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Correlations
There seems to be a correlation that should be brought to everyone's attention... though it may be nothing or something. And that is the length lost versus the size of the prostate. In my case, people seem a bit incredulous when I insist I lost two inches off my business length when the prostate was removed during Da Vinci…
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What questions to ask.
My 3000 posts are mainly from the Kidney Cancer board where I am an almost 17 year survivor and mentor the newbies. At age 75 my PSA is 6.5 and has been going up from about 3 to 6.5 in the last 5 years. I have BPH and I am having a retest on my PSA in 90 days. I have had some blood work which pruports to show I am not a…
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Diagnosed with Prostate Cancer, Gleason 6
Hi- After getting two successive high PSA results within a short time (a 4.7 and then a 5.5 about 3 months later), I had a prostate biopsy done and received a Gleason 6 score with six of the fourteen cores showing positive. I'm 59 years old. In googling information for 'Gleason 6' on-line, I see that there is a bit of…
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Metastasized Prostate Cancer
My husband had prostatectomy surgery with 2 lymph nodes removed in October 2018. The margins and frozen sections were clear and subsequent PSA tests are undetectable. He recently went for routine eye exam and a lesion was noticed in eye, but he had no symptoms of any kind. After MRI of brain, there were numerous areas of…
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any side effects from radiation that would complicate type1 diabetes
Recently diagnosed with Prostate cancer Gleason 3+3 6 4 out of 10 core positive. Looking into Cyberknife, my urologist recomended surgery. I have had type ! diabetes for 40 years, and wondering if any treatment would be worse for Diabetics? Thanks for any input. Mike
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Transitioning from alternative medicine to hormone therapy - advice, experience?
Hello-- I've been pursuing alternative treatment with naturopaths for more than two years with little success and am likely switching to conventional hormone therapy. DETAILS: PSA was 5 in 2014, not too concerned as the guy who invented the PSA test now recommends it not be used at all. Focused on other health issues,…
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Second Opinion Questions
When people refer to "getting a second opinion" what are they typically referring to? Are they suggesting getting another biopsy, having a biopsy that has already been done read by a different pathologist, or getting a different opinion on recommended treatment? Do labs usually keep the biopsy slides? How long are they…
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My MRI/Ultrasound Fusion Targeted Biopsy Experience
hello, good people. i would like to share with you my MRI/Ultrasound fusion targeted biopsy experience. as some of you may know, there were three lesions found on my prostate during my 3T mpMRI. one was a PI-RADS 4 and the other two were a PI-RADS 3. well, my uro recommended i have a MRI/Ultrasound fusion targeted biopsy.…
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Rising PSA
I amlooking for some advise from someone who may have experienced what I am going through. I had Prostate Surgery in March of 2001. Clean Margins and no Lympth none involvement, but Gleason 8. My PSA has been 0.1 until this July when it rose to 0.3. My doctor told me to wait and test gain in 3 months. If still rising he…
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Prostate cancer SRT+ADT combo for how long post biochemical recurrence after RP
There is a previous thread that begins this journey. For full backstory please see the following: https://csn.cancer.org/node/303384? Current status: Diagnosed Pca in 2016, PSA 23, Gleason 5+3=8, no metastasis to lymph node and bones. Neoadjuvant ADT for 1.5 months then underwent Radical Prostatectomy: "Pathology: 4+4=8,…
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My PSA Is 18.67, Deciding Treatment
thursday, i went to meet with my radio onc. he told me that i was his most knowledgeable patient in the area of PCa he's had in a long time. i attribute that to all of you who've been a huge help to me. so, anyhow, i went to discuss radiation therapy in more detail, esp. after i told him john epstein downgraded my PSA to…
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My Happy Story
My name is Guy. 59 years old and I am 6 treatments away from finishing my 20 Radiation Visits. My first visit was strange. One of the three machines was not working and their were a few people not so happy. This was a little bit much for me. One hour delay, full waiting room and a cart that had very little to offer. My…
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WHICH COMES FIRST WHEN PROSTATE CANCER HAS SPREAD ?
Which usually comes first when prostate cancer has spread: a fast, high-rising PSA or pain at the site where the cancer has spread?
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Overwhelmed and feeling like I am missing something
My husband is 63 and was diagnosed with PC in March with a PSA of 408.3 and Gleason 9. It has metastasized to lymph nodes & bones. A colonoscopy is needed because a mass was found during the prostate exam & is scheduled later this month and an appointment with MD Anderson for a second opinion will be after that…
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Enlarged Prostate after brachytherapy
I had brachytherapy 7 years ago, psa results every 6 months showing .001 score, excellent. Recently I had urinary problems and had a cystocopy done in which the urologist removed a stricture going into my bladder and all is good now. He advised me that my prostrate was enlarged and put my on Proscar to help shrink it. I…
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bacterial correlation and connection, "marker"?
I came across this potential bacterial "marker" with other biological aspects, so I'm noting the papers. B193 Propionibacterium acnes infection of the prostate gland as a risk-factor and biomarker of prostate cancer. Andrew McDowell…
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My Laparoscopic removal story
Don't fret about getting it removed. Just do it. In and out of KU Med in 23 hours. Dr. William Parker. Margins clear. Only compaint was that dam catheter I had to run for 10 days. November 2014 - 1.81 November 2915 - 2.32 November 2016 - 2.95 November 2017 - 3.23 December 2017 - 4.11 January 2018 - 3.99 Surgery Feburary…
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Father with PSA 477.4 ng/ml
t3zureislnz Posts: 1 Joined: Mar 2019 Mar 28, 2019 - 1:19 am Father with PSA 477.4 ng/ml and Gleason 3+4=7 Been researching since I saw my father’s dxs couple of days ago. He has nuclear med appt nextweek and CT Scan the week after. We’re all in shock bec my father is healthy, does not smoke, drink and no other vices.…
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I'm still alive ,, with stage 4 metastatic prostate cancer
Dx'd Jan 2017 !! did a round of docetaxtal ,, PSA from 550 to 76 --- PSA now at 17.6 after a year of zitiga !! I have many good days ,, all i have to say after a couple of years with the bandit is keep on truckin..
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Wow you can’t trust doctors
most of you know my story ..I opted for combo radiation treatment instead of surgery ...which I regret now very much ...too many drs with too many opinions...that was my biggest mistake ...along with having a fear of surgery which didnt help ....anyway things are getting better starting to deal with it better and then…
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Retrograde ejaculation
I had surgery Feb 2019 I had a partial prostate removal I know this might sound petty but I did not have any issue except retrograde ejaculation how long does it take to get use to the feeling is the same I just miss the end am I the only one that feels this way
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Prostate cancer treatment trial uses gold nanoparticles
Interesting clinical trial taking place. https://www.tmc.edu/news/2019/04/prostate-cancer-treatment-trial-uses-gold-nanoparticles/
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Jevtana
Hi all, We found out that xtandi has failed and my dad's PSA has risen from 16 to 44 within two weeks. The oncologist has said we're now headed to jevtana. We meet with the oncologist wed and dad will also start first treatment with jevtana. After all the research and discussions it appears we are at the end. My heart is…
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AUS
could anyone recommend a name of a skilled surgeon at Cleveland Clinic who performs the artificial urinary sphincter procedure, it would be appreciated, I am at last beginning the process and it would be comforting to have a recommended name from someone who has gone through the same procedure. Thanks.
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For my spouse
My husband was a frequent user of the forum. He was initially diagnosed with prostate cancer in November 2010. Gleason 9, most cores positive with cancer --initial PSA 59, Negative bone scans. He stopped using the forum when he became severely disabled from MS. I used to read his posts and the replies. He made many friends…
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Recently diagnosed - questions about treatment
Hello, I'm new to the prostate cancer forum and would like to start out by thanking all the members here for their kindness and generosity in helping out so many in need. I was recently diagnosed with prostate cancer. I'm 61, don't smoke, don't drink, eat a healthy diet, get a moderate amount of exercise and maybe about 10…
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Study the Survivors
Nice editorial in Nature this week on the need to study cancer survivors https://www.nature.com/articles/d41586-019-01095-9 Here is a little if the link doesn't give you access When Gregory Aune was 16, he wasn’t particularly concerned about the lasting effects of the drugs and radiation that he was given to treat his…
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Penile Length After Surgery
Boy I bet that is an attention grabber...seriously, I have read a few post on this subject and according to Dr. William J. Catalona about Penile Length after Surgery …In connecting the bladder to the urethra, there often is some retraction of the penis, but the true length of the penis is unchanged. No penile tissue is…
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Am I opening a new chapter?
Hello friends, For those of you who do not recognize me, I am 91 years old and a 26-year prostate cancer sur4vivor. I had radical prostectomy in 1991, underwent radiation treatments in 2005, and went on hormone treatment in 2008. My annual PSA readings were undetectible (<0.1) in 2009 through 2015. The undetectible symbol…
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What's next?!?
Hi all, Just curious if anyone can give any additional insight to my dad's treatment. He has now failed zytiga and xtandi. We went to a new oncologist last week and was told we are at the end of options. The oncologist mentioned Provenge but from my research I do not think my dad is a candidate as he is taking oxycodone…