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Maintenance Rituxan NHL
After initial treatment and during the every 2 month maintenance with Rituxan, are you receiving the same amount of Rituxan at the maintenance visits as you received during treatment? Are some of you receiving a smaller amount of Rituxan during maintenance and if so, how much? i would really appreciate your input. I am…
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Paella, here, asking a big favor
3/11/17 Hello to all – First of all and for all stem cell transplantees – keep on keeping on! At 8 months post SCT, I’m doing really well…occasionally overdoing but feeling good and strong. But husband Mac’s pancreatic cancer is something I’d like to bring up again even though this is the lymphoma forum. Why? Because we’re…
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PICC line for PET scan?
Hi I am a patient of hodgkins lymphoma. I have a PICC line inserted for the chemotherapy as my veins can't get located easily. I am done with 4 cycles and now I have a PET scan. So I want to know, Can my PICC line be used for the tracing medicine that is injected during PET scan or That has to be injected separately? I…
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Skin care after radiation therapy
Hi everyone, I have a query regarding post skin radiation treatment. I got diagnosed in 2014. Went through the routine, chemotherapy and then radiation of thorax. My neck got really dark. I used a mask and the front skin came off but i didnt use a mask for the back so my back neck skin is still very dark. I relapsed again…
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The latest
Well had a scan last week all is clear but, theres aways a but, i have now an auto immune disease called oral lichen planus, which is horrible ulceration of lips and inner mouth, tongue and cheeks, i have been dealing with this since end of Oct, i thought it was just a case of very chapped lips but it progressed in to the…
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High Proliferation rate and NHL
i would like to hear from anyone whose lab slide biopsy shows a high proliferation rate. My node excision biopsy showed a proliferation rate of 70-80%. I am particularly interested about your oncologists' feedback about your proliferation rate and also how you have done in treatment. Does your proliferation rate affect…
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Need help for my young children at home coping with my cancer
Hi everyone, I was diagnosed with Large Diffuse Mediastinal B-Cell Lymphoma last June and underwent 6 rounds of R-EPOCH chemotherapy. I have 2 children at home who have been coping with me having this disease. They did very well, and maybe because my husband and I felt that being completely honest with them about the…
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Brother Diagnosed
Hi All, My younger brother (15 years) was just diagnosed with Acute Lymphoblastic Lymphoma (non Hodkins). It was a few days ago, so we don't have many details yet. All we know is there was a 2+ pound tumor in his chest that was misdiagnosed as mono for about a week (until my brother was having trouble breathing and was…
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update and a few questions...
I started maintenance Rituxan treatments on Dec. 28, 2016 - and the second treatment was February 22. When I saw my oncologist before the treatment I told him I have been experiencing pain in the areas where the lymphoma was not eliminated with the prior Rituxan treatments. I was surprised by this, as it has never happened…
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Maintenance Rituximab for me
My Onco is starting me on this in a two weeks. I’m almost 7 months post-SCT (autologous) and feeling great. (Although today I had a pneumonia shot, a flu shot and a TDAP shot and my arms are SORE.) It appears from the modicum of reading I’ve done that this is a no-brainer…definitely the right thing to do. So the…
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My newest challenge
Well, I spent the weekend in the hospital. I've had a dry cough, on and off fever, fatigue and shortness of breath, for about 3 weeks. Had a chest x-ray that showed a few spots in my lungs.. LDH jumped from 175 to 429 during that 3 weeks. WBC dropped to 1.9. Had a chest, abdomen and pelvis CT. it showed the spots/haze in…
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Do I push for further testing?
Hi, I am new to the group, I am a 30 year old female, have not been diagnosed. But have gone thru some tests to figure out what is wrong with me, no answers yet. Let me start off with some history, 11 years ago I was diagnosed with Thyroid cancer and had a full thyroidectomy, and had 2 rounds of radiation treatments, and…
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Hello I'm a Newbie
I really don't know where to begin. I don't know what I am looking for. I was diagnosed with NHL MALT Lymphoma in my right lung back in September. My journey started back in May of last year when I passed a kidney stone and they were checking to see if I had anymore and happened to catch a nodule on the CT Scan. A week…
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Early Reoccurrence after Bendomustine/Rituximab
Hello, After 6 rounds of Bendo/Ritux which ended in October and several clear PET scans, I recently had an MRI for some shoulder pain that showed evidence that the NHL has returned already. This is not confirmed as more tests are needed, but based on what I see I don't have a lot of hope. My question is, has anyone else…
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Introduction and Hello
Hello everyone, I'm very new here and look forward to getting to know you all and learning as much as I can about how to be a person with cancer. I have NHL, from what I'm told, Large Diffuse B cell type. Last week I did my first round of chemotherapy in the hospital. I'm getting DA EPOCH R and I tolerated it fairly well -…
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Looking for hope
My sister in law has relapsed DCBL and is recieving R-EPOCH. She is 48 and super depressed. Im looking for anyone out there who has been through lymphoma twice and is now living a relatively full and healthy life - somone to offer words of support and hope. R u out there. She needs to know its possible to be healthy again.…
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Update
Hi to everyone, Sorry to use the forum for a personal nature but I wanted to answer everyone since we also got some personal messages, and I don't want to use that long thread, so I started the new one. We evacuated a week ago tonight, it took us over 4 hours to go 50 miles. We pulled our 5th wheel and ended up parked in…
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Son diagnosed with Advanced Stage 4 Hogkin's Lymphoma
Hello, I am writing here as I am looking for advice, stories, anything that will help my family and I through this. My 31 year old son was diagnosed with Advanced Stage 4 Hodgkin's Lymphoma in December. He just finished his 4th session of ABVD and has 8 more to go in this course. It is considered palliative at this time.…
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Secondary Cancer?
Completed 6 cycles ABVD treatment (no rad) for the Lymphocyte rich version of CHL (stage III) about 8 weeks ago. Just received the results of the follow-on CT & PET scans the other day; good news is that previous sites of cancer appear resolved however, what's new is now I seem to have some enlarged lymph nodes in my…
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Undiagnosed Please advise
I've been looking everywhere for answers. I'm hoping that the brace people on this site will be my best resource. Starting feeling very ill last June 2016. Searched months for a general practitioner to evaluate me and many strange symptoms. Having found one in August she gave me a preliminary diagnosis of lymphoma in…
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Questions about RICE Chemotherapy
Hi everyone, I have a new friend who was diagnosed with Diffuse Large B Cell Lymphoma a few months ago. He's completed four rounds of Rituxan and responded pretty well but has one area/spot that didn't seem to respond. He just started RICE treatment last week (I think he's going to have 4 cycles). I've done some research…
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My Rchop Dose Reduced to 70%
Hello My name is Nitesh 30 year Male, My height is 161 centimeter and weight is 53kg. I had a bisospy in my left armpit and found that I have Diffuse large B-cell lymphoma (DLBCL) Stage 2-B. My onco has suggest me for 6 cycles of Rchop after every 3 week with no radiation therapy. My rchop dose are as follows;- Rituximab…
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Ucsf vs stanford
Was currently being treated at Stanford but I have become unhappy with my situation there I'm thinking of transferring my care to UCSF. How does the care there compare¡??
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mantle cell wait and watch
My mother who is 74 was diagnosed over a year ago with mcl. She is doing the wait and watch. I was just wondering if there is any recent people out there who have been doing the same wait and watch and for how long. I am new to this forum and not very good at using computers so I apalogize in advance if this isnt in the…
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Pulsatile tinnitis
Good morning....I am wondering if anyone has been diagnosed with pulsatile tinnitis/tinnitis.....I am post radiation to neck for hodgkins lymph 37 years ago....thank you
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Dlbcl tumor on heart
Hi! Searching for someone who also had dlbcl with tumor originating on heart to share discussion with. Thanks!
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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Newbie here
Just found this place, getting the feel of it.
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one down 7 to go!!!!
Hey Guy's had first round of R-CHOPS, 8 hrs. in fact, you know it's a long day when your IPOD runs out of a full charge!!! hahahaha. The worst part was I just had my port put in yesterday, but once it heals I know I'm going to appreciate that I had it put in this time! I have to go back tomorrow for that shot that hurts…
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Primary Bone Lymphoma, anyone?
Hi all, I have Primary Bone Lymphoma, which is deemed a rather rare occurence of lymphoma. My variety is Follicular (indolent), which is even further off the charts (the "usual" type of PBL is DLBCL (aggressive)). Specific information is hard to come by... So I would love to find other folks with PBL, who would be willing…