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Lymphoma (Hodgkin and Non-Hodgkin)

Any survivors of Non hodgkin's lymphoma slow growing stage 4?
Anybody here survived non hodgkin's lymphoma stage 4 and for how long can you live with it? Please help Richard
Rituxan- Bendamustine and Veins
I have my first infusion this Monday coming, Rituxan - Bendamustine, then Bendamustine only the following day. Every third week, 20 days (give or take) My Onc didn't say I needed to get a port and when I asked he said he didn't think I would need one. I have Follicular Lymphoma, Stage 3, low grade. When I met with the…
perplexing symptoms
I am a 47 year old female and about 3 months ago the lymph nodes under my arms and in my groin started to ache. I made an appt with my pcp. She ordered bw. It all came back within the normal range with the exception of my RBC. They were slightly elevated. She said if my symptoms did not go away then she would most likely…
Profuse Sweating and itching still after 2 years in remission
Hello, My name is Lisa and I am a survivor of stage 4B Hodgkin's Lymphoma, Stage 2B Leukemia, and stage 2B bone cancer. I have been in remission for 2 years now. My question is, how many of you still have horrible itching and the profuse sweating still just like it was when you had cancer? I can't even walk up 3 steps…
New Here awaiting results can anyone help
Here's what I know. I've had a right groin lymph node/nodes swollen for about a year. Nobody got very excitied. I also have had a significant node behind my right ear the same time frame. Rubbery, firm. The groin nodes are significantly larger. No pain. However, over 6-8 months, I lost 49-52 lbs. While I had a divorce, it…
Non-Hodgkin Lymphoma Success Story
Hello fellow friends, I would like to share this biblical passage with you in hopes that it will help each of you as much as it has me. The scripture is 1 Corinthians 10:13. The passage basically tells you that God will not let you be tempted beyond what you can bear and when you are tempted , he will provide a way out so…
Been a while
Good morning, I it has been quite a while since i posted, i was told as of last last i am still in remission, which makes it 15 months now. My labs were good and holding for the last 4 months, the fatigue has lessed some, but i do have my bad days, but they are tolerable. Started going to the gym, and i am able too walk…
Setback or par for the course
Well it was nice being home for a few days, but Tuesday evening I started running a fever. Needless to say I'm inpatient again. They allowed me to stay local instead of driving 90 minutes to the hospital where I had the transplant. My transplant team is staying in close contact with my local oncologist which is nice. So…
Insult to Injury
This past Friday I noticed intermittent pain in my left ankle. By Saturday, I couldn't even walk on it. After contacting my onc to make certain he didn't think it was cancer related I was sent to the ER for an Xray. Thankfully there are no broken bones. I was sent home in an air cast on crutches. I don't recall doing…
Zarxio
For the second time in a row, my third cycle has been postponed due to low Neutrophils. They are now at .8. Today the onc ordered a Zarxio shot to help build them up. I was told it's similar to Nuepogen and that I could expect side effects. I believe I am feeling it now. Bone pain and even nausea. I am scheduled to go back…
Watch and Wait.
Hello, My name is Kathy and I'm a 56 year old female newly diognosed, in October 2015, with stage IV Follicular Non-Hodgkin's found by chance during a pre-operative MRI on my shoulder for my rotator cuff surgery. After the MRI the technician asked me if I had anything "systemic" going on because something looked unusual in…
Husband and BIL have Non-Hodgkin Lymphoma
My brother-in-law (BIL) was diagnosed with Non-Hodgkin Follicular Lymphoma 3 months ago. A month later my husband of 35 years was also diagnosed with Non-Hodgkin Follicular Lymphoma. My BIL(married to hubby's sister) is at the "wait and see" phase of his Stage 4 cancer and my husband is receiving Rituxin and Bendo…
Anyone's WBC 50 or greater
I am 73 years old and was diagnosed with NHL when I was 70, I have no symptons but my blood test show my WBC has risen to 47, when I was first diagnosed 3 yrs. ago it was 20. I was wondering should I be concerned about getting treatment. Although my spleen is slightly enlarged, My Doctor recommends since I feel good, no…
Hodgkins Lymphoma Symptoms??
Hi there, so I am really nervous about posting this because the last question sight I was on (Yahoo Answers) I got called every name in the book and all i'm really looking for is some insight. I'm not claiming to have HL and I know it's both rare and unlikely but I would like to hopefully still get some input. To make a…
Awesome news
We decided to seek out a new doctor for my Dad. The new oncologist ordered Dads first PET scan to see if the R-chop was working. Today we got the results. The two lymphoma cancers that Dad is fighting did not light up on the PET scan. The lymphoma is dead. He still has 3 more rounds of chemo to go through but it is…
Customer Service (?) at Doctor's Office
It may seem odd that I think of myself as a customer at the doctor's office but I do. The fact is this practice has earned thousands of dollars in revenue off my lymphoma. When I became a patient of my hematologist/oncologist, we developed a great rapport. My husband and I both really like him a lot. Not only is he a…
Home today from SCT
Whewww, I came home today! This was definately harder than R-Chop or R-ice. I have absolutely no appetite so I'm forcing myself to eat. I didn't really have nausea with the other chemos, but definately do this time. Thank goodness for those anti-nausea meds. My mouth is constantly dry, and my taste buds for the first time…
Can't remember how to send a message to a specific person (max )
To Max or anyone with Prostate Cancer knowledge: I just posted on the Prostate Cancer Forum regarding my husband (Mac). Wanted your take but couldn't remember how to send a private message to an individual on the forum. Don't know how ofter you head over there, so though maybe you wouldn't mind checking it out? - From…
SCT update, a quick hello and good wishes to all from Paella
Still haven’t adjusted to (nor totally accepted) the long duration of this SCT recovery. Am simply taking it a day at a time and trying to accept reality for reality. Other than bone-deep fatigue (which happens now maybe only 3 days per week) no problems with anything else. Moving and exercising help emotionally AND in…
Breastfeeding after low dose radiation for NHL
Hi there, I had Stage 1 NHL in 2014 and had 6 rounds of RCHOP chemo and 15 doses of radiation for the tumor they found in lymph node on right side of breast. Two years later at age 39, I'm 36 weeks pregnant with a baby boy (which we were able to conceive naturally) and I'm concerned about not being able to produce milk…
stay safe
Thinking about all of you in the path of Hurricane Matthew and hoping and praying that all of you will be safe and also hope you don't suffer any damage. Bill and Becky
rituxan treatments
I was diagnosed with follicular indolent around 3 months ago. Oncologist suggested "watch and wait". A week later, all involved lymph nodes started to grow. Both sides of neck and groin. Did an incisional biopsy and it was still considered follicular. Decided to start Rituxan treatments, 1 weekly for 4 weeks. After 1st.…
When the hair comes back after last chemo?
Hi All, Today I had my last R-CHOP treatment and I was already wondering when my hair will start growing back. How was in your experience? I suppose everyone is different in this matter but if you could share some of your experience would be great. Thank you, Dana
Free T-Cell Lymphoma seminar in Honolulu, HI October 8th
The T Cell Leukemia Lymphoma Foundation is offering a free day long patient education seminar at the Waikiki Beach Marriott in Honolulu on October 8th, 2016. Presenters will be Dr. Andrei Shustov, a clinical and research hematologist at the Fred Hutchinson Cancer Research Center. He will be joined by Dr. Michi Shinohara,…
Follow Up on my Recurrence
Hello friends, I had a CT scan late last week and saw my hematologist/oncologist yesterday. Bottom line: my disease is stable and no treatment is needed at this time. I don't need to see the doctor again for six months (unless something changes). So, Yay! In April, I had 3 minimally enlarged lymph nodes in my abdomen which…
Free Educational Conference in Phila, PA 11/18/2016
I wanted to share the following information with all who may be in the Philadelphia, PA area and interested in attending in person (or via livestream for those not in the area or not able to attend in person): OPEN TO THE PUBLIC: FREE Educational Conference - Focus on Leukemia, Lymphoma, Myeloma, and Bone Marrow/Stem Cell…
working during maintenance
I was initially diagnosed with type 2 follicular lymphoma Dec 2014. After 6 months of benda/rituxan I was put onto two years of rituxan maintenance. After my 2nd treatment I slowly started the process of returning to work. I'm a full time lab technologist (we help diagnose lymphoma among other things, ah the irony). The…
Sharing "The News"
After several weeks of reading this discussion board while waiting for my final pathology report to come in, I am finally posting. I have Follicular Lymphoma, Low grade Stage 3B. I received this diagosis on Friday, Sept 2nd just about 4 weeks after being told I probably have Lymphoma. A tennis-ball sized mediastinal mass…
SCT scheduled
Well, I'm getting close. 5.8 million cells were collected last week, I've passed all my pre transplant tests with flying colors. My journey starts next week Tuesday with 7 days of high dose chemo and day 0 scheduled for Sept 27th. Hotel reservations set for my husband and daughter who will takes turns staying 90 minutes…
Insurance Considers Rituxan for Cancer to be under study?
Just received first EOB in the mail for Day 1, Rituxan therapy. They have 'rejected' payment stating that it is not generally accepted treatment or experimental? I am floored. Of course, it's Saturday and I can't speak to anyone until Monday. The total amount I owe provider column is $6005.00. Holy ****! Has anyone else…

Lymphoma (Hodgkin and Non-Hodgkin)

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