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Looking for peace of mind
Hey everyone! im here because I’m looking for peace of mind. At the end of March I discovered I had an enlarged lymph node right by my carotid artery. I initially didn’t think anything of it as I assumed maybe I had some sort of infection. But after it remained earged for a a few weeks I decided to get it checked out. The…
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What were your lymphoma symptoms?
I have nodular lymphocyte predominant HL, in a "stable" state... meaning it's not gone, but also not progressing all too quickly. For the past year, I have had symptoms that include random itching, especially in extremities and in and around my eyes (weird), fatigue, and just a general feeling of being unwell, which is…
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past members posts=education
Hi Havent posted in awhile,actually forgot the log in password..oops I started on here when a traditional support group was not my fit.I started reading posts and would go farther and farther back in time reading posts and gaining a lot of knowledge.Its amazing what was going on in the world 10 years ago as these members…
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SMZL
Anyone out there with SMZL?
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Good news!
Hi everyone, I received good news today, my indolent mantle cell lymphoma is in full remission for the first time since diagnosis three years ago. My oncologist said the PET scan detected 'no active disease'. I've been in a clinical trial since February at the James Cancer Center in Columbus Ohio. Just wanted to share some…
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Emotional support group recommendations
I am a Hepatosplenic T-cell NHL survivor of 6 years. It was a very hard journey and I'm still feel like I'm struggling. I have started to have a fear of relapse and I'm not sure why. I need to find a good support group where I can vent my fears to those who understand. My family is supportive but I don't think that they…
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Just found out my Hodgkin’s lymphoma is “unfavorable”
Oops, looks like I double-posted, not sure how to delete one.
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15 years out and here again
Dx 2004 nodullar sclorosis hodgkins. 6 cycles ABVD and hit remission. Followed for 10 years and 5 years ago stopped seeing oncology. Fast forward to two weeks ago I had a stroke. Spent 2 nights in the hospital, luckily, no permanent damage. But, in the MRI or CT of the head/neck (looking for clots), they saw the edge of…
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Newly diagnosed MCL
Hi there. My husband (47 years old) was just diagnosed with Mantle Cell Lymphoma. We are waiting on PET scans and staging, but I read it's usually advanced. It all started with a swelling in his upper eyelid. I am terrified of this and the doc has shared no cure, only treatment. He has no other symptoms, and I am not sure…
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Bendamustine/Treanda w/ Rituximab
Will be going on Bendamustine+Rituximab as second line for recent NLPHL relapse. Any tips going into treatment for those who've been on B/R? I have heard that constant hydration is a must. Thanks, Tom in Philadephia
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Lymphoma with bonemarrow biopsy
Bonemarrow biopsy So I had a bonemarrow biopsy done a week ago. Dr seemed nonchalant and did say I should get a second opinion with Moffit..which I’m Ok with..but she did say she wants me to have 2 iron infusions one week apart..it seems my body does not absorb it well... also have a history of low grade b lymphoma...the…
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CAR T-Cell Immunotherapy Information Needed
Hello Everyone, I started a discussion on CAR T-Cell Immunotherapy treatment before the big outage. I need to know if it can be given while you are in remission or only if you have actual active disease? I was diagnosed with Diffuse Large B-Cell Lymphoma, stage 1, localized disease (right inguinal lymph node) in Sept.…
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PET SCAN result is NEGATIVE
My husband Pet Scan result is negative. But he has a small lump at the back of his Leg when he got the Pet Scan on August 24 size is about 1.5 cm and it doesn't shine on the scan. We got the result last September 10. We talked to his doctor about the lump, doctor said have to wait for 3 weeks if it grow it means relapse.…
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DLBCL lump in Leg
Hello !! I just want to know if anybody here got the same type of DLBCL in leg. Hoping to get some tips or get information about the treatment of this kind of leg lymphoma. also if anybody here got the CART T Cell therapy for DLBCL. Thank you in advance. Emiko
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Message for Po18Guy
Hello Po18Guy! I was happy to see you are still on this board. I've not been on here much and it's changed a lot. It looks like some of us "old" members are getting on again. Is there a transplant board still available? If so, how do I find it? Also, it sure seems like we used to get notifications when someone replies to…
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Remission for 2 years and chiming in to say hello
Hi everybody. Last I was here I was worried about neuropathy and other problems from treatment. Well, let's say I'm alive and very fortunate at that and my minor pains and complaints are small compared to being in the battle for remission or left with no choice except comfort. I hope all is qell with the many folks I…
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Diffused Large B-cell Lymphoma Returning?
Has anyone who had Diffused Large B-cell (non-germinal) Lymphoma had it return? I had just finished up 2 R-chop treatments in March and currently in remission. I have another CT Scan scheduled for late August. I had Lymphoma of the right lung and it spread over to my Spleen. At first, I had been diagnosed as having Lung…
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DLBCL 2 times re accurance (ankle swelling)
Hi, my husband diagnosed DLBCL stage 4 on 2014 and re accured last 2017 he got stem cell transplant on 2018 but unfortunately cancer back again on 2019 only a year of remission. now he is under treatment again. he got chemo treatment 3 times but the lmyp on his right leg doesn't clear and the doctor change the chemo drug,…
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Imbruvica and NHL
I am hoping to meet others with Marginal NHL that is using Imbruvica. It can be a lonely walk. I began with Rituxin and Bendamustin but did not do well with Ritixin. Bad reactions. So I have been now using Ibruvica for 7 months. Doing well. Maintaining and a small amount of improvement.
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How is everyone?
I decided to log on tonight to search (a symptom of course) and somehow lost my link and thought this forum was gone! I had a few moments of panic until I found it, then of course had to reset password. I can't tell you how relieved I am to see this discussion board is still here. I'm sure I mentioned before what a…
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BEAM or LACE for Autologous stem cell transplant
Hi, I am from india, aged 41 and diagnosed with Diffuse large Bcell lymphoma with double expressor in March 2019. Got R-CHOP x 6 cycles and radiation. In August 2019, PET scan shows no disease in the whole body. Now in June 2020, the disease relapsed and its stage IV. Now in treatment for it and already finished 2 cycles…
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Waldenstrom's & Peripheral Neuropathy
My PN is in both legs and feet. I voluntarily gave up driving three years ago. I guess I am more fortunate than many others that have considerable pain with their PN. I can walk OK using a walker and have no pain. I am unseady on my feet without the walker.
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WBC dropping
Has anyone had fluctuations in WBC/platelet count 8 months out?
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Primary Breast Lymphoma
Hello, I am 63 and in April found an astonishing large lump in my Breast which was biopsied within 3 days. I had passed a full physical only weeks before and there were no lumps at all, so the thing was fast growing and aggresive. It turned out to be DLBCL, and the PET scan showed several lumps in the breast, no other…
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Throat ache and post nasal drip from chemo?
Has anyone had problems with throat ache and post nasal drip after chemotherapy?
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DVT during chemo for DLBCL
Placed on eliquis. Off chemo for 8 months - US shows DVT is gone. How long to anticoagulate?
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DLBC Lymphoma with out tumor
Question.. Did anyone on here have DLBC without tumors? I am a 57 year old female that was completely blind sided by my diagnosis.I got laid-off from my job in the middle of March because of Co-vid.I had a very active job walking 10,000 steps daily and not working now made me worry about staying active/ not gaining…
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LBCNHL Hair loss /R-chop
This is my first post. I haven't navigated around theCSN site enough to find some answers so I'm writing it out.I am still dealing with a lot of shock from friends about myLymphoma, and sometimes I even ask myself "Is this really happening."I finished my 1st chemo 2 weeks ago and was wondering when most people started…
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Waldenstrom's and Hearing Loss
Can Waldenstrom's or the treatment there of cause a hearing loss?
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Rituxan (Rituximab) Shot?
I'm curious if anyone else had their Rituxin by shot form? In my first three treatments I had it by the oral bag but then was offered the opportunity to get the shot instead. It saved nearly two and a half hours off my Chemo treatment so I said yes within seconds. The thing I didn't know is that it took nearly four or five…