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Pet scan
Hi all, I'm new here and am wondering if I should seek a second opinion out. I just got back my pet scan results and my dr said we need a biopsy done but when I went in for the biopsy the radiologist decidied to do a ultra sound instead and said you dont need a biopsy you are fine. My pet scan came back as the following:…
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Survived more than 30 years
My sister has been a hystiocytic large cell non hodgekins lymphona survivor for 35 years. I am searching for a research group that has some answers to the effects of the radiaton. She has had over 6000 rads of radiation and it is taking it's toll on her. Need to find a doctor to help her out of the constant pain she is in…
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Marginal Cell
Hi New to site. Diagnosed end of 2014 with Marginal Cell lymphoma Stage IV, had Rituxan felt good after 4 doses and Igm came down. Have had 2 episodes since then one treated with Imbruvica and latest one with another 4 doses of Rituxan did not feel to good on either. My question is has anyone experienced brain fog.…
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San Franciso T-Cell patient education seminar June 8th, 2019
The T Cell Leukemia Lymphoma Foundation will once again be presenting a patient education seminar in San Francisco, California. It will be held on June 8th, 2019 at the Hotel Nikko in downtown San Francisco. The primary speaker will be Dr. Andrei Shustov of the Fred Hutchinson Cancer Research Center. This is a great…
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The Chaplain
Yesterday, I went for a 6-month follow up visit with my hematology oncologist. One of the first stops was the lab to have blood drawn. They always draw 3 vials--CBC, Metabolic Panel, and LDH. While the phlebotomist had a needle in my arm, this goofy acting man came into the lab and slapped her on the shoulder with a jovial…
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Dropping in to say "Hi"
Hi guys. I haven't been on here since after we moved to Oregon in 2014...sorry ...I just got busy with my husbands retirement and our new location. Not a good excuse, but the truth. We decided to move back to Washington in Oct 2018 to be closer to the family. I relapsed twice while in Oregon, was treated with Rituxan and…
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A whirlwind since January 2019
I was diagnosed out of nowhere in January 2019 with NHL. The first 2 chemo treatments were a disaster as other things went wrong due to the chemo. I was hospitalized for 2 months, then sent to a nursing home for 2 months and I got home April 15. I have now taken 4 or the scheduled 6 chemo treatments. The third and forth…
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Just diagnosed-feelings & thoughts
Received the results of my biopsy yesterday, classical Hodgkins lymphoma, nodular sclerosis subset. I didn’t cry, I didn’t take a seat, I just stood there, felt numb. maybe my mind is still processing the news? Or my mind is fending off the reality of what is to come... im a 34 year old male who noticed a lump near my left…
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Halfway Through
This last week I had my 3rd R-CHOP cycle and am officially halfway through. Seem to be tolerating it fairly well. Vincristine is my nemesis causing issues with numbness in my fingertips and causing significant constipation. Having mid treatment scans which my onc believes will show NED. I will be having a discussion about…
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T - Cell Lymphoma of the Small Bowel (specifically in the Jejunum)
Hello, My husband was diagnosed in March with T-Cell Lymphoma of the small bowel. It has been narrowed down to a very rare type, abbreviated as MEITL. It is very aggressive and prognosis is poor. However, we are getting treatment through Stanford's Lymphoma Clinic in Palo Alto and we feel confident he can beat this - it is…
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Lump on surface of sternum
It's been a while since I popped onto the board. My wife is set for her 1 year (post chemo) scan this week. She has 6 cycles of ABVD that ended April 16th of last year (The Bleo was only for 3 cycles.) After her third cycle she had interim scans that came back clear. She was stage 2 with 3 enlarged nodes in her pelvis /…
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joint pain after chemo has ended
I have stage 4 grade 2 non hodgkins lymphoma, it's in the bone marrow too. I had my last chemo in Nov. I'm having bad joint pain that started in Jan. Is this normal? I had bendeka and rituxin and now on rituxin every 6 wks for maintenance. I'm in remmission. Has anyone else experianced this?
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Lympg node same size for 2 years, what to do?
Hi, i remember the exact day the two lymph nodes popped up, i was attending my regular muay thai class, we was doing alot of kicking that night, i felt a very bad pain in the right side of my groin, i thought i had a small hernia, upon attending the doctors they told me it was a lymph node, It's been around 2 years now as…
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Dr. Robert O. Hickman 1927-2019
Dr. Hickman, developer of the universally used Hickman catheter, has died at age 92. He retired at least three times, but always felt the call to return and serve. At age 83, and after having retired twice, he placed my first port in July, 2008. Ironically, both of my Hickman catheters were placed by other physicians.…
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Was last on here in 2014, Hi to all the old timers and the new!
Luckily I received an email notification today that I had a message waiting here. I had several as I haven't been posting as I transitioned to closed FaceBook groups for HD repercussions, late effects and Breast Cancer after HL and others. I thought many times I need to update everyone on my exit but never did sadly. It…
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Looking for advice
I’m wondering where I should go from here. Just an FYI-my sibling died at age 37 of NHL. Almost 4 weeks ago, before my 39th birthday, I started getting these weird chest pains. I took myself to the ER for it, as it was burning and alternating sides. I’m female, and thought I was having heart attack symptoms. Then, it…
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Port removal
Awesome news, went for labs yesterday morning, platelets at 50,000 YEAH!!! Came home took Gidget for a long walk, took a nap THEN checked my phone. Nurse coordinator called and left a vm (my phone was on vibrate) and said if I called right away might be able to get my port out today. So I did get it out. They don't give…
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Distractions and detours.
Have been away since Monday on another medical detour. Fresh out of one ER and two hospitals. Over last weekend, began feeling worse. By Monday, much worse. Lethargy. Near zero appetite, rising fever, strong headache and major balance deficit, making walking dangerous. Off we went to the regional ER. They did chest X-ray,…
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Primary refractory Hodgkin's Lymphoma
My boyfriend was 2/3 of the way through AVD (Dropped Bleomycin after the first 2 cycles because it was causing lung toxicity) when a PET scan revealed that the cancer was growing back. Today he's getting a biopsy from nodes near his lung to confirm the Hodgkin's diagnosis before he starts a clinical trial that includes ICE…
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Swollen lymph nodes...Waiting for answers
Hi, I'm new here and would like to hear others' experiences/symtpoms regarding swollen lymph nodes. It all started last September when I felt a swollen lymph node on my left parotid area. I went to the ENT, who thought it was nothing, but still ordered an ultrasound. The ultrasound showed a 1cm lymph node with 2 others…
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Port Removal Delay and Other Stuff
Well, I was scheduled to have my port removed on 3/15, however I caught a nasty little virus from my 7 week old baby grand and ended up with pnuemonia. I was sick for over three weeks and running a low grade fever for the entire time. The port removal can wait but honestly my frustration at getting sick so easily and not…
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Follicular NHL now CLL
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Bendamustine + Rituximab and fever
My first post here. I have Mantle Cell Lymphoma and started B+R chemo 2 weeks ago. The last couple of days I have been fighting high temperatures. Fevers up to 103. Tylonol helps and launches me into a sweat and the fever goes down. My clinic has taken cultures to see if there's any infection, but given that all my blood…
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gas and bloating
Hello, I started feeling gassy ever since i drank barium suphate when doing a CT scan for confirming my hodgkin lymphoma. I continue to feel gassy after chemo started. I also get bloating feeling about 10 days after chemo. My question is has anyone had the same experience? How to avoid the gas and bloating? what diet to…
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Recommendations for Cancer centres in Dallas, TX?
Hi all, I am newly-diagnosed with B-cell lymphoma, doing a PET scan and bone biopsy with further testing to stage it and classify the type. I have been dealing with texas oncology and have only had a limited exposure to them due to the newness of my diagnosis but have not been impressed with their facility. When my primary…
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Double hit non-Hodgkin Diffused large b-cell lymphoma (DH NHDLBL) recovery returns relapse?
Well, after finding and reading through this forum, I've gotta admit it's both refreshing and discouraging all at the same time. The length of the cancer fight some people have gone through is inspiration from the human spirit. Learning that I may "live" like this until death is, well, less than inspiring. I found the…
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Muscle wasting?
I was just diagnosed with stage 1 nhl, only had it in one node, had it removed and will start radiation next week. My ques. is, has anyone noticed muscle loss for some years prior to diagnosis? I was having muscle loss for the past 4 years and had every test and went to 3 specialists thinking I had a muscular dystrophy or…
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New member - FL coming back?
Hi, I´m 53 years old and got diagnosed with Follicular Lymphoma last year. I was in Stage 4, with pleural effusion. I went through R-CHOP that seems the only treatment they know here in Brazil. My hematologist decided to give just 5 cycles, because I responded too well. Now six month later, 2 of my old lymph nodes started…
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Systematic lymphnode enlargement- too small to biopsy
Hi all- I am new to this board and am hoping someone has had a similar occurrence. I am a cervical cancer survivor of 1 year so when my lymphnodes came up I immediately thought the two were connected but the symptoms have since progressed and taken a different turn. Please see my timeline below and I would LOVE to hear if…
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Symptoms
My Dr. believes I have Hodgkins Lymphoma. I've had a biopsy done but they didn't have enough cells to test all the markers. I will be seeing an Oncologist soon. My question is....before you were diagnosed what kind of symptoms did you have?