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Lump on surface of sternum
It's been a while since I popped onto the board. My wife is set for her 1 year (post chemo) scan this week. She has 6 cycles of ABVD that ended April 16th of last year (The Bleo was only for 3 cycles.) After her third cycle she had interim scans that came back clear. She was stage 2 with 3 enlarged nodes in her pelvis /…
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joint pain after chemo has ended
I have stage 4 grade 2 non hodgkins lymphoma, it's in the bone marrow too. I had my last chemo in Nov. I'm having bad joint pain that started in Jan. Is this normal? I had bendeka and rituxin and now on rituxin every 6 wks for maintenance. I'm in remmission. Has anyone else experianced this?
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Lympg node same size for 2 years, what to do?
Hi, i remember the exact day the two lymph nodes popped up, i was attending my regular muay thai class, we was doing alot of kicking that night, i felt a very bad pain in the right side of my groin, i thought i had a small hernia, upon attending the doctors they told me it was a lymph node, It's been around 2 years now as…
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Dr. Robert O. Hickman 1927-2019
Dr. Hickman, developer of the universally used Hickman catheter, has died at age 92. He retired at least three times, but always felt the call to return and serve. At age 83, and after having retired twice, he placed my first port in July, 2008. Ironically, both of my Hickman catheters were placed by other physicians.…
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Was last on here in 2014, Hi to all the old timers and the new!
Luckily I received an email notification today that I had a message waiting here. I had several as I haven't been posting as I transitioned to closed FaceBook groups for HD repercussions, late effects and Breast Cancer after HL and others. I thought many times I need to update everyone on my exit but never did sadly. It…
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Looking for advice
I’m wondering where I should go from here. Just an FYI-my sibling died at age 37 of NHL. Almost 4 weeks ago, before my 39th birthday, I started getting these weird chest pains. I took myself to the ER for it, as it was burning and alternating sides. I’m female, and thought I was having heart attack symptoms. Then, it…
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Port removal
Awesome news, went for labs yesterday morning, platelets at 50,000 YEAH!!! Came home took Gidget for a long walk, took a nap THEN checked my phone. Nurse coordinator called and left a vm (my phone was on vibrate) and said if I called right away might be able to get my port out today. So I did get it out. They don't give…
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Distractions and detours.
Have been away since Monday on another medical detour. Fresh out of one ER and two hospitals. Over last weekend, began feeling worse. By Monday, much worse. Lethargy. Near zero appetite, rising fever, strong headache and major balance deficit, making walking dangerous. Off we went to the regional ER. They did chest X-ray,…
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Primary refractory Hodgkin's Lymphoma
My boyfriend was 2/3 of the way through AVD (Dropped Bleomycin after the first 2 cycles because it was causing lung toxicity) when a PET scan revealed that the cancer was growing back. Today he's getting a biopsy from nodes near his lung to confirm the Hodgkin's diagnosis before he starts a clinical trial that includes ICE…
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Swollen lymph nodes...Waiting for answers
Hi, I'm new here and would like to hear others' experiences/symtpoms regarding swollen lymph nodes. It all started last September when I felt a swollen lymph node on my left parotid area. I went to the ENT, who thought it was nothing, but still ordered an ultrasound. The ultrasound showed a 1cm lymph node with 2 others…
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Port Removal Delay and Other Stuff
Well, I was scheduled to have my port removed on 3/15, however I caught a nasty little virus from my 7 week old baby grand and ended up with pnuemonia. I was sick for over three weeks and running a low grade fever for the entire time. The port removal can wait but honestly my frustration at getting sick so easily and not…
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Follicular NHL now CLL
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Bendamustine + Rituximab and fever
My first post here. I have Mantle Cell Lymphoma and started B+R chemo 2 weeks ago. The last couple of days I have been fighting high temperatures. Fevers up to 103. Tylonol helps and launches me into a sweat and the fever goes down. My clinic has taken cultures to see if there's any infection, but given that all my blood…
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gas and bloating
Hello, I started feeling gassy ever since i drank barium suphate when doing a CT scan for confirming my hodgkin lymphoma. I continue to feel gassy after chemo started. I also get bloating feeling about 10 days after chemo. My question is has anyone had the same experience? How to avoid the gas and bloating? what diet to…
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Recommendations for Cancer centres in Dallas, TX?
Hi all, I am newly-diagnosed with B-cell lymphoma, doing a PET scan and bone biopsy with further testing to stage it and classify the type. I have been dealing with texas oncology and have only had a limited exposure to them due to the newness of my diagnosis but have not been impressed with their facility. When my primary…
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Double hit non-Hodgkin Diffused large b-cell lymphoma (DH NHDLBL) recovery returns relapse?
Well, after finding and reading through this forum, I've gotta admit it's both refreshing and discouraging all at the same time. The length of the cancer fight some people have gone through is inspiration from the human spirit. Learning that I may "live" like this until death is, well, less than inspiring. I found the…
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Muscle wasting?
I was just diagnosed with stage 1 nhl, only had it in one node, had it removed and will start radiation next week. My ques. is, has anyone noticed muscle loss for some years prior to diagnosis? I was having muscle loss for the past 4 years and had every test and went to 3 specialists thinking I had a muscular dystrophy or…
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New member - FL coming back?
Hi, I´m 53 years old and got diagnosed with Follicular Lymphoma last year. I was in Stage 4, with pleural effusion. I went through R-CHOP that seems the only treatment they know here in Brazil. My hematologist decided to give just 5 cycles, because I responded too well. Now six month later, 2 of my old lymph nodes started…
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Systematic lymphnode enlargement- too small to biopsy
Hi all- I am new to this board and am hoping someone has had a similar occurrence. I am a cervical cancer survivor of 1 year so when my lymphnodes came up I immediately thought the two were connected but the symptoms have since progressed and taken a different turn. Please see my timeline below and I would LOVE to hear if…
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Symptoms
My Dr. believes I have Hodgkins Lymphoma. I've had a biopsy done but they didn't have enough cells to test all the markers. I will be seeing an Oncologist soon. My question is....before you were diagnosed what kind of symptoms did you have?
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Planning to have port removed
When i get through the next 4.5 months of r-chop, that is. I start this part of my journey tomorrow morning. Happens to be my birthday, am looking at this as my present to myself is to get this show on the road. Hoping I will tolerate this chemo like my doc thinks I will. I was hoping to get away with either surveillance…
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Finished my R-CHOP 21, now what?
I finished my R-CHOP 21 (6 treatments) for NHL in my sinus this last Thursday. My initial tumor had caused my right nostril to be completely blocked and loss of smell and taste. After first Chemo treatment I could breath, smell, and taste so I'm thinking things are going well. My initial diagnosis was Stage 1A with no…
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Waldenstrom's Macrobulinemia
IS ANYONE TRYING CURCUMIN, BIOPERINE, EVOO FOR WM AND IS IT HELPING?
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The latest
I know it has been a long while since i posted last, i found an Onc who i really like, makes me feel comfortable and really listens. I am going to have a pet scan to see how active the cancer is and if it has grown any, the new mass is behind my left kidney, near my spine and it fused 2 lymphnodes together, i know weird…
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Anyone Hear From CritterMama Since the Outage?
Hello, I was wondering if anyone has heard from CritterMama since the outage? I want Lori (CritterMama) to know we are still thinking of her and wishing her the best in her treatment. If you see this, Lori, please let us know how you are doing. Take Care.......prayers and hugs are being sent your way. ---Debbie
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Chemo starting this week, suggestions?
I will be starting R-CHOP this week, as soon as port is in place for DLBCL and NLPHL. The typical 6 cycles 21 days apart. I realize that my first treatment will take longer depending on my tolerance of Rituximab et al, was told to expect day to be 5-8 hours in length. What things did you find helpful to have with you to…
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Critter ?
I know someone raised this question a while back, but has anyone heard from Critter Mama ? If someone answered this in the affirmative since that post, I missed it (I don't read every post here). She last logged in on October 27 (2018). I know she had a pending SCT but was also asking about alternatives and that SCT can…
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Biopsy Question
Hey everyone, I just had a biopsy done for a nasty rash that will not resolve over the last 2 weeks. I've seen 5 doctors and had multiple guesses as to what it is with treatments and no resolution yet. I was diagnosed with Stage 1b grade 2 RCC back in November that they do not believe spread. What I am worried about is if…
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I don't have to apologize!!!
Or edit any comments from the last three months! That is huge.
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Hycela Rituxan
i have had so many Rituxan infusions that I finally lost count. Its somewhere in the mid thirties. One week ago I switched from IV to Hycela Rituxan injection under the skin on my stomach. It was extremely fast, painless and easy. I walked away feeling it was a great change. Now not so much. The injection site is painful…