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PET SCAN result is NEGATIVE
My husband Pet Scan result is negative. But he has a small lump at the back of his Leg when he got the Pet Scan on August 24 size is about 1.5 cm and it doesn't shine on the scan. We got the result last September 10. We talked to his doctor about the lump, doctor said have to wait for 3 weeks if it grow it means relapse.…
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DLBCL lump in Leg
Hello !! I just want to know if anybody here got the same type of DLBCL in leg. Hoping to get some tips or get information about the treatment of this kind of leg lymphoma. also if anybody here got the CART T Cell therapy for DLBCL. Thank you in advance. Emiko
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Message for Po18Guy
Hello Po18Guy! I was happy to see you are still on this board. I've not been on here much and it's changed a lot. It looks like some of us "old" members are getting on again. Is there a transplant board still available? If so, how do I find it? Also, it sure seems like we used to get notifications when someone replies to…
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Remission for 2 years and chiming in to say hello
Hi everybody. Last I was here I was worried about neuropathy and other problems from treatment. Well, let's say I'm alive and very fortunate at that and my minor pains and complaints are small compared to being in the battle for remission or left with no choice except comfort. I hope all is qell with the many folks I…
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Diffused Large B-cell Lymphoma Returning?
Has anyone who had Diffused Large B-cell (non-germinal) Lymphoma had it return? I had just finished up 2 R-chop treatments in March and currently in remission. I have another CT Scan scheduled for late August. I had Lymphoma of the right lung and it spread over to my Spleen. At first, I had been diagnosed as having Lung…
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DLBCL 2 times re accurance (ankle swelling)
Hi, my husband diagnosed DLBCL stage 4 on 2014 and re accured last 2017 he got stem cell transplant on 2018 but unfortunately cancer back again on 2019 only a year of remission. now he is under treatment again. he got chemo treatment 3 times but the lmyp on his right leg doesn't clear and the doctor change the chemo drug,…
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Imbruvica and NHL
I am hoping to meet others with Marginal NHL that is using Imbruvica. It can be a lonely walk. I began with Rituxin and Bendamustin but did not do well with Ritixin. Bad reactions. So I have been now using Ibruvica for 7 months. Doing well. Maintaining and a small amount of improvement.
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How is everyone?
I decided to log on tonight to search (a symptom of course) and somehow lost my link and thought this forum was gone! I had a few moments of panic until I found it, then of course had to reset password. I can't tell you how relieved I am to see this discussion board is still here. I'm sure I mentioned before what a…
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BEAM or LACE for Autologous stem cell transplant
Hi, I am from india, aged 41 and diagnosed with Diffuse large Bcell lymphoma with double expressor in March 2019. Got R-CHOP x 6 cycles and radiation. In August 2019, PET scan shows no disease in the whole body. Now in June 2020, the disease relapsed and its stage IV. Now in treatment for it and already finished 2 cycles…
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Waldenstrom's & Peripheral Neuropathy
My PN is in both legs and feet. I voluntarily gave up driving three years ago. I guess I am more fortunate than many others that have considerable pain with their PN. I can walk OK using a walker and have no pain. I am unseady on my feet without the walker.
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WBC dropping
Has anyone had fluctuations in WBC/platelet count 8 months out?
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Primary Breast Lymphoma
Hello, I am 63 and in April found an astonishing large lump in my Breast which was biopsied within 3 days. I had passed a full physical only weeks before and there were no lumps at all, so the thing was fast growing and aggresive. It turned out to be DLBCL, and the PET scan showed several lumps in the breast, no other…
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Throat ache and post nasal drip from chemo?
Has anyone had problems with throat ache and post nasal drip after chemotherapy?
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DVT during chemo for DLBCL
Placed on eliquis. Off chemo for 8 months - US shows DVT is gone. How long to anticoagulate?
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DLBC Lymphoma with out tumor
Question.. Did anyone on here have DLBC without tumors? I am a 57 year old female that was completely blind sided by my diagnosis.I got laid-off from my job in the middle of March because of Co-vid.I had a very active job walking 10,000 steps daily and not working now made me worry about staying active/ not gaining…
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LBCNHL Hair loss /R-chop
This is my first post. I haven't navigated around theCSN site enough to find some answers so I'm writing it out.I am still dealing with a lot of shock from friends about myLymphoma, and sometimes I even ask myself "Is this really happening."I finished my 1st chemo 2 weeks ago and was wondering when most people started…
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Waldenstrom's and Hearing Loss
Can Waldenstrom's or the treatment there of cause a hearing loss?
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Rituxan (Rituximab) Shot?
I'm curious if anyone else had their Rituxin by shot form? In my first three treatments I had it by the oral bag but then was offered the opportunity to get the shot instead. It saved nearly two and a half hours off my Chemo treatment so I said yes within seconds. The thing I didn't know is that it took nearly four or five…
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Partial Remission
I'm not cured of my Waldenstrom's or in Full Remission but I am OK with the Partial Remission and feeling pretty good. The Imbruvica that I take daily seems to improve and stabalize my labs. I began this journey in 2007 when dx'd with IGM of 3,500 and started initial treatment with Rituxan. Ihave Peripheral Neuropathy in…
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CT scan
just a quick question for all you experts! I am in for my 6 month CT. I've had a lot of them! I've always had to drink the 2 bottles of water with contrast, and also had IV contrast. This time I'm drinking 2 bottles of plain water and having IV contrast. I questioned them and they said the radiologist decides and no longer…
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double hit lymphoma
Hello fellow cancer fighters! My Dad was recently diagnosed with double hit lymphoma. Is there anyone here who also has or knows someone who had double hit? Can you please share your experience? What chemo was given? This is new and scary territory. Any thoughts about R-CHOP versus R-EPOCH? Were you successful in curing…
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Any alternatives to PET scan?
Hello, hope everyone doing well and healthy, I just have a question to the group about the PET scan, and how many of them been used for a check-up. I had NLPHL back in early 2013 and had 5 PET scans during the treatment to check the progress of the treatment. Then had just blood work and 2 CT scans until 2018, when one of…
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Neuropathy Flareup
Can neuropathy flare up? Mine, in my feet, has been very slowly disappearing but recently my right foot has increased. I don't take anything for it.
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Fever of Unknown Origin
Hi everyone, I have had a fever since the end of May, as far as I know. I remember one evening getting fever and chills, which is what prompted me to take my temperature with an ear thermometer. I wouldn't know if my fever had started even earlier. My temperature was around 101 - 102 degrees at any point in time over the…
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Diagnosed with Diffused large B cell lymphoma
I'm a 58 year old male just diagnosed. Three months ago I was minding my own business and went to my PCP for a regular checkup.he noticed something weird about my heart and pulse and ordered an echocardiogram. They found a dilated ascending aorta and a regurgitant aortic valve. CT scan subsequently confirmed this. After…
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osteoblastic lesion
Has anyone had a osteoblastic lesion in their shoulder? Thank you
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Autologous stem cell and dropping WBC
So I had my Autologous Stem cell transplant after BEAM and I am still here. My WBC counts were very slowly improving and today the test showed they dropped from 2.9 to 1.7. I am 10 weeks out from the transplant. From 6 weeks to 8 weeks they were unchanged at 2.9 and I mentioned to my Doctor that I was bothered they had not…
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Balance
Anyone have issues with balance problems post treatment? My balance has been "off" since I was treated and doesn't seem to be improving.
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New diagnosis help :(
Hello all! I'm excited to be apart of this group. My family is doing their absolute best, but it doesn't compare to people actually going through the same thing. A little background on me: I'm a 24 year old female. Two weeks ago I was in the hospital for what I thought was a kidney stone or kidney infection. They did a CT…
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NLPHL (mesentery) status & message of appreciation
I wanted to reach out and thank all of you on this discussion board who made my 'experience' with nodular lymphocyte predominant hodgkin lymphoma (mesentery area only) much better than ever expected...Max, ShadyGuy, Jeff148, po18guy, and other very supportive contributors. For the first 18 months after diagnosis (in 2015),…