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Lymphoma (Hodgkin and Non-Hodgkin)

When the hair comes back after last chemo?
Hi All, Today I had my last R-CHOP treatment and I was already wondering when my hair will start growing back. How was in your experience? I suppose everyone is different in this matter but if you could share some of your experience would be great. Thank you, Dana
Free T-Cell Lymphoma seminar in Honolulu, HI October 8th
The T Cell Leukemia Lymphoma Foundation is offering a free day long patient education seminar at the Waikiki Beach Marriott in Honolulu on October 8th, 2016. Presenters will be Dr. Andrei Shustov, a clinical and research hematologist at the Fred Hutchinson Cancer Research Center. He will be joined by Dr. Michi Shinohara,…
Follow Up on my Recurrence
Hello friends, I had a CT scan late last week and saw my hematologist/oncologist yesterday. Bottom line: my disease is stable and no treatment is needed at this time. I don't need to see the doctor again for six months (unless something changes). So, Yay! In April, I had 3 minimally enlarged lymph nodes in my abdomen which…
Free Educational Conference in Phila, PA 11/18/2016
I wanted to share the following information with all who may be in the Philadelphia, PA area and interested in attending in person (or via livestream for those not in the area or not able to attend in person): OPEN TO THE PUBLIC: FREE Educational Conference - Focus on Leukemia, Lymphoma, Myeloma, and Bone Marrow/Stem Cell…
working during maintenance
I was initially diagnosed with type 2 follicular lymphoma Dec 2014. After 6 months of benda/rituxan I was put onto two years of rituxan maintenance. After my 2nd treatment I slowly started the process of returning to work. I'm a full time lab technologist (we help diagnose lymphoma among other things, ah the irony). The…
Sharing "The News"
After several weeks of reading this discussion board while waiting for my final pathology report to come in, I am finally posting. I have Follicular Lymphoma, Low grade Stage 3B. I received this diagosis on Friday, Sept 2nd just about 4 weeks after being told I probably have Lymphoma. A tennis-ball sized mediastinal mass…
SCT scheduled
Well, I'm getting close. 5.8 million cells were collected last week, I've passed all my pre transplant tests with flying colors. My journey starts next week Tuesday with 7 days of high dose chemo and day 0 scheduled for Sept 27th. Hotel reservations set for my husband and daughter who will takes turns staying 90 minutes…
Insurance Considers Rituxan for Cancer to be under study?
Just received first EOB in the mail for Day 1, Rituxan therapy. They have 'rejected' payment stating that it is not generally accepted treatment or experimental? I am floored. Of course, it's Saturday and I can't speak to anyone until Monday. The total amount I owe provider column is $6005.00. Holy ****! Has anyone else…
Enlarged node-no other symptoms?
hi everyone I apologize as I am new here and have not yet been diagnosed but I had some questions I thought maybe someone here could answer. I have had enlarged lymph node about 3 or 4 weeks now in my groin. I am 31 and I have had no other symptoms or sickness or injury prior to finding it. It is painless. Bloodwork…
Fatigue after Chemo
Hi and Happy Saint Patrick's Day, I was just wondering how long people have felt fatigued after finishing chemo. I am 4 weeks out from my 6th round of RCHOP and there are days when I'm just too tired to get dressed and do much of anything. Other days I feel good but run out of energy after a few hours. When I mentioned it…
Blood clots during chemo
I am currently receiving RCHOP for DLBC lymphoma transformed from Follicular. I have completed 4 treatments to date. When I had a visit with my Onc. before 4th chemo, I told him I have a slight sore spot in my neck and he ordered an ultrasound. I was totally caught off guard with the results, and really upset. I have an…
Forllicular Lymphoma with fluid. Please help
Dear All, I am a new member and need your help. My husband's dianoged with Low Grade Forllicular Lymphoma Stage 1 since May 2016. The symtoms he has are swollen groins and fluid. After we came back from 12-day holiday on cruise, his stomach poped out over night (looks like he's 7 months pregnant). After that 3 weeks, he…
Possible/worried I have lymphoma
First off I just want to start off by saying I'm sorry because I haven't been actually diagnosed with lymphoma. I am also very worried. I can't get my mind off it. In the summer I noticed a groin lymph node swell after I had a severe allergic reaction to horse fly bites. I didn't think much of It. But about two weeks ago I…
Quite a journey isn't it?
Yes it was just about a year ago when I noticed the small lump in my groin...wasn't too worried and headed off to Washington to work on a fire..when I got home three weeks later the lump was much larger so off to the doctor. I went to discover I had DLBCL..wow..treatment began a week before Christmas and lasted through…
R-Chop and diabetes
Hi there. I just finished my 3rd R-Chop. However, my sugars are off the roof (200-350). I understand that the chemo will keep them crazy and unbalanced. My medical dr. has started me on insulin (Humalog and Lantus). I have been expermenting on my own trying to figure out the units to take. Because what she advided me to…
I'm afraid & tired !
For 15 years I've cared for my mom & dad ( dad had emphyseima and has passed & mom is stage 4 non hodgkins ) my siblings lived their lives and left all care to me. recently, I have moved from my parents house after my dad passed ( I am single, never married, no children & 55 yrs. old ) however, my sister who is now…
Conjunctival MALT lymphoma
In 2013 I had a very small tumor removed from my right eye, the surgeon said it had a 'tail' that went behind my eye and she couldn't get it all that I would need low beam radiation therapy to remove it all. I was pregnant during the removal, and was not very excited about having radiation post partum. So i decided against…
It's Back
A few days ago, I had a 4 month appointment with my hematologist oncologist. Every appointment I've had with him started with a trip to the lab for blood tests. This time, he hadn't ordered any which I thought very odd. After we talked and he examined me, he said he wanted me to have a CT scan. A nurse walked in and handed…
B cell lymphoma
Hello my dad was just diagnosed with B cell lymphoma. He is 70 years old and always and active man The cancer is so aggressive that right now they are fighting to keep his organs from failing before they can actually treat the cancer itself. He has gone into renal failure and is on 24 hour dialysis. They are working on…
Pregnant a few months after my husband's last chemo
My husband had non-hodgkin lymphoma and his last chemo (he had 6 chemo cycles) was at the end of May 2016. I just found out I'm pregnant today. He doesn't know yet. I'm worried if the baby will be healthy. Should I keep it?
Neulasta vs Neupogen
I asked the oncologist today if the Neulasta shots were working. Dad is still ending up in the hospital 7 days after every enfusion with a serious infection and neutropenia. I asked if Neupogen might be the better choice. Or what other options should we be considering. Does anyone have any advice, experiences or other…
What tests?
A growth was found in the conjunctiva of my right eye and after a biopsy by the ophthalmologist I'be been told it is lymphoma. I've been referred to Princess Margaret Hospital (Toronto, Ontario) and my first appointment is in two weeks. I'm wondering what to expect in terms of tests at my first appointment. I realize this…
Non-Hodgkins-Small lymphocytic lymphoma (SLL) treatment
A friend was very recently diagnosed with small lymphocytic lymphoma (SLL). She is in her mid-50s and otherwise very healthy. She has seen one oncologist so far and has appointments for 2 additional opinions (one with MD Anderson). I am trying to find information for her on treatments received by others with SLL and your…
NHL 3B with Fluid retention in left lung
Hi Everyone, I hope someone can help me. I started having back and abdominal pains over the 4Th July weekend and after a CT scan in August discovered an 8x10cm mass in my lower abdomen and my left lung almost filled with fluid. Unable to breathe I went to a Lung specialist who after doing a Thorax Xray removed 2 liters of…
Dose Adjusted Epoch R
Hello all, I am the primary care-giver for my mother, who has just begun epoch and rituximab treatment for her aggressive double hit lymphoma cancer, dose adjusted as based on her blood counts at the end of each cycle. For her first two cycles her dose has remained the same, in order for her to get the best level of…
Maintenance Tx: Rituxan
I completed induction Tx for indolent, NHL 3B, in December, 2015. My last scan, a month ago, was clean. The suggested maintenance Tx following induction was continuing with Rituxan only, 1 X every 2 months. But I had to quit, after 2 Tx, because the fatigue, mostly, was life-changing, epic-class. The best analogy I could…
i have questions please anyone try to amswer them
hello my name is lizzy and im 21 a year ago in august i had lymph nodes swollen in my neck they never have gawayin dec i totally lost my appetite and went and seen a ent he did a biopsy. it came back normal. but he was gonna take the biggest one out but didnt because two days before surgery a small one popped up on the…
Splenic Marginal Zone Lymphoma and Breast Cancer
Hi All, My mother was diagnosed with SMZL in December 2014, was treated with chemo and Rituxan, and has been in remission since May 2015. She responded very well to treatment and her spleen shrunk back to normal size. My mother has also been a breast-cancer survivor of 10 years. She recently had an enlarged lymph-node, and…
Frustrated
I walk into the hospital this morning to a terrified Dad. He has diarrhea that is pure bright red blood. He can not sir up without feeling like he is going to pass out. I ask his nurse if the doctor has been in. The nurse says that they have made several phone calls and no one has called him back yet. This has already been…
What I remember
I still remember being a little kid. Looking up at my Dad with awe. Thinking about how big and strong he is. Watching him now battling cancer. I realize how right I was.

Lymphoma (Hodgkin and Non-Hodgkin)

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