-
Planning to have port removed
When i get through the next 4.5 months of r-chop, that is. I start this part of my journey tomorrow morning. Happens to be my birthday, am looking at this as my present to myself is to get this show on the road. Hoping I will tolerate this chemo like my doc thinks I will. I was hoping to get away with either surveillance…
-
Finished my R-CHOP 21, now what?
I finished my R-CHOP 21 (6 treatments) for NHL in my sinus this last Thursday. My initial tumor had caused my right nostril to be completely blocked and loss of smell and taste. After first Chemo treatment I could breath, smell, and taste so I'm thinking things are going well. My initial diagnosis was Stage 1A with no…
-
Waldenstrom's Macrobulinemia
IS ANYONE TRYING CURCUMIN, BIOPERINE, EVOO FOR WM AND IS IT HELPING?
-
The latest
I know it has been a long while since i posted last, i found an Onc who i really like, makes me feel comfortable and really listens. I am going to have a pet scan to see how active the cancer is and if it has grown any, the new mass is behind my left kidney, near my spine and it fused 2 lymphnodes together, i know weird…
-
Anyone Hear From CritterMama Since the Outage?
Hello, I was wondering if anyone has heard from CritterMama since the outage? I want Lori (CritterMama) to know we are still thinking of her and wishing her the best in her treatment. If you see this, Lori, please let us know how you are doing. Take Care.......prayers and hugs are being sent your way. ---Debbie
-
Chemo starting this week, suggestions?
I will be starting R-CHOP this week, as soon as port is in place for DLBCL and NLPHL. The typical 6 cycles 21 days apart. I realize that my first treatment will take longer depending on my tolerance of Rituximab et al, was told to expect day to be 5-8 hours in length. What things did you find helpful to have with you to…
-
Critter ?
I know someone raised this question a while back, but has anyone heard from Critter Mama ? If someone answered this in the affirmative since that post, I missed it (I don't read every post here). She last logged in on October 27 (2018). I know she had a pending SCT but was also asking about alternatives and that SCT can…
-
Biopsy Question
Hey everyone, I just had a biopsy done for a nasty rash that will not resolve over the last 2 weeks. I've seen 5 doctors and had multiple guesses as to what it is with treatments and no resolution yet. I was diagnosed with Stage 1b grade 2 RCC back in November that they do not believe spread. What I am worried about is if…
-
I don't have to apologize!!!
Or edit any comments from the last three months! That is huge.
-
Hycela Rituxan
i have had so many Rituxan infusions that I finally lost count. Its somewhere in the mid thirties. One week ago I switched from IV to Hycela Rituxan injection under the skin on my stomach. It was extremely fast, painless and easy. I walked away feeling it was a great change. Now not so much. The injection site is painful…
-
I'm dreaming of a white...
...Valentine's day? We had zero snow in 2018. Actually had the blessing of a white Christmas in 2017. But, an hour or so ago, it began snowing here in the pacific northwest. A family friend/former co-worker is scheduled to begina new job tomorrow and it will probably be a snow day! She should go buy a lotto ticket. What…
-
Lymphoma?Next steps?
Hello to all, I am female in my late 20s and I am very worried about my right groin lymph node and lymphoma. About a year and a half ago I started getting random fevers and extreme weight loss, I'm already skinny and eat normally, still have trouble gaining weight. Then, I noticed in my right groin, about a year ago, that…
-
No symptoms
Hello, I am newly diagnosed with follicular (65% of sampled cells) and diffuse large b-cell lymphoma (35% of sampled cells). The sample was provided via a fully excisional lymph node. There is also a medistinal mass. Blood work was all normal except for: calcium in plasma at 10.8% in the comprehensive metabolic panel and…
-
Does anyone know anything about this?
it could be the magic bullet for lymphoma. Israelis suffer a much higher rate of b-cell lymphomas than most others so they are motivated to find a cure. I am checking into trials Via friend in Tel Aviv. http://www.israelnationalnews.com/News/News.aspx/149680 http://vxlbio.com/…
-
Survivor of rare cancer
Hello everyone, 3 years ago I was diagnosed with advanced HIV and several months later, after many tests and biopsies, I was diagnosed with an extremely rare type of lymphoma called Anaplastic Large Cell Lymphom, ALK negative. The overall prevalence of this cancer is around 3%. The prognosis for the ALK negative sub type…
-
Brand new with Follicular Lymphoma - hello!
Just now I found this discussion board and it seems like a good one for me to get involved with. Just had my first pair of chemo infusions (Rituxan and Bendamustine) on Oct 22-23 (first of six expected). Not terribly eventful, other than severe constipation from the anti-nausea meds included with the "pre" meds that were…
-
Port is out
I know I haven't participated much lately. Work has been taking up a lot of my time. Let's just say with some of the tweaking of the visa "rules" our IT staff has lost a number of consultants so their work has to be spread out to the others. Since the group I am senior for is support, we are all affected. I am hands on so…
-
Mantle Cell Lymphoma
My husband has been diagnosed with Mantel Cell non-Hodgkins Lymphoma. I've yet to meet anybody else with this type. Does anybody have any experience with this type?
-
MANTLE CELL LYMPHOMA INDOLENT TYPE
Hi I am 67 years old about 1 1/2 years back i was diagnoised with mantle cell lymphpma. my wbc started at 11 and it is now 24. i do not have any symptoms and i am on wait and watch. i wanted to see if there are any mcl patients who have similar indolent MCL and perhaps learn from their experience. i wanted to find out at…
-
Diagnosed with B cell non-hodgkins lymphoma
Hi everyone - I am 68 year old male living in Central Texas and this is my first post. I was diagnosed Sept. 21 with NHL. I also was diagnosed with non-muscle invasive bladder cancer about 2 years ago and after a couple of TURBT surgeries have had a total of 18 BCG treatments (Immunotherapy) with no recurrence so far.…
-
Marijuana use while on OxyCotin and Fentanyl
Hello All, My father has been diagnosed with Non-Hodgkin Lymphoma just before Memorial Day. He had six weeks of chemotherapy and the results were extrememly positive. Unfortunatly four weeks after the final round the results of his final PET scan came back with the worst results possible. All the cancer has returned and is…
-
Medical Board question
Hi, does anyone know anything about reporting doctors? I know to report a doctor you report him or her to your states medical board, and you can also report them to the better business bureau; but is there anyone else that can hold doctors accountable? Is there no national oversight? I want to report negligence and…
-
Paul Allen
Has anyone heard more details about Paul Allen's (of Microsoft fame) demise to Non-Hodgkin Lymphoma. Apparently he went very fast after having a recurrance. It has struck home for me as I followed him a bit with his oceanic science projects and his various yachts and research vessels.
-
Heart Issues with R-CHOP
I was diagnosed with DLBCNHL back in June. Have been through 5 R-CHOP treatments 3 weeks apart and going for # 6 tomorrow. They plan to follow up with 3 weeks radiation after. I've been able to handle the various side effects fairly well from what I see others going through. Neuropathy in hands and feet, loss of hair,…
-
Gold nanoparticles
does anyone have knowledge of the use of gold nanoparticles to treat b-cell lymphoma? It was touted as a possible treament about 5 years ago but seems to have gone away. google this for a list of articles “ Golden nanoparticle starves cancer”
-
Mediastinoscopy or wait and re-image? - Lymphoma or ?
New member here that is interested in any guidance or advice from folks that have been down this road before. Here goes: I'm a healthy male, non-smoker in my mid to late 40s who has not yet been diagnosed (but not for lack of trying). I'm essentially 'symptom free' now but what brought me in was an acute cough and…
-
Any tips on alternative to MD Anderson?
I plan to go to a major NCI affiliated cancer center this fall for a checkup/PET/2nd opinion. My two daughters live in Texas so MD Anderson comes to mind, killing two birds with one stone so to speak. My concern is that when I went to MD Anderson April 2012 I was extremely unhappy with the experience. I found it to be a…
-
Keeping PICC line after chemo
I will be finishing up Epoch chemo next week, and I mentioned something to my doctor about removing the PICC line once I was done. I was told to keep it in for a "couple of weeks" in case "it's needed." Then I was told it could be used for a PET scan scheduled for a few weeks from now. Having this PICC line danglinig from…
-
Some advice - Follicular Lymphoma as Second Cancer
I have been a member and on the Colorectal forum. Diagnosed Feb 2015 with Stage 3A. Had surgery, Folfox and radiation treatment and reversal of an ileostomy and finished June 2016. Since then had clean CEA bloodwork and positive follow-up appointments. Noticed in Sept 2017, swelling in the corner of my left eye. Short…
-
37 year survivor of Hodgkins with recent tongue fasciculations
I was diagnosed with Hodgkins Disease when I was 20. Received a month of cobalt radiation and 6 months of MOPP chemotherapy. Have had many adverse side effects from the radiation. When I was 38 I was diagnosed with Breast Cancer. When I was 49 I needed an aortic valve replacement. When I was 55 I was diagnosed with…