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Are NED and remission the same thing?
Last year my doctor said I as in complete remission. (lasted about 9 months) Anyway, I see several of you refer to yourself as NED. Is there a difference? I finally learned what NED stands for. :) Took a while though. Thanks, Carla
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Dirty Girl Mud Run, Done!
Well, ladies I went to the Dirty Girl Mud Run yesterday. It was a lot of fun. I never dreamed I would be crawling through mud on my hands and knees. We started out in the middle of the pack but soon were holding up the rear. My one friend and I were unable to do most of the obstacles. My legs do not have the strength to…
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THOUGHTS & PRAYERS TO THOSE IN HURRICANE SANDY'S PATH
Sending prayers to all who are affected by this horrible storm. Here in Michigan, we are experiencing wind gusts up to 50 MPH, and cold temperatures. Rain will continue tonight and throughout the next several days. I almost anticipate power outages, as we often get them even when the weather is clear. This is minute…
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Hurricane Sandy
Thank you Sandy for giving me the day off tomorrow. Almost all the schools around us are closed including ours so no work for me tomorrow... Wooo Hooo
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I am scared ,
Hello everyone,i am seeing a new doctor and i had to have ct scan last week he saw something between my liver and kidney ,now i go for pet scan nov.1 .I am already nevous about the spot but i find out the pet scan is a mobile like a trailor,i am clautrophobic ,has anyone ever had a mobile scan.so tired and scared ..Debbie
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Checking in!
I havent been on here as much lately and wanted to reaquaint myself. I see so many new members and I want to update the sisters I know. For the newbies let me share my story. After 14 months of abdominal pain and severe constipation I was diagnosed just over 2 years ago with 3c Primary Peritoneal Cancer which came from an…
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Checking up on my ladies...
Hi - I am not sure if you remember me, but I posted a while back. I come from the breast cancer forum and often I check on you ladies. Why? Because I feel a connection since I lost the most important person of my life to ovarian c (my mami). And I pray for all of you to be OK no matter what. And to always feel at peace.…
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Hallucinations
Well they had me on lexapro in the hospital for over a week before I realized it so when I got out it didn't occur to me to take it(anti-depressants scare me). Well immediately the morning after I got out I started having hallucinations. Not just visual but sounds and smells/taste. Also severe depression, insomnia,…
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Hysterectomy
Good morning ladies. I had a repeat ultrasound last Friday. The good news is the cyst has t gotten larger. The bad news is its still there. I was hoping it would be gone as my doc said that happens sometimes. Factoring in all the issues of wonky blood work, cyst after menopause I am scheduled Nov 8th for a total…
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TINA BROWN & KAYANDOK!
Although I think of all of you often, just wondering how both Tina and Kayandok are doing. Please drop us a line when you're able. (((HUGS))) Monika
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No Wig Today For The First Time.
Today is my first day going back to work withuot my wig on. It is going to interesting. I work in a hiigh school and kids are going to wonder why. My hair is short but I have alot of it. Saturday was my birthday and I went ang got it trimmed up and done. I like it alot but can't wait for it to grow some more.... We were…
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new short film on cancer - looking for stories for next film
Content removed by CSN administrator. Solicitation of members for any reason and spamming boards is a violation of CSN terms and conditions.
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I am trying!
So, I joined a support group, seeing a social worker, financial person dealing with insurance issues etc and today I drove for the first time after my surgery. Then I sat on the porch and read some of my book. I am trying really really hard to act normal and think of things other than this cancer!! I just found out the…
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PICKED MY POISON TODAY....
I have decided to go with the Carboplatin IV every 3 weeks and the Taxol IV every week for 18 weeks. I also decided on getting a port. So why am I crying like a baby? Everybody said I feel better when I move forward.
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Maria
...how is your brother doing..thinking of you. Take care of yourself..I go for chemo this Thursday...ugh....Val
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The questions I have been afraid to ask
Is there a point when an Ovarian Cancer patient can say they are in the clear? You hear all the time "I made it to my 5 years". Is there a time frame for Ovarian Cancer? Does everyone get it back after they are in remission? What exactly is remission mean? Do you still have cancer when you are in remission? I am looking…
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Who knows about immunotherapy?
I am a patient with a history of breast cancer and currently have ovarian cancer. I have been reading an ddoing research for the best treatment options and I am hearing a lot about immunotherapy and vaccine trials. anyone knows anything? or has been through such an experience? Thank you so much
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Finally made my decision, I'm changing doctors.
Hi Ladies, After several days of trying to decide what to do, I have decided to change doctors. I can't live my life without cancer defining me, when I have to play my life around a busy doctor's schedule. The dr. I have used since my chemo began last year, is in our local office one day per week. Often times that day…
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What Stage
What stage was everybody when they were diagnosed? I was III C Eileen
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BRCA1 and 2 Results today
My doctor's office called last Tuesday late afternoon to tell me my results were back. I had my test on the 2nd and they were back in a week. iis'm nervous about the results and I dont want to go to this appointment. Why do I feel like I am waiting for results to see if I have a recurrence?????
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Hello Ladies ,went to see a new onc.doctor friday for results of ct scans
well i have been waiting to post until i saw the new doctor ,so i saw him and he wanted me to have ct scan ,bone scan and chest xray,went friday to hear results he said the pelvic scan shows a small lesion between liver and kidney and a swollen node next to the lesion.Now i am waiting to have a pet scan.I have been out of…
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Post Cancer Isses
Hi Everyone, Haven't been online here in awhile but wanted to ask you all something. It's been almost 2 years since my last chemo (Nov 18, 2010) and so far, thankfully, NED. I had stage 1C OVCA, 2 surgeries (radical hysterectomy/salpingo-oophorectomy/appendectomy plus 14 biopsies - my gyn/oncologist was very thorough).…
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CA 125 and follow up
I went to see my surgeon for my regular follow up today. Exam was normal, but my CA 125 keeps rising. It was 24 last time and 30 today. It's been slowly but consistently increasing by a couple of points for the last year. It's never been below 14, but I was pretty comfortable with it in the low 20s. The upward trend is…
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What does the letter after the stage mean?
I forgot to ask my doctor. What does the letter after the stage mean? For example Stage IIIa or IIIc.
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Stem-Cell Collection Today.
I just finished my [second] first collection. I am waiting for the results, they take several hours. Im hoping I collected atleast a million. If the results come back low like last time. They are going to discuss other options with me. That Cytoxen really did a number on me Ive had 3 blood and 2 platelet transfusions this…
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question about my recovery from Hysterectomy
It has been 2 1/2 weeks from my total abdominal hysterectomy. I am still having some pain and very week and tired. Is this normal for this time out from surgery?
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I walked 5k today
Today was the day I did the ovarian cancer 5k walk. All my family and friends participated in it. It was very moving. They made a short for me that said survivor and my name. They all wore shirts that said "I walk for Joyce Pratt" and a real ribbon in the middle. It was very moving. I want you to know I thought of you all…
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Doctor Visit Follow up :-(
I just got home and cryed all the way here (2 hours). I am Stage IIIc. It went into my lymthnode. One lymthnode. It is a Serous Carcinoma. They had to call a social worker to come in and talk to me I was that upset. My Chemo will start in about 3 weeks. It looks like I am choosing the Capboplatin IV every three weeks and…
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Topotecan
Has anyone had some good success with Topetecan? I was doing well on the Doxil and then the cancer got smart to it and it stopped working for me. I had 1 treatment of Topotecan but my blood levels were too low for a second treatment. In the meantime I got an obstruction in my bowels and just spent 5 days in the hospital…
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Working while in treatment?
Did anyone work while they were doing treatment? I was wondering how doable this is. I know everyone is different but maybe I can get some kind of idea.