AMIYA~Info 4 U in answer to your ??? re Endometriotic cysts~Only more complete testing by Drs. can d

LorettaMarshall

Hello Amiya,

Since you’ve written on two different sites, I thought it best to create even a third one just for you.  I see you’ve posted on a site which began in 2008.  http://csn.cancer.org/node/156587

You also posted a similar question on this current link:  http://csn.cancer.org/node/308252

So I thought it might be simpler just to answer you here.  And we can keep track of your correspondence if you have a topic line all your own.  You’re concerned about an elevated CA125 count of 135.  You stated that you had just had an ultrasound and an endometriotic cyst was found in your left ovary.    Your question:  “plz someone tell me is it due to cyst only or is there be chances of cancer.....plz...do help for me…”

Now understand first of all that none who read your letter would be able to give you an answer as to whether or not this indicates cancer—certainly not I.  Often I haven’t a clue as to the problems that are written about here, but I try to find some information that will help the person with their particular concern.  So in that context, I’ve learned some interesting information from reading about “Endometriosis.” 

Endometriosis isn’t my problem but I will share with you some links that will help you to understand HOW one may come to have an endometriotic cyst.  The articles are lengthy and so I will not attempt to print out the entire article, but a reading of the entire article will give you a good understanding of  how these cysts are diagnosed and treated.   

I'm not sure if you are in consultation with a gynecological oncologist, but they have more extensive training relative to the female organs.  In any event, you will better understand him/her when they quickly start using a lot of words you may not have heard before.  If you have a medical background that may not be a problem for you, but often I have to ask the doctors about the meaning of a word that they have used.

When we go for a test or scan, we pray that it won’t be cancer—that’s only natural.    Now I do know that there are ladies here who have been diagnosed with Endometriosis.  Perhaps some of them may share their story with you.  I'm sorry that I can't give you more "first-hand" information from my own personal experience.  However, we would like to know how things ultimately turn out for you. That’s the purpose of this forum—to share our sorrows and our JOYS!  And hopefully you will write next with good news.

Sincere best wishes,

Loretta (Peritoneal Carcinomatosis/Ovarian Cancer Stage IV – Nov. 2012)

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1. http://www.mayoclinic.org/tests-procedures/ca-125-test/basics/definition/prc-20009524

“Definition - By Mayo Clinic Staff

A CA 125 test measures the amount of the protein CA 125 (cancer antigen 125) in your blood.

A CA 125 test may be used to monitor certain cancers during and after treatment. In some cases, a CA 125 test may be used to look for early signs of ovarian cancer in women with a very high risk of the disease.

A CA 125 test isn't accurate enough to use for ovarian cancer screening in all women because many noncancerous conditions can increase the CA 125 level.

Many different conditions can cause an increase in CA 125, including normal conditions, such as menstruation, and noncancerous conditions, such as uterine fibroids. Certain cancers may also cause an increased level of CA 125, including ovarian, endometrial, peritoneal and fallopian tube cancers…”

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2.  http://www.mayoclinic.org/diseases-conditions/ovarian-cysts/basics/causes/con-20019937

“Ovarian cysts – Causes - By Mayo Clinic Staff

Most ovarian cysts develop as a result of the normal function of your menstrual cycle. These are known as functional cysts. Other types of cysts are much less common…”

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3. https://www.womenshealth.gov/a-z-topics/endometriosis

(My note:  A close reading of this article does state that other serious health complications could result when one has been diagnosed with Endometriosis, but please try not to assume the worst to begin with and diagnose yourself with cancer, even though we all have to fight those fears.  These articles explain how you have come to be diagnosed as having an endometriotic cyst, but at this point how your oncologist plans to deal with it is obviously yet to be determined.)

“…Why does endometriosis cause pain and health problems?

Endometriosis growths are benign (not cancerous). But they can still cause problems.

Endometriosis happens when tissue that is normally on the inside of your uterus or womb grows outside of your uterus or womb where it doesn't belong. Endometriosis growths bleed in the same way the lining inside of your uterus does every month — during your menstrual period. This can cause swelling and pain because the tissue grows and bleeds in an area where it cannot easily get out of your body.

The growths may also continue to expand and cause problems, such as:

• Blocking your fallopian tubes when growths cover or grow into your ovaries. Trapped blood in the ovaries can form cysts…

Endometriosis is a common health problem for women. Some women do not have symptoms and are never diagnosed, so it is difficult to know how many women have endometriosis. Researchers think that at least 11% of women, or more than 6 ½ million women in the United States, have endometriosis…

For more information about endometriosis, call the OWH Helpline at 800-994-9662…”

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4.  http://my.clevelandclinic.org/health/articles/ovarian-cysts

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5.  http://www.everydayhealth.com/ovarian-cyst/guide/

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6.  http://www.everydayhealth.com/ovarian-cancer/endometriosis-and-ovarian-cancer-risk.aspx

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