The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

cuzjon

illead
illead CSN Member Posts: 884 Member
in Lymphoma (Hodgkin and Non-Hodgkin) #1

hi Jon,

     I'm so sorry I haven't answered right away, I just got very busy.  I am so glad you did well with B/R, think you know that Bill did also, but does'nt seem to be the case with some.  We researched and even emailed 2 docs in Germany and one in WI about him getting a stem cell transplant and they all suggested not to.  We opted not to, but of course that is your decision.  As you probably already know too, he relapsed 2 yrs. after going into remission and is now on the newly released target drug Ibrutinib.  He is back in remission and doing very well.  MCL is being actively researched and there is much more out there than just a few years ago.  We are so glad you are in remission.  There is a webinar in May through the Lymphoma Research Foundation (LRF).  If you can't find it, I can send you the info.  Notice that I started a new thread as the one you used is old and your post was a little hard to find.  You probably typed in Mantle Cell in the subject, which I also did at first but there are so few that the general lymphoma forum is much more active thus there is more support.  So my best to you and I am always monitoring, so will always be available for support.

Many thoughts,

Becky

Like Care

Discussion Boards