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Is it possible?
I originally posted in the head and neck cancer subforum because everything in Dr. Google initially had me thlinking I have a laryngeal problem but I don't know what's wrong and my symptoms, according to Dr. Google make me think maybe I fit in here. I refer to Dr. Google because real life doctors and medical care is…
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Non treated Lymphoma hair loss
I'm currently being monitored like many others with lymphoma. Since being diagnosed Nov 2, 2020 actually maybe a month or so before I've been losing more hair then usual. I was sick the whole month of Oct with an infection treated with antibiotics. I've read a lot about chemo/radiation hair loss but there isn't much on non…
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Biopsy this next week
I'm 72 yr old female. I've been sick over two weeks with swollen glands an infection what I thought type of cold. Went to ER Friday Oct 16 2020. Had numerous test done. Results indicate possible lymphoma. I'm to call oncologist tomorrow Monday for biopsy. Needles to say this is scary but I'm going to fight with all my…
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Wine,,I guess it’s a No No
Hi All I haven't had a glass of wine since Aug/Sept. I've been reading some articles say it may hinder any necessary treatment. Other articles say otherwise. So a glass of wine should not be consumed correct? Thank You GG
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Peripheral Tcell Lymphoma
I was diagnosed with Stage 3 Peripheral Tcell Lymphoma. I have had 4 rounds of CHOP and my latest pet scan shows 99.9% remission. I have two more treatments and one last pet scan to see results. I will then go for an evaluation for a stem cell replacement. Has Anyone out there gone through this similar process? Any stories…
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NERVOUSSSS
Hi all. Welcome to the club that no one want to join, right? Went to my PCP second week of September with swollen glands (neck, axillary, groin) as well as fatigue and mild, intermittant lower back pain. She ordered some bloodwork, urine, and had me return two weeks later. Normocytic anemia, but otherwise normal. Neck and…
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Stem cell booster
Well just returned from MD Anderson last week. The great news is we are 6 months out from Stem Cell and still NED. They gave me the rest of my stem cells to hopefully help my bone marrow decide to start working a little better. My WBC and really everything has had problems since the stem cell transplant. They said should…
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Triple Hit Lymphoma
My mom was dx with THL in June 2017; she underwent six rounds of chemo and as of her last check in at the cancer center (11/29) she was in remission . That being said, today at her follow up with her pcp (she has been in heavy duty pain meds since two weeks out of chemo due to severe pain in her head and port hole area on…
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Looking for peace of mind
Hey everyone! im here because I’m looking for peace of mind. At the end of March I discovered I had an enlarged lymph node right by my carotid artery. I initially didn’t think anything of it as I assumed maybe I had some sort of infection. But after it remained earged for a a few weeks I decided to get it checked out. The…
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What were your lymphoma symptoms?
I have nodular lymphocyte predominant HL, in a "stable" state... meaning it's not gone, but also not progressing all too quickly. For the past year, I have had symptoms that include random itching, especially in extremities and in and around my eyes (weird), fatigue, and just a general feeling of being unwell, which is…
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past members posts=education
Hi Havent posted in awhile,actually forgot the log in password..oops I started on here when a traditional support group was not my fit.I started reading posts and would go farther and farther back in time reading posts and gaining a lot of knowledge.Its amazing what was going on in the world 10 years ago as these members…
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SMZL
Anyone out there with SMZL?
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Good news!
Hi everyone, I received good news today, my indolent mantle cell lymphoma is in full remission for the first time since diagnosis three years ago. My oncologist said the PET scan detected 'no active disease'. I've been in a clinical trial since February at the James Cancer Center in Columbus Ohio. Just wanted to share some…
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Emotional support group recommendations
I am a Hepatosplenic T-cell NHL survivor of 6 years. It was a very hard journey and I'm still feel like I'm struggling. I have started to have a fear of relapse and I'm not sure why. I need to find a good support group where I can vent my fears to those who understand. My family is supportive but I don't think that they…
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Just found out my Hodgkin’s lymphoma is “unfavorable”
Oops, looks like I double-posted, not sure how to delete one.
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15 years out and here again
Dx 2004 nodullar sclorosis hodgkins. 6 cycles ABVD and hit remission. Followed for 10 years and 5 years ago stopped seeing oncology. Fast forward to two weeks ago I had a stroke. Spent 2 nights in the hospital, luckily, no permanent damage. But, in the MRI or CT of the head/neck (looking for clots), they saw the edge of…
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Newly diagnosed MCL
Hi there. My husband (47 years old) was just diagnosed with Mantle Cell Lymphoma. We are waiting on PET scans and staging, but I read it's usually advanced. It all started with a swelling in his upper eyelid. I am terrified of this and the doc has shared no cure, only treatment. He has no other symptoms, and I am not sure…
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Bendamustine/Treanda w/ Rituximab
Will be going on Bendamustine+Rituximab as second line for recent NLPHL relapse. Any tips going into treatment for those who've been on B/R? I have heard that constant hydration is a must. Thanks, Tom in Philadephia
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Lymphoma with bonemarrow biopsy
Bonemarrow biopsy So I had a bonemarrow biopsy done a week ago. Dr seemed nonchalant and did say I should get a second opinion with Moffit..which I’m Ok with..but she did say she wants me to have 2 iron infusions one week apart..it seems my body does not absorb it well... also have a history of low grade b lymphoma...the…
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CAR T-Cell Immunotherapy Information Needed
Hello Everyone, I started a discussion on CAR T-Cell Immunotherapy treatment before the big outage. I need to know if it can be given while you are in remission or only if you have actual active disease? I was diagnosed with Diffuse Large B-Cell Lymphoma, stage 1, localized disease (right inguinal lymph node) in Sept.…
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PET SCAN result is NEGATIVE
My husband Pet Scan result is negative. But he has a small lump at the back of his Leg when he got the Pet Scan on August 24 size is about 1.5 cm and it doesn't shine on the scan. We got the result last September 10. We talked to his doctor about the lump, doctor said have to wait for 3 weeks if it grow it means relapse.…
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DLBCL lump in Leg
Hello !! I just want to know if anybody here got the same type of DLBCL in leg. Hoping to get some tips or get information about the treatment of this kind of leg lymphoma. also if anybody here got the CART T Cell therapy for DLBCL. Thank you in advance. Emiko
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Message for Po18Guy
Hello Po18Guy! I was happy to see you are still on this board. I've not been on here much and it's changed a lot. It looks like some of us "old" members are getting on again. Is there a transplant board still available? If so, how do I find it? Also, it sure seems like we used to get notifications when someone replies to…
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Remission for 2 years and chiming in to say hello
Hi everybody. Last I was here I was worried about neuropathy and other problems from treatment. Well, let's say I'm alive and very fortunate at that and my minor pains and complaints are small compared to being in the battle for remission or left with no choice except comfort. I hope all is qell with the many folks I…
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Diffused Large B-cell Lymphoma Returning?
Has anyone who had Diffused Large B-cell (non-germinal) Lymphoma had it return? I had just finished up 2 R-chop treatments in March and currently in remission. I have another CT Scan scheduled for late August. I had Lymphoma of the right lung and it spread over to my Spleen. At first, I had been diagnosed as having Lung…
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DLBCL 2 times re accurance (ankle swelling)
Hi, my husband diagnosed DLBCL stage 4 on 2014 and re accured last 2017 he got stem cell transplant on 2018 but unfortunately cancer back again on 2019 only a year of remission. now he is under treatment again. he got chemo treatment 3 times but the lmyp on his right leg doesn't clear and the doctor change the chemo drug,…
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Imbruvica and NHL
I am hoping to meet others with Marginal NHL that is using Imbruvica. It can be a lonely walk. I began with Rituxin and Bendamustin but did not do well with Ritixin. Bad reactions. So I have been now using Ibruvica for 7 months. Doing well. Maintaining and a small amount of improvement.
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How is everyone?
I decided to log on tonight to search (a symptom of course) and somehow lost my link and thought this forum was gone! I had a few moments of panic until I found it, then of course had to reset password. I can't tell you how relieved I am to see this discussion board is still here. I'm sure I mentioned before what a…
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BEAM or LACE for Autologous stem cell transplant
Hi, I am from india, aged 41 and diagnosed with Diffuse large Bcell lymphoma with double expressor in March 2019. Got R-CHOP x 6 cycles and radiation. In August 2019, PET scan shows no disease in the whole body. Now in June 2020, the disease relapsed and its stage IV. Now in treatment for it and already finished 2 cycles…
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Waldenstrom's & Peripheral Neuropathy
My PN is in both legs and feet. I voluntarily gave up driving three years ago. I guess I am more fortunate than many others that have considerable pain with their PN. I can walk OK using a walker and have no pain. I am unseady on my feet without the walker.