The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Ovarian Cancer

Wigs and hair loss
For those of you who went wig shopping how many went for a real hair one. Are they worth it? They are so expensive.
?
Any one heard from Anne Behymer and Arizona Grandma? Just wondering how they are doing. Best, Debrajo
6 weeks and still waiting
It will be 6 weeks this coming friday since i had blood drawn to check for lymphoma. they are checking my t cell gene rearangemnet. If you can all pray it will come back normal and no signs of cancer it will be appreciated. Hugs Lynda
Support Groups
Today I am going to a support group at the Patrick Demspey Center for Hope and Healing. I sure hope it is a possitive experience and does not make me more stressed out. I was told it was a good idea and they help.
IVIG (immunogammaglobulin therapy) to treat neuropathy
Has anyone tried or had any positive results using IVIG therapy to treat neuropathy? My 77 year old mother was diagnosed with stage 3 ovarian cancer and subsequently had a complete hysterectomy and a 6 cycle course of Taxol and Carboplatin which finished in mid-August. Since then she has been taking a chemo pill…
Is there hope?
A friend of mine posted this story below on Facebook ISRAEL FIGHTS CANCER: An Exclusive Report by United with Israel Dr. Lior Carmon at Vaxil's lab in Nes Ziona, Israel (Nes Ziona, ISRAEL) An Israeli company is developing a new cancer drug which aims to stop cancer from coming back. Every year millions of people are…
Vent time! Dr. appointment times changing on a fairly regular basis.
Hi Ladies, My dr. comes to our area once a week, USUALLY on Tuesdays. Anyway, I was scheduled to see him at 9:15 tomorrow morning (lab at 9:00). They called a little while ago and he won't even be there until at least 10:00. It's not unusual for him to arrive an hour or more late. He's at a different location every day,…
Are NED and remission the same thing?
Last year my doctor said I as in complete remission. (lasted about 9 months) Anyway, I see several of you refer to yourself as NED. Is there a difference? I finally learned what NED stands for. :) Took a while though. Thanks, Carla
Dirty Girl Mud Run, Done!
Well, ladies I went to the Dirty Girl Mud Run yesterday. It was a lot of fun. I never dreamed I would be crawling through mud on my hands and knees. We started out in the middle of the pack but soon were holding up the rear. My one friend and I were unable to do most of the obstacles. My legs do not have the strength to…
THOUGHTS & PRAYERS TO THOSE IN HURRICANE SANDY'S PATH
Sending prayers to all who are affected by this horrible storm. Here in Michigan, we are experiencing wind gusts up to 50 MPH, and cold temperatures. Rain will continue tonight and throughout the next several days. I almost anticipate power outages, as we often get them even when the weather is clear. This is minute…
Hurricane Sandy
Thank you Sandy for giving me the day off tomorrow. Almost all the schools around us are closed including ours so no work for me tomorrow... Wooo Hooo
I am scared ,
Hello everyone,i am seeing a new doctor and i had to have ct scan last week he saw something between my liver and kidney ,now i go for pet scan nov.1 .I am already nevous about the spot but i find out the pet scan is a mobile like a trailor,i am clautrophobic ,has anyone ever had a mobile scan.so tired and scared ..Debbie
Checking in!
I havent been on here as much lately and wanted to reaquaint myself. I see so many new members and I want to update the sisters I know. For the newbies let me share my story. After 14 months of abdominal pain and severe constipation I was diagnosed just over 2 years ago with 3c Primary Peritoneal Cancer which came from an…
Checking up on my ladies...
Hi - I am not sure if you remember me, but I posted a while back. I come from the breast cancer forum and often I check on you ladies. Why? Because I feel a connection since I lost the most important person of my life to ovarian c (my mami). And I pray for all of you to be OK no matter what. And to always feel at peace.…
Hallucinations
Well they had me on lexapro in the hospital for over a week before I realized it so when I got out it didn't occur to me to take it(anti-depressants scare me). Well immediately the morning after I got out I started having hallucinations. Not just visual but sounds and smells/taste. Also severe depression, insomnia,…
Hysterectomy
Good morning ladies. I had a repeat ultrasound last Friday. The good news is the cyst has t gotten larger. The bad news is its still there. I was hoping it would be gone as my doc said that happens sometimes. Factoring in all the issues of wonky blood work, cyst after menopause I am scheduled Nov 8th for a total…
TINA BROWN & KAYANDOK!
Although I think of all of you often, just wondering how both Tina and Kayandok are doing. Please drop us a line when you're able. (((HUGS))) Monika
No Wig Today For The First Time.
Today is my first day going back to work withuot my wig on. It is going to interesting. I work in a hiigh school and kids are going to wonder why. My hair is short but I have alot of it. Saturday was my birthday and I went ang got it trimmed up and done. I like it alot but can't wait for it to grow some more.... We were…
new short film on cancer - looking for stories for next film
Content removed by CSN administrator. Solicitation of members for any reason and spamming boards is a violation of CSN terms and conditions.
I am trying!
So, I joined a support group, seeing a social worker, financial person dealing with insurance issues etc and today I drove for the first time after my surgery. Then I sat on the porch and read some of my book. I am trying really really hard to act normal and think of things other than this cancer!! I just found out the…
PICKED MY POISON TODAY....
I have decided to go with the Carboplatin IV every 3 weeks and the Taxol IV every week for 18 weeks. I also decided on getting a port. So why am I crying like a baby? Everybody said I feel better when I move forward.
Maria
...how is your brother doing..thinking of you. Take care of yourself..I go for chemo this Thursday...ugh....Val
The questions I have been afraid to ask
Is there a point when an Ovarian Cancer patient can say they are in the clear? You hear all the time "I made it to my 5 years". Is there a time frame for Ovarian Cancer? Does everyone get it back after they are in remission? What exactly is remission mean? Do you still have cancer when you are in remission? I am looking…
Who knows about immunotherapy?
I am a patient with a history of breast cancer and currently have ovarian cancer. I have been reading an ddoing research for the best treatment options and I am hearing a lot about immunotherapy and vaccine trials. anyone knows anything? or has been through such an experience? Thank you so much
Finally made my decision, I'm changing doctors.
Hi Ladies, After several days of trying to decide what to do, I have decided to change doctors. I can't live my life without cancer defining me, when I have to play my life around a busy doctor's schedule. The dr. I have used since my chemo began last year, is in our local office one day per week. Often times that day…
What Stage
What stage was everybody when they were diagnosed? I was III C Eileen
BRCA1 and 2 Results today
My doctor's office called last Tuesday late afternoon to tell me my results were back. I had my test on the 2nd and they were back in a week. iis'm nervous about the results and I dont want to go to this appointment. Why do I feel like I am waiting for results to see if I have a recurrence?????
Hello Ladies ,went to see a new onc.doctor friday for results of ct scans
well i have been waiting to post until i saw the new doctor ,so i saw him and he wanted me to have ct scan ,bone scan and chest xray,went friday to hear results he said the pelvic scan shows a small lesion between liver and kidney and a swollen node next to the lesion.Now i am waiting to have a pet scan.I have been out of…
Post Cancer Isses
Hi Everyone, Haven't been online here in awhile but wanted to ask you all something. It's been almost 2 years since my last chemo (Nov 18, 2010) and so far, thankfully, NED. I had stage 1C OVCA, 2 surgeries (radical hysterectomy/salpingo-oophorectomy/appendectomy plus 14 biopsies - my gyn/oncologist was very thorough).…
CA 125 and follow up
I went to see my surgeon for my regular follow up today. Exam was normal, but my CA 125 keeps rising. It was 24 last time and 30 today. It's been slowly but consistently increasing by a couple of points for the last year. It's never been below 14, but I was pretty comfortable with it in the low 20s. The upward trend is…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Ovarian Cancer

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