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Doxil - my first round
Well I have now completed my first round of Doxil (Caelyx in Australia) and had my second treatment today. Having had 3 x CA125 tests increase 21 to 209 to 360 to 459 (the last being 6 days after my first infusion!!!) - 5th to 24th September - I was delighted that my result this week, at the end of the 4 weeks from…
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Follow Appointment at the Oncologist - scared
I am crying while I type this. My appointment is tomorrow after my Hysterectomy. I will find out what stage I am at, my prognosis, and my treatment. I am sooo scared. I am feeling so much dispare.
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Husband a hinder
I know this is a very personal topic. My husband is an alcoholic although not sure if he would agree with me. I am concerned because I will need him in the coming months if not years a head. I really care for him, even love him; however, I was thinking strongly about leaving him before my diagnosis. Now I feel that I can…
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feet and legs
My last chemo was three months ago. I am having trouble with neuropathy in my feet and it affects my knees also. Am very sensitive to medicine. Have tried most and it just is too strong for me. Do I have any hope that this will go away after a time or will it stay with me. Tell me of your experience with this. Thanks and…
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Lovely Day
I had a great day yesterday with one of my long-time friends. We attended the Pumpkin Festival in Half Moon Bay. It is our second year. The previous year she asked me to go but I had just finished treatment and had spent five days in the hospital. The weather was rainy and I didn't feel up to it. I still feel badly that…
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anne bemer is out of the hospital
anne just texte me and wanted me to let everyone know she is out of hospital and in rehab now she is doing good.
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phoenix23
Just checking in on you. I read your previous posts and I was wondering how you are doing? My sister was 29 when she was diagnosed with stage 3c OVCA.
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Has anyone appealed to their insurance company to cover out of network?
Hi Ladies, I called my insurance company this afternoon. Since there are no GYN/ONC within my network I can write a letter of appeal. In my area there are four GYN/ONC, but they are all with one clinic, out of my network. I had to go nearly 150 miles for surgery last year. I have seen an medical oncologist for over a year…
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Sister diagnosed yesterday stage 3C - should she join this site yet?
Hi everyone - I stumbled across this board while searching online for any kind of information for my 56 year old sister who was recently diagnosed with OC. I would like to refer her here because I think she could use the information and support but I'm afraid it might terrify her more than she already is because we just…
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Back Pain/ Weather Changes
This is my first fall after treatments and I am experiencing back pain when the weather changes. Is this something others have experienced as a side effect of chemo?
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Proud Mommy bragging
This has nothing to do with my ovarian cancer. This is just one of those moments I will treasure forever..... Yesterday Tyler had a cross country invitational at Seneca Park....He came in 25th out of almost 200... His shoe lace came loose and his sneaker was starting to flop and slow him down so he kicked his shoe off and…
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Peritoneal carcinomatosis from ovarian cancer
Peritoneal carcinomatosis from ovarian cancer: chemosensitivity test and tissue markers as predictors of response to chemotherapy Chiara Arienti (1), Anna Tesei (1), Giorgio M Verdecchia (2), Massimo Framarini (2), Salvatore Virzì (3), Antonio Grassi (3), Emanuela Scarpi (1), Livia Turci (1), Rosella Silvestrini (1), Dino…
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Nightmare
As my surgery area feel better I seem to cry more now because I am scared. I was told I can say anything on here that I am feeling. Well, on a positive not I pooped this morning without the help of a laxative. Yea! On the other hand, what scares me the most about ovarian cancer is how often it returns. Is there any hope…
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My new favorite beverage?
Prune Juice! Hooray for Prune Juice! Yeah, I took that nasty cistplatin/taxol Monday. I rarely have trouble with constipation. (with IBS, it's diarrhea for me usually, ugh) Anyway, my sister got me some prune juice this afternoon. I feel SO much better. Oh, the simple pleasures of life. LOL! Sometimes you just gotta laugh…
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Cytoxen put me in the hospital
I don't know how many of you read my post about the extra chemo treatment they were giving me called cytoxen. The point of it was to wipe out my bone marrow to make room for stem cells since my first stem cell collection didn't go so well. The Dr said that its not very strong at all and they use it on about half of their…
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update from Mwee
Hi Loves... My brother is failing quickly from his pancreatic cancer and I've been trying to support my poor sister-in-law. She is doing such a wonderful job being with him 24/7 and trying to keep him comfortable. My ONC has given me extra time off from my chemo regiment so I've been feeling pretty strong. I have my next…
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Advice needed
Hi ladies. Haven't posted for awhile. I am currently taking avastin every two weeks. My platelets always seem to be an issue, so onc is trying oral meds plus the avastin. I tried cytoxin first , but ca125 just kept rising. It was back up to 2500 the first of September. Started taking etoposide then . You take for 14 days…
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Weird CA-125 stuff
Hi Ladies, My CA-125 in May was 9. A lymph node lit up on the pet scan. A needle biopsy confirmed cancer. When it was surgically removed in July it was confirmed to be ovarian. After one round of cistplatin/taxol it was 50.3 at the end of August. End of September it was 31.9. Obviously it fell, but I'm really scared since…
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Natural/Homeopathic remedies for menopause
The back story. I am 34 years old. Diagnosed with ovarian cancer 1C November 2011. 2 rounds of carbo/taxol and 4 round of carbo/taxotere. I have been out of sorts since my diagnosis, hormonally speaking. I just assumed it was the chemo but I'm 6 months out now and I still don't feel right. Hot flashes, irritability, and…
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Clinical Trials
Is anyone currently in a clinical trial or thinking about volunteering for a trial? If so what phase, where, and please describe your experience as much as you are allowed and comfortable with. I am considering a phase 1.
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New Cancer Patient HELLO!
Hi Everyone. I am trying to figure this site out. I had my hysterectomy on October 2 and subsequently diagnosed with ovarian cancer. Someone recommended this site for support. I was kind of scared to get on the site because then I would have to admit I am sick. My caregiver, my Husband has been freaking out. I find I have…
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Latest CA 125
My count went down again...it's 29, down from 67 last month. OMG I'm actually in range, even though my nadir is single digit. I am so happy. I can breath for another month. I am so thankful to everyone who prays for me. Prayer and the medication are a pretty strong opponent for the wicked monster. Karen
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BRCA GeneticTest
Had my blood drawn yesterday. She said it could be back in 4 days or it could take 6 weeks which is the norm.... My appt for the result is Nov 13 and she will call if it comes back earlier.
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I must really love the hsopital
I am back in for the third time in three weekds this time I hope they can et the fever to go down and the swellling undercontol. I could not walk on my left leg and it was hurting pretty bad guess that is all. Anne
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Out of the Hospital
Got out of the hospital today so yay but ill be back in 5 days
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Alexandra
Hi there - I haven't seen any posts from you in a couple weeks and I just wanted to le you know I was thinking about you and wondering how you are feeling..... Drop us a line when you get the chance and let us know how you are. I hope all is well with you. eileen
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Hi, I am a new member
Hi I am a new member that has been following some of your stories for a short time trying to get the nerve to register. I have been dealing with OC for some time now and been on a roller coaster of emotions ever since. I think I finally decided to join in because it is hard to talk with friends and family that really can’t…
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Sorry about not keeping you up on Tina
It's been a crazy 2 weeks to say the least. It's been a very hard road for Tina so far with so many ups and downs twists and turns to list. She just got out of ICU after a three day stent and I think maybe she has turned that corner. That said there is still no release date in site according to the Dr but we're hoping next…
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Whole Body Hyperthermia
Someone I love with ovarian cancer is considering Whole Body Hyperthermia (WBH) treatments in addition to her current treatment. If you have undergone WBH as a treatment, I would like to know if you feel it was successful and worthwhile, and where you went to have it done. Even if you did not have ovarian cancer, but have…
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Hi, I am a new member
Hi I am a new member that has been following some of your stories for a short time trying to get the nerve to register. I have been dealing with OC for some time now and been on a roller coaster of emotions ever since. I think I finally decided to join in because it is hard to talk with friends and family that really can’t…