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Ladies....I have some bad news about the OC Quilt (and the NOCC)
As many of you know, today was the NOCC (National Ovarian Cancer Coalition) 5K in my area (Dallas/Ft Worth), to raise money for research and awareness for OC. I joined NOCC in early 2010, at the urging of my doctor, who was (and may still be, I'm not sure) on the Board. I walked the full 3.5 miles last year in the rain,…
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Alexandra
I was just wondering how you are doing being back to work? Haven't seen any posts about it.....
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Didn't someone on here once post that they had appendix cancer?
Last weekend a friend asked me if I was willing to speak with a friend of hers who they had said had OVCA. Anyway, when she had surgery Monday, they realized that it was appendix cancer. Apparently it is very rare, and there are very few specialists for this type of cancer. The family is considering M.D. Anderson or Cancer…
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13 Is the Magic Number
I am having my chest port out on Monday morning.... I am very excited about this because that was the last thing on my cancer list that had to be taken care of. It will be so nice to look at myself in the mirror and not see those 3 little dots looking back at me screaming 'you had chemo"... I have my next 3 month check up…
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NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I just got back from the Oncologist office and I am officially in remission (NED)!!!!!!!
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You are all inspiring
Hi Ladies, Have a friend just diagnosed - reading all your positivity makes me so happy! You all inspire me!
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chemo treatments
So I have had 4 treatments so far and no problems with chemo, but I am with the after effects. I have to switch to the everyday neupogen shot because Neulasta was giving me problems. I have had low potassium so have had to do two potassium infusions plus I am on oral potassium pills at home. My hemogloblin was low so I had…
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My mom is cancer free!
Hello everyone! I just signed up for CSN today so I could share good news with all of you women out there. My mom is 49 and was diagnosed with stage 3C ovarian cancer =in October of 2012. She had a full hysterectomy, followed by 6 chemotherapy treatments, one per month. Today she went to the clinic for her results - and…
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Zinaida - how are you?
Зина, как вы себя чувствуете? Topotecan помогает? Напишите!! Большой привет, Саша
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Acid Reflux after chemo
I am having so much trouble with acid reflux since chemno, anyone else having this problem
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Gift for a Cancer Patient
Me, a 10 year survivor of ovarian cancer (did I mention I had clear cell?) Ever been asked what to give as a gift to a cancer patient? There are so many times a cancer patient has something to celebrate. Let’s start with each day we awake to a new day. Now that’s something to celebrate! How about when we have good results…
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Just more of the Same -
So I was diagnosed with stage 3C OVC in 2007. First let me say that I have been very fortunate and have enjoyed a lot of pretty good health and normalcy since my diagnosis. I have an amazing and blessed life. And bottom line - I am still here! Now for the whine - In 2011 after over 3 years of NED my tumor marker began to…
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Anti Cancer Diet
Saw this link on Facebook this morning on Dr. Oz's Anti Cancer diet. With so much info out there of what to and what not to eat just looking for some feedback on this. http://www.doctoroz.com/videos/anti-cancer-diet
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YUCK!!!!!!!!!!!!! Just following up
Hi I posted back in Feb that my CA125 went from 8 to 42 Dr. had me wait a month then redo Ca125 well i did and numbers are now at 73. I go for CT scan next week. Trying not to panic however i know better. Why do they say it could be many things that could cause the numbers to go up when i know in my heart that this is NOT…
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Intro--encouragement offered
Hello, everyone! I am new to this board. I was diagnosed with Stage 1 granulosa cell oc two years ago this week. I had a total hysterectomy and three rounds of chemo (5 days/wk, then off for two). I am getting my port out on Thursday. Even though the type of cancer I had has a tendency to return, so far I have been NED. I…
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Three Years NED
It has been over three years since I received the glorious news that I was NED. I’m certain it came as a shock to my gyn/onc, who, after my suboptimal debulking from a very aggressive cancer, said I would never achieve remission and would not last a year. I think he wasn’t far from wrong. The time of treatment was an…
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Two Year Anniversary!
Exactly two years ago today, I had my last chemo treatment. I've been dancing with NED (no evidence of disease) ever since! I'm not greedy. There's plenty of NED to go around. I hope and pray that NED dances his way into the lives of the women he hasn't met yet and stays with the rest of us. Praying for us all! Kelly
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Just retired
Yup.. Just put in for retirement this past week. I have been in chemo for about one year and so very close to being NED,..I will miss my co-workers and patients...but is is time for me. Looking forward to some R&R and some warmer weather. Hope you are well and have some plans for Spring and Summer....Val
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Think I am crazy... :(
Hi ladies, I am going to lay it out here and you tell me your honest thoughts because I feel like I am going crazy... I am a 33 yr old mom of 4 kids, my health has deteriorated over the last few years with wierd issues lol. And I can not find a smart dr in the town I am in :( issues below. 1999- .05 progestrone levels…
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Can someone please speak to me about my Ovarian Cancer concerns?
Hi there, I have been ill for several months, but at least for the past 1 month or so I have been having terrible symptoms and I feel like I'm dying.... I had a TVU done on 11-13-12 and they found a 2.3 cm cyst on my left ovary. It's now March and I have seen 4 different doctors bouncing me around (1 Emergency room doctor…
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Thyroid results
Good news. My ultrasound came back negative for any thyroid disease or cancer. I am so happy!! My blood work came back normal too. They think the swelling is a fatty area.
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Just Curious - First Remissions
I'm just curious and am wondering how long everyone's first remissions lasted, and if anyone is still NED after first line treatment, how long have you been NED? Thanks!
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Thyroid results
Good news. My ultrasound came back negative for any thyroid disease or cancer. I am so happy!! My blood work came back normal too. They think the swelling is a fatty area.
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Pam ~ PTHARP
Chemo is over for you now. Have you done your scan yet? Been thinking about you. You have not been on lately.
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Taxol & Carbo
Hello All, Has anyone been on the carbo/taxol chemo combination? If so how hard was it on your body? The 1st treatment is 5-7-12. I know that there will be some nausea with decreased appetite. I just wanted to know what else to expect for my mom. We know that each person will have different symptoms to chemo. But a general…
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Third Anniversary
Today marks the third anniversary of the call that forever changed my life. It is hitting me harder this year probably because I was in remission for the first two. I have mixed feelings today. Of course I am thrilled to be alive. When I got my diangosis I "assumed" I had a few months to live. I am also in remarkably good…
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IP chemo
I am fairly new to this or any message board, but not so new to OC. I was diagnosed in July, 2011, with stage 3c. I had three cycles of good old taxol and carbo then hysterectomy and debunking, then four more cycles of chemo. That got me to NED!!! I went into a clinical trial for a maintenance drug called Opaxio. I got…
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Doxil anyone?
Hello ladies, I will be starting a new trial with Doxil on April 1st. Can anyone give me some opinions or insight on how they did on this drug. How long they were on it before they saw results, if any. How did you feel on it? Also your most serious side effects? They tell me to expect some sensitive skin issues mostly,…
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Cycloblastin (cyclophosphamide) anyone?
Having had three cycles of Gemzar with good drops in my CA125 unfortunately on the fourth had a rise of 10 percent. So so disappointing! Thought I was onto the right chemo for me. My oncologist has added a daily 50mg tablet of the above to my regime. Wondering if anyone else has had or is having this and would love to hear…
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Maria
Has anyone heard from Maria?