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Like the energizer bunny....
This just never seems to end. Ever since the cancer dx in 6/2011, menopause set in with a vengence (went on hrt - so far so good but still so much fatique and aches/pains), then went in for new glasses, Dr. said "freckle" in left eye is not freckle now that it is showing up in right eye also. Went to ophthalmologist, who…
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NY Times says only 1/3 of ovarian cancer patients get the best treatment
Must admit, it’s more than a little unsettling to come across articles like this one, which says only a third of ovarian cancer patients are getting the best treatment. http://www.nytimes.com/2013/03/12/health/ovarian-cancer-study-finds-widespread-flaws-in-treatment.html?pagewanted=all I was surprised to read some ovarian…
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Ovarian Cancer Survival Better With Intraperitoneal Than IV Chemo
Long-term results from 2 large studies confirm the superiority of intraperitoneal (IP) administration of chemotherapy over intravenous (IV) administration after surgery in patients with advanced ovarian cancer. "We have known for some years that intraperitoneal administration may give superior results...but it is balanced…
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What to tell a potential employer and when?
Ok just thought I would throw this out there and see what I got back. My original diagnosis was almost 6 years ago. I was a stage 3C. After 4 months off for surgery and recovery I went back to work and other than chemo days - never missed a day. Well got through chemo then a few months later got laid off. I was fortunate…
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Feminine Issues
As some of us know, post menopause brings with it a new set of challenges. I just wanted to share some helpful information I gained from my Naturopath. Coconut oil is a great moisturizer and lubricant, for those private areas. And there is a product sold by Dancing Willow Herbs that restores elasticity to vaginal tissues,…
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The Wedding - Pictures !
Hi Ladies, I just wanted to share with all of you a few of the wonderful images from my daughter's wedding last Saturday. I posted them on my expression page. I had a lot of fun even with the ever present pain and fatigue. It was so beautiful and that really helps one to forget, even if only for an evening. huge hugs Lisha
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New to this.....High CA 125
Hello. I am new to this. I am 45 years old. I recently went to the orthopedist with a hip injury. I was positive it was a fracture. Well, no fracture, but I did have a mass in my uterus. I went to see my OB, and because of my past history with severe endometriosis she suggested I have a full hysterectomy. She did some…
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High CA125, mass found on left ovary and scared!
I am 41 years old. I had blood tests approximately three months ago, which revealed a CA125 of 33. I made an appointment with my gyno, who repeated the CA125 and now is at 127. I had a vaginal ultrasound the following week, which revealed a cyst inside my left ovary. A doppler was performed and no blood flow to the cyst…
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Fatigue
I have been experiencing fatigue some days. I asked the onc if it could be caused by the tumors and she said no based on what she saw in the petscan. So I am thinking it is the Aromasin. On some days I have to lay down after I shower, before I get dressed. Then rest again after I get dressed. I felt this way at the…
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Back to work
Last week of April 2012 I went to my company headquarters in Michigan for training. I rented a car from Enterprise, drove from Toronto to Detroit, stayed in Crowne Plaza hotel in Auburn Hills, spent the week in meetings and on May 2nd drove back to Toronto. I was feeling so crappy and bloated on my way home, that I drove…
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Anyone had weekly Taxol/Carboplatin treatments for 18 week period?
Greetings, I'm new to CSN. I started IV treatments Jan 7, 2013, no port so far. I'm doing well, just wondering if the effects worsen as time goes on. I fatigue 1-2 days a week enough to stay in bed, but recover fine after that. I also have some skin irritation after treatment on my arms but it seems to clear in a few days.…
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Sad sad day
Hi Ladies, Sadness and loss has hit me again. My dear sweet "other" mom has passed away from lung cancer. She fought so very hard and tried everything she could. She never smoked, ever. We all thought she would be okay. She is a second mom to me and the one I turned to this past year after losing my mom. I feel numb and…
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Some encouraging News
Hi all, It's been a while since I last posted but for those who want to know the background, read my post here: http://csn.cancer.org/node/250795 So, I just wanted to come on here and give an update on my Mum's condition that may offer peace to some people and perhaps a little encouragement. My mum had her 1st CT scan back…
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Hey Pam - PTARP
How are you feeling? Thinking of you. A big huge CONGRATS on finishing chemo........ So happy for you.
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Just got Petscan results...
When I got home from my onc appointment I asked my mom if she wanted the good news, bad news or sh*t news. The good news is the original tumor is almost the same size as the last Petscan showed in June. The SUV (standardized uptake value) is lower. That indicates the rate at which the tumor is growing. The bad news is…
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2nd clinical trial done, no help. :(
well looks like the cat scan results showed disease progression, and I am off of the Dalantercept. I only had 2 shots, and thought they would give it more time, but my Onc wants to see me tomorrow to discuss my next step. he said the amount of growth surpassed their limits for me to stay on the drug. I knew they were…
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Scan results from yesterday.
Hi Ladies. My doctor called me this morning with my CT results. He said my disease is stable. I have all lymph node involvement. He said there are no new lymph nodes since scans four months ago. He said a few nodes increased by a milimeter while others decreased slightly. He plans to keep me on doxil as long as it's…
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ca 125
Hi Ladies Well today was the day that I got my courage on. I was to have my blood work done Monday, but between exhaustion from the wedding and my own personal fear, it took me till today. It's really odd to be so emotional about a blood test. I'm sure it's because of what the results may or may not say. I'm very hopeful…
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Had.third chemo
Last Thursand still feeling bad. Poor appetite .sore mouth and tongue and very little energy. I have marks in my legs that look like burns...omg...always something. Having loose bms also...it is Spain when you you take a pain pill and go to sleep...then you have to go. Hopefully tomorrow. Will be better. I am on…
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Am I just crazy, dumb, or what?
Hi Ladies, I have scans this upcoming Wed. (march 6). I am SO scared. I've had 4 rounds of doxil after first recurrence. (approx. 7 months remission). I changed drs. after 3 rounds of cistplatin/taxol. Scans after those showed mild growth in the nodes. My new medical onc. did not think the costplatin/taxol was the right…
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High CA125, mass found on left ovary and scared!
I am 41 years old. I had blood tests approximately three months ago, which revealed a CA125 of 33. I made an appointment with my gyno, who repeated the CA125 and now is at 127. I had a vaginal ultrasound the following week, which revealed a cyst inside my left ovary. A doppler was performed and no blood flow to the cyst…
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Gerson Therapy
Has anyone heard or had experience treatment at the Gerson clinic in Tijuana Mexico? I'm looking for any treatment after finish my chemotherapy, I got my CT scan last week and there is no evidence of cancer. My CA125 was 11 last Tusday. I think I'm just desperate that cancer won't return.
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NEED SOME HONEST THOUGHTS
Hi was trying to avoid this conversation. I do read every post here most every day. I went yesterday for my CA125 Im 9months out of chemo so my number went from 8 to 42 I have had a cold for three weeks in January and dental work over the weekend. Does anyone have thoughts or experience with these things raising your…
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Need some reassurance - HELP
I have two more treatments left and a CT scan in mid March. I am already worried about my 3 month check-up and would like to hear from Stage 3C long term remissions over 10 years. Are they really possible? How often does it happen? My doctor said for a person that was diagnosed at 3C I have good chances. He said I was MORE…
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Low grade fever following chemo? (Doxil)
Hi Ladies, I just took Round 4 of Doxil this Monday. I am running a low grade temp. 99.4. I also did this after the third round for a few days. Does anyone else run fever after a treatment? My doctor told me to call if it reached 100.4 or higher, or if I felt just real crappy. :) Other than some fatigue I don't really feel…
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Are there any "hopeful" signs (or non-symptoms) when we recurr? and other random things to discuss
Hi Ladies, AS I posted the other day, I am just about crazy with fear and dread of next week's scans. Yes I did recurr after about seven months. But even though I'm stage 3c clear cell, I still achieved remission. Can I again? I have absolutely no symptoms as I had when I was diagnosed in May '11. I have had no more…
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Graviola
I purchased my Graviola from www.rain-tree.com I had seen it a few months back while doing some research on natural cancer cures. This herb always shows up. Very interesting reading. And I figure what do I have to lose besides my hair. I just started taking it. It is very potent so I take it with Organic yogurt and I just…
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avastin
I have 1 more chemo to go and then the oncologist suggests I try Avastin. Has anyone tried this?
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Looking for Stage II Ovarian Cancer Survivors
Hello, I was DX on May 2009 with a Stage 2B ovarian cancer. I am looking for anyone else who was a stage 2. I want to see how they are doing and if they have had any re-occurances. Thank-You for any information you can provide me. Paula
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Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…