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Just an update
Sorry for not being up to date on PMs. However to those who are interested, my port was taken out today. Sore but otherwise a walk in the park compared to chemo. I am still not 100% NED but am taking Rituxan which I can easily handle through my arms. I have good veins. I will get a new port if it is needed but for now I…
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Effects of chemo
I have FNHL and finished my Fludarabine/Cytoxan/Rituxan regimen in June. I have an issue. After eating I get a kind of crash (for lack of a better word) resembling what I have heard described as a low blood sugar episode. I feel weak and tired and exhausted. I lay down and it goes away in about an hour. Doesn’t seem to…
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Honolulu T-Cell Lymphoma patient education seminar September 1st, 2018
There will be a combined systemic and cutaneous T-Cell Lymphoma patient education seminar in Honolulu, presented by the T-Cell Leukemia/Lymphoma Foundation. The event begins at 8:30 AM and wraps up at 2:30 PM. It will be held at the Waikiki Beach Marriott on Saturday, September 1st, 2018. Continental breakfast and buffet…
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drink
I am on my 2nd chemo treament. I am not able to find anything that taste good to drink any suggestions.
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Autoimmune Hemolytic Anemia
Hi there, I found out that I'm severely anemic. I'm having a bonemarrow biopsy,with a rituxin infusion. Has anyone had this i and how did it go? I also. Have MZL....have been on w/w this whole time...but feel really tired all the time. I am so thankfu for all of you because I learn a lot by reading your experience. You are…
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non hodgkins lymphoma stage 4 in the bone marrow
my husband 68 was diagnosed 3 yrs ago with non hodgkins low grade lymphoma stage 4. He had two chemo treatments the first was standard chemo. the 2nd time his cancer came back the dr. put him on chemo and rotuxin. He has been in remission for over 1yr 1/2 i think. He visits the dr. every 4 months to check for reacurrance.…
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PET Scan results question?
Finished 6 R-CHOP for DLBCL, had a PET scan. It shows "completer metabolic response to therapy" for previous diagnosed tumors . However, it also states "new mild metabolic activity has developed in lower lungs". Anyone else have metastasis from DLBCL to the lungs? I see the oncologist later this week.
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Marginal zone lymphoma
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Weight gain, harder to lose after NHL treatment
it’s been two years since my last round of chemo. I’m exercising 4-6 days / week, and haven’t changed my diet. I’m finding it hard to drop weight, and actually seem to put it on faster than ever. Anyone else experience this after R-CHOP?
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Mantle cell lymphoma - need survivor stories
My husband (42) has just been diagnosed with mantle cell lymphoma. He will be starting hyper-CVAD with rituximab probably next week. Then, he is going to have an autologous stem cell transplant. I would really appreciate any survivors out there who can let us know what he should expect and offer some hope that he has a…
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Long 2 months
Good story here for now. It was a long 2 months of worry. I’m not sure how to get past the worry part or how to lessen it. I still have lung issues, the nodules come and go. However I have been told by 2 doctors that it is highly unlikely it’s lymphoma again. I’m going with that for now! I’m coming up on 2 years post SCT!!
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Can any of you share what your symptoms were prior to diagnosis?
Just wondering about early symptoms with Lymphoma. It would help me a lot if any of you felt like sharing how that were feeling prior ro diagnosis.
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Bleomycin VS Brentuximab
Does anyone have experience with Bleomycin and Brentuximab? For my first two treatments I was given Bleomycin and have noticed a tightness in my chest, almost to the point of being a pain. Now the doctor tells me he is switching me to Brentuximab which is supposed to be better according to him. I just wanted to get some…
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Chemo done - some thoughts on my journey
Finished my R-CHOP yesterday. A rough but all in all tolerable ride. I think I can't complain given I never fell sick despite having low WBC at times. Incredibly, both my children haven't fell sick once in the past 6 months which I believe is short of a miracle given they're both toddlers! I wanted to share some thoughts…
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My wife
Hi Everyone, We just received the news that my wife may have HL. This was a result of a biopsy done on her left groin lymph node. (Sorry I'm not up on the technical terms yet). The results were that they "suspect" HL. Oddly, the initial dx was that is was NHL, which was stated within a hour or two after the biopsy, but…
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My Turn
As you can see from my profile and posts, I found CSN and started posting when my wife first discovered an enlarged lymph node and it turned out to be Hodgkin's Lymphoma Stage II. It's been 3 months since her last chemo and so far, so good. About a week ago I noticed an enlarged lymph node behind my left ear. It's location…
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Stage 4 NonHodgkin T Cell Lymphoma
My fiance has stage 4 nonhodgkin t cell lymphoma I'm looking for success stories. We don't know what to expect.
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Hodgkin’s- severe mouth sores
Hello, I have Lymphoma stage 2A and started ABVD treatment on Monday. Since yesterday (wed), I have extremely painful mouth sores. It started With my gums and now it’s the roof of my mouth, under my tongue, the tip of my tongue and my lips. It’s been so painful I haven’t been able to eat or drink anything... breathing and…
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Prednisone as it relates to Shingles during Chemo
One individual on the Cancer Support Network indicated that she'd been told by her doctor that Prednisone was the worst thing that could be prescribed for what turned out to be Shingles. It turns out that I am undergoing treatment and have devoloped Shingles. The Chemo - called CHOP - includes 5 doses of Prednisone. I am…
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Nuelasta side effects
Hi, I am glad I found this support group. My sister has large diffuse B cell lympoma. She went through the first cycle of chemotheraphy and on the 6th day they gave her nuelasta. She has been having bone pain and other pains all over her body for about 10 days. She took claritin, tylenol with no effect. She tried oxycodone…
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stem cell transplant
Hello everyone I am new to this site. I just got discharged from the hospital yesterday after doing a stem cell transplant for relapsed hodgkins lymphoma. Everything went pretty smoothly and my doc said I was in and out faster than most people he's seen. I've always had pretty low blood pressure but after chemo it dropped…
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Peripheral T-Cell Lymphoma (PTCL-NOS)
I have only recently joined, but can offer hope for those who are diagnosed with this rare and aggressive cancer. The prognosis is consistently given as poor, although this is changing. In mid-2008, I was diagnosed with Peripheral T-Cell Lymphoma - NOS. This cancer is rare, so there exists no standardized therapy to use…
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We need to move on
Hello everyone, I have to say that I look to this board for support, encouragement, knowledge AND guidance in treatment options! They All go hand in hand. We are all scared. I know I am!! Lets all try to get back to the reason this forum was created. Sharon
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Anonymous user (unverified)
Apparently their posts are marked this way when people withdrawfrom the forum.
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Thrush
Happy 4th of July everyone! The topic for today, whilst Terry is napping and we're waiting for a few folks to join us for a small gathering this afternoon . . . is "THRUSH". I'm not sure this is what's brewing in Terry's mouth; but, I suspect it is. We thought he was developing mouth sores this past week but when we…
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3erd time around???
Hi, Have not been on this sight for a few years. My first diagnosis was 2010 with NH 3erd Stage Follicular,slow growing . Second 2014. Now ... the lymph node that swelled up at first diagnosi in 2010 is sore to the touch . I came down with a 48 hr bug ( cold type bug ) on Friday. By Sunday morning I was feeling much better…
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High calorie, low sugar food suggestions
Me again . . . Sorry. The topic for today is high calorie low sugar food suggestions. Anyone have a short or long list/website with recipes, ideas to help someone like my husband who was on the slimmer side before our issues surfaced and is losing weight, in spite of eating whatever/whenever he can? He's always had a hard…
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My father was diagnosed with Lymphoma
Hi All, My father was diagnosed with lymphoma and I was looking options treatments beside Radiation and Chemotherapy? I heard about vitamin C IV and also Bone Marrow Transplant. Are these procedure reliable? Can someone tell me other options?
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Hair Loss at the early stages
Thought those of you following Terry's and my journey may want to share my emotion this morning. If not . . . scroll on by. We were hoping we may be spared, but he IS losing his hair . . . . . . big time! We are scheduled to have most of it shaved off this afternoon. Sad to see and part of what I've learned from chatting…
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Has anyone had problmes with mosquitoes after chemo?
I'm about to undergo my 4th round of Rituxan and Bendamustine. This summer I have become extremely sensitive to mosquito bites. Could this be relatted to the lymphoma or my treatment?