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Watch and wait.
Well, back again. I have been away from forum for quite sometime. Wishing everyone blessing and well wishes Life has had major changes & I finally have a bit of time to check in. Unfortunatly I have needed several CT scans and a new Oncologist due to moving cross country & new developments in my original sight of diagnosis…
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Old member...
Has anyone heard from crittermom ? She last logged in two years ago. Someone asked about her about a year ago, and someone else had an update, but I do not recall who.
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Question about Biopsy
Let me start by saying that I have not had any diagnosis. I presented to the ER with lung pain upon inhaling after several weeks of battling seasonal allergies. I was having a hard time breathing and being almost 50, the pain worried me about clots. Ultimately, they did a CT scan and while they found no clots (nor any lung…
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T Cell- what to expect
This is my first post- hi everyone. My mother was diagnosed with lymphoma over a year ago. She went through 6 rounds of chemo, a month of radiation and a surgery to remove the tumors under her arm. Unfortunately, the cancer survived. Her wound is still healing, but the doctors at U Penn and MD Anderson (they are working in…
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Did anyone work in the printing industry or cleaning business where Benzene was used?
I recently was reading online a report about the effects of inhaling Benzene over a long period of time. Seems that printer's ink contained benzene and the cleaning chemical used on printing presses also. I have worked in the printing industry for many many years and always wondered about those chemicals, if they have had…
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Been awhile
Been awhile actually a long while since I last posted. I'm down to my last Rituxan treatment .Finished 12th one today 1 more to go in August. My latest CT scans show NED....My insurance has fought all scans for past 18 months so wasn't really sure how this was going to turn out, I just put everything in the hands of the…
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MCL with a serious skin reaction after Bendamustine...later found to be allergic to bactrium
My 67 year old brother was diagnosed with Mantle Cell Lymphoma back in January. He has had two treatments of Bendamutime/Rituximab (sp). He had started to get a little itchy after the first treatment, now with the second, he has developed a terribly itchy rash on his arms and back. This has been going on for about 10 days.…
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I beat Hodgkin's twice but I thinks it is back again
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Preparing for my last chemo
Can't believe that I have come to this point in my treatment but I will have my last chemo in the next few weeks. In all reality, Ive been very fortunate, able to work most of every week, no serious side effects, etc. It's not been a walk in the park and I wouldn't wish this on anyone. I am looking for ideas to thank the…
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Newly diagnosed- needing help and advice
A family member has recently been diagnosed with stage 4 non Hodgkin’s lymphoma. Age 74. Chemo starts next week and I’m wondering what I should expect And how I can help. I’m scared to death. Any advice, info, experience, etc Ginger
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best things to eat to boost WBC?
Hello, I posted before about hair and ABVD trreatment, I have since shaved the rest of my hair that was left. I have stage 3A Hodgkins Lymphoma and I have had lots of complications from side effects of my ABVD treatment, ended up in hospital etc. I had pneumonia heading into this as well so my lungs are damaged anyways and…
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Lookin for Suggestions for Metal Taste in Mouth
Assuming many who have had treatments have suffered from the side effect of the metal taste in the mouth that will not go away. Any suggestions on how you are dealing with that or dealt with this in the past are appreciated!
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Pet scan
Hi all, I'm new here and am wondering if I should seek a second opinion out. I just got back my pet scan results and my dr said we need a biopsy done but when I went in for the biopsy the radiologist decidied to do a ultra sound instead and said you dont need a biopsy you are fine. My pet scan came back as the following:…
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Survived more than 30 years
My sister has been a hystiocytic large cell non hodgekins lymphona survivor for 35 years. I am searching for a research group that has some answers to the effects of the radiaton. She has had over 6000 rads of radiation and it is taking it's toll on her. Need to find a doctor to help her out of the constant pain she is in…
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Marginal Cell
Hi New to site. Diagnosed end of 2014 with Marginal Cell lymphoma Stage IV, had Rituxan felt good after 4 doses and Igm came down. Have had 2 episodes since then one treated with Imbruvica and latest one with another 4 doses of Rituxan did not feel to good on either. My question is has anyone experienced brain fog.…
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San Franciso T-Cell patient education seminar June 8th, 2019
The T Cell Leukemia Lymphoma Foundation will once again be presenting a patient education seminar in San Francisco, California. It will be held on June 8th, 2019 at the Hotel Nikko in downtown San Francisco. The primary speaker will be Dr. Andrei Shustov of the Fred Hutchinson Cancer Research Center. This is a great…
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The Chaplain
Yesterday, I went for a 6-month follow up visit with my hematology oncologist. One of the first stops was the lab to have blood drawn. They always draw 3 vials--CBC, Metabolic Panel, and LDH. While the phlebotomist had a needle in my arm, this goofy acting man came into the lab and slapped her on the shoulder with a jovial…
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Dropping in to say "Hi"
Hi guys. I haven't been on here since after we moved to Oregon in 2014...sorry ...I just got busy with my husbands retirement and our new location. Not a good excuse, but the truth. We decided to move back to Washington in Oct 2018 to be closer to the family. I relapsed twice while in Oregon, was treated with Rituxan and…
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A whirlwind since January 2019
I was diagnosed out of nowhere in January 2019 with NHL. The first 2 chemo treatments were a disaster as other things went wrong due to the chemo. I was hospitalized for 2 months, then sent to a nursing home for 2 months and I got home April 15. I have now taken 4 or the scheduled 6 chemo treatments. The third and forth…
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Just diagnosed-feelings & thoughts
Received the results of my biopsy yesterday, classical Hodgkins lymphoma, nodular sclerosis subset. I didn’t cry, I didn’t take a seat, I just stood there, felt numb. maybe my mind is still processing the news? Or my mind is fending off the reality of what is to come... im a 34 year old male who noticed a lump near my left…
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Halfway Through
This last week I had my 3rd R-CHOP cycle and am officially halfway through. Seem to be tolerating it fairly well. Vincristine is my nemesis causing issues with numbness in my fingertips and causing significant constipation. Having mid treatment scans which my onc believes will show NED. I will be having a discussion about…
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T - Cell Lymphoma of the Small Bowel (specifically in the Jejunum)
Hello, My husband was diagnosed in March with T-Cell Lymphoma of the small bowel. It has been narrowed down to a very rare type, abbreviated as MEITL. It is very aggressive and prognosis is poor. However, we are getting treatment through Stanford's Lymphoma Clinic in Palo Alto and we feel confident he can beat this - it is…
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Lump on surface of sternum
It's been a while since I popped onto the board. My wife is set for her 1 year (post chemo) scan this week. She has 6 cycles of ABVD that ended April 16th of last year (The Bleo was only for 3 cycles.) After her third cycle she had interim scans that came back clear. She was stage 2 with 3 enlarged nodes in her pelvis /…
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joint pain after chemo has ended
I have stage 4 grade 2 non hodgkins lymphoma, it's in the bone marrow too. I had my last chemo in Nov. I'm having bad joint pain that started in Jan. Is this normal? I had bendeka and rituxin and now on rituxin every 6 wks for maintenance. I'm in remmission. Has anyone else experianced this?
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Lympg node same size for 2 years, what to do?
Hi, i remember the exact day the two lymph nodes popped up, i was attending my regular muay thai class, we was doing alot of kicking that night, i felt a very bad pain in the right side of my groin, i thought i had a small hernia, upon attending the doctors they told me it was a lymph node, It's been around 2 years now as…
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Dr. Robert O. Hickman 1927-2019
Dr. Hickman, developer of the universally used Hickman catheter, has died at age 92. He retired at least three times, but always felt the call to return and serve. At age 83, and after having retired twice, he placed my first port in July, 2008. Ironically, both of my Hickman catheters were placed by other physicians.…
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Was last on here in 2014, Hi to all the old timers and the new!
Luckily I received an email notification today that I had a message waiting here. I had several as I haven't been posting as I transitioned to closed FaceBook groups for HD repercussions, late effects and Breast Cancer after HL and others. I thought many times I need to update everyone on my exit but never did sadly. It…
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Looking for advice
I’m wondering where I should go from here. Just an FYI-my sibling died at age 37 of NHL. Almost 4 weeks ago, before my 39th birthday, I started getting these weird chest pains. I took myself to the ER for it, as it was burning and alternating sides. I’m female, and thought I was having heart attack symptoms. Then, it…
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Port removal
Awesome news, went for labs yesterday morning, platelets at 50,000 YEAH!!! Came home took Gidget for a long walk, took a nap THEN checked my phone. Nurse coordinator called and left a vm (my phone was on vibrate) and said if I called right away might be able to get my port out today. So I did get it out. They don't give…
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Distractions and detours.
Have been away since Monday on another medical detour. Fresh out of one ER and two hospitals. Over last weekend, began feeling worse. By Monday, much worse. Lethargy. Near zero appetite, rising fever, strong headache and major balance deficit, making walking dangerous. Off we went to the regional ER. They did chest X-ray,…