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Lymphoma (Hodgkin and Non-Hodgkin)

Biopsy questions
Hello all! Due to the location of my tumor (an 8cm anterior mediastinul), my doctors elected to do the PET scan first because the tumor was a little hard to reach. The PET scan confirmed that there was in fact hypermetabolic activity in my little "friend". Does this kind of confirm the fact that it's cancer?? Also, now…
Worried About Lymph Node
Hello, I am 26 years old soon to be 27. About 2 years ago I noticed a small inflamed lump under my arm just below my armpit (a couple of inches below where the hair is), superficial and not able to be seen above the skin. I decided to let it be and not do anything about it, it never grew and only seems to irritate me from…
Chemo and Fitness
Hello, Last week I got diagnossed stage 2a Hodgkins Lymphoma. I got my port put in yesterday (man, it hurts!). I start Chemo Monday, they are predicting 4-6 theropy's. I am a very active person. My Dr. predicts that I will still have energy and beable to work out and stay active just fine. I understand that chemo can…
2nd Biopsy
Hello all, I'm a 32 year old healthy and physically active female. I've had a number of lymph nodes growing along my left collarbone and around my neck since November. I had an excisional biopsy at the beginning of March. The ENT that performed the biopsy was not satisfied with the results of the pathology report and…
Persistent immune deficiency
Hi All, The current string of uncertainty brought about by the CoViD-19 pandemic has put the issue of immune deficiency to the forefront of my mind. I have yet to reach retirement age by a good number of years, haven't been through nearly as many treatments as a number of other posters on this forum (6 R-CHOP + 12 Ritux…
Recovery - expectations?
Greetings, I had a question that was more on the post-treatment side of cancer. My spouse had stage 4 non-Hodgkins and went through 4 months of treatment and is now in remission. We had wonderful care and amazing staff and support during treatment. However post-treatment, as we attempt to reastablish some normalcy, we have…
R-EPOCH if you are over the age of 70?
Hello! Has anyone over the age of 70 on this forum gotten R-EPOCH chemo? My Dad, who is 75, might have the chance to get R-EPOCH chemo. Is it too risky?
just diagnosed
My regular dr. had me get a CT Scan. Showed multiple places of probable lymphoma. Scared!!!! Having PET test tomorrow and was told would not be able to see oncologist until next week. Scared!!!!!
Fatigue
I am 70 years old and I was diagnosed with DLBCNHL back in June 2018. Started 6 rounds of RCHOP and 15 doses of Radiation finishing up by Thanksgiving. I think I was fairly lucky in that I had minimal side effects with just hair loss, tiredness and some Neuropathy. It took awhile to be sure treatment was successful…
Good Luck All
As Coronavirus nips at our heels May the road always rise to meet you May the wind always be at your back Coffee is for closers Lets go eat tacos Verily, verily Lets all go eat tacos
hemolytic anemia with splenic marginal zone lymphoma
Has anyone experienced this? I am, not too bad yet, but it's definitely happening. I read it's a poor prognositic indicator. Onc wants to do a whopping burst of steroid, I'm figuring it'll just come rip roaring back, wondering if maybe a chronic low dose might be better.
COVID-19 effects on cancer patients
I am just wondering if anyone could share how they are dealing with the confusion and disruption in medical care caused by the COVID-19 situation. We represent an at risk group. Since January 2019 I have been in hospital twice for pneumonia so I am a bit concerned. This year I am feeling much better. I had to cancel a trip…
R Chop help
Hello, I’m new to this page as it’s hard for me to reach out. To give some background I was diagnosed in 2006 with follicular non Hodgkin’s lymphoma. I was doing watch and wait until 2018 when a cluster of lymph nodes under my right arm pit got bigger and bigger and I had a lymphoma mass in my left eye socket. I had…
Question about B-cell lymphoma
Helo, i am 38 years old, blood work came back great, no disase, never had the flu, barely catch colds, seems to be i have a good immune system. I have B-cell lymphoma in my right cheeck and its in my right cheek, its kinda huge right now. So i am suppose to take RChop cemo for 3 rounds, one round i was told it should kill…
Possible Lymphoma?
Hello, I was wondering if you guys could help me. I have been dealing with this for months and I have not gotten reassurance at all. Around July 2019, I found an enlarged lymph node on the right side of my neck. I went to get an ultrasound a month later and it all came out normal (even blood work). Months later around…
common lymphoma symptoms
Hi all, My husband has been struggling with a nagging cough since October. In January night sweats and weight loss has started. We have been going to our local physicians office for these symptoms and the Dr. has been basically giving him antibiotics and prednison for the symptoms. Says he thinks he may have developed…
This sums up the life of a cancer patient
RIP John Prine our greatest American poet https://m.youtube.com/watch?v=PnMNBTc1DQU
I feel weird saying this...
My stepdad got diagnosed with lymphoma about a month ago. He started chemo last week. I'm getting help from counselors understanding that my stepdad, mom, brother and sister are all in shock, denial, and can'r process everything. My parents told me to opt out of work, stay home, and wear a mask. Great. Only everyone else…
Interesting oral drug for FL and MZL
https://lymphomanewstoday.com/2020/01/28/tg-therapeutics-seeks-accelerated-fda-approval-umbralisib-marginal-zone-follicular-lymphomas/ I like the thought of not enduring chemo again. This could be real or just a flash in the pan. Time will tell.
Facial flushing on cheeks 3 months after treatments
I am a 71 year old female. Near the end of my treatments for NHL, due to prednison, I had some facial flushing that appeared in the evening and went away the next morning. I completed treatment three months ago and noticed light facial flushing tonight after taking ibuprofen for a muscle strain. Muscle strains have been an…
Newly diagnosed with NLPHL Stage III, considering treatment options
I am still waiting for pathology to fully deliver a confirmation of NLPHL, but my oncologist said that from the tests so far that it is most likely NLPHL. I don’t yet have a reommended treatment plan, but I’m told that the 3 most likely possibilities are R-CHOP, R-CVP, or R-B. I am interested to hear from any that may have…
DLBCL in elbow
Does anyone have any experience with this? Originally Stage 1A and was feeling positive. Just finished 3 x RCHOP and radiation but noticed a lump on my elbow. I'm sure that it was bursitis, which has since gone down considerably but I can still feel a hard lump close to my elbow bone. My original lump was in my groin,…
NLPHL with NHL B cell T cell rich relapse
Well I have looked at the site off and on but have not posted since I received the good news of NED in 2017. Now it is back. I have NLPHL and NHL B cell T cell rich Lymphoma. Got the biopsy results Thursday that in fact both types were back. My Dr is at MD Anderson in Houston and he is going to call me next week with…
Standard protocol for followup?
Hello, Everyone! I'm getting close to 1 year post-Chemo and Rad for DLBCL Stage 1A (just in right sinus;no lymph node involvement). My routine thus far has been port flush every 6 weeks, blood tests and CT scans (face,stn,chest) every 3 months and Doc visits after scan. I had partial remission after chemo and complete…
Preparing for Colonoscopy with Hyponatremia
I did not participate in the recent discussion (Gina) about colonoscopy. I have never had one, but my oncologist has been nagging me about it. I asked my family doctor: "If I had colon cancer, wouldn't it show up on a PET scan"? She replied, "Probably". I asked my oncologist the same question and his reply was: "Not before…
SMZL
Good Morning, I was diagnosed with Splenic Marginal Zone Lymphoma B-cell Non-Hodgins around 2 years ago. I had my spleen removed last June in order to make a true diagnosis of cancer. I know this type of cancer is slow growing and is rare. I was wondering if anyone that has this cancer had a relapse and if any scans or…
Side effects-Rituxan?
I just joined but am not new to NHL. I was Dx in 2005 with follicular NHL stage IVB. I am currently in remission after CVP+R. I am receiving maintenance Rituxan (for almost 3 years now)and my oncologist said that I will have Rituxan until the cancer relapses. I am told that this is a pretty benign treatment as far as side…
watch and wait
does anyone know why we watch and wait before treatment starts?
Duvelisib Drug Trial for Refractory T-Cell Lymphomas
Just thought I would post that my husband started a Phase II Drug Trial yesterday to treat his refractory PTCL-NOS. The Protocol TItle is Phase II Trial of Duvelisib in Combination with Either Romidepsin or Bortezombid in Relapsed/Refractory T-Cell Lymphomas. My husband was diagnosed with prostate cancer in April 2016. The…
3 yrs +
Hello! I'm still here! As most of you know I'm 3 years post auto SCT. I just received the results from yet another CT scan. I now have them every 6 months. My oncologist mentioned changing to every 12 months, but with a blink of my eye we stayed at every 6 months. I think the CT News was good, however there is something…

Lymphoma (Hodgkin and Non-Hodgkin)

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