My margins were clear but less than 0.1. Lymph nodes were negative. I had a PSA test in December and it showed 0.8. Going to MD Anderson and they are recommending 7 weeks of…
Anyone else
still new to here only my second post but I have read a lot one here. On 2/7 I had suprapubic prostate surgery for those not fimilar this is done for bph not cancer they do not remove all the prostate just the internal part through the bladder I have been very lucky to not have Ed or leakage while I am still healing I…
Does this mean advanced PC?
My husband had RP in April 2012 at 57 yrs old. PSA 6. Primary tumor pT3a with perineural invasion present. No positive lymph nodes. Gleason 3+4. May 2012 PSA .104/ Aug. 2012 PSA .112/ Feb. 2013 PSA.197/ May 2013 PSA .284 From May-Aug 2013 Salvage Radiation End of Aug. 2013 PSA .186/ Nov. 2013 PSA .119/ Feb. 2014 PSA .108 /…
What Do You Do When Your 2nd Opinion Is Different From Your First
i have a question i'd like to ask. what do you do when your second opinion is different from your first. i sent in a request for my pathology report to john epstein at john hopkins. today i received the results and here's what was written: A. benign fibromuscular tissue. B. PROSTATIC ADENOCARCINOMA, GLEASON SCORE 3+3=6…
Fatigue Prior to Treatment
Hello Everyone-- Glad to find this forum. So many of you are helpfully candid and encouraging, which is welcome support when one is faced with this kind of thing. Diagnosed this month with PC---PSA 6.3, MRI showed lesion, biopsy confirmed two areas of adenocarcinoma. MY PSA level has been gradually rising for around 4…

Prostate Cancer

Discussion List

Discussion Boards