-
Hello
Hi, my name's Bobby. I just wanted to say hey for now but; was diagnosed stage 3 Hodgkin's Lymphoma in 2015 and finished chemo October 2016. Am now suffering from swollen lymph nodes in various parts of my body which is what brought me here. I look forward to meeting you all! Bobby
-
Fast Relapse. Going to Sarah Cannon for stem cell trans. ISO like for info
Well, here we go again. I thought I was a survivor but I guess I have to put my fighting gloves on again. I'm seeking anyone that has had stem cell autologous transplant for Large B cell NHL. I've read general info but would like to chat with someone that has actually been through it. I have my first consult scheduled at…
-
Having a hard time with life in remission
Hey guys, so little summary I am 25 was diagnosed about a year ago with a 12cm mass pushing on my heart. Went through R-EPOCH 21day cycle 6 days in patient and 14 out to recover. Lost all my hair, gained a lot of weight, had to move into my boyfriend's mom's house since I couldn't work or pay rent, had my car stolen, and…
-
Update on Vasculitis
Hi all, finally got to see a Rheumatologist! Had to wait 3 months to get seen....It appears that my skin is extremely sensitive to the Rituxan Maintenance. While on R-Chop not an issue due to taking the Prednisone which kept Vasculitis at bay so to speak. I Should mention about 12 years ago I was on Prednisone for over 18…
-
New drug for FNHL
U.S. Food and Drug Administration Approves Duvelisib (COPIKTRA) for Relapsed/Refractory Chronic Follicular Lymphoma New York, NY – The U.S. Food and Drug Administration (FDA) announced it has approved the use of duvelisib (COPIKTRA) for the treatment of adult patients with relapsed or refractory chronic FNHL. Duvelisib…
-
Anyone else had lymphoma in the eye area?
I'm newly diagnosed with extranodal non-Hodgkins lymphoma. Mine is on the conjunctiva of my right eye. My doctor doesn't plan to do any more surgery than he already has - a biopsy - and I will have radiation treatments to zap the cancer. I've had a CT-scan, which showed no other signs of lymphoma anywhere else, and a bone…
-
Is my Hodgkin’s back after 35 years?
i had Hodgkin’s when I was 12 in the early 80s. Stage IV in neck and left lung. I was treated with 6 month of chemo and 1 month of radiation. Cancer free for 35 years. Following a ct scan in June for a kidney stone, they found a 3.3 cm tumour on my left kidney. They are 90 percent sure that it is Renal Cell Carcinoma but…
-
DLBCL not complete remission after 4 rounds of R-EPOCH
Hi, My husband 31 yo has been through 4 round of the DA-REPOCH. After a CT-scan, the doctor said one site is still visible (1.9cm dropped to 0.4cm now) although the others are not visible from the CT-SCAN. This does not meet the remission definition and thus she suggested to do another 4 round of treatment as opposed to…
-
Advice and Help PLEASE!!
I am a 40 year old who in the past has never been sick, never even had a primary care doctor until last fall. In the fall of 2017, I noticed that something wasn't right with me. I have always been very energetic, have two children who keep me going all the time (very active in sports and after school activities).…
-
Second opinion????
Alright. I’m a 23 year old female. I’ve had some weird symptoms over the last year or so. General fatigue, some weight loss mostly due to lack of appetite and some weird fevers at night mostly. I chalked it up to my bipolar disorder and just carried on. Fast forward about 2 months ago. I went in to the doctor for a lump in…
-
Cutaneous Lymphoma
-
Year and a half still worried
Hello all sorry to bother you and intrude on more serious problems. But would love some opinions on my story. Worry wort here! About a year and a half ago I was deemed suspicious after a fine needle biopsy on an enlarged node In my neck. At the time no symptoms present and even up till today no symptoms really. I went…
-
Lymph nodes in ankles
has anyone ever had a swollen lymph node in an ankle? I have a round nodule about halfway between my ankle joint and heel on my right foot. first noticed it 2 days and it has since doubled in size To about the size of a small marble. It is painless. As usual, the internet says either 1). There are no lymph nodes in the…
-
Help with getting a formal diagnosis
I will try to keep this as concise as possible. The first piece of important information is I am uninsured. In January I went to the ER because I had symptoms of severe hypokalemia, which is something I had been through previously. I also just didn't feel well in general. I had several swollen lymph nodes, I was fatigued…
-
DLBCNHL Treatments complete: 6 RCHOP with 4 intrathecal
Hi everybody! I am here to share my experience and to also ask a few questions. I have another thread here but hope to keep this one simpler and focused to DLBCNHL and/or related cancer therapies. Briefly, I was dx's with stage 4 DLBCNHL after a biopsy of a lesion behind the nose tested positive for DLBCNHL with the 1st…
-
False Negative?
Hi everyone - I had/have left sided neck lymphadenopathy for about 6 months. I finally saw my PCP, and she noted it as well, and we talked about other symptoms I didn't realize might be related, like widespread itching and fatigue. I didn't (and still don't) have any symptoms consistent with infection or autoimmune…
-
NH Malt Lymphoma of the Stomach
Doe anyone have any knowledge / experience with Malt NH Lymphoma of the stomach ?? I haven't found ANYONE who has been diagnosed with this cancer !!! I was just diagnosed Sept. 22.
-
Recurrent spot/ulcer in back of throat
Hi everyone, I’ve just joined the site today and am desperate for an answer!! I had Hodgkin’s lymphoma back in 2009 - diagnosed late January 2009 and 6 months of chemotherapy on what I believe was the ABVD regime. This was followed up by radiotherapy for roughly 6-8 weeks. Following my treatment I was fortunate enough only…
-
Just an update
Sorry for not being up to date on PMs. However to those who are interested, my port was taken out today. Sore but otherwise a walk in the park compared to chemo. I am still not 100% NED but am taking Rituxan which I can easily handle through my arms. I have good veins. I will get a new port if it is needed but for now I…
-
Effects of chemo
I have FNHL and finished my Fludarabine/Cytoxan/Rituxan regimen in June. I have an issue. After eating I get a kind of crash (for lack of a better word) resembling what I have heard described as a low blood sugar episode. I feel weak and tired and exhausted. I lay down and it goes away in about an hour. Doesn’t seem to…
-
Honolulu T-Cell Lymphoma patient education seminar September 1st, 2018
There will be a combined systemic and cutaneous T-Cell Lymphoma patient education seminar in Honolulu, presented by the T-Cell Leukemia/Lymphoma Foundation. The event begins at 8:30 AM and wraps up at 2:30 PM. It will be held at the Waikiki Beach Marriott on Saturday, September 1st, 2018. Continental breakfast and buffet…
-
drink
I am on my 2nd chemo treament. I am not able to find anything that taste good to drink any suggestions.
-
Autoimmune Hemolytic Anemia
Hi there, I found out that I'm severely anemic. I'm having a bonemarrow biopsy,with a rituxin infusion. Has anyone had this i and how did it go? I also. Have MZL....have been on w/w this whole time...but feel really tired all the time. I am so thankfu for all of you because I learn a lot by reading your experience. You are…
-
non hodgkins lymphoma stage 4 in the bone marrow
my husband 68 was diagnosed 3 yrs ago with non hodgkins low grade lymphoma stage 4. He had two chemo treatments the first was standard chemo. the 2nd time his cancer came back the dr. put him on chemo and rotuxin. He has been in remission for over 1yr 1/2 i think. He visits the dr. every 4 months to check for reacurrance.…
-
PET Scan results question?
Finished 6 R-CHOP for DLBCL, had a PET scan. It shows "completer metabolic response to therapy" for previous diagnosed tumors . However, it also states "new mild metabolic activity has developed in lower lungs". Anyone else have metastasis from DLBCL to the lungs? I see the oncologist later this week.
-
Marginal zone lymphoma
-
Weight gain, harder to lose after NHL treatment
it’s been two years since my last round of chemo. I’m exercising 4-6 days / week, and haven’t changed my diet. I’m finding it hard to drop weight, and actually seem to put it on faster than ever. Anyone else experience this after R-CHOP?
-
Mantle cell lymphoma - need survivor stories
My husband (42) has just been diagnosed with mantle cell lymphoma. He will be starting hyper-CVAD with rituximab probably next week. Then, he is going to have an autologous stem cell transplant. I would really appreciate any survivors out there who can let us know what he should expect and offer some hope that he has a…
-
Long 2 months
Good story here for now. It was a long 2 months of worry. I’m not sure how to get past the worry part or how to lessen it. I still have lung issues, the nodules come and go. However I have been told by 2 doctors that it is highly unlikely it’s lymphoma again. I’m going with that for now! I’m coming up on 2 years post SCT!!
-
Can any of you share what your symptoms were prior to diagnosis?
Just wondering about early symptoms with Lymphoma. It would help me a lot if any of you felt like sharing how that were feeling prior ro diagnosis.