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Okay, This is just not right. Hair loss
Of course, I've lost my hair again. However, I'm still dealing with some facial hair and hair on my legs. I lost my hair on my head nearly a month ago! Oh well....Just seems unfair, doesn't it? Hope you're all having a great day. Carla
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Back Cramps
Has anyone doing IP chemo experienced weird back cramps? It has happened before but much worse this time....cumulative effect and all that I'm sure. Just wondering. Thanks, Amanda
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Just My Opinion
I attended the Colorado Ovarian Cancer Alliance Summit yesterday in Denver. The morning was filled with presentations related to conventional medicine, molecular profiling, clinical trials, screening. They all focused on statistics and collecting data. Most were placing their faith in the future, close or distant, that…
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Small Bowel Blockage
Hi Guys, I just got out of the hospital with dx of partial small bowel blockage from scar tissue from my debulking 2 1/2 years ago. Thought it was a gallbladder attack but turned out to be my "nightmare" of the blockage. I thank God the blockage repaired itself after NG tube and no food for 3 days. My question is has…
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Another mud run
I just found out the Kiss Me Dirty Mud Run that I saw listed on the website when I signed up for the Dirty Girl Mud Run raises money for gynecological cancers. I wish I had known that before I signed up. It is in San Jose on 10/13/2012, two weeks before the Dirty Girl Mud Run. Oh well, maybe next year. I think it is so…
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looking for anyone who had normal ca 125
Hi for maybe 13 weeks not i have had intense pain in my lower stomach and back . have gained 20 kgs in around 8 months have the size if a 5 month pregnant stomach ,chronic fatigue used to spend every day with my darling grand children but sleep most of the time my hair is nearly grey because i dont have any energy not a…
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New member
I found this site accidently & so glad I did. My daughter was diagnosed with ovarian cancer, papillary serous adenocarcinoma, stage 2C on May 27,2012. Everything happened so fast: first abdominal pain, bloating. Went to ER then ultra sound that showed a mass on her left overly. This was followed by surgical debunking,…
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Port Implant Study (Do you feel self-conscious about your port's appearance?)
* Do you have a port implant? * Has it ever made you feel self-conscious? * Have you ever wished you could hide it? We are developing a skin cover that would hide the appearance of and provide protection for subcutaneous port implants. But...we need your help in understanding the real-time experience living with a port —…
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Home from hospital
Hi Ladies Well, the weekend did not go as planned. I had the transfusions on Friday starting at 8am and was home around 7pm. I slept, woke and had some soup then back to sleep till 2pm Saturday! I am just wiped out. Saturday evening I started having some serious chest pain. I didn't know if it was related to the…
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Pretty scared
Hi all. I've read numerous posts on here in the last couple days but haven't been able to find any info/discussions about the blood test HE-4. Some background, I'm 45 yrs old, have Crohn's disease x 30yrs and was dx'd with both squamous cell skin cancer and fibromyalgia both in the same week about 5 months ago. I was…
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Financial assistance for costs insurance does not pay?
Hi Ladies, I have a private insurance policy which I kept (thankfully) after my husband's death in 2010. In order to afford the policy I have a $7,500 deductible, after which it does pay 100%. (had I had a lower deductible, I would have paid a lot more monthly in premium, so it comes out to about the same). Anyway, since I…
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Lets try again
I am out of the hospital again two weeks in is more that I would like to spend. There were so many problems my blood work up now never looks great, my blood pressure kept dropping for no reason the lowest it got was 91/35 but we were able to get it up and stablelized and then my hear beat was doing something I really can't…
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Recurrences
We got talking at work today about recurrence and how they could definetly happen. I was just wondering. For those that have had one, how long after you were NED did you have your first one?
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citalopram
Please could anyone tell me if they have taken this, my mum has been given it and she has not felt to well after just the first one, any info or experiences you could share with us would be most welcome.... Thank you, SueX
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Scans
How often do you all have scans? When I had my check up last Friday with my doc I asked her when my next one would be. She said that I will not be having another one unless there is reason to do it. The CA 125 works for me so we are going with that. Of course if I feel symptoms or something then we will. She said doing…
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In the hospital
Sorry I have not written much I have been in the hosptial since Monday I had my sister bring down my laptop so I could get online and let you ladies know what is going on. Last Sunday my leg swelled up three times bigger than my right leg so on Monday my mom made me go to the hospital and they admited me that day. They…
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Transfusions tomorrow
Hi Ladies Well the day has finally come. After so much hassle trying to get everything setup, I am ready to go. I will be at the hospital at 8 AM. I am going receive 3 units of blood, but if my counts come up faster, I can get by with just 2. I feel like I have been waiting forever, even though it's only been weeks. I am…
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After Chemo
Had my last chemo about 6 weeks ago and have been having trouble with neuropathy in my feet and legs. Have taken some medicine but does not seem to be getting better. need suggestions from others who have gone through this. How long did it last? THanks much.
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genetic counseling
Has anyone had genetic counseling? I did and I have BRCA 1. anyone else? kim
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Metformin
Has anyone been on metformin? It is a diabetic drug and I've heard it is cheap. Also heard the following about metformin and cancer:Metformin’s many physiologic actions include suppressing liver’s own sugar production (”hepatic gluconeogenesis”), increasing insulin sensitivity, enhancing body sugar utilization and…
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Cisplatian/Taxol Users with I P Chemo
Got a question for anyone who did cisplatian/taxol and used and I P port. I have noticed since I finished chemo that my bowel movements change ofte. The go from regular to soft not watery0 then back to regular. My doctor told me this all part of recovering from the surgery/chemo and it will take a good year for everythign…
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Out of the hospital again
I actually got out yesterday but my internet wasnt working. My nausea is much better than last time but I dont really have an appetite though since I got out, since im not getting all those IV meds but this high-dose nupegen is really bothering me. The bone pain. I have Dilaudid 2 mg and a Pain patch and I still cant get…
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HOW ARE YOU, TINA AND DAVE?
Hoping that Tina is doing okay, Dave. Continuing the prayers for her and you. Monika
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Help for the chemo mouth sores?
I'm trying to keep ahead of the taxol and carboplatin but the effects are still one step ahead of me...like the mouth sores. I'd love any advice or suggestions about dealing with them and prevention. Thanks supportive sisters! Gentle hugs Xoxo, Erika
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Preparing for surgery
A question from a newby to hardcore survivors: what supplies do you recommend for after surgery? Hystersisters.com is selling abdominal binders, panties, cooling pillows, creams, etc. Did you need bed sheet protectors, female urinal? Anything else you needed? I want to stock up now. If it's not sold at Home Depot, my…
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YUCK! Cistplatin!
This Cistplatin is so nasty. I'm going back to the clinic for fluids and anti nausea meds each day this week. I was sick twice yesterday, including at 10:00 last night. My appetite is good, and for the most part, food tastes good to me. Now the fatigue is setting in. Oh well....Just wanted to whine and vent to those who…
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MRI CAME BACK NEGATIVE FOR CANCER YEA!!!!!!!!!!!!!!!!!!!!!!!!
I mean this with all my heart that i believe with all your thoughts and prayers for me that this test came back without evidence of cancer All of you that i have meet here are the strongest women i know!And i now know how strong our prayers are And i to will pray everyday for all of us THANK YOU SO MUCH for helping me…
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Neuropathy Feet and Swelling
This is a first for me. I have neuropathy in my feet (mostly just my left foot) and today when I got home my feet looked swollen. They are tingly too. Has anybody else had this? I never did but I have been very active lately. Between going back to work and the mud run on Saturday my poor feet have been put through the…
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Etoposide
Anyone familiar with Etoposide. It is a chemo pill. Wondering if it worked? for how long? Any information you have. Thanks
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hernia question
I have a question for people who have had hernias. A couple weeks ago I was helping my boys clean their rooms and we cleaning out dresser drawers, getting up and down. Well they last time I stood up my back hurt (more like pain in my left butt cheek lol). It was sore for a c oouple days. I was thinking it was my…