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Lymphoma (Hodgkin and Non-Hodgkin)

RICE treatment onto Stem Cell Transplant
Met with my oncologist today and the final word on my FNHL is that although the tumor had shrunk a lot after the first 4 R-CHOP treatments, there wasn't much shrinkage after the last two. So my options are to do Rituxan to try and keep the cancer held back. Radioimmunotherapy which I had not read up on at all. RICE…
A true class act
RIP Flip Saunders.
Radiation, Blood Counts, and R-CHOP
I am curious about radiation after R-CHOP. My husband has finished four out of six rounds of R-CHOP and has received two out of four preventative Intrathecal treatments. His WBC is very low (0.5) and will be having his PET scan in a few days to see if the chemo has been effective. The fatigue is much greater after round…
scary symptoms
Hello everyone. I am new here. I just have a few questions. I have a swollen lymph node on my neck that comes for 4 to 5 days and causes pain in my neck as well as my arms then symptoms go away for a few weeks then come back and then it starts all over aging the same cycle. Has anyone had these symptoms before diagnosis?…
ICE or TREC? New, less toxic, outpatient salvage regimen.
For those facing ICE as salvage therapy, there is now a less toxic, outpatient regimen available. One of the researchers at Fred Hutchinson was involved in the development of what is being called TREC. It consists of Treanda (Bendamustine), Rituxan, Etoposide and Carboplatin. This recipe is for B-Cell Lymphoma patients.…
PCP Pneumonia
what a long bumpy road this journey is. My mom was diagnosed with DLBCL in late July and started R-CHOP, recently finished her 3rd round and Now we are in the hospital with a potentiaL PCP pneumonia. After 3 days or failing on antibiotics and continuing to go downhi they believe this is what she has. She is so weak and can…
Hip Pain
I hadn't considered my hip pain when bending over to be a symptom. But I'm seeing a lot of people mention that it was among their symptoms prior to being diagnosed with Lymphoma. Can anyone explain what causes the relationship and does it improve if treatment is otherwise effective?
Advice Needed
Hi...I'm a 36 ear old male...seeking some advice. About a week ago I noticed a lump behind my knee. I ended up getting an ultrasound which indicates a benign appearing superficial lymph node in the popliteal fossa. I wasn't even aware there were nodes down there. I've also experienced some lower back pain over the last…
Confidence
I hear so much about staying positive and confident in an outcome of the treatment I'm about to begin. I have always had a positive attitude and I am entering this fight with a knowledge that it could all fail, yet with a refusal to allow that to happen. I am not in denial about the possibility of losing this fight. And I…
Chemo and Prescription Interactions
Can anyone guide me to a good source of information regarding potential interactions between R-CHOP and my current prescribed medications? Of course I'll be asking my oncologist as well. Thank you!
Remorse, can anyone else relate
Hey Guys Sorry I havent posted in a long time. I have been so busy traveling with work and such. All is good on the home front im 3 years in remission post Auto Stem Cell Transplant. Life is normal again, and for me normal is GREAT! Tonight I have learned that a dear friend of mine who guided me during my chemo treatment…
Breast cancer after radiation for Hodgkins disease
Just wondering if anyone knows if we are high risk for breast cancer. Every website that I go to always excludes anyone that has had radiation from Hodgkins disease. Always states to talk to you doctor. My doctor is good...but she has no clue in regards to this. I am going to see a breast cancer specialist next…
Last Rituxan Maintenance
Yesterday, I had my last of 2 years worth of Rituxan maintenance infusions. Things got dicey at the end. The bag was almost empty when I suddenly became dizzy, nauseous, and broke into a cold sweat. I threw off my blanket and ripped off my sweater. I was trying to wait to be disconnected from my pump so I could go to the…
Has anyone one had refractory DLBCL?
I was diagnosed with DLBCL in April. Just a few days before my last scheduled treatment of R-CHOP, I felt a lump in my abdomen. I got the treatment and my PET was moved up to this past Friday. I had started with one larger tumor and 2 smaller ones. The smaller ones appear to be gone, but the larger one (which had shrunk by…
Upcoming Pet Scan
Hi, My name is Robyn I have Stage 4 Lg Bcell nhl. I have had four rchop treatments so far, expecting 6-8. I have a pet scan scheduled to check my progress on the 12th. Of course I'm expecting the diagnoses to be good and that I'm responding to the treatment well. But, my question is what if I'm not, what then?
south jersey/phila area
Looking to see if anyone is in the philadelphia/south jersey area for treatment with MCL
Question about Husband's first Bone Marrow Biopsy
Hi there. I'm new here. My husband, age 65, was just diagnosed with Type B Lymphoma. His first oncology appointment is next week and he'll have a bone marrow biopsy at that time. My husband is confident and his attitude is great. I'm more nervous about all of this then he is. He's not in denial though, he's just feeling…
Yervoy a.k.a Ipilimumab Clinical Trial--anyone experienced this?
First, brief history. I have mediastinal Diffuse Large B cell NHL. I had R-CHOP May-Sept. 2012. Relapsed May of 2014. 2 rounds or R-ICE followed by auto stem cell transplant in August. Radiation in Oct. and Nov. 2014. Relapsed again Feb of this year. I've been doing GVD-R. It has kept the lymphoma stable, but not much more…
Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Newly Diagnosed NLPHL.
Just wondering if someone newly found out about NLPHL? My doctor is only asking for CT Scan.
my mother
Ok to start off this story. My mother got told she had lymphoma. Stage 3 and aggressive. She started treatment pretty quickly. The first treatment she was a trooper. Had a couple of here and there but most of the part. Her body did pretty well. Well next round of treatment is doing a number. She having hard time holding…
Postponed chemotherapy
Hey, All! My dad was diagnosed with Stage IV Splenal Marginal Zone Lymphoma last November and was treated. That cancer transformed into aggressive B cell lymphoma a few months later. (I've been told this happens in 10% of cases.)The doctors in our hometown in Idaho didn't know which signs to look for, so he spent several…
Wait and Watch
Anybody diagnosed with NLPHL and still docotrs suggest to wait and watch? Biopsy comes positive, CT scan shows more swollen lymph nodes and PET scan results are showing some too.
R-CHOP
I start my R-CHOP treatment for NHLPL tomorrow. My anxiety is through the roof. Can anyone relate from their experiences how R-CHOP affects you during and immediately after the first treatment? My doctor told me what to expect, but I would find information from people that have actually endured it more helpful.
Newly diagnosed HL (lymphocyte predominant Hodgkin's lymphoma)
I'm a 40 year old female and I was recently diagnosed with Hodgkin's lymphoma on Friday, 9/11/15. Yesterday, I found out that it is a rare subtype (lymphocyte predominant Hodgkin's lymphoma). I haven't been able to find a whole lot of info or support online so far. Can anyone out there help? Christine
update on "Just another newbie" post
Hi all, Just re-read what I posted in July and I wanted to do an update and again thank people here for their support. It's been a real rollercoaster experience. My husband was so very sick, was being the key word. He finally went on Rituxian only and, shortly after the second treatment, he started coming back from the…
COMMENTS ON R EPOCH
ANY COMMENTS ON MEDIASTINUM MASS DIFFUSE LARGE B CELL LYMPHOMA? I AM NEW TO THIS AND IN MY SECOND ROUND OF TREATMENT. MEDIASTINUM GIRL
Anyone on R epock treatment getting more than 6 treatments
I will have R Epoch treatment #6 next week but my Dr. wants me to continue for one, maybe 2 more sessions. My last PET scan showed "no activity" in the lymphoma. Has anyone else had more than 6 treatments? I am not getting the cytoxin because it has caused infiltrates in my lungs and that is why the Dr. feels I need the…
Hair Regrowth After Six Rounds of R-Epoch six days each in the hospital
I finished one month ago my sixth round of R EPOCH in the hospital, each of which was for six days. I was undergoing this for a total of 126 days, six days in the hospital, 15 days out, six rounds. I lost my hair after my first round. Its been a month since I walked out of the hospital and no hair has grown back. My cancer…
Night sweats from Rituxan
Has anyone experienced night sweats as a side effect of Rituxan? I have been on almost 2 years of maintenance and just started experiencing them. I have seen my onchologist and she says not side effect BUT could be afffecting my system????? So confusing to me.

Lymphoma (Hodgkin and Non-Hodgkin)

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