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Cutaneous Lymphoma
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Year and a half still worried
Hello all sorry to bother you and intrude on more serious problems. But would love some opinions on my story. Worry wort here! About a year and a half ago I was deemed suspicious after a fine needle biopsy on an enlarged node In my neck. At the time no symptoms present and even up till today no symptoms really. I went…
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Lymph nodes in ankles
has anyone ever had a swollen lymph node in an ankle? I have a round nodule about halfway between my ankle joint and heel on my right foot. first noticed it 2 days and it has since doubled in size To about the size of a small marble. It is painless. As usual, the internet says either 1). There are no lymph nodes in the…
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Help with getting a formal diagnosis
I will try to keep this as concise as possible. The first piece of important information is I am uninsured. In January I went to the ER because I had symptoms of severe hypokalemia, which is something I had been through previously. I also just didn't feel well in general. I had several swollen lymph nodes, I was fatigued…
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DLBCNHL Treatments complete: 6 RCHOP with 4 intrathecal
Hi everybody! I am here to share my experience and to also ask a few questions. I have another thread here but hope to keep this one simpler and focused to DLBCNHL and/or related cancer therapies. Briefly, I was dx's with stage 4 DLBCNHL after a biopsy of a lesion behind the nose tested positive for DLBCNHL with the 1st…
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False Negative?
Hi everyone - I had/have left sided neck lymphadenopathy for about 6 months. I finally saw my PCP, and she noted it as well, and we talked about other symptoms I didn't realize might be related, like widespread itching and fatigue. I didn't (and still don't) have any symptoms consistent with infection or autoimmune…
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NH Malt Lymphoma of the Stomach
Doe anyone have any knowledge / experience with Malt NH Lymphoma of the stomach ?? I haven't found ANYONE who has been diagnosed with this cancer !!! I was just diagnosed Sept. 22.
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Recurrent spot/ulcer in back of throat
Hi everyone, I’ve just joined the site today and am desperate for an answer!! I had Hodgkin’s lymphoma back in 2009 - diagnosed late January 2009 and 6 months of chemotherapy on what I believe was the ABVD regime. This was followed up by radiotherapy for roughly 6-8 weeks. Following my treatment I was fortunate enough only…
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Just an update
Sorry for not being up to date on PMs. However to those who are interested, my port was taken out today. Sore but otherwise a walk in the park compared to chemo. I am still not 100% NED but am taking Rituxan which I can easily handle through my arms. I have good veins. I will get a new port if it is needed but for now I…
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Effects of chemo
I have FNHL and finished my Fludarabine/Cytoxan/Rituxan regimen in June. I have an issue. After eating I get a kind of crash (for lack of a better word) resembling what I have heard described as a low blood sugar episode. I feel weak and tired and exhausted. I lay down and it goes away in about an hour. Doesn’t seem to…
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Honolulu T-Cell Lymphoma patient education seminar September 1st, 2018
There will be a combined systemic and cutaneous T-Cell Lymphoma patient education seminar in Honolulu, presented by the T-Cell Leukemia/Lymphoma Foundation. The event begins at 8:30 AM and wraps up at 2:30 PM. It will be held at the Waikiki Beach Marriott on Saturday, September 1st, 2018. Continental breakfast and buffet…
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drink
I am on my 2nd chemo treament. I am not able to find anything that taste good to drink any suggestions.
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Autoimmune Hemolytic Anemia
Hi there, I found out that I'm severely anemic. I'm having a bonemarrow biopsy,with a rituxin infusion. Has anyone had this i and how did it go? I also. Have MZL....have been on w/w this whole time...but feel really tired all the time. I am so thankfu for all of you because I learn a lot by reading your experience. You are…
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non hodgkins lymphoma stage 4 in the bone marrow
my husband 68 was diagnosed 3 yrs ago with non hodgkins low grade lymphoma stage 4. He had two chemo treatments the first was standard chemo. the 2nd time his cancer came back the dr. put him on chemo and rotuxin. He has been in remission for over 1yr 1/2 i think. He visits the dr. every 4 months to check for reacurrance.…
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PET Scan results question?
Finished 6 R-CHOP for DLBCL, had a PET scan. It shows "completer metabolic response to therapy" for previous diagnosed tumors . However, it also states "new mild metabolic activity has developed in lower lungs". Anyone else have metastasis from DLBCL to the lungs? I see the oncologist later this week.
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Marginal zone lymphoma
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Weight gain, harder to lose after NHL treatment
it’s been two years since my last round of chemo. I’m exercising 4-6 days / week, and haven’t changed my diet. I’m finding it hard to drop weight, and actually seem to put it on faster than ever. Anyone else experience this after R-CHOP?
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Mantle cell lymphoma - need survivor stories
My husband (42) has just been diagnosed with mantle cell lymphoma. He will be starting hyper-CVAD with rituximab probably next week. Then, he is going to have an autologous stem cell transplant. I would really appreciate any survivors out there who can let us know what he should expect and offer some hope that he has a…
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Long 2 months
Good story here for now. It was a long 2 months of worry. I’m not sure how to get past the worry part or how to lessen it. I still have lung issues, the nodules come and go. However I have been told by 2 doctors that it is highly unlikely it’s lymphoma again. I’m going with that for now! I’m coming up on 2 years post SCT!!
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Can any of you share what your symptoms were prior to diagnosis?
Just wondering about early symptoms with Lymphoma. It would help me a lot if any of you felt like sharing how that were feeling prior ro diagnosis.
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Bleomycin VS Brentuximab
Does anyone have experience with Bleomycin and Brentuximab? For my first two treatments I was given Bleomycin and have noticed a tightness in my chest, almost to the point of being a pain. Now the doctor tells me he is switching me to Brentuximab which is supposed to be better according to him. I just wanted to get some…
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Chemo done - some thoughts on my journey
Finished my R-CHOP yesterday. A rough but all in all tolerable ride. I think I can't complain given I never fell sick despite having low WBC at times. Incredibly, both my children haven't fell sick once in the past 6 months which I believe is short of a miracle given they're both toddlers! I wanted to share some thoughts…
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My wife
Hi Everyone, We just received the news that my wife may have HL. This was a result of a biopsy done on her left groin lymph node. (Sorry I'm not up on the technical terms yet). The results were that they "suspect" HL. Oddly, the initial dx was that is was NHL, which was stated within a hour or two after the biopsy, but…
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My Turn
As you can see from my profile and posts, I found CSN and started posting when my wife first discovered an enlarged lymph node and it turned out to be Hodgkin's Lymphoma Stage II. It's been 3 months since her last chemo and so far, so good. About a week ago I noticed an enlarged lymph node behind my left ear. It's location…
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Stage 4 NonHodgkin T Cell Lymphoma
My fiance has stage 4 nonhodgkin t cell lymphoma I'm looking for success stories. We don't know what to expect.
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Hodgkin’s- severe mouth sores
Hello, I have Lymphoma stage 2A and started ABVD treatment on Monday. Since yesterday (wed), I have extremely painful mouth sores. It started With my gums and now it’s the roof of my mouth, under my tongue, the tip of my tongue and my lips. It’s been so painful I haven’t been able to eat or drink anything... breathing and…
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Prednisone as it relates to Shingles during Chemo
One individual on the Cancer Support Network indicated that she'd been told by her doctor that Prednisone was the worst thing that could be prescribed for what turned out to be Shingles. It turns out that I am undergoing treatment and have devoloped Shingles. The Chemo - called CHOP - includes 5 doses of Prednisone. I am…
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Nuelasta side effects
Hi, I am glad I found this support group. My sister has large diffuse B cell lympoma. She went through the first cycle of chemotheraphy and on the 6th day they gave her nuelasta. She has been having bone pain and other pains all over her body for about 10 days. She took claritin, tylenol with no effect. She tried oxycodone…
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stem cell transplant
Hello everyone I am new to this site. I just got discharged from the hospital yesterday after doing a stem cell transplant for relapsed hodgkins lymphoma. Everything went pretty smoothly and my doc said I was in and out faster than most people he's seen. I've always had pretty low blood pressure but after chemo it dropped…
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Peripheral T-Cell Lymphoma (PTCL-NOS)
I have only recently joined, but can offer hope for those who are diagnosed with this rare and aggressive cancer. The prognosis is consistently given as poor, although this is changing. In mid-2008, I was diagnosed with Peripheral T-Cell Lymphoma - NOS. This cancer is rare, so there exists no standardized therapy to use…