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Son diagnosed with Advanced Stage 4 Hogkin's Lymphoma
Hello, I am writing here as I am looking for advice, stories, anything that will help my family and I through this. My 31 year old son was diagnosed with Advanced Stage 4 Hodgkin's Lymphoma in December. He just finished his 4th session of ABVD and has 8 more to go in this course. It is considered palliative at this time.…
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Secondary Cancer?
Completed 6 cycles ABVD treatment (no rad) for the Lymphocyte rich version of CHL (stage III) about 8 weeks ago. Just received the results of the follow-on CT & PET scans the other day; good news is that previous sites of cancer appear resolved however, what's new is now I seem to have some enlarged lymph nodes in my…
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Undiagnosed Please advise
I've been looking everywhere for answers. I'm hoping that the brace people on this site will be my best resource. Starting feeling very ill last June 2016. Searched months for a general practitioner to evaluate me and many strange symptoms. Having found one in August she gave me a preliminary diagnosis of lymphoma in…
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Questions about RICE Chemotherapy
Hi everyone, I have a new friend who was diagnosed with Diffuse Large B Cell Lymphoma a few months ago. He's completed four rounds of Rituxan and responded pretty well but has one area/spot that didn't seem to respond. He just started RICE treatment last week (I think he's going to have 4 cycles). I've done some research…
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My Rchop Dose Reduced to 70%
Hello My name is Nitesh 30 year Male, My height is 161 centimeter and weight is 53kg. I had a bisospy in my left armpit and found that I have Diffuse large B-cell lymphoma (DLBCL) Stage 2-B. My onco has suggest me for 6 cycles of Rchop after every 3 week with no radiation therapy. My rchop dose are as follows;- Rituximab…
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Ucsf vs stanford
Was currently being treated at Stanford but I have become unhappy with my situation there I'm thinking of transferring my care to UCSF. How does the care there compare¡??
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mantle cell wait and watch
My mother who is 74 was diagnosed over a year ago with mcl. She is doing the wait and watch. I was just wondering if there is any recent people out there who have been doing the same wait and watch and for how long. I am new to this forum and not very good at using computers so I apalogize in advance if this isnt in the…
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Pulsatile tinnitis
Good morning....I am wondering if anyone has been diagnosed with pulsatile tinnitis/tinnitis.....I am post radiation to neck for hodgkins lymph 37 years ago....thank you
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Dlbcl tumor on heart
Hi! Searching for someone who also had dlbcl with tumor originating on heart to share discussion with. Thanks!
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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Newbie here
Just found this place, getting the feel of it.
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one down 7 to go!!!!
Hey Guy's had first round of R-CHOPS, 8 hrs. in fact, you know it's a long day when your IPOD runs out of a full charge!!! hahahaha. The worst part was I just had my port put in yesterday, but once it heals I know I'm going to appreciate that I had it put in this time! I have to go back tomorrow for that shot that hurts…
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lung transplant and bone marrow
9 years ago I received a right lung after a pulmonary fibrosis diagnosis. Early last year I was diagnosed with PTLD (lymphoma caused by my anti-rejection drugs). Went through RCHOP chemo and then RICE chemo. Now the Dr at Loyola is recommending a bone marrow transplant. Has anyone else had this experience? Ken
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Diffuse Large B-Cell Lymphoma (DLBCL)
The complete pathology report is not in, but initital findings are that the Follicular Lymphoma has morphed into an aggressive Diffuse Large B-Cell Lymphoma. The tumor that I originally thought was 13mm is actually 13cm! yes - OUCH! I start R-CHOP on Wednesday. Actually looking forward to doing something and hopefully…
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Exhaustion/Muscle and Bone stiffness & pain.
I haven't been on this forum in maybe over a year...so hi everyone! My constant and never ending issue is exhaustion,massive fatique.After 2 years of Rituxen,6 months of treanda,nulasta,rituxen , now at the tail end of another 2 years of rituxen.Im toast! I am ALIVE...and greatful but toast forsure.I have issues with my…
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cancer at 22 years old possible. sonogram tomorrow
So tomorrow i have a sonogram and i. Just learning to use the discussion board. Im not quite aure if i am doing this right. Ihave had a swollen lymphnode in my neck for a while and one in the crease of my tthigh and abdomen. Anyways. Point here is i am breast feeding and i had notice a lump under my armpit when i was…
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So, haven't posted for a while...
So, I haven’t posted for a while. All’s well with me...I wrote a coupla’ months ago that Mac was diagnosed with Acinar Cell Carcinoma of the Pancreas. (A rare form of pancreatic cancer with around 50 people being diagnosed per year in the U.S….but a bit better than regular PC and a few aspects about which that can…
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Non-Hodgkin Lymphoma Small B Cell Follicular
I am new to this site My name is Roxanne. Two years ago I was told I had cancer and my world changed drastically that day I know I do not have to explain that feeling to anyone here. I was placed on a watch and wait status which only added to the stress and waiting for the other foot to drop. I went to the CTCA Center in…
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Follicular Transformed to Diffuse B Large Cell..Scared
I was diagnosed with Follicular Lymphoma in 2012 treated with Rituxan with minimal result. Was on watch and wait. I have been having severe pain in abodomen for over a year. Reported this to my Onc he did another Ct and lymph nodes were stable. Went to a Gastro doc and told him of attacks of severe pain and feeling like my…
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SCT update
Three month PET/CT shows that my stem cells are doing what was planned after the SCT!( diffusely increased marrow signal in the axial sleleton, presumably due to marrow activation). PET shows nothing else!! I am sooooo happy right now, although I keep thinking " been there, done that" Moving on!!
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Waiting for SCT
Hello friends. My mom had her 5th and last r-chop treatment 10 days ago. She is home, neutropenic, tired and having bone pain. She is in as good spirits as a person can be in this condition. She has her first pet scan scheduled for Feb. 9. We are scared she won't be able to proceed with the planned stem cell transplant,…
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What happens with the dead cancer cells after chemotherapy?
Hi All, I was wondering what happens with the cancer cells that were killed by chemotherapy? How are they eliminated by the body, is that by the immune system? What is left after chemo from a tumor larger than 6 cm in diameter? Scar tissue? How long it takes to get rid of all this debris of dead cells? I suppose each body…
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My Dad again
Dad had his kidney removed on January 7th. As far as we know now he is cancer free. Both lymphoma cancers are dead and now the kidney cancer is gone. 3 days after getting the kidney removed he got very weak. I told the Doctors that he has a history of c-diff. They listened to me and started him on antibiotics before they…
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New here....but not to lymphoma - glad to have found y'all!
I have just started a Rituxan maintenance once every 8 weeks for 2 years. I have great reservations about it - but it seemed to be the best course for me. I was diagnosed at the very end of 2009 with splenic margianal zone lymphoma - had 8 rounds of CVP-R - had a terrible reaction to the Ritusan the first time I got it,…
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How to keep a positive attitude?
Hi Everyone! I would like to know how everybody keeps a positive attitude in front of all the treatments and specially the tests? I am terrified always with every little ache and pain that the cancer is back and I don't know how to deal with it all. I know all the theory behind positive thinking , low of attraction but how…
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Don't know where to start
Hi, I had my annual physical in May and my bloodwork showed a PSA of 2700. I had what they thought was shingles in October and when they repeated the same bloodwork it showed my PSA at 4400. I had more bloodwork in January and since it was still 4400 they did a prostate biopsy. I get the results for that in 5 more days.…
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Anyone been through Hyper-CVAD?!
Looking for anyone who has experienced Hyper-CVAD treatments? Scarey stuff!
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Supporting daughter with Hodgkins
Hi! My name is Claire. I've just joined this forum after reading a few of the posts. This seems like a very caring, supportive group. My daughter's journey: The first time that she was really ill was last January. Between then and the end of March, she had seen three pediatricians and one dermatologist. She had symptoms…
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Nausea and Vomiting
I was diagnosed with pediatric non-hodgkins lymphoma in January of 2015. I'm currently in maintenance, but have been vomitting and feeling nausea after most meals since right after induction in around Feb/March. I've had a gastric emptying study, a brain MRI, and an endoscopy and all came back normal. I'm getting sick…
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Newly Diagnosed with Waldenstroms Stage 4
Hello all, I am new to this arena. At my 60 year old routine exam last month my blood counts were down and I was severely anemic. Many tests later (blood work, bone scans, and bone marrow biopsy) they have diagnosed me with a rare non_hodgkins lymphoma called Waldenstroms. I am to start chemo on April 28th using CDR combo.…