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Lymphoma (Hodgkin and Non-Hodgkin)

Work or SSI/ disability?
Hey everyone, I was wondering how many of you decided to Stop working and file for disability when you were diagnosed? I hav e diffused large b cell non Hodgkin lymphoma, and have had multiple people suggest that I quit work. Currently I am on fmla. It's almost up. My problem is I love working. I couldn't imagine staying…
YouTube T-Cell Lymphoma videos
Hot off the press. Done by (IMO) the world's best hematologist. I will admit that I am biased here. Anyway, these videos contain invaluable information for those diagnosed so that they may make informed decisions and interact with their hematologist at this crucial time in their lives. YouTube playlist:…
Pet Scan Reults.... help please?
Good day. I had a PET/CT scan and I am waiting to have a follow up appointment with my onocologist. I have a copy of the test results. I was wondering if someone would be kind enough to help me interpret the results. I'd rather goto the appointemnt prepared rather than be blindsided with results. After all, knowedge is…
DLBCL-in Remission and looking for others
Greetings, I recently completed my treatment plan of 6 rounds of DA-R-EPOCH, 12 IT Chemo infusions, and 2 HD Methotrexate rounds and I am declared in remission. I actually just returned from MD Anderson for my first quarterly post-remission scans and follow-up and I am still showing no signs of the cancer returning. I do…
Follicular Lymphoma and Lupus
Are there any other members with this combo? I just finished my 1st round of B&R and have a mixed bag of effects. I have no idea what is normal any more and am feeling overwhelmed. Any perspective would be greatly appreciate.
Double Hit Lymphoma Palliative Chemo Option
Can anyone help evaluate the recommendation for palliative chemo for double hit lymphoma using rituxan and oral lenalidomide? My Dad is deconditioned and weak. He is 81. I literally cannot find anything on this regimen with regard to double hit. I see info on follicular and mantle. Tyring to evaluate comfort care v this…
Interesting concept
Has anyone looked into this? Sounds like the old saying “feed the patient feed the cancer”. https://www.telegraph.co.uk/science/2016/03/12/fasting-for-three-days-can-regenerate-entire-immune-system-study/
Car T Cell Therapy
Hi everyone, My mom (61 years old) was recently diagnosed with DLBCL stage 4 and has undergoed 5 lines of chemo. Since it is so aggressive, she is no longer a candidate for a stem cell transplant. We are going to Dana Farber in Boston next week to talk about Car T cell therapy. Insurance is becoming a challenge and the…
HL- Son just finished chemo, but still has small mass in chest. Hmmm
Hi New to the boards. My son (15) was diagnosed with HL Dec 2017z we just finished chemo (5 cycles) and had CT scan. Well, the doctor said there is a small mass still showing, so she wants to do a PET. She said it’s most likely dead cells, but wants to be sure. She also said no rush on doing the scan. I’m so nervous and…
So worried and stressed, please help
Hello, I never used forums like this in my hole life up until the last two months. I had Hodgkins Lymphoma 12 years ago and after undergoing 6-8 months of chemo, I came out the other side (thank god). On my last day of treatment i fully believed i was cured and couldn't wait to get on with my life and thats exactly what i…
Dismissive doctors?
Hello has anyone dealt with dismissive doctors before? I'm in the process of getting an accurate diagnosis but my doctor seems less than helpful. I've had an enlarged lymph node on my collarbone for a while now and just noticed 6 more apear all over my neck within the last 3 or so months. My doctor ordered blood tests to…
New to site- Late radiation effects
Hellp everyone. I am new to this site, but not to cancer. I wanted to reach out to other servivors to compare notes. (Please forgive spelling and/ or terminology errors. Neither a strong suit!) I was diagnosed with Hodgkins in 1976 on my 16th Birthday. Treated with several surgeries (including laporaodimy w/ splenectomy)…
My precious mom
My mom’s been living with nhl for 7ish years now. She’s 71. My dad died of pancreatic cancer at 52, so twenty more than that feels like very good luck. Mom is a trooper and an optimist. She is not in any discomfort, after recovering finally from a brutal stem cell transplant last year. She is tired, though. I am waiting…
confused
Hello there! I had a quik question for anyone that has been diagnosed. My 10 year old son 2 months ago got pnemonia from a classmate at school. About 3 weeks later I knew I had it , went to the hopital they took an X-ray then they told me they needed to take A ct scan. Later the doctor came in and told I did have pnemonia…
Appointment Length Question
HI All, I am meeting with the Oncologist for my results from scans and blood test. Appointment is for 30 minutes. Im guessing possible non Hodgkins Lymphoma. Appt. is 4pm Friday. Is 30 minutes the norm for advising a patient of a cancer diagnosis? Thank you for your time and response. Marcella
My 82 year old Father had crash after first chemo
Friends: My 82-year old father had a crash after his first chemo. He was diagnosed with T-Cell PTCELL- NOS. Exactly a week after the chemo, he suffered a medical crash. He got hypoxic and had to be put on a ventilator. His liver and kidneys are also impacted. He also experienced encephalopathy. It has been exactly 15 days…
R-CHOP Pending
Greetings all! Long story short, I am a survivor/fighter for almost 8 years now. Last year no treatment, but prior to that 19 rounds of Rituxan for Non-Hodgkin's, B-Cell, Follicular, Indolent, Stage 3A. Below left ear LN started swelling October 2016 (almost 5 cm. now) and Lymphedema started in right leg in February of…
CNS Lymphoma
My father diagnosed with CNS Lymphoma ... would like to know more on this
BvICE, BEAM, and stem cell transplant
Hello, I was just treated for stage IV Hodgkin's lymphoma, my last chemo was December 28th. My final PET showed two new lymph nodes that were hot, turns out I have cancer again already, not one month after my treatment. My onc is planning for a transplant, I was wondering if anyone else has had this treatment and could…
Newbie with very little support
Hi, my name is Lori. Soon to be 55 years old. I have never posted on any kind of discussions board. I was diagnosed mid Jan. with Non Hodgkins lymphoma Type B intermediate. Everything went so fast after my biopsy and my neck swelled to suffocating dimensions. I was sipping broth for food. I slept wedged between pillows and…
Off to the races
Well, after six years since diagnosis, my follicular lymphoma, which is both nodal and extra nodal, is back. The swollen glands are deep in my chest near/around my IMA. Its in virtually the same spots as before and they are each about 5 cm long. First go around I had what started as a laproscopic biopsy but turned into a…
NHL causes?
Did anyone who was diagnosed with NHL had some kind of x Ray test few months before diagnosis? For example breast cancer mammogram? Asking because my wife was diagnosed with nhl and 2 months before that she had 2 mammograms done with x rays. And nhl showed up right between the breasts. Trying to find the connection...
Still in Shock--Wife Just Diagnosed w/ Non-Hodgkins B-Cell Follicular Lymphoma Stage IV
Wife just diagnosed w/ Stage IV NHL (Subtype: B-Cell Follicular) on 12 Jul 10 and I am a complete mess. Looking for a support system to help get me and my family through this. I've been through just about every emotional state for the past 30 days since she went in for a regular checkup for what we thought was a muscle…
New phase of NHL for mom: follicular -> B-cell
My mom (71) has been living with follicular lymphoma for about 6 yrs. She’s been treated (rituxin, chemo ie r-chop) and had some remissions. Each remission’s been shorter lived. She had a stem cell transplant about a year ago, but the cancer was back within 6 months. Now with new lumps and bumps, pathology shows it’s…
Fifth time isn't the charm.
Just wanted to share my current predicament of sorts. I have a very long cancer history going back over 25 years. First with breast cancer in 1992. In Jan. 2008 diagnosed with a very rare NHL, only 200 reported cases in the US at that time. Than 6 months later a breast cancer in my other breast was picked up on PET?CT.…
Rumatoid Arthritis caused by Chemo?
Hi, Anyone end up with RA after chemotherapy. My past treatments have been two years of Rituxan, then 6 months of Treanda, Neulasta, and Rituxan, now I'm starting another 2 years of Rituxan. I have not been to primary yet but I am getting symptoms of RA in a few of my finger joints. So it hasn't been diagnosed yet but my…
Rituxin Maintainance
I just finished my fourth Chemo session of R-chop and after a CAT and Pet scan I was told that I was cancer free. I have two more sessions of chemo and then my Dr. wants me to do maintenance treatments of Rituxin. Has anyone had this type of regiment and how did it go?
Mixed Cellularity Hodgkins Lymphoma
Hello i was diagnosed with Hodgkins in October 2017. i started ABVD in november and my oncologist did a scan after 4 treatments and it showed significant decrease in lymph node size and FDG uptake. i am scheduled to complete my last treatment in late April. does anyone has any experience with Mixed Cellularity Hodgkins?…
Pleural Effusion - please suggest
Hi, I Have a query - can anyone please suggest, is this happen in such scenarios? My father being diagnosed of advanced NHL - large mediastinal mass and skeletal involvement , went through 2 cycles of chemo - R-CHOP. this week was his third week of 2nd cycle - his next one is due on 31st Oct. Last tuesday night he has been…
Adult Survivors of Childhood Burkitts from 80s
Hello, I am a 38 y/o female survivor of childhood Burkitts (Early ‘80s). I’m looking for other survivors from this time period. Im not suffering from very adverse effects but also not doing very well in general. Hurting all the time, getting worse over the years. A lot of non-cardiac chest pain (but had full cardiac…

Lymphoma (Hodgkin and Non-Hodgkin)

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