Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Anyone who is familiar...
...with the odyssey I am on may be able to identify with this. Due to extended treatment, radiation and steroids, I had (according to the surgeon) "world-class" catarats in both eyes. In early August I had a cataract removed and a new len$ placed in my left eye to eliminate astigmatism I was born with. Went perfectly.…
Lymphoma-versary
This morning, I realized that I recently passed the 7 year anniversary, without notice, of my lymphoma diagnosis. (9/28/12) That the day passed without my realizing it, I take as a good sign, one I never thought I would see. Love and healing to all, Rocquie
Saw my oncologist
Today was my 6 month visit with my oncologist. Expectation was I would go on the annual plan. Blood test are good. We talked about my bowel blockage in August. The first one thta put me in the hospital was in May of 2017 and this one was about 18 months later. The CT scans done at the time showed no sign of cancer. She…
Newbie
Hello everyone, I am new here and hope to learn from you all. My husband was diagnosed with B-cell lymphoma in July. He's been getting R-CHOP every 21 days, with 8 treatments. The last treatment will be on December 16th. Then we wait a couple of weeks to get a PET scan. After that, they may send him for daily radiation. We…
Glyphosate causing NHL?
I am a little over a year since diagnosis of NHL DLBCL - 6 rounds of RCHOP-21 and 32 IGRT radiation. Partial response from the RCHOP and complete response after IGRT. I will have a CT scan next month (3 months post radiation) as a final followup with my Radiation Oncologist and then meet with the Hematology/Oncologist to…
Flying Post NHL Treatment
Hello, I‘m a newbie here but and I can’t seem to get any discernible answers from my medical team. I completed DA EPOCH-R chemo in 2016 but continue to be monitored with PET scans, bloodwork, etc...I handled the treatment well, but now feel like I’m battling fatigue like I’ve never had in my life. It is so frustrating!…
Pneumonia Vaccine
Since I had a nasty case of pneumonia earlier this year, I asked my PCP for a pneumonia vaccine when I get my flu shot next week. He said I don't meet the qualifications of being 65 ot older (I'll be 64 this December) and I don't have a disease that puts me at risk. If I want to self pay, it's $130.00. My immune system has…
Biopsy?
Hello! Please let me know if this type of post isnt allowed. I'm just curious about what it is like to get a biopsy done on a node? I am a 24yo female enlarged left occipital lymph node for the past 5 almost 6 weeks, it’s not painful but it’s hard, shaped like a sideways tear drop and non moving occipital lymph node about…
Questions about Symptoms
Hello! I’m new here and do not have a lymphoma diagnosis, however I have had some very strange symptoms going on and would love some input on your initial symptoms. And even just advice on who to go to for answers one way or another. My mom won’t even hear of it being anything “serious” so I just didn’t know of who else to…
silly Question
Has anyone here ever heard of a connection between wheat gluten allergies and lymphoma? i spoke with an older woman, probably about 75, who is convinced her lymphoma was caused by wheat gluten. She is an obvious carbophobe and is going on a ketogenic diet which limits her carbohydrate intake to no more tha 20 mg/day. She…
In remission after a year
Hi everybody. I had my blood work, cat scan, and follow-up and find I am still in complete remission. I just wanted to share some good news. I am really hoping others find good news at every corner they come to with this terrible monster. I am so thankful. I still have many unanswered questions as to to origins and final…
After effects - the bowels
I know, strange subject. Back in 2015, about 2 weeks after my first chemo I ended up in the hospital with a perforated bowel. There had been a lymph node that was pressing against teh bowel. The chem cause it to shrink which ended up tearing a hole in the bowel. Ended up in surgery where they did a bowel dessiction. Never…
New here
Hi! I’m new here. Just finished 6 rounds of R-EPOCH and had my PET scan that shows no evidence of disease. However, I think I need a support group because I’m scared to death that it’s going to come back. All I can find is a breast cancer survivor support group. I thought I’d come here to see if anyone had any advice. I’m…
Maintenance completed
Hi all, today was my last Rituxan Maintenance Treatment! Can't believe how fast the time has gone 2 plus years, really feeling blessed and just wanted to thank you all for helping me get thru the rough times I really appreciate you all more than you will ever know. I don't post much but sure do read this site quite often…
Checking in
It has been awhile since I have been on the forum. I see a lot of new names and some of the regulars too. It is almost 4 years since I was declared to be NED. I will see my oncologist in Oct. If all is ok she will have come in once a year going forward. I do have some health issues but they are more from age than fall out…
CAR-T firsthand accounts
Is anyone willing to share their experiences with CAR-T? Any recent news on the topic? I only know the little bit I have read in the media.
Call me NED
I am happy to report that my PET shows NED. I get a reprieve from appointments for the next 12 weeks.Well, except the appointment to have my port removed! When I started down this path, I didn't think I would get to this point. I was too lost in the details of getting through each day, then each cycle, then each month. I…
New FDA Approval looks really good!
I noticed this just recently. It's my oncology treatment center and Dr. Hernandez is my oncologist. I feel this is quite a break through and wondered if others are knowledgeable on this new treatment. It seems to have the same basic protocol as Car T Therapy.…
ONCOLOGYGO
I was looking at available Apps for my Amazon Firestick streaming service, and discovered "Oncologygo", a discussion site for Oncology Professionals. Mostly short pieces summarizing the latest developments in oncology as a whole. A lot of stuff dedicated to the Lymphomas, but mostly seems focused on Follicular and Large-B.…
Non Hodgkin DLBCL, 3rd relapse after autologous stem cell transplant
My husband just learned that his Lymphoma has returned after being in remission for 23 months after his Autologous stem cell transplant. He has 2 small tumors, one adrenal and one on his hip joint. When first diagnosed he had a tumor wrapped around his bile duct and it was staged at "4". He did R-Chop chemo and it returned…
Watch and wait.
Well, back again. I have been away from forum for quite sometime. Wishing everyone blessing and well wishes Life has had major changes & I finally have a bit of time to check in. Unfortunatly I have needed several CT scans and a new Oncologist due to moving cross country & new developments in my original sight of diagnosis…
Old member...
Has anyone heard from crittermom ? She last logged in two years ago. Someone asked about her about a year ago, and someone else had an update, but I do not recall who.
Question about Biopsy
Let me start by saying that I have not had any diagnosis. I presented to the ER with lung pain upon inhaling after several weeks of battling seasonal allergies. I was having a hard time breathing and being almost 50, the pain worried me about clots. Ultimately, they did a CT scan and while they found no clots (nor any lung…
T Cell- what to expect
This is my first post- hi everyone. My mother was diagnosed with lymphoma over a year ago. She went through 6 rounds of chemo, a month of radiation and a surgery to remove the tumors under her arm. Unfortunately, the cancer survived. Her wound is still healing, but the doctors at U Penn and MD Anderson (they are working in…
Did anyone work in the printing industry or cleaning business where Benzene was used?
I recently was reading online a report about the effects of inhaling Benzene over a long period of time. Seems that printer's ink contained benzene and the cleaning chemical used on printing presses also. I have worked in the printing industry for many many years and always wondered about those chemicals, if they have had…
Been awhile
Been awhile actually a long while since I last posted. I'm down to my last Rituxan treatment .Finished 12th one today 1 more to go in August. My latest CT scans show NED....My insurance has fought all scans for past 18 months so wasn't really sure how this was going to turn out, I just put everything in the hands of the…
MCL with a serious skin reaction after Bendamustine...later found to be allergic to bactrium
My 67 year old brother was diagnosed with Mantle Cell Lymphoma back in January. He has had two treatments of Bendamutime/Rituximab (sp). He had started to get a little itchy after the first treatment, now with the second, he has developed a terribly itchy rash on his arms and back. This has been going on for about 10 days.…
I beat Hodgkin's twice but I thinks it is back again
Preparing for my last chemo
Can't believe that I have come to this point in my treatment but I will have my last chemo in the next few weeks. In all reality, Ive been very fortunate, able to work most of every week, no serious side effects, etc. It's not been a walk in the park and I wouldn't wish this on anyone. I am looking for ideas to thank the…
Newly diagnosed- needing help and advice
A family member has recently been diagnosed with stage 4 non Hodgkin’s lymphoma. Age 74. Chemo starts next week and I’m wondering what I should expect And how I can help. I’m scared to death. Any advice, info, experience, etc Ginger

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List

Discussion Boards