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Lymphoma (Hodgkin and Non-Hodgkin)

Rituxan therapy
Hi, my name is Vicki and I am an oncology nurse. I am going to be working with Rituxan for NHL and would like to hear about your experience with this drug. How did you tolerate it? Were the side-effects manageable? What was the worst thing? Did you have a good response, etc? Anything and everything you would like to share…
NHL Follicular Stage III
Had PET scan, Power Port and bone marrow test in the last week. Start chemo tomorrow, but don't know what to expect. Can you give information ? Thank you.
In case you want to be seen at the Mayo Clinic--Rochester
I am writing this post because my dad currently has stage IV Splenal Marginal Zone Lymphoma that transformed into Aggressive B Cell lymphoma. He lives in Boise, Idaho, but I live in Rochester, MN, and work at the Mayo Clinic. Through this experience, I have seen firsthand what a massive difference there is between the…
Just another newbie - frightened spouse
Hi all, Where to start? My husband has lymphoma. They are still narrowing it down, 2nd look by 2nd pathology lab still in the works, but my husband pretty definitely has some variant of b cell non hodgkin's lymphoma. Actual treatment is probably 3 weeks to a month away I'm going to guess, meanwhile other tests,…
I visit the site daily several times, I may not write but do think and pray for all of you. I've bee
I visit the site daily several times, I may not write but do think and pray for all of you. I've been wondering about Mchantal lately... wishing the best to each and every one of you and all your loved ones...
NHL Follicular Stage III
Had PET scan, Power Port and bone marrow test in the last week. Start chemo tomorrow, but don't know what to expect. Can you give information ? Thank you.
Does it seem like Lymphoma or bone cancer, or...?
Hello - Does this sound like Lymphoma, bone cancer, infection, something else? 39 year old male. Generally healthy. Not a hypochondriac, although I can certainly see how people can be given the past couple of months I've been through... I had a spot on my left forearm about 2 inches up my arm from where my wrist bends that…
Understanding, Coping, and Alone...
Hey everyone! So glad to have found you guys. A little over a month ago my Dad (62 years old) was diagnosed with Lymphoma. It's Non Hodgkin's, stage 3, and aggresive. We live in different states approx 10 hours apart from each other. We are very close and I am having such a hard time understanding the disease, coping with…
Wrong diagnosis and second opinions?
I went to my primary doctor for sweating and fatigue in March 2015. I just had a baby in November 2014, so I was thinking all this was hormonal and a magic pill would fix it all. While I was there he decided to do simple blood tests just to make sure and he noticed a rather large lymph node in the right side of my neck. My…
Maintenance Rituxan Questions
Greetings, For several years I have felt that Rituxan was my miracle drug! However, over the last year I have begun to wonder if it really is too good to be true. My father was diagnosed with Sjogren's Syndrome, an autoimme disease in his 70s. He developed Follicular NHL Stage 3B at 82, had CHOP and lived to 89 and died of…
Anyone else have problems with Rituxan like me?
I have completed Treanda+R in June and am now on Maint. every 3 months for 2-4 years. I have had terrible reactions to Rituxan. Ever since the first session I get terrible hives, flushed and back pain. I know for many this is normal the first 1-2 sessions but my reactions have never gone away. By the 3rd session I went…
Waiting
I want to start off by saying my husband has not yet been officially diagnosed with lymphoma. That being said, two and a half weeks ago an oncologist from Mayo clinic told us, "I'm 90% positive you have lymphoma." This was following a PET scan which revealed high (SUV 9.8) metabolic activity in the right axilla, retro…
ALK+ ALCL Recurrence (Anaplastic Large Cell Lymphoma)
Hi, i just thought I would start a new thread in case anyone had any similar experiences. I was diagnosed with ALK+ ALCL in 2002 (Stage 2, age 17), and I did a full year of chemo that had similar drugs to CHOP but no Cytoxan and with Methotrexate and 6MP added to it. I have been in remission for 12 years until this March,…
LIVESTRONG at the YMCA
The LIVESTRONG program at the YMCA is a free 12-week program for cancer survivors designed to help build strength, endurance, self-esteem, deal with unwanted weight changes, encourage a healthy lifestyle, and more. I "graduated" from the program last week with much fanfare and celebration. I loved the program and it really…
New here, possible lymfoma, waiting for biopsy...
Hello everyone! Firstly I want to apologize for my english... I'm from the Czech republic, so I'm not a native speaker, but I'll try... I know that you must be fed up with the "possible lymphoma" posts but I just can't help it. This is the first website, where people are acutually very kind and not just barking on those…
Need sharing on Aggressive Chemo exp. (24hrs x 5days at every 21days)
Dear Survivors, I am a Stage 3 Aggressive Diffuse Large B-Cell Lymphoma survivor, just declared remission on March 22nd, 2015. (YAY!) It was a long battle, approx. 8 months as I had additional Chemo treatments to lower my chances of relapses. Anyway, during my Chemotherapy (24hours infusion x 5days at every 21days) I had…
worried
Hello to everyone. I have not written in a long time. I have FNHL stage 4 and had radiation in 04 and surgery. Then I was ok till 09 , and it came back did Zevalin. Have been in remission since dec 09. The last few month I have had bronchial problems and it hurts when I breathe but they keep saying acid reflux. Now I…
md. governor has lymphoma
http://www.washingtonpost.com/local/md-politics/maryland-gov-larry-hogan-announces-that-he-has-cancer/2015/06/22/6b00eae2-1917-11e5-ab92-c75ae6ab94b5_story.html
Lots of Symptoms Yet No Answers
First off, I have not been diagnosed with any form of cancer or anything to be quite honest but my symptoms seem to point in the direction of some form lymphoma. I have been to see my regular doctor who sends me to specialists who perform countless tests over the last 3 years with small abnormalities but not enough to…
trying to find an answer, normal labs and xrays
How were you diagnosed? I have had a lump, non painful, in my neck 5 years. 5 years ago I started having soaking sweats to the point of staining sheets because my colored panties who transfew all over my whhite sheets. Saw my internist who did my cbc, xray, and ordered a ct of head and pelvis. The pelvis was denied by…
Enlarged Inguinal Lymph Nodes to be Removed Wednesday
Hi Everyone, im new to this site, so please let me know if I post anything I shouldn't. At the end of March, I began having pain in my right leg. It spread to the left, and by the end of the week it was everywhere. I was also suffering from insomnia, terrible night sweats. A few weeks later I noticed a swollen lymph node…
NHL Large T Cell Survivor of 2 1/2 years, looking for encouragement
Hi, I am new here. I hope you are all doing well. I am one of those people who wants everyone to be okay and I have always been one of the strong ones in my family. I now need to be encouraged. I am having a lot of stress due to losing two jobs in six months, my car quit on me last week (transmission gone), and now I am…
ALCL ALK+
I am 34 years old, very healthy with a very active lifestyle, married with 4 children. I had stage 2 Anaplastic Large Cell Lymphoma that is ALK+ (diagnosed in Oct/05, i completed my chemo therapy in March/06. I am concerned about the chances of Reoccurrence; available stats are too general and not specific to population…
New here, diagnosed May 18th
So on May 18th, after a few months of abnormal blood work and the discovery of a large spleen, I was diagnosed with Chronic NK Cell LGL T-Cell Lymphoma (A Non-Hodgkin Lymphoma). The first thing my oncologist said when he walked into the room at diagnosis was day was, "So to start, it is treatable, but not curable, and we…
Nhl stage 4 bone marrow.
hello. After rchop x8 still in bone marrow. Can i go back to watch and wait even if it is in bone? Thanks for your time.
Photo from LIVESTRONG at the YMCA
Here I am with a couple of my compadres. . .
Infertility and Stem Cell Transplant
Well Kyle is currently undergoing his 4th round of chemotherapy out of 6 rounds. As time approaches, he will be undergoing a stem cell transplant and we were under the assumption that Kyle's fertility would not be affected by his current chemo regime. However, no one mentioned the fact that the stem cell transplant would…
MCL Looking for support for my dad
hi everyone.... im new here and hoping to find survivor stories and hopefully some people for him to talk to about what to expect in his journey. my dad is 60 and was diagnosed on May 1st....just 30 days ago after an ultrasound and biopsy of an enlarged lymph node in his groin. The first oncologist suggested the watch and…
weird symptoms, possible lymphoma?
I probably wouldn't of even thought about lymphoma if I hadn't stumbled across a defining symptom. I was sitting at a bar with my boyfriend and took my few sips of alcohol (I don't drink much) and my shoulders started aching again. I looked over and asked if his shoulders ever hurt from alcohol. He looked at me with a…
Metallic taste
Hi all! I just had my second round of radiation today & I can taste metal. Is that normal for radiation in the groin area? Or is this just in my head? My radiologist never mentioned it as a side effect. I've found if you have radiation in your head or neck you can have the taste. Thanks for your help!

Lymphoma (Hodgkin and Non-Hodgkin)

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