The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Ovarian Cancer

Hobby ideas
HELP! Mom is getting restless! She needs to get out and exercise more, she's in treatment but is doing fine, only has symptoms for a few days after treatment and it's just been fatigue and joint pain, but in between that time I'd really like to see her doing more. She doesn't have a car, but does anyone have any idea's for…
From Israel with love
Last week flew by so fast. I am back home from Israel. It was glorious and a total sensory overload. Hot sun, turquoise sea, white sand, exotic trees, delicious food, smells of flowers and spices, bright colors, constant background of loud middle-eastern music, even louder overlapping conversations in Hebrew, Arabic,…
I have a lot of spare time on my hands
I decided to calculate who posts more on CSN, men or women and on which boards. To simplify I assumed that all breast and gynecological are women, all prostate and testicular are men and all other boards are 50/50. Results are sorted by number of posts in descending order. Women lead overall 70 / 30. Over third (34%) of…
To fight or not.....
Not sure if i am posting in the right forum as we may be dealing w/ 2 types of cancers. A family member was diagnosed with Anal cancer 2 weeks ago. Since they have done a CT and CA125 test. It now seems that there is caner in the overies and also in the abdomin. Drs are not sure if the oviarian cancer has spread to the…
Proud of mom
My mom (Chris8588) has been such a trooper through this whole thing, words cannot describe how blessed I am to have her as my mother. Watching her go through this has reidrated the fact that she is the strongest woman I know. I would do or give anything to her and I wish she weren't so hard on herself.
What chemo for 1st recurrence ?
I had 6x IP/IV cisplatin/taxol and had a 16-18 months of NED (CA125 started to rise from 8 to 24 in Dec 2012, CT scan clean; March 15 CA125 - 39 CT scan shows tiny ( less than 5mm) nodules in upper abdomen. I wanted to do 6x carbo with 18 weekly Taxol, but my onc suggested 6x carbo/gmzar x12. I am 48 and took cisplatin…
Bye Bye Port.....
This morning was my port removal surgery... It took longer to get me ready than it did to do the removal. I am so happy to have it out. Now I don't have to look at it anymore. Not that I will ever forget what I went through last year but at least now I will not have the constant reminder every time I get dressed. It will…
We Are Moving.....
My husband grew up in new england and only came here to upstate ny to go to college. Then we met and before you knew it we fell in love and got married a month after he graduated. We spend our vacation every year all over the new england area any have always planned on relocating there aft err the kids finished high…
Constant fatigue
Hello everyone. Ladies I need your advice. I take care of my mom fulltime. 83yr old on Taxol/avastin. Taxol/avastin week 1 and 3 Taxol week2 off week 4. Cr125 was at 300 after first round down to 132. Mom is always tired to start with and I can understand all she has been through and all she is going through. I just don't…
Easter
I do believe in the living Christ and His word. Saying that doesn't make me some super person who can withstand things without falling apart by any means. Had to leave Sunday school class this past Sunday due to crying. Just hits me sometimes. However, if we look at Christs closest followers, his disciples, I'm reminded…
Ladies....I have some bad news about the OC Quilt (and the NOCC)
As many of you know, today was the NOCC (National Ovarian Cancer Coalition) 5K in my area (Dallas/Ft Worth), to raise money for research and awareness for OC. I joined NOCC in early 2010, at the urging of my doctor, who was (and may still be, I'm not sure) on the Board. I walked the full 3.5 miles last year in the rain,…
Alexandra
I was just wondering how you are doing being back to work? Haven't seen any posts about it.....
Didn't someone on here once post that they had appendix cancer?
Last weekend a friend asked me if I was willing to speak with a friend of hers who they had said had OVCA. Anyway, when she had surgery Monday, they realized that it was appendix cancer. Apparently it is very rare, and there are very few specialists for this type of cancer. The family is considering M.D. Anderson or Cancer…
13 Is the Magic Number
I am having my chest port out on Monday morning.... I am very excited about this because that was the last thing on my cancer list that had to be taken care of. It will be so nice to look at myself in the mirror and not see those 3 little dots looking back at me screaming 'you had chemo"... I have my next 3 month check up…
NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I just got back from the Oncologist office and I am officially in remission (NED)!!!!!!!
You are all inspiring
Hi Ladies, Have a friend just diagnosed - reading all your positivity makes me so happy! You all inspire me!
chemo treatments
So I have had 4 treatments so far and no problems with chemo, but I am with the after effects. I have to switch to the everyday neupogen shot because Neulasta was giving me problems. I have had low potassium so have had to do two potassium infusions plus I am on oral potassium pills at home. My hemogloblin was low so I had…
My mom is cancer free!
Hello everyone! I just signed up for CSN today so I could share good news with all of you women out there. My mom is 49 and was diagnosed with stage 3C ovarian cancer =in October of 2012. She had a full hysterectomy, followed by 6 chemotherapy treatments, one per month. Today she went to the clinic for her results - and…
Zinaida - how are you?
Зина, как вы себя чувствуете? Topotecan помогает? Напишите!! Большой привет, Саша
Acid Reflux after chemo
I am having so much trouble with acid reflux since chemno, anyone else having this problem
Gift for a Cancer Patient
Me, a 10 year survivor of ovarian cancer (did I mention I had clear cell?) Ever been asked what to give as a gift to a cancer patient? There are so many times a cancer patient has something to celebrate. Let’s start with each day we awake to a new day. Now that’s something to celebrate! How about when we have good results…
Just more of the Same -
So I was diagnosed with stage 3C OVC in 2007. First let me say that I have been very fortunate and have enjoyed a lot of pretty good health and normalcy since my diagnosis. I have an amazing and blessed life. And bottom line - I am still here! Now for the whine - In 2011 after over 3 years of NED my tumor marker began to…
Anti Cancer Diet
Saw this link on Facebook this morning on Dr. Oz's Anti Cancer diet. With so much info out there of what to and what not to eat just looking for some feedback on this. http://www.doctoroz.com/videos/anti-cancer-diet
YUCK!!!!!!!!!!!!! Just following up
Hi I posted back in Feb that my CA125 went from 8 to 42 Dr. had me wait a month then redo Ca125 well i did and numbers are now at 73. I go for CT scan next week. Trying not to panic however i know better. Why do they say it could be many things that could cause the numbers to go up when i know in my heart that this is NOT…
Intro--encouragement offered
Hello, everyone! I am new to this board. I was diagnosed with Stage 1 granulosa cell oc two years ago this week. I had a total hysterectomy and three rounds of chemo (5 days/wk, then off for two). I am getting my port out on Thursday. Even though the type of cancer I had has a tendency to return, so far I have been NED. I…
Three Years NED
It has been over three years since I received the glorious news that I was NED. I’m certain it came as a shock to my gyn/onc, who, after my suboptimal debulking from a very aggressive cancer, said I would never achieve remission and would not last a year. I think he wasn’t far from wrong. The time of treatment was an…
Two Year Anniversary!
Exactly two years ago today, I had my last chemo treatment. I've been dancing with NED (no evidence of disease) ever since! I'm not greedy. There's plenty of NED to go around. I hope and pray that NED dances his way into the lives of the women he hasn't met yet and stays with the rest of us. Praying for us all! Kelly
Just retired
Yup.. Just put in for retirement this past week. I have been in chemo for about one year and so very close to being NED,..I will miss my co-workers and patients...but is is time for me. Looking forward to some R&R and some warmer weather. Hope you are well and have some plans for Spring and Summer....Val
Think I am crazy... :(
Hi ladies, I am going to lay it out here and you tell me your honest thoughts because I feel like I am going crazy... I am a 33 yr old mom of 4 kids, my health has deteriorated over the last few years with wierd issues lol. And I can not find a smart dr in the town I am in :( issues below. 1999- .05 progestrone levels…
Can someone please speak to me about my Ovarian Cancer concerns?
Hi there, I have been ill for several months, but at least for the past 1 month or so I have been having terrible symptoms and I feel like I'm dying.... I had a TVU done on 11-13-12 and they found a 2.3 cm cyst on my left ovary. It's now March and I have seen 4 different doctors bouncing me around (1 Emergency room doctor…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Ovarian Cancer

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