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SGN 35 setback

diazr1
diazr1 CSN Member Posts: 101
in Lymphoma (Hodgkin and Non-Hodgkin) #1
Was responding well to treatment. No more signs in neck,kidney,liver ans spleen but Dr says I had a new area show and called it a relapse. Now wait on PET and next step. This hit me hard
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Comments

  • vinny59
    vinny59 CSN Member Posts: 1,036 Member
    #2
    dam
    So sorry to hear that, where is the new area?
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  • diazr1
    diazr1 CSN Member Posts: 101
    #3
    vinny59 said:

    dam
    So sorry to hear that, where is the new area?

    Just above the hip

    Just above the hip
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  • COBRA666
    COBRA666 CSN Member Posts: 2,401 Member
    #4
    diazr1 said:

    Just above the hip

    Just above the hip

    I do not know how your Dr. can say relapse without first getting results on the PET. John
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  • miss maggie
    miss maggie CSN Member Posts: 929
    #5
    Hello Diaz,

    I don't blame you for feeling disappointed. The news was totally unexpected.

    If you can get beyond the bad news. Think of the treatment you did have. It was a sucess in eliminating cancer activity in 4 areas. Hopefully, if the new area is cancer, the same treatment would again be used.

    I have no idea why the doctor called it a relapse. A good question to ask your doctor.

    Take a deep breath. Maggie
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  • diazr1
    diazr1 CSN Member Posts: 101
    #6
    COBRA666 said:

    I do not know how your Dr. can say relapse without first getting results on the PET. John

    That's what I told him, I
    That's what I told him, I was never in full remission so how can it be a relapse. I feel like a champ until I got the news been sleeping a lot
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  • diazr1
    diazr1 CSN Member Posts: 101
    #7
    miss maggie said:

    Hello Diaz,

    I don't blame you for feeling disappointed. The news was totally unexpected.

    If you can get beyond the bad news. Think of the treatment you did have. It was a sucess in eliminating cancer activity in 4 areas. Hopefully, if the new area is cancer, the same treatment would again be used.

    I have no idea why the doctor called it a relapse. A good question to ask your doctor.

    Take a deep breath. Maggie

    Maggie I took it as 85% good
    Maggie I took it as 85% good news, if that's even allowed. The major organs are healed but the one area.... Dammmnnnnn youuuuu cancer
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  • anliperez915
    anliperez915 CSN Member Posts: 770
    #8
    Really sorry Diaz! But like you said on your other post maybe you weren't in a complete remission...I think sometimes docs do that way too often. They have to be 100% sure before they say that the patient is in remission, it only gives false hope! Please just take care of yourself, don't give up and definitely keep the faith. Big Hugs 2 u!

    Sincerely,
    Liz
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  • jimwins
    jimwins CSN Member Posts: 2,107 Member
    #9
    Hugs
    I'm sorry you got this news.

    Big hugs across cyberspace,

    Jim
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