Here we go

Aaron
Aaron Member Posts: 237
in Lymphoma (Hodgkin and Non-Hodgkin) #1
Well today's the day, hopefully it won't be too bad though I think I'd rather be out fishing with sue. I'll keep y'all posted
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Comments

  • lboehlke
    lboehlke Member Posts: 17
    #2
    Thoughts and Prayers
    My Thoughts and Prayers are with you.

    Lance
  • jimwins
    jimwins Member Posts: 2,107
    #3
    Good luck
    You'll do fine. The first is always the
    hardest. Think of it as "Chemo Crappies" instead of crappy chemo ;).
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #4
    jimwins said:

    Good luck
    You'll do fine. The first is always the
    hardest. Think of it as "Chemo Crappies" instead of crappy chemo ;).

    There Ya' Go
    Hey Aaron,
    Thata a good idea from Jim. You can imagine you are out fishin' with Sue and catching Crappies. ( I think they are a sunfish,but Sue would know for sure)John
  • forme
    forme Member Posts: 1,161 Member
    #5
    First day
    Hi Aaron

    I am thinking about you this morning as you get your first chemo. I'll be keeping you close in my heart.

    I'll look for your update too.

    (((hugs)))
    Lisha
  • Aaron
    Aaron Member Posts: 237
    #6
    COBRA666 said:

    There Ya' Go
    Hey Aaron,
    Thata a good idea from Jim. You can imagine you are out fishin' with Sue and catching Crappies. ( I think they are a sunfish,but Sue would know for sure)John

    Thanks guys
    Just about to start the rituxkmab, hope my head doesn't swell up like a basketball.ill keep y'all posted
  • jimwins
    jimwins Member Posts: 2,107
    #7
    Aaron said:

    Thanks guys
    Just about to start the rituxkmab, hope my head doesn't swell up like a basketball.ill keep y'all posted

    Ten Gallon Hats
    Surely you can find a ten gallon hat there somewhere in Washington?
    Just picking on you.

    Hope it's going well there...
  • forme
    forme Member Posts: 1,161 Member
    #8
    Aaron said:

    Thanks guys
    Just about to start the rituxkmab, hope my head doesn't swell up like a basketball.ill keep y'all posted

    Holding your hand
    Hi Aaron

    I am with you as you recieve your infusion. You'll do great.

    Attitude is half the battle...

    (((hugs)))
    Lisha

    PS You can hold my hand on Tuesday and when I start chemo...
  • anliperez915
    anliperez915 Member Posts: 770
    #9
    Hey Aaron
    Hey Aaron,
    Hope all went well today! Keep us posted and take care.

    Sincerely,
    Liz
  • Aaron
    Aaron Member Posts: 237
    #10
    anliperez915 said:

    Hey Aaron
    Hey Aaron,
    Hope all went well today! Keep us posted and take care.

    Sincerely,
    Liz

    Still on the rituxan drip
    Still doing the retuxan, havent even got to the nasty stuff yet
  • forme
    forme Member Posts: 1,161 Member
    #11
    Aaron said:

    Still on the rituxan drip
    Still doing the retuxan, havent even got to the nasty stuff yet

    Still with you !!
    Hi Aaron,

    Did I warn you...
    First day is always the longest.
    Hang in there, you are doing great.
    I was just thinking about you and thought I would check on you. I'll check back later as we are heading to our daughter's for a birthday bbq for hubby. I'll be gone a few hours. You and I are in the same time zone, I'll see how you are holding up when I get back home.
    Keeping you close in heart..
    Lisha
  • Aaron
    Aaron Member Posts: 237
    #12
    forme said:

    Still with you !!
    Hi Aaron,

    Did I warn you...
    First day is always the longest.
    Hang in there, you are doing great.
    I was just thinking about you and thought I would check on you. I'll check back later as we are heading to our daughter's for a birthday bbq for hubby. I'll be gone a few hours. You and I are in the same time zone, I'll see how you are holding up when I get back home.
    Keeping you close in heart..
    Lisha

    Well day one is in the
    Well day one is in the books. Feeling a little tired and foggy headed buy otherwise so far so good. Had a mild reaction to the rituxan but no biggie and so far have tolerated everything ok even though I know the worst is yet to come in a few days. Thanks for all the positive vibes sent my way, I could feel them all day long. Aaron
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #13
    Aaron said:

    Well day one is in the
    Well day one is in the books. Feeling a little tired and foggy headed buy otherwise so far so good. Had a mild reaction to the rituxan but no biggie and so far have tolerated everything ok even though I know the worst is yet to come in a few days. Thanks for all the positive vibes sent my way, I could feel them all day long. Aaron

    Done for the day...
    Hey Aaron,
    I kept you in my thoughts and prayers today and I'm so glad nothing crazy happened. I also had a small reaction to the first dose of Rituxan, but the nurse stopped the drip, increased my benedryl and 15 minutes later restarted...no problem after that first incident. I was at the clinic for 8 hours on my first chemo day....no fun! Hey...I caught 2 nice steelhead this morning, 8 and 10 pounds. Brutal night in the boat..rain..thunder...lightning..UGH. :) I'm getting ready to post a picture on my expression page. You be sure to rest, listen to your body and drink plenty of fluids..(don't forget the Senekot)...Take before going to bed. :)
    Take care...Sue
  • jimwins
    jimwins Member Posts: 2,107
    #14
    Aaron said:

    Well day one is in the
    Well day one is in the books. Feeling a little tired and foggy headed buy otherwise so far so good. Had a mild reaction to the rituxan but no biggie and so far have tolerated everything ok even though I know the worst is yet to come in a few days. Thanks for all the positive vibes sent my way, I could feel them all day long. Aaron

    Yay!
    Yay! The first round is over. It will get easier from here, Aaron.

    Now if Sue could just email her fish, we'd have "good eatin'" for dinner
    tomorrow ;). I haven't cleaned a fish in years. Too easy to buy them
    frozen or go to a restaurant.
  • vinny59
    vinny59 Member Posts: 1,036 Member
    #15
    Aaron said:

    Well day one is in the
    Well day one is in the books. Feeling a little tired and foggy headed buy otherwise so far so good. Had a mild reaction to the rituxan but no biggie and so far have tolerated everything ok even though I know the worst is yet to come in a few days. Thanks for all the positive vibes sent my way, I could feel them all day long. Aaron

    one down!
    It's going to be over before you know it, listen to your body and rest when you need to...
  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #16
    Aaron said:

    Well day one is in the
    Well day one is in the books. Feeling a little tired and foggy headed buy otherwise so far so good. Had a mild reaction to the rituxan but no biggie and so far have tolerated everything ok even though I know the worst is yet to come in a few days. Thanks for all the positive vibes sent my way, I could feel them all day long. Aaron

    You the Mann !

    You the Mann ! You the Mann !

    max
  • Aaron
    Aaron Member Posts: 237
    #17
    Max Former Hodgkins Stage 3 said:

    You the Mann !

    You the Mann ! You the Mann !

    max

    Hey max, yea I'm the man
    Hey max, yea I'm the man trying to pace himself. I'm not feeling that bad but I can tell a differance in energy level. Did you experance lower blood pressure ( particularly diastolic ) after treatments? I feel like I might have a mild arythmia going on but nothing major. Anyway I hope your doing well and I'll keep plugging along until I catch up with you in the land of complete remission. Keep in touch. Aaron
  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #18
    Aaron said:

    Hey max, yea I'm the man
    Hey max, yea I'm the man trying to pace himself. I'm not feeling that bad but I can tell a differance in energy level. Did you experance lower blood pressure ( particularly diastolic ) after treatments? I feel like I might have a mild arythmia going on but nothing major. Anyway I hope your doing well and I'll keep plugging along until I catch up with you in the land of complete remission. Keep in touch. Aaron

    B.P.

    Aaron,

    I have hypertension, and my bp stayed high all the way through treatment (sometimes 200/100 when I went in for a wellness check, on bp med). My onc and I/M doc agreed that this was an anxiety spike when I went for results, news, etc.

    Adriamycin can affect the heart, but it is a very rare side-effect. If you have had any pain meds, that is a more likely cause for a lowered bp. Dehydration is another possibility, as you lose a lot of fluids.

    Any good oncology practice will have a doc or NP on call for questions, 24/7.

    Pulling for the Champ,

    Max

    .
  • Aaron
    Aaron Member Posts: 237
    #19
    Max Former Hodgkins Stage 3 said:

    B.P.

    Aaron,

    I have hypertension, and my bp stayed high all the way through treatment (sometimes 200/100 when I went in for a wellness check, on bp med). My onc and I/M doc agreed that this was an anxiety spike when I went for results, news, etc.

    Adriamycin can affect the heart, but it is a very rare side-effect. If you have had any pain meds, that is a more likely cause for a lowered bp. Dehydration is another possibility, as you lose a lot of fluids.

    Any good oncology practice will have a doc or NP on call for questions, 24/7.

    Pulling for the Champ,

    Max

    .

    Thanks max
    I'm not on any pain meds but it seems to have come back up to a more normal range for me this morning. I doubt dehydration is an issue as I've been drinking 80-100 oz of water each day and peeing like a racehorse all day and night. So far so good although I know it's early yet and I'm sure things will get a bit tougher with subsequent treatments. I figure if I stay focused on oral hygene, nausea meds and stool softeners, good hydration and as much exercise as I can manage I should come through this ok. Wife and I are gonna keep a good eye on the heart and lungs and report anything suspicious. Thanks for checking in max. Aaron
  • forme
    forme Member Posts: 1,161 Member
    #20
    Aaron said:

    Thanks max
    I'm not on any pain meds but it seems to have come back up to a more normal range for me this morning. I doubt dehydration is an issue as I've been drinking 80-100 oz of water each day and peeing like a racehorse all day and night. So far so good although I know it's early yet and I'm sure things will get a bit tougher with subsequent treatments. I figure if I stay focused on oral hygene, nausea meds and stool softeners, good hydration and as much exercise as I can manage I should come through this ok. Wife and I are gonna keep a good eye on the heart and lungs and report anything suspicious. Thanks for checking in max. Aaron

    B. P.
    Hi Aaron

    I am happy to read that your BP is back to normal. Maybe it was the first time infusion fears that raised it. I also have high BP and take 2 meds for it. One is for BP the other for the enlarged left heart, from the high BP. I am sure mine will shoot through the roof when I get my first infusion.

    Hopefully your day and the days to follow will be a breeze. Enjoy spending time with your wife and daughter, loved ones are the best medicine.

    Thinking of you
    Lisha
  • Aaron
    Aaron Member Posts: 237
    #21
    forme said:

    B. P.
    Hi Aaron

    I am happy to read that your BP is back to normal. Maybe it was the first time infusion fears that raised it. I also have high BP and take 2 meds for it. One is for BP the other for the enlarged left heart, from the high BP. I am sure mine will shoot through the roof when I get my first infusion.

    Hopefully your day and the days to follow will be a breeze. Enjoy spending time with your wife and daughter, loved ones are the best medicine.

    Thinking of you
    Lisha

    Actually it went low
    Actually it went low Saturday morning, I think it's the dexamethasone that I have to take twice a day for 2 days after my infusions. Not completely sure so I'll probably talk to the doc about it tomorrow.

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