The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

NHL Stage 4 but not bulky

Ralph2604
Ralph2604 CSN Member Posts: 1
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
I was diagnosed 11/18/02 with SLL and I start the 5th of 6th treatments of Rituxan/Fludarabine in May. Lymphoma was found in 40% of my bone marrow and in my colon. Had a biopsy after 3rd treatment and there were no signs of it in my bone marrow and the lymphoma cells in my colon have "improved". Side effects have been minimal, thank God! I haven't "relaxed" yet and probably won't until my treatments are over. Do you know of anyone in Stage IV with similar diagnosis and what's the longest time that you've heard of someone surviving who had a similar diagnosis as mine?
Like Care

Comments

  • Gail15454
    Gail15454 CSN Member Posts: 2
    #2
    Ralph: I have had Non Hodgkins since 1996- small cell, follicular - stage lV. I have had various treatments including Rituxan. Have had relapses
    but seem to always respond well to treatment. I have had enlarged nodes in the lungs -not the colon. I think there is very good outcome for NHL and hope for the future. I wish you all the best. Please respond with any questions. I am now 55 - I was considered a "young" NHL patient.
    My understanding is that yes these cells spread fast via the lymph node system but they do not bulk up fast. Take care.
    Like Care

Discussion Boards