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Lymphoma (Hodgkin and Non-Hodgkin)

First time getting an outside opinion....
Thanks for taking the time to read this. My name is Charles and I'm a father of a 12yo girl and 5yo boy. My wife and children rely on me heavily as a breadwinner at home. It all started about 6 years ago with a pain in my left side abdomen. I had numerous tests and scans and even a colonoscopy which all failed to result in…
Lymphoma
This is the first time I am here. Just looking for some advice or recommendations. Next Friday I will be having axillary lymph nodes removed. I had a PET scan done 2 weeks ago and they discovered 2 lymph nodes enlarged and lit up. I’m scared, do not know what to expect. Any thoughts out there?
Liver Abnormalities
Maybe some of you are tiring already of my pesty questions, but I was wondering if any of you have had either a history of Hep C (since "cured" before starting RCHOP), and/or if anyone had any elevated levels in your ALK Phosphatase, ALT, AST liver tests before and/or after starting RCHOP. Here's the thing. In my verbose…
Shady....a suggestion
I think that it would be a good idea if you just start a thread where you can air your platform and complaints against any of us for repeating information, or whatever we say that you dislike. That way even if you disapprove or disagree it will not discourage others, especially newbies who are scared to death. You are…
Afraid Again Progress Report
For those who may have been following the wicked, uninvited guest in our lives known as "Germinal, Non-Hodgkin's Diffuse Large B-Cell Lymphoma, here's the latest. Thought you'd appreciate an update. Yesterday, was RCHOP, Hit #2 for my Terry. You may recall, we, as well as the oncologist, felt Terry's elevated liver tests…
How cancer has affected my marriage
I hope folks aren't tiring of my continued posts, as I've traveled this extremely challenging situation with my husband's fairly recent diagnosis of Germinal Non-Hodgkins Diffuse Large B-Cell Lymphoma. Talking about my experiences these past couple of months is my lifeline to coping with so much of what's been affecting…
Waiting again
Well I just had my routine 3 month CT scan and it wasn’t clean. I now have a new 9mm groundglass opacity in my left lung and several new 3-4 mm nodules in my right lung. I had a bad bout of bronchitis 7 months ago and at Least 2 CTs since then which did not show these new areas. Report says no reoccurance in chest, abdomen…
Hair Loss and other things at the beginning of RCHOP dosage
I'm reaching out tonight to share our experiences as relatively newly diagnosed Germinal Diffuse Large B-Cell Lymphoma (Late Stage III/Early Stage IV) sufferers. My husband, after having a baseball-sized tumor in his small intestine surgically removed on April 21st, 2018, was given this diagnosis and has had one round of…
Scanxiety
We all have it! Its 8months and 13 days since my SCT and I had a CT scan Yesterday. Appt with the oncologist is Tuesday. The waiting as we all know is excrutiating. When the phone rang last night around supper time and I recognized the phone number my stomach dropped. The nurse was on the other end, and of course I'm…
Is Chemo Withdrawals A Thing?
I finished my sixth and last chemo treatment on Nov 4th (yay), three weeks ago yesterday. However, instead of feeling better like I expected, I am feeling worse. I did call the Dr. at the beginning of the week, was sent for labs, was told I was slightly anemic and to take iron, which I have already been doing. So,…
Hair Loss
Okay . . . so I realize chemotherapy affects everyone differently; so I know what comes as a side effect for one person may not be the same side effect for someone else. BUT, we were told that hair loss was pretty much a "given". Terry's first chemo was May 24th and, so far, he's been sparied. Anyone else, after that first…
Shingles
Hello All... I was dx with endometrial cancer on Nov 1 2017, full hys on Dec 8th. Pathology report came back Stage 1A, with Lymphovascular invasion and after genetic testing, confirmed I have Lynch Syndrome, which opens my risk up to mulitple different kinds of cancers. That being the case, I recently developed a bad case…
Severe Leg Cramps and Raspy Voice
Hi Everyone, Couple of things. First of all, how does the "friend request" and e-mail thing work on this site? There have been a few really supportive folks who have responded to my comments whom I'd like to learn more about and talk to them if they would like to do that. I suspect it has something to do with the fact that…
bendamustine rituxan issues
So my mom had her third round of benda-r chemo last week to treat her Mantle cell Lymphoma. She developed a bladder infection 2 days later which they are treating with antibiotics. Before her bladder infection and still, she has to get up 4 or 5 times at night to pee. She is much more wiped out after the 3rd round compared…
Survival Statistics
I was diagnosed with nodal marginal zone lymphoma last year. Both Oncologists I am seeing tell me I have a chronic condition that is not curable but is treatable. I've seen several different survival statistics and wonder which ones are the most current????
Newly Diagnosed
My husband was recently diagnosed with Germinal, Diffuse Non-Hodgkins Large B-Cell Lymphoma, late Stage III/early Stage IV. No organ involvement on the PET they ran on May 9th; but does have multiple lymph nodes that are affected. (One in his neck, one in his chest, one in his abdomen and one in his pelvis). He had…
Mantle Cell Lymphoma prognosis without treatment
My dad was diagnosed 2 months ago with MCL. He also has advanced Alzheimer's and Parkinson's disease so we opted not to pursue treatment. All information about prognosis addresses treatment. Does anyone have any idea about prognosis without treatment?
Checking in
Hi everyone, I’m new here but without a diagnosis yet. I go for an excisional biopsy of an enlarged axillary lymph node on Monday. The thing is 5.2 x 1.8 x 1.6 cm. Weird shape. At present, they are thinking lymphoma. No terrible symptoms except for vague chest wall/rib cage pain that wraps around to my back plus pretty bad…
Lymphoma--"Chemo" Brain
My dear friend has just completed 3 months from being diagnosed, completing a series of chemo treatments (being hospitalized each time). She is absolutely scared to death as she cannot formulate her thoughts, doesn't remember where anything is in her house/kitchen, is very fragile having to hold on to someone and is…
New with questions
I was diagnosed with aggressive b type lymphoma stage 2 July 28 2017. I had six Rchop treatments at 21 day increments. Halfway through I had ct scan. No cancer. Yipee!! I had 1st PET scan December 19. It showed 1 small hot spot. I went to lymphoma specialist in January. The spot is too small to biopsay so they repeated…
San Franciso T-Cell Lymphoma patient education seminar
Yes, it's that time of year again. June 30th at the Hotel Nikko in downtown San Francisco. The primary speaker will be Dr. Andrei Shustov, an internationally acknowledged T-Cell specialist and the man who has saved my life three times now. There will also be a patient advocate who will describe a ten-year multi-lymphoma…
Hearing Loss after Cancer surgery...
Hey Everybody! Two years ago, my dad was detected with cancer. The problem was with his parotid glands. He had gone through the surgery. After the radiation and chemotherapy, he became completely healthy. As the surgery was done in the parotid gland, his face got slight changes. The surgery was done on the lower ear area.…
Relapse During Maintenance?
Is it possible to relapse during maintenance? I have NHFL, did 6 cycles R & B. Last chemo was 1-25-17. Started Rituxan maintenance on 4-21-18, one infusion every three months for 2 years. I guess I have three treatments left. My last PET scan was 8-3-17. It was NED. I had an upper body CT scan on 2-16-18. It showed nothing…
Post Hodgkins Lymphoma now diagnosed with Breast cancer
This is my first time posting, I have recently been diagnosed with breast cancer as a direct result of mantle radiation I had in 1980 at the age of 19 for stage I Hodgkins lymphoma. My breast cancer is stage I no lymph involvment and is very slow growing. I was told it had probably been there 10 years before it was big…
Might have lymphoma
Hey guys, I needed somone to talk to about this because it truly has been eating me alive. About a month ago I found a lump on my neck. I have chest pain I’ve lost 10 pounds and I found more lumps on my groin area. I’m just scared. I’m 18 and have just started my first year of college. I have this gut feeling it’s cancer…
Lymphoma Research Question
I have a very specific question about ongoing research to which I am trying to get a straight unambiguous answer To. Is anything being developed which targets only diseased b-lymphocytes and not all b-cells having a given marker? For example CAR-T technology, like rituxan, attacks all b lymphocytes with a given marker -…
issues after chemo, Lymphoma with mass around stomach
My husband was diagnosis with Diffuse large B-cell Lymphoma of germinal center type with a rather large malignant mass around the lower half of the stomach. He did the R-chop series of chemo. Finished chemo 5 weeks ago. STILL not able to digest well. He eats, drinks water, by end of week, pukes it up, I'd say he pukes up…
Stage IV AngioImmunoBlastic T Cell Lymphoma
My 71 year old father was recently diagnosed with this. I'm scouring the internet for information on it and am trying to get as much info from my mother as I can, but she's been by his side at the hospital for about 5 weeks now and is going off no sleep (and possibly denial/grief/etc) so she's not giving me a ton of…
Cancer clinical trials - placebos?
my chemo nurse told me she would never participate in a clinical trial if she had cancer because even in cancer trials they have a control group that are only given placebos. And no other treatment throughout the trial. Is this true? People with cancer can’t just go without treatment!
False neg PET scan
Hi, I am new to this forum and really appreicate any feed back. I am a 36y/o male. I have had labs and biopsies that all say consitent for T-cell lymphoma. I have double neg cd4/8 plus loss of expression of cd5 and partial loss of 7. I have a m-spike with monoclonal dectected.. I had a endoscope which found a 4 by 3 cm…

Lymphoma (Hodgkin and Non-Hodgkin)

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