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Lymphoma (Hodgkin and Non-Hodgkin)

Happy Valentines Day
Hi All Just want to wish everyone a very happy Valentines Day. Whatever your day brings, know that I am thinking of you. I am still at my Moms. She is comfortable. Lisha
Have you been advised to avoid sugar?
Our doctor hasn't mentioned it and I haven't read it in the information booklet from the Seattle Cancer Care Alliance. But, I have heard it from a couple of people. They say it " feeds cancer ". What do you think?
Quick update
Hi Dearest friends I have been spending all my time at my moms. I just came home for a quick change of clothes and will be heading back to her home in a few minutes. I am so sad at what is occuring. Mom is comfortable and that is a blessing. She knows that we are with her. Thank you again for your love and prayers. It…
Need support and direction, really concerned! Newcomer here. Please read.
Hi, my name is Joanna, this is my second post in the last couple of days. I have been reading some of your posts and stories. I am having symptoms of relapse and I am really having a difficult time with it. I was diagnosed in 08 with rare type of Large T Cell Lymphoma. I did very well with treatment. My last treatment was…
splenic marginal zone lymphoma
The love of my life is going through maintenence Rituxin every 2 months for 2 years, after 6 treatments of R-CHOP. I would love to hear from other people that have the same diagnosis and hear how you are doing. I wonder after the 2 years then what? He had 90% of his bone marrow cancerous one year ago and now he is in…
WHOO HOO, Cat scan
Hi Everyone, I am so relieved that I was at the Oncologist today and I am good for another 6 month. So that is news to be at least able to get that off my mind for another 6 month. It is such a relieve that I am still good. The worry with me is I have so many other problems. So at least that is good. I would like to thank…
My husband was recently diagnosed
My husband has Stage 2 Diffuse Large B Cell Lymphoma. He had his first R-Chop infusion 6 days ago. He always says he feels fine, but I've noticed today that he seems to be moving kind of slow and he does admit that he feels "foggy headed". I'm wondering if this could be from not tapering down his Prednisone. He took 100mg…
Thank God for Drugs LOL
Hey everybody, I just wanted to give an update on my treatment yesterday. Everything went excellent...Thank God for the Drugs and for whoever invented them lol!!! I've had a little bit of pain on my back but nothing really bad. I was wondering if any of you have felt your heart go faster than the normal. I've felt that…
Prayers and positive thoughts needed
Hi All I am heading to the airport in just a few hours. I'll keep you updated if I can. I am asking for your help. Can you please say some prayers for my Mom. If that is not your way, maybe you could send some positive healing thoughts her way. I am so worried about leaving her, praying as hard as I can that she will be…
CT Scan - still NED !
Hello everyone! I haven't posted much in awhile but I have been occasionally reading/following you. It's been tough since losing my sister but I think I'm doing as well as expected at this point with that. I had my regular 3 month visit with the oncologist on Monday 2/6, CT scan, labs, etc. Results were good. Some of my…
Hilde??
Anyone see any news from Hilde yet? Still praying for you Hilde! Mary
Low white cell count months after chemo
Hello, I just finished chemo 3-1/2 months ago. Last week, I had my counts checked and my white cells had fallen to .9 and my neutrophils to .3. Just two weeks earlier, my white count was 3.2 and neutrophils were 1.75. My hemoglobin and red are normal ranges and platelets are improving. I had it rechecked today, and there…
Last Maintenance Treatment Feb. 8
It has been 2 1/2 years since my R-Chop began and then 2 years of Rituxan treatments. Yesterday was my last treatment at the Siteman Cancer Center in St. Louis. It is a wonderful place. Cheers went up when I rang the bell marking the end. Now lab tests and Dr. visit every three months and yearly CT scans. I am in remission…
oncologist visit
Dear Liz and Donna, Yesterday, Tuesday I had very little time to post a reply to your concern, Thank you. I had a few concerns from a transvaginal sono June 27, 2011, and abdominal ultra sound Oct 11, 2011. Small cyst on left ovary, and mild prominence of pancreatic duct. I had a MRI Nov 14, 2011 to ease my concern. The…
Update
Hi All Thank you everyone for your kindness. This trip has been interesting. The weather has been so nice since it stopped raining the first night. Does not feel like normal Key West weather. That is the good news. My business meeting has been extended for 60 days. After spending all morning till 6:30 pm yesterday in…
A warm Hello!
Hi to those of you who know me and to those who don't. Just wanted to pop in and check on folks and also give a brief update on my status. Went for another 6 month check up at Mayo yesterday. After the CT scan in the morning I saw my hematologist in the afternoon and was found to have remained in complete remission! I was…
Have a good oncologist at Dana Farber?
Hi, my mom, 65, was just diagnosed with stage 3 follicular lymphoma. She wants to be seen at Dana Farber. Anyone know a good oncologist there? I'm sure they're all good, but looking expecially for one a patient/family member would recommend as having a great bedside manner. Thanks.
Last Chemo!
I haven't been around in awhile but I just wanted to share that I finished my last treatment yesterday! I am in remission and have an appointment in 2 weeks to figure out where to go from here. Its weird, I feel like I should be happy and excited but I am not really. If anything I'm more terrified of what is going to…
Hair Loss
I was recently diagnosed with lymphoma and began to experience hair loss. However, I decided not to let cancer take my personality while it battles for my body. My family helped me to make this a funny experience. I refuse to let cancer change for anything but the better! http://youtu.be/R9o3EsL6Qhc
Cat Scan
Hello Everyone, Today was the day and I did my cat scan. So now comes the wait. I think is worse then anything else. Your mind runs away with me. I am trying to stay focused and busy. It is just hard not to think about it all. I have been in remission since 09. I did the Zevalin December 23, 09. So will see, I pray for…
Thinking of you, Liz
Hi Liz Just wanted to say that I will be thinking of you tomorrow as you start your new journey. It's always a little bit scary to start a new treatment. But after tomorrow you will no longer be a newbie. I bet that you must feel some relief at getting started. It is so hard to do the w/w. I've done plenty of it. When you…
new to the board
Hi everyone! My name is Kelly, I'm 31 years old and I'm a 13 year cancer survivor. I was diagnosed with Hodgkins Disease back in 1997 when I was 17 years old. I came to this board to hopefully connect with people who have gone through what I've gone through and who can relate to the fears I still have. My mother recently…
Thanks and Update
Hi everyone! It's been a couple of weeks since I have posted anything, but I seem to be drawn to this site daily. I get on and read about everyone's experiences and it really helps me to realize that there are people who truly understand what I am going through. So, I guess I said all of that to say thanks for sharing your…
Hi Everybody
Hi Everybody, I've been reading posts since I was diagnosed 10/18/2011 with Mantle Cell Lymphoma and even though this is my first post I've met a lot of you online reading your posts. I started with all the tests. CT scan, Pet scan, bone marrow biospy ( I never want one again ) and lymph node surgery. I don't have cancer…
No sleep for the weary
Hi all I know it's been ages since I posted any news. This is my quick late night update. Life has been good, bad and everything in between lately. Seems like every time I sit down and read through the new posts, I get called away with some other crisis. My mom has been struggling and I worry for her so much. Every time…
Hepatosplenic Tcell Non Hodkins Lymphoma
We had this topic previously and it is no longer out here and several people connected and we helped each other out. I am curious to know what happened?
My wish...
Good morning all... I wish for good news and peaceful days this week for anyone going in for tests, treatment, scans or Dr. appointments. All of you will be in my prayers. Nothing on my schedule until Feb 14th when I get my next Rituxan infusion. This next one will mark the half way point in my 2 year maint plan. Best…
Please share your work story
Hello, I have tried to read everything I can about how work plays out during ABVD treatment. Basically, I need to keep working. I do have some sick and vaca time, possibly FMLA. I have a flexible schedule and can work at home at times. OTOH I also do have to get into the office a few times a week, its about a 40 minutes…
Cough
My husband had his first Rituxan infusion ( maintenance), on January 5th. He's had a cough close to a week now that wasn't getting better. He went to his general doctor yesterday and his lungs were clear. They gave him some antibiotics and cough syrup with codine to help him sleep. We were in the kitchen yesterday and he…
My post-chemo experience
Like most people I didn’t really know what to expect once my treatment ended. I just knew I felt VERY weak and was curious about when I’d get my hair back!! I experienced a few surprises along the way and I thought I’d post a discussion item here to capture them for others. Others may want to add their experiences as well.…

Lymphoma (Hodgkin and Non-Hodgkin)

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