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3 weeks since completion of 6r of R-chop DLCBL
I'm now exactly 3 weeks since completing the 6th round of r-chop for stage 4 DLCBL. I'm 46 and was reasonably fit up until diagnosis but have lost some fitness over the past year as main tumor site was affecting exercise (I didn't see a health professional as thought it was a work injury). I'm now trying to build up…
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R-EPOCH
Hi, I'm new to the board and am wondering if anyone else is or has been on R-EPOCH. I have primary mediastinal b-call lymphoma, stage 4, and have had one round of chemo so far. I'm wondering what other people's experiences and side effects have been with this particular chemo regimen.
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The old gray mare ...,
She ain't what she used to be ..... and neither is this forum. What happened? Is everyone suddenly hypersensitive?
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11 years later, terrified of recurrance
Hi Everyone, I'm new here and desperately seeking some support. Life has thrown a curve ball or two and suddenly I find that my anxiety and depression over recurrance are absolutely crushing to the point I can hardly function. I've read some of the conversations here and feel a slight sense of comfort, so I'm really hoping…
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Last Treatment
Hi I'm currently writing this in the hospital during my last planned treaatment. I was diagnosed with stage III NHL six months ago, and the fight was mentally straining but I was fortunate enough to not get the common side effects that my doctors mentioned (nausea, metalic taste, blood infusions required). My treatment has…
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Conjunctiva MALT Lymphoma
I hope this is okay. I thought since I've had trouble finding others with ocular cancer I'd post my story to-date for future readers. At a regular optometrist check up in May I was told I had bad inflammation in my eyes due to allergies. I used steroid drops for three weeks for inflammation. At a follow up visit my left…
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Checking in
Hi all just wanted to let you all know I'm still here reading your post. I had my last Rituxan treatment in August. Those 2 years seem to have flown by. I had my CT last week of head neck face and chest all clear. New scans again in 6 months. So many changes this past year we sold our home (2400 sq ft) in Oct (raised 6…
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Frustration
Hello. So a little about my journey; I'm a 24 year old female who has been healthy, active person up until 3-4 months ago. I started to have drenching night sweats where I would wake up soaked in sweat but not be hot; I didn't think much about them and tossed it to the side. They started to happen more frequently (a couple…
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Increasing pain and lack of mobility
Hi guys. Hoping for some inspiration. I am one year and a couple months out of RCHOP x 6 with MTX X 4 for stage 4 dlbcl. Achieved remission. My issue is the following: My shoulders, knee, both wrists and several other places are in constant pain. I have gone from jogging, hiking, bike riding to just being able to walk with…
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4 Days Post CVP
Hello, My name is Nicole. My 59 year old healthy mother has just had her first round of six CVP cycles. Today is day 4 post her first infusion. There were no complications, discomfort or pain during her session. Her port worked well and she remained in incredibly high spirits. Appetite has not been a concern, nor has her…
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potential new treatment for relapsed DLBCL
https://lymphomanewstoday.com/2019/11/14/fda-fast-track-status-triumviras-t-cell-therapy-tac01-cd19-dlbcl/
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Afraid of reoccurrence
Hi. I've never wrote on a site before. I want someone to talk to and don't want to keep bothering my loved ones with complaints or admit out loud what I am really scared of. I'm 38 now but when I was 20/21 and 29 weeks pregnant I had only 1 swollen clavicle node and abso no other symptoms. I was diagnosed w/ Hodgkins stage…
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Swollen lymph node clavicle
Hi, I'm a new member not new to cancer. diagnosed with fnhl stage 2a and ovarian cancer 3C in 2015. Radiation to abdomen for the fnhl in 2017 I actually just had my onc appt in October. Bloods were good along with CT. a few days ago I noticed swelling (one side) by my clavicle bone. i do have a call into onc but thought…
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Follow Up PET scans
i have not been n here for a few years and it is wonderful to see so many on the “old gang” on here..it has been 4 yrs since treatment with no signs of reoccurrence..I need some advice though. I went with my friend to see her oncologist Friday as she is 7 years past breast cancer, hiking working full time in the woods…
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2019 Seattle T-Cell Lymphoma/Leukemia patient seminar
It's that time of year (once) again. Dr. Andrei Shustov, founder of the T Cell Leukemia Lymphoma Foundation, internationally known T-Cell Leukemia and Lymphoma researcher and clinical specialist, will conduct a free patient education seminar in Seattle on Saturday, December 14th, 2018. It begins at 8:30 Am and runs through…
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hey Po..... just wondering
Are you going to the California Lymphoma Workshop in Redondo Bch this Sat.? I know you do attend many of them? Since it's only a short flight for us, we decided to go. There is a Q&A session if anyone has any pressing ??? Becky
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Organ Donation
I was told that because of my lymphoma I cannot donate organs upon my death. I had been told previously that the corneas were an exception but Virginia says that is not rhe case. Anyone know about this topic? https://www.youtube.com/watch?v=JfBdMXhpQnU Greatest songwriter ofall time. Mark Twain + Shakespeare + Dylan x 10 =…
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Lymphoma Symptoms, Seeing ENT Monday
Hi all. I hope everyone is doing well. I hope this type of post is allowed. About 4 months ago I noticed a swollen node right behind my ear. Went to my doctor who said it was a cyst and not to worry about it. Last week I noticed it had gotten bigger and I had another one behind my other ear. Also one on my neck. Went to…
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Anyone who is familiar...
...with the odyssey I am on may be able to identify with this. Due to extended treatment, radiation and steroids, I had (according to the surgeon) "world-class" catarats in both eyes. In early August I had a cataract removed and a new len$ placed in my left eye to eliminate astigmatism I was born with. Went perfectly.…
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Lymphoma-versary
This morning, I realized that I recently passed the 7 year anniversary, without notice, of my lymphoma diagnosis. (9/28/12) That the day passed without my realizing it, I take as a good sign, one I never thought I would see. Love and healing to all, Rocquie
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Saw my oncologist
Today was my 6 month visit with my oncologist. Expectation was I would go on the annual plan. Blood test are good. We talked about my bowel blockage in August. The first one thta put me in the hospital was in May of 2017 and this one was about 18 months later. The CT scans done at the time showed no sign of cancer. She…
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Newbie
Hello everyone, I am new here and hope to learn from you all. My husband was diagnosed with B-cell lymphoma in July. He's been getting R-CHOP every 21 days, with 8 treatments. The last treatment will be on December 16th. Then we wait a couple of weeks to get a PET scan. After that, they may send him for daily radiation. We…
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Glyphosate causing NHL?
I am a little over a year since diagnosis of NHL DLBCL - 6 rounds of RCHOP-21 and 32 IGRT radiation. Partial response from the RCHOP and complete response after IGRT. I will have a CT scan next month (3 months post radiation) as a final followup with my Radiation Oncologist and then meet with the Hematology/Oncologist to…
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Flying Post NHL Treatment
Hello, I‘m a newbie here but and I can’t seem to get any discernible answers from my medical team. I completed DA EPOCH-R chemo in 2016 but continue to be monitored with PET scans, bloodwork, etc...I handled the treatment well, but now feel like I’m battling fatigue like I’ve never had in my life. It is so frustrating!…
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Pneumonia Vaccine
Since I had a nasty case of pneumonia earlier this year, I asked my PCP for a pneumonia vaccine when I get my flu shot next week. He said I don't meet the qualifications of being 65 ot older (I'll be 64 this December) and I don't have a disease that puts me at risk. If I want to self pay, it's $130.00. My immune system has…
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Biopsy?
Hello! Please let me know if this type of post isnt allowed. I'm just curious about what it is like to get a biopsy done on a node? I am a 24yo female enlarged left occipital lymph node for the past 5 almost 6 weeks, it’s not painful but it’s hard, shaped like a sideways tear drop and non moving occipital lymph node about…
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Questions about Symptoms
Hello! I’m new here and do not have a lymphoma diagnosis, however I have had some very strange symptoms going on and would love some input on your initial symptoms. And even just advice on who to go to for answers one way or another. My mom won’t even hear of it being anything “serious” so I just didn’t know of who else to…
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silly Question
Has anyone here ever heard of a connection between wheat gluten allergies and lymphoma? i spoke with an older woman, probably about 75, who is convinced her lymphoma was caused by wheat gluten. She is an obvious carbophobe and is going on a ketogenic diet which limits her carbohydrate intake to no more tha 20 mg/day. She…
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In remission after a year
Hi everybody. I had my blood work, cat scan, and follow-up and find I am still in complete remission. I just wanted to share some good news. I am really hoping others find good news at every corner they come to with this terrible monster. I am so thankful. I still have many unanswered questions as to to origins and final…
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After effects - the bowels
I know, strange subject. Back in 2015, about 2 weeks after my first chemo I ended up in the hospital with a perforated bowel. There had been a lymph node that was pressing against teh bowel. The chem cause it to shrink which ended up tearing a hole in the bowel. Ended up in surgery where they did a bowel dessiction. Never…