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Lymphoma (Hodgkin and Non-Hodgkin)

Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Newly Diagnosed NLPHL.
Just wondering if someone newly found out about NLPHL? My doctor is only asking for CT Scan.
my mother
Ok to start off this story. My mother got told she had lymphoma. Stage 3 and aggressive. She started treatment pretty quickly. The first treatment she was a trooper. Had a couple of here and there but most of the part. Her body did pretty well. Well next round of treatment is doing a number. She having hard time holding…
Postponed chemotherapy
Hey, All! My dad was diagnosed with Stage IV Splenal Marginal Zone Lymphoma last November and was treated. That cancer transformed into aggressive B cell lymphoma a few months later. (I've been told this happens in 10% of cases.)The doctors in our hometown in Idaho didn't know which signs to look for, so he spent several…
Wait and Watch
Anybody diagnosed with NLPHL and still docotrs suggest to wait and watch? Biopsy comes positive, CT scan shows more swollen lymph nodes and PET scan results are showing some too.
R-CHOP
I start my R-CHOP treatment for NHLPL tomorrow. My anxiety is through the roof. Can anyone relate from their experiences how R-CHOP affects you during and immediately after the first treatment? My doctor told me what to expect, but I would find information from people that have actually endured it more helpful.
Newly diagnosed HL (lymphocyte predominant Hodgkin's lymphoma)
I'm a 40 year old female and I was recently diagnosed with Hodgkin's lymphoma on Friday, 9/11/15. Yesterday, I found out that it is a rare subtype (lymphocyte predominant Hodgkin's lymphoma). I haven't been able to find a whole lot of info or support online so far. Can anyone out there help? Christine
update on "Just another newbie" post
Hi all, Just re-read what I posted in July and I wanted to do an update and again thank people here for their support. It's been a real rollercoaster experience. My husband was so very sick, was being the key word. He finally went on Rituxian only and, shortly after the second treatment, he started coming back from the…
COMMENTS ON R EPOCH
ANY COMMENTS ON MEDIASTINUM MASS DIFFUSE LARGE B CELL LYMPHOMA? I AM NEW TO THIS AND IN MY SECOND ROUND OF TREATMENT. MEDIASTINUM GIRL
Anyone on R epock treatment getting more than 6 treatments
I will have R Epoch treatment #6 next week but my Dr. wants me to continue for one, maybe 2 more sessions. My last PET scan showed "no activity" in the lymphoma. Has anyone else had more than 6 treatments? I am not getting the cytoxin because it has caused infiltrates in my lungs and that is why the Dr. feels I need the…
Hair Regrowth After Six Rounds of R-Epoch six days each in the hospital
I finished one month ago my sixth round of R EPOCH in the hospital, each of which was for six days. I was undergoing this for a total of 126 days, six days in the hospital, 15 days out, six rounds. I lost my hair after my first round. Its been a month since I walked out of the hospital and no hair has grown back. My cancer…
Night sweats from Rituxan
Has anyone experienced night sweats as a side effect of Rituxan? I have been on almost 2 years of maintenance and just started experiencing them. I have seen my onchologist and she says not side effect BUT could be afffecting my system????? So confusing to me.
FNHL Relapse after Rituxan.
just wondering who among you may have relapsed after Rituxan monotherapy followed by Rituxan maintenance. Maybe GG? Would like to know what follow on therapy you selected and why. Would especially like to talk to someone who may have chosen to repeat the R only therapy and how that worked for you.
Blood clot in heart after chemo
I will be 6 weeks out of R EPOCH this sunday, I had an Eco Cardio Gram on August 21 due to heart pain after my picc line was removed and they found a mass they think is a blood clot. They started me on Lovenox shots right away. I met with the cardiologist and he is sending me for an MRI. I met with my Oncologist yesterday…
Fertility Question
Hey everyone. I don't know what kind of help I can get from here since I'm not getting very much help from my doctor. But I was just recently diagnosed with Hodgkins Lymphoma Stage II in June of this year. One of the first things my oncologist told me was that I would be needing to do chemo every other week (ABVD) starting…
How far into chemo did your doctors mention doing a stem cell transplant?
Hey, All! I'm writing because I have a question: My dad had Stage 4 Splenal Marginal Zone Lymphoma, a low grade form of NHL. This spring, his low-grade lymphoma transformed into a high-grade lymphoma. Right now, he is under-going RCHOP and it appears to be working like a charm. Here's my question: For those of you who have…
New drug approved...Zydelig (idelalisib) for CLL, Follicular, and SLL
Hi guys, I receieved this in my e-mail today from the Lymphoma Reasearch Foundation. It's comforting to see new drugs being approved. Sounds like this one might be one I'll possibly be able to use. I'm definetely printing this out to show to my Oncologist. Anyways...thought you all might want to read this and go to the LRF…
Liz and Carie
has anyone heard from Liz or Girliefighter?
Sue and AnliPerez
has anyone heard from them?
First Forum Ever Posted- Need Advice
Hello, I am almost (in 2 weeks) 24 years old. I have always read the forums but had yet to make a post. For the first time I am seeking advice, as this seems like a very supportive network. Whether or not cancer is my diagnosis, I do feel that some of the posters in these discussion boards may help me remain positive while…
It has been awhile
I know its been a few months since i last posted, am finishing up 6 rounds of chemo, tomorrow is my last, i dont want stem cell, like was mentioned before, i am taking Treanda and Rituxin, 2 days a month, and boy it has kicked my butt, tumors are shrinking, largest one was 9.7 cm, that one is now 2.3 cm,so something is…
Chemo not working - terminal- NHL
my father's oncologout told us that the tumor has not responded to 4 treatments of R-CHOP. He was very sick with the treatments and now they say he is terminal - 6 months. i thought there might be other options like radiation or somethinG. Six months ago he was play hockey. Maybe the tumor is to big for radiation. We're…
starting our MCL journey and so scared
I an new here and lost the last thing I posted...not sure where I posted it! My husband was just recently diagnosed with Mantle Cell Lymphoma. We go this week for his bone marrow biopsy and PET scan results. They have already staged it at 3 with the CT scans and said it could be 4 when we get these other results. We are so…
Looking for resources on Nutrition/choices that help you stay in resolution/remision
Hi. I have learned a lot about my disease, but still am learning. I know that many of you are very knowledgeable, so I am seeking some insight. I was diagnosed with an indolent form of Follicular Lymphoma, stage 4. I finished 4 rounds of Bedamustine and Ritauximab treatments in January 2015. I was given a result of…
Rituxan therapy
Hi, my name is Vicki and I am an oncology nurse. I am going to be working with Rituxan for NHL and would like to hear about your experience with this drug. How did you tolerate it? Were the side-effects manageable? What was the worst thing? Did you have a good response, etc? Anything and everything you would like to share…
NHL Follicular Stage III
Had PET scan, Power Port and bone marrow test in the last week. Start chemo tomorrow, but don't know what to expect. Can you give information ? Thank you.
In case you want to be seen at the Mayo Clinic--Rochester
I am writing this post because my dad currently has stage IV Splenal Marginal Zone Lymphoma that transformed into Aggressive B Cell lymphoma. He lives in Boise, Idaho, but I live in Rochester, MN, and work at the Mayo Clinic. Through this experience, I have seen firsthand what a massive difference there is between the…
Just another newbie - frightened spouse
Hi all, Where to start? My husband has lymphoma. They are still narrowing it down, 2nd look by 2nd pathology lab still in the works, but my husband pretty definitely has some variant of b cell non hodgkin's lymphoma. Actual treatment is probably 3 weeks to a month away I'm going to guess, meanwhile other tests,…
I visit the site daily several times, I may not write but do think and pray for all of you. I've bee
I visit the site daily several times, I may not write but do think and pray for all of you. I've been wondering about Mchantal lately... wishing the best to each and every one of you and all your loved ones...
NHL Follicular Stage III
Had PET scan, Power Port and bone marrow test in the last week. Start chemo tomorrow, but don't know what to expect. Can you give information ? Thank you.

Lymphoma (Hodgkin and Non-Hodgkin)

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