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Lymphoma (Hodgkin and Non-Hodgkin)

PET Scans
Okay . . . so I'm having a bit of trouble understanding how/why my Terry's initial PET scan showed 4 or 5 lymph nodes with lymphoma and the two that were removed from his abdomen near the tumor (aka: "em'effer", as we refer to it), didn't show any involvement when they were biopsied. He has one in his neck, one in his…
Maintenance after R-CHOP
Just curious . . . How many folks need "maintenance" therapy after completing R-CHOP successfully? Percentages if anyone has any to offer would be helpful. Thanks!
For DA-EPOCH-R, how common is 8 cycles?
My wife who's 30 was diagnosed with NHL (primary mediastinal b-cell lymphoma) late last year and has already completed her 6th cycle 2 weeks ago. Throughout the whole course, she's had followup CT scans to keep track of the tumor size found under her chest: After 4th cycle, CT scan showed tumor shrink from 7.4x3.2cm to…
Afraid Again Update
Just in case any of you were wondering how Terry's third "hit" went this past Thursday . . . All his liver tests were well within normal ranges. HUGE relief to both of us! Yay!!! No reactions to anything they gave him at the chemo clinic this time. Yay!!! Got out of there at a decent time. Yay!!! Had to be put on a 5-day…
Double Expressor Lymphoma and Ibrutinib treatment
Hi, My mom 58 yrs old had been diagnosed with double expressor DLBCL. She received 6 cycles of RCHOP. The treatment worked great in all areas she had cancer. But then middle of the chemo we saw very high activity in her lumbar back bone following pet ct. Doc thought it could be fracture. After 2 months waiting we did pet…
Clinical Trials
This link lists 231 Blood Cancers clinical trials currently planned or underway. The date of compilation was around New Year's, and as of that time only a few were already recruiting. I only skimmed it, but spotted several pertaining to T-Cells, several regarding relapsed Large B, several on Mantle Cell (MCL). A few on…
Hep C and DLBCL
Anyone out there have any personal history of Hep C, now fighting DLBCL? Just curious if there are many out there who were treated for Hep C, had it "cured" and then contracted DLBCL. Terry was treated for his Hep C in 2009/2010 for six months and his PCR tests ever since have all come back negative. He has it checked…
Pain months after treatment
Hi, last August I was diagnosed with stage 4 Hodgkin Lymphoma and I completed 5 months of chemo at the end of January and completed 17 rounds of Radiation the middle of March. I have a lot of body pain/muscular pain and body aches. Right now my lower back and spine really hurt. I can’t help but always think my cancer is…
Port Infection/Rejection
Does anyone have any experience with a port incision that looked red and irritated after having one placed mid-way through their 6 scheduled chemo treatments? Terry's has looked "inflamed" for a couple of weeks now. We showed it to the clowns in that ER the other day but when I asked one of the RN's if it looked infected,…
Be Prepared
Just wanted to throw this suggestion out there if it hasn't been brought up before. But, after Monday's wild goose chase . . . I wanted to share what I think most of us would want to consider in readying for that unforeseen "emergency" we've all faced at one time or another . . . whether as patient or caregiver. Long ago…
Grrrrrrrrrrrrrr !!!
Okay . . . so we have a situation that arose this past Saturday night that has to do with a Staph infection. At about 9:50 Saturday night, just getting ready for bed, my husband (whom I love more than I can possibly describe, as you all know by now) . . . told me that he had a fever of 101.1, obviously over the 100.4…
Diffuse Large B cell Lymphoma-Non-Hodgkins is diagnosis
Well after a month of head and neck cancer specialists trying to ID the cancer they found, I am told that it is Lymphoma B cell. I don't know if it's HL or NHL, what stage it is or much of anything that helps us find solid hope. I do know that I have an appoitment with a Doctor that specialises in lyphoma at The Roswell…
First time getting an outside opinion....
Thanks for taking the time to read this. My name is Charles and I'm a father of a 12yo girl and 5yo boy. My wife and children rely on me heavily as a breadwinner at home. It all started about 6 years ago with a pain in my left side abdomen. I had numerous tests and scans and even a colonoscopy which all failed to result in…
Lymphoma
This is the first time I am here. Just looking for some advice or recommendations. Next Friday I will be having axillary lymph nodes removed. I had a PET scan done 2 weeks ago and they discovered 2 lymph nodes enlarged and lit up. I’m scared, do not know what to expect. Any thoughts out there?
Liver Abnormalities
Maybe some of you are tiring already of my pesty questions, but I was wondering if any of you have had either a history of Hep C (since "cured" before starting RCHOP), and/or if anyone had any elevated levels in your ALK Phosphatase, ALT, AST liver tests before and/or after starting RCHOP. Here's the thing. In my verbose…
Shady....a suggestion
I think that it would be a good idea if you just start a thread where you can air your platform and complaints against any of us for repeating information, or whatever we say that you dislike. That way even if you disapprove or disagree it will not discourage others, especially newbies who are scared to death. You are…
Afraid Again Progress Report
For those who may have been following the wicked, uninvited guest in our lives known as "Germinal, Non-Hodgkin's Diffuse Large B-Cell Lymphoma, here's the latest. Thought you'd appreciate an update. Yesterday, was RCHOP, Hit #2 for my Terry. You may recall, we, as well as the oncologist, felt Terry's elevated liver tests…
How cancer has affected my marriage
I hope folks aren't tiring of my continued posts, as I've traveled this extremely challenging situation with my husband's fairly recent diagnosis of Germinal Non-Hodgkins Diffuse Large B-Cell Lymphoma. Talking about my experiences these past couple of months is my lifeline to coping with so much of what's been affecting…
Waiting again
Well I just had my routine 3 month CT scan and it wasn’t clean. I now have a new 9mm groundglass opacity in my left lung and several new 3-4 mm nodules in my right lung. I had a bad bout of bronchitis 7 months ago and at Least 2 CTs since then which did not show these new areas. Report says no reoccurance in chest, abdomen…
Hair Loss and other things at the beginning of RCHOP dosage
I'm reaching out tonight to share our experiences as relatively newly diagnosed Germinal Diffuse Large B-Cell Lymphoma (Late Stage III/Early Stage IV) sufferers. My husband, after having a baseball-sized tumor in his small intestine surgically removed on April 21st, 2018, was given this diagnosis and has had one round of…
Scanxiety
We all have it! Its 8months and 13 days since my SCT and I had a CT scan Yesterday. Appt with the oncologist is Tuesday. The waiting as we all know is excrutiating. When the phone rang last night around supper time and I recognized the phone number my stomach dropped. The nurse was on the other end, and of course I'm…
Is Chemo Withdrawals A Thing?
I finished my sixth and last chemo treatment on Nov 4th (yay), three weeks ago yesterday. However, instead of feeling better like I expected, I am feeling worse. I did call the Dr. at the beginning of the week, was sent for labs, was told I was slightly anemic and to take iron, which I have already been doing. So,…
Hair Loss
Okay . . . so I realize chemotherapy affects everyone differently; so I know what comes as a side effect for one person may not be the same side effect for someone else. BUT, we were told that hair loss was pretty much a "given". Terry's first chemo was May 24th and, so far, he's been sparied. Anyone else, after that first…
Shingles
Hello All... I was dx with endometrial cancer on Nov 1 2017, full hys on Dec 8th. Pathology report came back Stage 1A, with Lymphovascular invasion and after genetic testing, confirmed I have Lynch Syndrome, which opens my risk up to mulitple different kinds of cancers. That being the case, I recently developed a bad case…
Severe Leg Cramps and Raspy Voice
Hi Everyone, Couple of things. First of all, how does the "friend request" and e-mail thing work on this site? There have been a few really supportive folks who have responded to my comments whom I'd like to learn more about and talk to them if they would like to do that. I suspect it has something to do with the fact that…
bendamustine rituxan issues
So my mom had her third round of benda-r chemo last week to treat her Mantle cell Lymphoma. She developed a bladder infection 2 days later which they are treating with antibiotics. Before her bladder infection and still, she has to get up 4 or 5 times at night to pee. She is much more wiped out after the 3rd round compared…
Survival Statistics
I was diagnosed with nodal marginal zone lymphoma last year. Both Oncologists I am seeing tell me I have a chronic condition that is not curable but is treatable. I've seen several different survival statistics and wonder which ones are the most current????
Newly Diagnosed
My husband was recently diagnosed with Germinal, Diffuse Non-Hodgkins Large B-Cell Lymphoma, late Stage III/early Stage IV. No organ involvement on the PET they ran on May 9th; but does have multiple lymph nodes that are affected. (One in his neck, one in his chest, one in his abdomen and one in his pelvis). He had…
Mantle Cell Lymphoma prognosis without treatment
My dad was diagnosed 2 months ago with MCL. He also has advanced Alzheimer's and Parkinson's disease so we opted not to pursue treatment. All information about prognosis addresses treatment. Does anyone have any idea about prognosis without treatment?
Checking in
Hi everyone, I’m new here but without a diagnosis yet. I go for an excisional biopsy of an enlarged axillary lymph node on Monday. The thing is 5.2 x 1.8 x 1.6 cm. Weird shape. At present, they are thinking lymphoma. No terrible symptoms except for vague chest wall/rib cage pain that wraps around to my back plus pretty bad…

Lymphoma (Hodgkin and Non-Hodgkin)

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