C returned after our stem cell transplant, at day 102

jhuuamom
jhuuamom Member Posts: 3
edited June 2012 in Lymphoma (Hodgkin and Non-Hodgkin) #1
We heard to day that the cancer has returned. We have dealt with this for 2 years now. The stem cell transplant was March 6, 2012. PET scan was yesterday and its back. A total shock Thought we had a shot with the transplant. Really hard to deal with, but will learn our options next week. Anyone have any ideas or similar stories to give us some hope ?

Comments

  • jimwins
    jimwins Member Posts: 2,107
    #2
    Welcome jhuuamom
    Hello jhuuamom and welcome to the site. Sorry you have bo be here but
    You will find very caring and supportive people on this site.

    It would help if you complete the "about me" section so we know what type
    of cancer you are dealing with, treatments, etc. This will help folks
    with similar experiences share and offer support.

    They are always researching new treatments and there is still hope.
    There are many success stories here so please take that to heart :).


    Hugs and positive thoughts,

    Jim
    DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #3
    jimwins said:

    Welcome jhuuamom
    Hello jhuuamom and welcome to the site. Sorry you have bo be here but
    You will find very caring and supportive people on this site.

    It would help if you complete the "about me" section so we know what type
    of cancer you are dealing with, treatments, etc. This will help folks
    with similar experiences share and offer support.

    They are always researching new treatments and there is still hope.
    There are many success stories here so please take that to heart :).


    Hugs and positive thoughts,

    Jim
    DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)

    I am sorry to hear about your quick setback. I understand how frustrated you are. I am one year out and have a spot in my armpit. I go for biopsy monday. Just trying to keep positive.
    Take the weekend to relax.

    Beth
  • coachmike
    coachmike Member Posts: 155
    #4
    dixiegirl said:

    I am sorry to hear about your quick setback. I understand how frustrated you are. I am one year out and have a spot in my armpit. I go for biopsy monday. Just trying to keep positive.
    Take the weekend to relax.

    Beth

    I am so sorry for your
    I am so sorry for your news. I am currently going through auto stem cell myself. I will keep you in my prayers. Please keep us posted.
  • jhuuamom
    jhuuamom Member Posts: 3
    #5
    coachmike said:

    I am so sorry for your
    I am so sorry for your news. I am currently going through auto stem cell myself. I will keep you in my prayers. Please keep us posted.

    C return
    thanks for your thoughts and words of wisdom. It is nice to chat with people who have an idea of what we are going through. So many people, say "Oh he will be fine, we had a friend, blah, blah, blah". Until they walk in our shoes they have no clue as to what is going on. I will keep in touch and updated. Thanks.
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #6
    jhuuamom said:

    C return
    thanks for your thoughts and words of wisdom. It is nice to chat with people who have an idea of what we are going through. So many people, say "Oh he will be fine, we had a friend, blah, blah, blah". Until they walk in our shoes they have no clue as to what is going on. I will keep in touch and updated. Thanks.

    So Sorry
    So Sorry too hear of the return. I am in remision from Follicular NHL. There are so many types of NHL. What was the exact type. Some are aggressive and some are slow growing. This helps to narrow it down to the people that have the same type.You will find everyone one on here has a different stage and grade. Some are close but I do not think any are exactly the same. John(FNHL-1-4A-5-10)
  • diazr1
    diazr1 Member Posts: 101
    #7
    jhuuamom said:

    C return
    thanks for your thoughts and words of wisdom. It is nice to chat with people who have an idea of what we are going through. So many people, say "Oh he will be fine, we had a friend, blah, blah, blah". Until they walk in our shoes they have no clue as to what is going on. I will keep in touch and updated. Thanks.

    I have had both the aloe
    I have had both the aloe transplant and the auto. I have been doing with this for three years and currently under going clinical study medical treat.
  • DadysGirl
    DadysGirl Member Posts: 346
    #8
    COBRA666 said:

    So Sorry
    So Sorry too hear of the return. I am in remision from Follicular NHL. There are so many types of NHL. What was the exact type. Some are aggressive and some are slow growing. This helps to narrow it down to the people that have the same type.You will find everyone one on here has a different stage and grade. Some are close but I do not think any are exactly the same. John(FNHL-1-4A-5-10)

    Very sorry... It's very
    Very sorry... It's very difficult when dealing with cancer... Feels like there's a life before cancer and one afterwards... We all just want clean outcomes after the difficult times... I wish all of you and my father the cleanest outcome possible... Even if it's back I wish it will go back to clean with God' s help... We need to pray a lot... It's heartbreaking to hear of all the stem cell transplant risks and going through all of that and then it coming back... It also scares me knowing it may not work... My Dad is going next week, he was going last week but his counts did not bounce back so we had to delay... Wishing everyone and my Dad long healthy life with their loved ones. Wishing yours and everyone else's will go away completely and never come back...
  • DadysGirl
    DadysGirl Member Posts: 346
    #9
    diazr1 said:

    I have had both the aloe
    I have had both the aloe transplant and the auto. I have been doing with this for three years and currently under going clinical study medical treat.

    What type of cancer diazr?

    What type of cancer diazr?
  • diazr1
    diazr1 Member Posts: 101
    #10
    DadysGirl said:

    What type of cancer diazr?

    What type of cancer diazr?

    Hodgkins Lymphoma
    Hodgkins Lymphoma? I relapsed at day 90 and then had my sisters cells Putin me a year later. But just pray to god and stay positive. We are not put thru more than what we can handle
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #11
    jhuuamom....
    Hi,
    I've been sitting here trying to decide what to say, as I have not had to do a SCT...yet. So, first off, I'm so sorry your cancer has returned and you are now faced with a new "game plan". Of course you are shocked, we all would be if put in the same position. The best advice I can come up with is to just explore all options available for you and learn as much as possible about the new treatment your doctor comes up with. Get a second opinion, if not done already. I worry often about recurrance and what comes next,as I've been told the possibility of it happening is likely. Your right...it is terribly hard to deal with, especially when it actually DOES happen. My heart goes out to you and I pray your options will be plentiful. Hope must always be kept in our daily thinking and staying as positive as possible in our thoughts. So much easier said than done, I know, but to go negative just adds extra stress to our immune system which is NOT good. My prayers and positive thoughts are with you. We are always here for support, so please come back and share what you and your doctor decide to do. Hang in there...Love. Sue
    (FNHL-2-3A-6/10)
  • DadysGirl
    DadysGirl Member Posts: 346
    #12
    diazr1 said:

    Hodgkins Lymphoma
    Hodgkins Lymphoma? I relapsed at day 90 and then had my sisters cells Putin me a year later. But just pray to god and stay positive. We are not put thru more than what we can handle

    How long since 2nd
    How long since 2nd transplant?

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