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Primary refractory Hodgkin's Lymphoma
My boyfriend was 2/3 of the way through AVD (Dropped Bleomycin after the first 2 cycles because it was causing lung toxicity) when a PET scan revealed that the cancer was growing back. Today he's getting a biopsy from nodes near his lung to confirm the Hodgkin's diagnosis before he starts a clinical trial that includes ICE…
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Swollen lymph nodes...Waiting for answers
Hi, I'm new here and would like to hear others' experiences/symtpoms regarding swollen lymph nodes. It all started last September when I felt a swollen lymph node on my left parotid area. I went to the ENT, who thought it was nothing, but still ordered an ultrasound. The ultrasound showed a 1cm lymph node with 2 others…
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Port Removal Delay and Other Stuff
Well, I was scheduled to have my port removed on 3/15, however I caught a nasty little virus from my 7 week old baby grand and ended up with pnuemonia. I was sick for over three weeks and running a low grade fever for the entire time. The port removal can wait but honestly my frustration at getting sick so easily and not…
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Follicular NHL now CLL
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Bendamustine + Rituximab and fever
My first post here. I have Mantle Cell Lymphoma and started B+R chemo 2 weeks ago. The last couple of days I have been fighting high temperatures. Fevers up to 103. Tylonol helps and launches me into a sweat and the fever goes down. My clinic has taken cultures to see if there's any infection, but given that all my blood…
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gas and bloating
Hello, I started feeling gassy ever since i drank barium suphate when doing a CT scan for confirming my hodgkin lymphoma. I continue to feel gassy after chemo started. I also get bloating feeling about 10 days after chemo. My question is has anyone had the same experience? How to avoid the gas and bloating? what diet to…
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Recommendations for Cancer centres in Dallas, TX?
Hi all, I am newly-diagnosed with B-cell lymphoma, doing a PET scan and bone biopsy with further testing to stage it and classify the type. I have been dealing with texas oncology and have only had a limited exposure to them due to the newness of my diagnosis but have not been impressed with their facility. When my primary…
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Double hit non-Hodgkin Diffused large b-cell lymphoma (DH NHDLBL) recovery returns relapse?
Well, after finding and reading through this forum, I've gotta admit it's both refreshing and discouraging all at the same time. The length of the cancer fight some people have gone through is inspiration from the human spirit. Learning that I may "live" like this until death is, well, less than inspiring. I found the…
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Muscle wasting?
I was just diagnosed with stage 1 nhl, only had it in one node, had it removed and will start radiation next week. My ques. is, has anyone noticed muscle loss for some years prior to diagnosis? I was having muscle loss for the past 4 years and had every test and went to 3 specialists thinking I had a muscular dystrophy or…
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New member - FL coming back?
Hi, I´m 53 years old and got diagnosed with Follicular Lymphoma last year. I was in Stage 4, with pleural effusion. I went through R-CHOP that seems the only treatment they know here in Brazil. My hematologist decided to give just 5 cycles, because I responded too well. Now six month later, 2 of my old lymph nodes started…
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Systematic lymphnode enlargement- too small to biopsy
Hi all- I am new to this board and am hoping someone has had a similar occurrence. I am a cervical cancer survivor of 1 year so when my lymphnodes came up I immediately thought the two were connected but the symptoms have since progressed and taken a different turn. Please see my timeline below and I would LOVE to hear if…
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Symptoms
My Dr. believes I have Hodgkins Lymphoma. I've had a biopsy done but they didn't have enough cells to test all the markers. I will be seeing an Oncologist soon. My question is....before you were diagnosed what kind of symptoms did you have?
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Planning to have port removed
When i get through the next 4.5 months of r-chop, that is. I start this part of my journey tomorrow morning. Happens to be my birthday, am looking at this as my present to myself is to get this show on the road. Hoping I will tolerate this chemo like my doc thinks I will. I was hoping to get away with either surveillance…
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Finished my R-CHOP 21, now what?
I finished my R-CHOP 21 (6 treatments) for NHL in my sinus this last Thursday. My initial tumor had caused my right nostril to be completely blocked and loss of smell and taste. After first Chemo treatment I could breath, smell, and taste so I'm thinking things are going well. My initial diagnosis was Stage 1A with no…
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Waldenstrom's Macrobulinemia
IS ANYONE TRYING CURCUMIN, BIOPERINE, EVOO FOR WM AND IS IT HELPING?
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The latest
I know it has been a long while since i posted last, i found an Onc who i really like, makes me feel comfortable and really listens. I am going to have a pet scan to see how active the cancer is and if it has grown any, the new mass is behind my left kidney, near my spine and it fused 2 lymphnodes together, i know weird…
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Anyone Hear From CritterMama Since the Outage?
Hello, I was wondering if anyone has heard from CritterMama since the outage? I want Lori (CritterMama) to know we are still thinking of her and wishing her the best in her treatment. If you see this, Lori, please let us know how you are doing. Take Care.......prayers and hugs are being sent your way. ---Debbie
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Chemo starting this week, suggestions?
I will be starting R-CHOP this week, as soon as port is in place for DLBCL and NLPHL. The typical 6 cycles 21 days apart. I realize that my first treatment will take longer depending on my tolerance of Rituximab et al, was told to expect day to be 5-8 hours in length. What things did you find helpful to have with you to…
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Critter ?
I know someone raised this question a while back, but has anyone heard from Critter Mama ? If someone answered this in the affirmative since that post, I missed it (I don't read every post here). She last logged in on October 27 (2018). I know she had a pending SCT but was also asking about alternatives and that SCT can…
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Biopsy Question
Hey everyone, I just had a biopsy done for a nasty rash that will not resolve over the last 2 weeks. I've seen 5 doctors and had multiple guesses as to what it is with treatments and no resolution yet. I was diagnosed with Stage 1b grade 2 RCC back in November that they do not believe spread. What I am worried about is if…
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I don't have to apologize!!!
Or edit any comments from the last three months! That is huge.
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Hycela Rituxan
i have had so many Rituxan infusions that I finally lost count. Its somewhere in the mid thirties. One week ago I switched from IV to Hycela Rituxan injection under the skin on my stomach. It was extremely fast, painless and easy. I walked away feeling it was a great change. Now not so much. The injection site is painful…
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I'm dreaming of a white...
...Valentine's day? We had zero snow in 2018. Actually had the blessing of a white Christmas in 2017. But, an hour or so ago, it began snowing here in the pacific northwest. A family friend/former co-worker is scheduled to begina new job tomorrow and it will probably be a snow day! She should go buy a lotto ticket. What…
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Lymphoma?Next steps?
Hello to all, I am female in my late 20s and I am very worried about my right groin lymph node and lymphoma. About a year and a half ago I started getting random fevers and extreme weight loss, I'm already skinny and eat normally, still have trouble gaining weight. Then, I noticed in my right groin, about a year ago, that…
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No symptoms
Hello, I am newly diagnosed with follicular (65% of sampled cells) and diffuse large b-cell lymphoma (35% of sampled cells). The sample was provided via a fully excisional lymph node. There is also a medistinal mass. Blood work was all normal except for: calcium in plasma at 10.8% in the comprehensive metabolic panel and…
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Does anyone know anything about this?
it could be the magic bullet for lymphoma. Israelis suffer a much higher rate of b-cell lymphomas than most others so they are motivated to find a cure. I am checking into trials Via friend in Tel Aviv. http://www.israelnationalnews.com/News/News.aspx/149680 http://vxlbio.com/…
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Survivor of rare cancer
Hello everyone, 3 years ago I was diagnosed with advanced HIV and several months later, after many tests and biopsies, I was diagnosed with an extremely rare type of lymphoma called Anaplastic Large Cell Lymphom, ALK negative. The overall prevalence of this cancer is around 3%. The prognosis for the ALK negative sub type…
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Brand new with Follicular Lymphoma - hello!
Just now I found this discussion board and it seems like a good one for me to get involved with. Just had my first pair of chemo infusions (Rituxan and Bendamustine) on Oct 22-23 (first of six expected). Not terribly eventful, other than severe constipation from the anti-nausea meds included with the "pre" meds that were…
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Port is out
I know I haven't participated much lately. Work has been taking up a lot of my time. Let's just say with some of the tweaking of the visa "rules" our IT staff has lost a number of consultants so their work has to be spread out to the others. Since the group I am senior for is support, we are all affected. I am hands on so…
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Mantle Cell Lymphoma
My husband has been diagnosed with Mantel Cell non-Hodgkins Lymphoma. I've yet to meet anybody else with this type. Does anybody have any experience with this type?