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Lymphoma (Hodgkin and Non-Hodgkin)

update and a few questions...
I started maintenance Rituxan treatments on Dec. 28, 2016 - and the second treatment was February 22. When I saw my oncologist before the treatment I told him I have been experiencing pain in the areas where the lymphoma was not eliminated with the prior Rituxan treatments. I was surprised by this, as it has never happened…
Maintenance Rituximab for me
My Onco is starting me on this in a two weeks. I’m almost 7 months post-SCT (autologous) and feeling great. (Although today I had a pneumonia shot, a flu shot and a TDAP shot and my arms are SORE.) It appears from the modicum of reading I’ve done that this is a no-brainer…definitely the right thing to do. So the…
My newest challenge
Well, I spent the weekend in the hospital. I've had a dry cough, on and off fever, fatigue and shortness of breath, for about 3 weeks. Had a chest x-ray that showed a few spots in my lungs.. LDH jumped from 175 to 429 during that 3 weeks. WBC dropped to 1.9. Had a chest, abdomen and pelvis CT. it showed the spots/haze in…
Do I push for further testing?
Hi, I am new to the group, I am a 30 year old female, have not been diagnosed. But have gone thru some tests to figure out what is wrong with me, no answers yet. Let me start off with some history, 11 years ago I was diagnosed with Thyroid cancer and had a full thyroidectomy, and had 2 rounds of radiation treatments, and…
Hello I'm a Newbie
I really don't know where to begin. I don't know what I am looking for. I was diagnosed with NHL MALT Lymphoma in my right lung back in September. My journey started back in May of last year when I passed a kidney stone and they were checking to see if I had anymore and happened to catch a nodule on the CT Scan. A week…
Early Reoccurrence after Bendomustine/Rituximab
Hello, After 6 rounds of Bendo/Ritux which ended in October and several clear PET scans, I recently had an MRI for some shoulder pain that showed evidence that the NHL has returned already. This is not confirmed as more tests are needed, but based on what I see I don't have a lot of hope. My question is, has anyone else…
Introduction and Hello
Hello everyone, I'm very new here and look forward to getting to know you all and learning as much as I can about how to be a person with cancer. I have NHL, from what I'm told, Large Diffuse B cell type. Last week I did my first round of chemotherapy in the hospital. I'm getting DA EPOCH R and I tolerated it fairly well -…
Looking for hope
My sister in law has relapsed DCBL and is recieving R-EPOCH. She is 48 and super depressed. Im looking for anyone out there who has been through lymphoma twice and is now living a relatively full and healthy life - somone to offer words of support and hope. R u out there. She needs to know its possible to be healthy again.…
Update
Hi to everyone, Sorry to use the forum for a personal nature but I wanted to answer everyone since we also got some personal messages, and I don't want to use that long thread, so I started the new one. We evacuated a week ago tonight, it took us over 4 hours to go 50 miles. We pulled our 5th wheel and ended up parked in…
Son diagnosed with Advanced Stage 4 Hogkin's Lymphoma
Hello, I am writing here as I am looking for advice, stories, anything that will help my family and I through this. My 31 year old son was diagnosed with Advanced Stage 4 Hodgkin's Lymphoma in December. He just finished his 4th session of ABVD and has 8 more to go in this course. It is considered palliative at this time.…
Secondary Cancer?
Completed 6 cycles ABVD treatment (no rad) for the Lymphocyte rich version of CHL (stage III) about 8 weeks ago. Just received the results of the follow-on CT & PET scans the other day; good news is that previous sites of cancer appear resolved however, what's new is now I seem to have some enlarged lymph nodes in my…
Undiagnosed Please advise
I've been looking everywhere for answers. I'm hoping that the brace people on this site will be my best resource. Starting feeling very ill last June 2016. Searched months for a general practitioner to evaluate me and many strange symptoms. Having found one in August she gave me a preliminary diagnosis of lymphoma in…
Questions about RICE Chemotherapy
Hi everyone, I have a new friend who was diagnosed with Diffuse Large B Cell Lymphoma a few months ago. He's completed four rounds of Rituxan and responded pretty well but has one area/spot that didn't seem to respond. He just started RICE treatment last week (I think he's going to have 4 cycles). I've done some research…
My Rchop Dose Reduced to 70%
Hello My name is Nitesh 30 year Male, My height is 161 centimeter and weight is 53kg. I had a bisospy in my left armpit and found that I have Diffuse large B-cell lymphoma (DLBCL) Stage 2-B. My onco has suggest me for 6 cycles of Rchop after every 3 week with no radiation therapy. My rchop dose are as follows;- Rituximab…
Ucsf vs stanford
Was currently being treated at Stanford but I have become unhappy with my situation there I'm thinking of transferring my care to UCSF. How does the care there compare¡??
mantle cell wait and watch
My mother who is 74 was diagnosed over a year ago with mcl. She is doing the wait and watch. I was just wondering if there is any recent people out there who have been doing the same wait and watch and for how long. I am new to this forum and not very good at using computers so I apalogize in advance if this isnt in the…
Pulsatile tinnitis
Good morning....I am wondering if anyone has been diagnosed with pulsatile tinnitis/tinnitis.....I am post radiation to neck for hodgkins lymph 37 years ago....thank you
Dlbcl tumor on heart
Hi! Searching for someone who also had dlbcl with tumor originating on heart to share discussion with. Thanks!
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
Newbie here
Just found this place, getting the feel of it.
one down 7 to go!!!!
Hey Guy's had first round of R-CHOPS, 8 hrs. in fact, you know it's a long day when your IPOD runs out of a full charge!!! hahahaha. The worst part was I just had my port put in yesterday, but once it heals I know I'm going to appreciate that I had it put in this time! I have to go back tomorrow for that shot that hurts…
Primary Bone Lymphoma, anyone?
Hi all, I have Primary Bone Lymphoma, which is deemed a rather rare occurence of lymphoma. My variety is Follicular (indolent), which is even further off the charts (the "usual" type of PBL is DLBCL (aggressive)). Specific information is hard to come by... So I would love to find other folks with PBL, who would be willing…
lung transplant and bone marrow
9 years ago I received a right lung after a pulmonary fibrosis diagnosis. Early last year I was diagnosed with PTLD (lymphoma caused by my anti-rejection drugs). Went through RCHOP chemo and then RICE chemo. Now the Dr at Loyola is recommending a bone marrow transplant. Has anyone else had this experience? Ken
Diffuse Large B-Cell Lymphoma (DLBCL)
The complete pathology report is not in, but initital findings are that the Follicular Lymphoma has morphed into an aggressive Diffuse Large B-Cell Lymphoma. The tumor that I originally thought was 13mm is actually 13cm! yes - OUCH! I start R-CHOP on Wednesday. Actually looking forward to doing something and hopefully…
Exhaustion/Muscle and Bone stiffness & pain.
I haven't been on this forum in maybe over a year...so hi everyone! My constant and never ending issue is exhaustion,massive fatique.After 2 years of Rituxen,6 months of treanda,nulasta,rituxen , now at the tail end of another 2 years of rituxen.Im toast! I am ALIVE...and greatful but toast forsure.I have issues with my…
cancer at 22 years old possible. sonogram tomorrow
So tomorrow i have a sonogram and i. Just learning to use the discussion board. Im not quite aure if i am doing this right. Ihave had a swollen lymphnode in my neck for a while and one in the crease of my tthigh and abdomen. Anyways. Point here is i am breast feeding and i had notice a lump under my armpit when i was…
So, haven't posted for a while...
So, I haven’t posted for a while. All’s well with me...I wrote a coupla’ months ago that Mac was diagnosed with Acinar Cell Carcinoma of the Pancreas. (A rare form of pancreatic cancer with around 50 people being diagnosed per year in the U.S….but a bit better than regular PC and a few aspects about which that can…
Non-Hodgkin Lymphoma Small B Cell Follicular
I am new to this site My name is Roxanne. Two years ago I was told I had cancer and my world changed drastically that day I know I do not have to explain that feeling to anyone here. I was placed on a watch and wait status which only added to the stress and waiting for the other foot to drop. I went to the CTCA Center in…
Follicular Transformed to Diffuse B Large Cell..Scared
I was diagnosed with Follicular Lymphoma in 2012 treated with Rituxan with minimal result. Was on watch and wait. I have been having severe pain in abodomen for over a year. Reported this to my Onc he did another Ct and lymph nodes were stable. Went to a Gastro doc and told him of attacks of severe pain and feeling like my…
SCT update
Three month PET/CT shows that my stem cells are doing what was planned after the SCT!( diffusely increased marrow signal in the axial sleleton, presumably due to marrow activation). PET shows nothing else!! I am sooooo happy right now, although I keep thinking " been there, done that" Moving on!!

Lymphoma (Hodgkin and Non-Hodgkin)

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