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My post-chemo experience
Like most people I didn’t really know what to expect once my treatment ended. I just knew I felt VERY weak and was curious about when I’d get my hair back!! I experienced a few surprises along the way and I thought I’d post a discussion item here to capture them for others. Others may want to add their experiences as well.…
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Onc appt on Tuesday
Hi, In the last 3 weeks I've had biopsies, blood work and a PET scan. I see my doc on Tuesday to get the story. A bit nervous because I don't know my fate yet.I know that one node has enlarged quite a bit, not painful at all, it just causes some harmless numbness. (per my other doc)I also have severe gastro intestinal…
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wbc dropped and Cat Scan.
I went to my Gastroentologist this afternoon for a follow up. Because of my being admitted to the hospital December 11,011. So he called the hospital today for my record and it said acute diverticulitis. I was kind of surprised how my wbc dropped from 4.0 to 3.1 since August. I have to do my cat scan on February 3 and then…
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Update
Hi everybody, Just wanted to update you guys on what my Onc said. I went to see him today and will start treatment next Thursday it will be Rituxan once a week for 4 weeks and rest for 6 months and then do it again. Well that's the plan, hope and praying to God that everything goes well. Sincerely, Liz
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Praise God- Cancer's in remission after bone marrow test
Today I got to see my onocologist and received great news from my bone marrow test of last week. Test showed lymphoma in remission - prayer and awesome doctoring has brought me back from what six months ago looked like my life was over. I was able to walk into the doctor's office without my walker for the first time and…
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anyone had RICE treatment
My dad had his Dr. Appt on Monday and they changed his treatment to RICE. He starts this treatment on Tuesday. It seems like this is much more draining and involved than RCHOP. I know my dad is nervous about the hospital stay for 5 days. Has anyone had this treatment?
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Hi
Hi....I'm new to this site, just wanted to say Hi I guess, I had Hodgkins Lymphoma Stage four, I was diagnosed at 15 and had treatment, I'm eighteen now. I've never really talked about it so thought I'd join and see if I could meet others :)
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Roller coaster ride trying to decide
Thought that the decision had been made..still deciding Chemo every two months for 2 years or Radiation infusion Zevilin. Worried about secondary cancer that maybe cause by radiation. We know that we shouldn't be worried about the unknown and deal with what we do know and that's making sure lymphoma is kept away, but still…
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Anyone have Non- Hodgkin 4th stage lymphoma
I would love to chat with someone going through the same cancer therapy as I am - to learn of their struggles and side effects and offer advice to each other concerning our cancer treatment
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Itching
Started taking Treandra on 1/10 & 1/11(2 treatments a month)...already had a small rash in my side...now it progressed to waist, arms, legs...almost everywhere...and VERY ITCHY..notified dr(thru RN).and was perscribed a "med-pac"...I don't know what that's going to accomplish...I also have blood drawn every Weds between…
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Lombardi Cancer Center
I am new here (just joined Yesterday the 23rd of Jan) I have recently been diagnosed with High-Grade, B-Cell Lymphoma. I have my first appointment with and oncologist tomorrow, 25 Jan. I have no idea about the quality of treatment available to me and have been seaching the web and looking at cancer centers. I have already…
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Peripheral Neuropathy from R-CHOP
Hi everyone. I'm new to this so please bear with me. My husband has been diagnosed with Non Hodgkins Lymphoma Diffuse Large B cell with a bulky mass in his abdomen stage IV. After his 4th round of R-CHOP chemo he developed tingling and numbness on the soles of his feet. When we went to hospital for his 5th chemo and told…
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Hi Miss Maggie
Hi Miss Maggie, I finally went yesterday to get my medical records and it seems that my Primary doc and I had another miscommunication lol. After reading through them it seems that I don't have Follicular but Splenic Marginal Zone Lymphoma SMZL. I'm going to take them to my Primary doc right now so she can make a copy and…
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New to this discussion board
Hi I am new to this discussion board. I had a ct scan performed last Friday on Jan. 6th and doctors office called 2 days ago and said they have been watching a spot on my spleen since July 2010. They are going to do a pet scan on Tues. Jan. 17th. My problem was I was surprised that they had been watching a spot on my…
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Hello, new Hodger here
Was just diagnosed over Christmas. Well that's a fine thing. Never saw myself as a lymphomaniac, but there it is. Have learned much in these few short weeks. I did freak, for sure. Couldn't sleep...lay awake shaking all night. Mainly because I must keep my job...my GP goes, no you won't be able to, you're life is going to…
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New web site
Hi guys, Me again with another new web site to take a look at.LRF(Lymphoma Research Foundation) has added this new web site. Go to FocusOnHL.org if you have time...I'm always looking for new research tools and this looks to be a good place to see whats "NEW" going on in the research of Lymphoma. Take care...Sue…
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Manual Lymphatic Drainage (MLD) Therapy
Has anyone heard of MLD or have any experience with this type of therapy? MLD was suggested to me when I bought of pair of MBT shoes for $280 today. I still have late effects 1.5 years after chemo with tender heals mostly. I bought a pair of MBT sandals last summer and they made walking so much easier. Now this winter I'm…
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MALT Lymphoma - My journey - mask & radiation treatments
Join my blog. Photos of my mask being made and information on radiation treatment. Comments and encouragement are always welcome. http://orbitalmaltlymphoma.blogspot.com
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I don't understand!
My dad has diffuse large b-cell lymphoma stage 4 and he had a clean pet scan in November 2011. Now only two months later after his last treatment and petscan the cancer is there and spread across his throat and chest. I am so sad and terrified. He has to go to a different hospital to start a different intense chemo…
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PET scan today
Hi everyone. I had my PET scan today and it was not so scary except when they came back to get me from the room to put me in the scanner again to check my abdomen as they said there was a dark patch that they wanted to check to see if it moved on after the initial scan! Has that happened to anyone? I am now worried.
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Anyone else going through something like this?
Found a lump on my upper arm near my armpit, but more on my bicep. Biopsy results came back suspicious for lymphoma and were sent on to Pittsburgh for consult. Those results came back as chronic lymphocytic lymphoma which translates to SLL/CLL. Had Bmbx, a full CT series and blood work in October 2011. My CT scan showed no…
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need some information
im sumann here..patient of HD stage 2b bulky case..i juz finish my chemo yesterday which is 4th cycle 8 times of treatment..awaiting for pet scan..what i want to know is is it 4 cycle is enough for my case or 6 cycles is the better( but i cant take it anymore)..is it neccesary to do transplant after radiation? thanks in…
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r-dhap anyone had this treatment?
My dad has to have r-dhap on Tuesday. He had 6 rounds of R-chop and it didn't work. Has anyone had remission after this chemo treatment?
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Hi Everyone - new from South Africa - a bit scared and lost
Hi Everyone My name is Kyla and the last 3 weeks of my life have felt like intolerable cruelty. The only thing that got me to today was God and praying. On 1 November my neck swelled and I got DVT's in both my major veins. Had a operation on 3 November to try open the blood flow to my right arm and was off home going on a…
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After effects of chemo
No one one told me that after i was in remission that after effects could and did start. I have difficulty remembering things and often have to read my school word 3 or 4 times to try and get a good grasp of what's going on. I tend to forget what i'm doing or can't think of the correct words when i'm speaking. I also have…
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Liz, how are you feeling
Hi Liz Just wanted to say that I hope you are feeling alot better. Please be sure to get your rest too. I am sure that is hard to do with little ones, but try to not over do it. Peaceful healing Lisha
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Newly Diagnosed
Hi, I'm 33 and I was just recently diagnosed with Diffuse Large B Cell Lymphoma. I had my first chemo treatment (r-chop) on December 21. I will not find out what stage my cancer is until Jan. 5th because my doctor is waiting on other test results to come back. I am very new to this and I was wondering what to expect with…
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Radiation Side Effects
I am about to start radiation to finish dealing with tumor in my chest. I don't know how many treatments I'll have yet. I was wondering if anyone else was having radiation right now and could tell me about possiblbe side effects. I've heard it can cause fatigue. I've just gone back to work following my Chemo treatments and…
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Peripheral neuropathy from radiation
I was diagnosed with Non-Hodgkins lymphoma in the fall of 2008 - follicular B cell, stage 1, in my right lower pelvis. It appeared as a lump a little smaller than an egg on my upper thigh. Not particularly painful, but I knew it was not normal. I received 18 IMRT zaps of radiation. I had no immediate side effects. After…
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Feeling better
Thank you Lisha, Sue, Miss Maggie, Donna, and Jim for sending positive thought my way! I needed them, I was released yesterday evening feel much better but still hacking away lol! Got some very needed antibiotics and now I'm just going to make more appointments with my other Docs for follow up. Next time I won't let it get…