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FNHL Relapse after Rituxan.
just wondering who among you may have relapsed after Rituxan monotherapy followed by Rituxan maintenance. Maybe GG? Would like to know what follow on therapy you selected and why. Would especially like to talk to someone who may have chosen to repeat the R only therapy and how that worked for you.
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Blood clot in heart after chemo
I will be 6 weeks out of R EPOCH this sunday, I had an Eco Cardio Gram on August 21 due to heart pain after my picc line was removed and they found a mass they think is a blood clot. They started me on Lovenox shots right away. I met with the cardiologist and he is sending me for an MRI. I met with my Oncologist yesterday…
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Fertility Question
Hey everyone. I don't know what kind of help I can get from here since I'm not getting very much help from my doctor. But I was just recently diagnosed with Hodgkins Lymphoma Stage II in June of this year. One of the first things my oncologist told me was that I would be needing to do chemo every other week (ABVD) starting…
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How far into chemo did your doctors mention doing a stem cell transplant?
Hey, All! I'm writing because I have a question: My dad had Stage 4 Splenal Marginal Zone Lymphoma, a low grade form of NHL. This spring, his low-grade lymphoma transformed into a high-grade lymphoma. Right now, he is under-going RCHOP and it appears to be working like a charm. Here's my question: For those of you who have…
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New drug approved...Zydelig (idelalisib) for CLL, Follicular, and SLL
Hi guys, I receieved this in my e-mail today from the Lymphoma Reasearch Foundation. It's comforting to see new drugs being approved. Sounds like this one might be one I'll possibly be able to use. I'm definetely printing this out to show to my Oncologist. Anyways...thought you all might want to read this and go to the LRF…
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Liz and Carie
has anyone heard from Liz or Girliefighter?
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Sue and AnliPerez
has anyone heard from them?
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First Forum Ever Posted- Need Advice
Hello, I am almost (in 2 weeks) 24 years old. I have always read the forums but had yet to make a post. For the first time I am seeking advice, as this seems like a very supportive network. Whether or not cancer is my diagnosis, I do feel that some of the posters in these discussion boards may help me remain positive while…
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It has been awhile
I know its been a few months since i last posted, am finishing up 6 rounds of chemo, tomorrow is my last, i dont want stem cell, like was mentioned before, i am taking Treanda and Rituxin, 2 days a month, and boy it has kicked my butt, tumors are shrinking, largest one was 9.7 cm, that one is now 2.3 cm,so something is…
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Chemo not working - terminal- NHL
my father's oncologout told us that the tumor has not responded to 4 treatments of R-CHOP. He was very sick with the treatments and now they say he is terminal - 6 months. i thought there might be other options like radiation or somethinG. Six months ago he was play hockey. Maybe the tumor is to big for radiation. We're…
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starting our MCL journey and so scared
I an new here and lost the last thing I posted...not sure where I posted it! My husband was just recently diagnosed with Mantle Cell Lymphoma. We go this week for his bone marrow biopsy and PET scan results. They have already staged it at 3 with the CT scans and said it could be 4 when we get these other results. We are so…
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Looking for resources on Nutrition/choices that help you stay in resolution/remision
Hi. I have learned a lot about my disease, but still am learning. I know that many of you are very knowledgeable, so I am seeking some insight. I was diagnosed with an indolent form of Follicular Lymphoma, stage 4. I finished 4 rounds of Bedamustine and Ritauximab treatments in January 2015. I was given a result of…
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Rituxan therapy
Hi, my name is Vicki and I am an oncology nurse. I am going to be working with Rituxan for NHL and would like to hear about your experience with this drug. How did you tolerate it? Were the side-effects manageable? What was the worst thing? Did you have a good response, etc? Anything and everything you would like to share…
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NHL Follicular Stage III
Had PET scan, Power Port and bone marrow test in the last week. Start chemo tomorrow, but don't know what to expect. Can you give information ? Thank you.
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In case you want to be seen at the Mayo Clinic--Rochester
I am writing this post because my dad currently has stage IV Splenal Marginal Zone Lymphoma that transformed into Aggressive B Cell lymphoma. He lives in Boise, Idaho, but I live in Rochester, MN, and work at the Mayo Clinic. Through this experience, I have seen firsthand what a massive difference there is between the…
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Just another newbie - frightened spouse
Hi all, Where to start? My husband has lymphoma. They are still narrowing it down, 2nd look by 2nd pathology lab still in the works, but my husband pretty definitely has some variant of b cell non hodgkin's lymphoma. Actual treatment is probably 3 weeks to a month away I'm going to guess, meanwhile other tests,…
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I visit the site daily several times, I may not write but do think and pray for all of you. I've bee
I visit the site daily several times, I may not write but do think and pray for all of you. I've been wondering about Mchantal lately... wishing the best to each and every one of you and all your loved ones...
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NHL Follicular Stage III
Had PET scan, Power Port and bone marrow test in the last week. Start chemo tomorrow, but don't know what to expect. Can you give information ? Thank you.
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Does it seem like Lymphoma or bone cancer, or...?
Hello - Does this sound like Lymphoma, bone cancer, infection, something else? 39 year old male. Generally healthy. Not a hypochondriac, although I can certainly see how people can be given the past couple of months I've been through... I had a spot on my left forearm about 2 inches up my arm from where my wrist bends that…
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Understanding, Coping, and Alone...
Hey everyone! So glad to have found you guys. A little over a month ago my Dad (62 years old) was diagnosed with Lymphoma. It's Non Hodgkin's, stage 3, and aggresive. We live in different states approx 10 hours apart from each other. We are very close and I am having such a hard time understanding the disease, coping with…
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Wrong diagnosis and second opinions?
I went to my primary doctor for sweating and fatigue in March 2015. I just had a baby in November 2014, so I was thinking all this was hormonal and a magic pill would fix it all. While I was there he decided to do simple blood tests just to make sure and he noticed a rather large lymph node in the right side of my neck. My…
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Maintenance Rituxan Questions
Greetings, For several years I have felt that Rituxan was my miracle drug! However, over the last year I have begun to wonder if it really is too good to be true. My father was diagnosed with Sjogren's Syndrome, an autoimme disease in his 70s. He developed Follicular NHL Stage 3B at 82, had CHOP and lived to 89 and died of…
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Anyone else have problems with Rituxan like me?
I have completed Treanda+R in June and am now on Maint. every 3 months for 2-4 years. I have had terrible reactions to Rituxan. Ever since the first session I get terrible hives, flushed and back pain. I know for many this is normal the first 1-2 sessions but my reactions have never gone away. By the 3rd session I went…
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Waiting
I want to start off by saying my husband has not yet been officially diagnosed with lymphoma. That being said, two and a half weeks ago an oncologist from Mayo clinic told us, "I'm 90% positive you have lymphoma." This was following a PET scan which revealed high (SUV 9.8) metabolic activity in the right axilla, retro…
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ALK+ ALCL Recurrence (Anaplastic Large Cell Lymphoma)
Hi, i just thought I would start a new thread in case anyone had any similar experiences. I was diagnosed with ALK+ ALCL in 2002 (Stage 2, age 17), and I did a full year of chemo that had similar drugs to CHOP but no Cytoxan and with Methotrexate and 6MP added to it. I have been in remission for 12 years until this March,…
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LIVESTRONG at the YMCA
The LIVESTRONG program at the YMCA is a free 12-week program for cancer survivors designed to help build strength, endurance, self-esteem, deal with unwanted weight changes, encourage a healthy lifestyle, and more. I "graduated" from the program last week with much fanfare and celebration. I loved the program and it really…
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New here, possible lymfoma, waiting for biopsy...
Hello everyone! Firstly I want to apologize for my english... I'm from the Czech republic, so I'm not a native speaker, but I'll try... I know that you must be fed up with the "possible lymphoma" posts but I just can't help it. This is the first website, where people are acutually very kind and not just barking on those…
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Need sharing on Aggressive Chemo exp. (24hrs x 5days at every 21days)
Dear Survivors, I am a Stage 3 Aggressive Diffuse Large B-Cell Lymphoma survivor, just declared remission on March 22nd, 2015. (YAY!) It was a long battle, approx. 8 months as I had additional Chemo treatments to lower my chances of relapses. Anyway, during my Chemotherapy (24hours infusion x 5days at every 21days) I had…
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worried
Hello to everyone. I have not written in a long time. I have FNHL stage 4 and had radiation in 04 and surgery. Then I was ok till 09 , and it came back did Zevalin. Have been in remission since dec 09. The last few month I have had bronchial problems and it hurts when I breathe but they keep saying acid reflux. Now I…
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md. governor has lymphoma
http://www.washingtonpost.com/local/md-politics/maryland-gov-larry-hogan-announces-that-he-has-cancer/2015/06/22/6b00eae2-1917-11e5-ab92-c75ae6ab94b5_story.html