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Port Implant Study (Do you feel self-conscious about your port's appearance?)
* Do you have a port implant? * Has it ever made you feel self-conscious? * Have you ever wished you could hide it? We are developing a skin cover that would hide the appearance of and provide protection for subcutaneous port implants. But...we need your help in understanding the real-time experience living with a port —…
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Home from hospital
Hi Ladies Well, the weekend did not go as planned. I had the transfusions on Friday starting at 8am and was home around 7pm. I slept, woke and had some soup then back to sleep till 2pm Saturday! I am just wiped out. Saturday evening I started having some serious chest pain. I didn't know if it was related to the…
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Pretty scared
Hi all. I've read numerous posts on here in the last couple days but haven't been able to find any info/discussions about the blood test HE-4. Some background, I'm 45 yrs old, have Crohn's disease x 30yrs and was dx'd with both squamous cell skin cancer and fibromyalgia both in the same week about 5 months ago. I was…
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Financial assistance for costs insurance does not pay?
Hi Ladies, I have a private insurance policy which I kept (thankfully) after my husband's death in 2010. In order to afford the policy I have a $7,500 deductible, after which it does pay 100%. (had I had a lower deductible, I would have paid a lot more monthly in premium, so it comes out to about the same). Anyway, since I…
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Lets try again
I am out of the hospital again two weeks in is more that I would like to spend. There were so many problems my blood work up now never looks great, my blood pressure kept dropping for no reason the lowest it got was 91/35 but we were able to get it up and stablelized and then my hear beat was doing something I really can't…
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Recurrences
We got talking at work today about recurrence and how they could definetly happen. I was just wondering. For those that have had one, how long after you were NED did you have your first one?
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citalopram
Please could anyone tell me if they have taken this, my mum has been given it and she has not felt to well after just the first one, any info or experiences you could share with us would be most welcome.... Thank you, SueX
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Scans
How often do you all have scans? When I had my check up last Friday with my doc I asked her when my next one would be. She said that I will not be having another one unless there is reason to do it. The CA 125 works for me so we are going with that. Of course if I feel symptoms or something then we will. She said doing…
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In the hospital
Sorry I have not written much I have been in the hosptial since Monday I had my sister bring down my laptop so I could get online and let you ladies know what is going on. Last Sunday my leg swelled up three times bigger than my right leg so on Monday my mom made me go to the hospital and they admited me that day. They…
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Transfusions tomorrow
Hi Ladies Well the day has finally come. After so much hassle trying to get everything setup, I am ready to go. I will be at the hospital at 8 AM. I am going receive 3 units of blood, but if my counts come up faster, I can get by with just 2. I feel like I have been waiting forever, even though it's only been weeks. I am…
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After Chemo
Had my last chemo about 6 weeks ago and have been having trouble with neuropathy in my feet and legs. Have taken some medicine but does not seem to be getting better. need suggestions from others who have gone through this. How long did it last? THanks much.
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genetic counseling
Has anyone had genetic counseling? I did and I have BRCA 1. anyone else? kim
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Metformin
Has anyone been on metformin? It is a diabetic drug and I've heard it is cheap. Also heard the following about metformin and cancer:Metformin’s many physiologic actions include suppressing liver’s own sugar production (”hepatic gluconeogenesis”), increasing insulin sensitivity, enhancing body sugar utilization and…
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Cisplatian/Taxol Users with I P Chemo
Got a question for anyone who did cisplatian/taxol and used and I P port. I have noticed since I finished chemo that my bowel movements change ofte. The go from regular to soft not watery0 then back to regular. My doctor told me this all part of recovering from the surgery/chemo and it will take a good year for everythign…
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Out of the hospital again
I actually got out yesterday but my internet wasnt working. My nausea is much better than last time but I dont really have an appetite though since I got out, since im not getting all those IV meds but this high-dose nupegen is really bothering me. The bone pain. I have Dilaudid 2 mg and a Pain patch and I still cant get…
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HOW ARE YOU, TINA AND DAVE?
Hoping that Tina is doing okay, Dave. Continuing the prayers for her and you. Monika
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Help for the chemo mouth sores?
I'm trying to keep ahead of the taxol and carboplatin but the effects are still one step ahead of me...like the mouth sores. I'd love any advice or suggestions about dealing with them and prevention. Thanks supportive sisters! Gentle hugs Xoxo, Erika
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Preparing for surgery
A question from a newby to hardcore survivors: what supplies do you recommend for after surgery? Hystersisters.com is selling abdominal binders, panties, cooling pillows, creams, etc. Did you need bed sheet protectors, female urinal? Anything else you needed? I want to stock up now. If it's not sold at Home Depot, my…
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YUCK! Cistplatin!
This Cistplatin is so nasty. I'm going back to the clinic for fluids and anti nausea meds each day this week. I was sick twice yesterday, including at 10:00 last night. My appetite is good, and for the most part, food tastes good to me. Now the fatigue is setting in. Oh well....Just wanted to whine and vent to those who…
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MRI CAME BACK NEGATIVE FOR CANCER YEA!!!!!!!!!!!!!!!!!!!!!!!!
I mean this with all my heart that i believe with all your thoughts and prayers for me that this test came back without evidence of cancer All of you that i have meet here are the strongest women i know!And i now know how strong our prayers are And i to will pray everyday for all of us THANK YOU SO MUCH for helping me…
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Neuropathy Feet and Swelling
This is a first for me. I have neuropathy in my feet (mostly just my left foot) and today when I got home my feet looked swollen. They are tingly too. Has anybody else had this? I never did but I have been very active lately. Between going back to work and the mud run on Saturday my poor feet have been put through the…
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Etoposide
Anyone familiar with Etoposide. It is a chemo pill. Wondering if it worked? for how long? Any information you have. Thanks
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hernia question
I have a question for people who have had hernias. A couple weeks ago I was helping my boys clean their rooms and we cleaning out dresser drawers, getting up and down. Well they last time I stood up my back hurt (more like pain in my left butt cheek lol). It was sore for a c oouple days. I was thinking it was my…
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Lymphoma
I really do not know how much more bad news I can take it seems to be building up and up on me but still I fight on. I found out today that the Lymphoma I have is not curible so unless they find a chemo that works I will not make it through this battle. The thought of not making it is so hard to deal with but I just can't…
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Update
I have been lurking around lately but not really posting much and thought it is a good time to give a little update. I cant believe how many new faces on the board! but the best is to check in on the many of you that have been on for a while and still going strong! As for me, I had a 9 month remission and then tried Doxil…
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Has anyone used Cyberknife
My mother has had 2nd chemo treatment and it landed her in the hospital the second time so Im looking into the CyberKnife idea. I have read where it has done amazing things for the Ovarian Cancer and without all this sickness and sometime Fainting and throwing up. Must be a better way and looking to the Cyberknife now.
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Chemo resume tomorrow, after 2 week delay due to pneumonia.
Last year I had no problems with Taxol/Carbo. As I posted a few weeks ago, round 1 of taxol/cistplatin landed me in the hospital with bottomed out white counts and potassium, plus pneumonia. Dr. has said he is going to reduce my dosage by 20% this time (both drugs). Also, he's having me on 500 mg. antibiotic for 10 days…
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Dirty Girl Mud Run
Today I am running (jogging or walking) a 5K called the dirty girl mud run. It was $75 to sign up but cancer survivors are free. The money goes to breast cancer research (again) but as far as I am concerned I am running this race for me, you, and everyone out there fighting this nasty disease. It is not your ordinary 5k.…
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Recurrence with a normal ca-125?
Hello Ladies, Went to see my oncologist this morning for a regular check up. I told him about some pain I've been having for the past 2 weeks in my lower left pelvic area. I'm in remission for 9 months and on Avastin clinical trial right now for maintenance; I have all sorts of pains everywhere, so I thought it was related…
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really scared any replies will help ASAP
last chemo was may 3 did my three month follow up with oncol. ca125 was 8 however i was having back pain just went for routine xrays so i could go for therapy and they said possible lytic leasions on vertabra need mri this tuesday (ovarian stage3b is what i started with)am i just panicing just because they said possible so…