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Lymphoma (Hodgkin and Non-Hodgkin)

WBC dropping
Has anyone had fluctuations in WBC/platelet count 8 months out?
Primary Breast Lymphoma
Hello, I am 63 and in April found an astonishing large lump in my Breast which was biopsied within 3 days. I had passed a full physical only weeks before and there were no lumps at all, so the thing was fast growing and aggresive. It turned out to be DLBCL, and the PET scan showed several lumps in the breast, no other…
Throat ache and post nasal drip from chemo?
Has anyone had problems with throat ache and post nasal drip after chemotherapy?
DVT during chemo for DLBCL
Placed on eliquis. Off chemo for 8 months - US shows DVT is gone. How long to anticoagulate?
DLBC Lymphoma with out tumor
Question.. Did anyone on here have DLBC without tumors? I am a 57 year old female that was completely blind sided by my diagnosis.I got laid-off from my job in the middle of March because of Co-vid.I had a very active job walking 10,000 steps daily and not working now made me worry about staying active/ not gaining…
LBCNHL Hair loss /R-chop
This is my first post. I haven't navigated around theCSN site enough to find some answers so I'm writing it out.I am still dealing with a lot of shock from friends about myLymphoma, and sometimes I even ask myself "Is this really happening."I finished my 1st chemo 2 weeks ago and was wondering when most people started…
Waldenstrom's and Hearing Loss
Can Waldenstrom's or the treatment there of cause a hearing loss?
Rituxan (Rituximab) Shot?
I'm curious if anyone else had their Rituxin by shot form? In my first three treatments I had it by the oral bag but then was offered the opportunity to get the shot instead. It saved nearly two and a half hours off my Chemo treatment so I said yes within seconds. The thing I didn't know is that it took nearly four or five…
Partial Remission
I'm not cured of my Waldenstrom's or in Full Remission but I am OK with the Partial Remission and feeling pretty good. The Imbruvica that I take daily seems to improve and stabalize my labs. I began this journey in 2007 when dx'd with IGM of 3,500 and started initial treatment with Rituxan. Ihave Peripheral Neuropathy in…
CT scan
just a quick question for all you experts! I am in for my 6 month CT. I've had a lot of them! I've always had to drink the 2 bottles of water with contrast, and also had IV contrast. This time I'm drinking 2 bottles of plain water and having IV contrast. I questioned them and they said the radiologist decides and no longer…
double hit lymphoma
Hello fellow cancer fighters! My Dad was recently diagnosed with double hit lymphoma. Is there anyone here who also has or knows someone who had double hit? Can you please share your experience? What chemo was given? This is new and scary territory. Any thoughts about R-CHOP versus R-EPOCH? Were you successful in curing…
Any alternatives to PET scan?
Hello, hope everyone doing well and healthy, I just have a question to the group about the PET scan, and how many of them been used for a check-up. I had NLPHL back in early 2013 and had 5 PET scans during the treatment to check the progress of the treatment. Then had just blood work and 2 CT scans until 2018, when one of…
Neuropathy Flareup
Can neuropathy flare up? Mine, in my feet, has been very slowly disappearing but recently my right foot has increased. I don't take anything for it.
Fever of Unknown Origin
Hi everyone, I have had a fever since the end of May, as far as I know. I remember one evening getting fever and chills, which is what prompted me to take my temperature with an ear thermometer. I wouldn't know if my fever had started even earlier. My temperature was around 101 - 102 degrees at any point in time over the…
Diagnosed with Diffused large B cell lymphoma
I'm a 58 year old male just diagnosed. Three months ago I was minding my own business and went to my PCP for a regular checkup.he noticed something weird about my heart and pulse and ordered an echocardiogram. They found a dilated ascending aorta and a regurgitant aortic valve. CT scan subsequently confirmed this. After…
osteoblastic lesion
Has anyone had a osteoblastic lesion in their shoulder? Thank you
Autologous stem cell and dropping WBC
So I had my Autologous Stem cell transplant after BEAM and I am still here. My WBC counts were very slowly improving and today the test showed they dropped from 2.9 to 1.7. I am 10 weeks out from the transplant. From 6 weeks to 8 weeks they were unchanged at 2.9 and I mentioned to my Doctor that I was bothered they had not…
Balance
Anyone have issues with balance problems post treatment? My balance has been "off" since I was treated and doesn't seem to be improving.
New diagnosis help :(
Hello all! I'm excited to be apart of this group. My family is doing their absolute best, but it doesn't compare to people actually going through the same thing. A little background on me: I'm a 24 year old female. Two weeks ago I was in the hospital for what I thought was a kidney stone or kidney infection. They did a CT…
NLPHL (mesentery) status & message of appreciation
I wanted to reach out and thank all of you on this discussion board who made my 'experience' with nodular lymphocyte predominant hodgkin lymphoma (mesentery area only) much better than ever expected...Max, ShadyGuy, Jeff148, po18guy, and other very supportive contributors. For the first 18 months after diagnosis (in 2015),…
Biopsy questions
Hello all! Due to the location of my tumor (an 8cm anterior mediastinul), my doctors elected to do the PET scan first because the tumor was a little hard to reach. The PET scan confirmed that there was in fact hypermetabolic activity in my little "friend". Does this kind of confirm the fact that it's cancer?? Also, now…
Worried About Lymph Node
Hello, I am 26 years old soon to be 27. About 2 years ago I noticed a small inflamed lump under my arm just below my armpit (a couple of inches below where the hair is), superficial and not able to be seen above the skin. I decided to let it be and not do anything about it, it never grew and only seems to irritate me from…
Chemo and Fitness
Hello, Last week I got diagnossed stage 2a Hodgkins Lymphoma. I got my port put in yesterday (man, it hurts!). I start Chemo Monday, they are predicting 4-6 theropy's. I am a very active person. My Dr. predicts that I will still have energy and beable to work out and stay active just fine. I understand that chemo can…
2nd Biopsy
Hello all, I'm a 32 year old healthy and physically active female. I've had a number of lymph nodes growing along my left collarbone and around my neck since November. I had an excisional biopsy at the beginning of March. The ENT that performed the biopsy was not satisfied with the results of the pathology report and…
Persistent immune deficiency
Hi All, The current string of uncertainty brought about by the CoViD-19 pandemic has put the issue of immune deficiency to the forefront of my mind. I have yet to reach retirement age by a good number of years, haven't been through nearly as many treatments as a number of other posters on this forum (6 R-CHOP + 12 Ritux…
Recovery - expectations?
Greetings, I had a question that was more on the post-treatment side of cancer. My spouse had stage 4 non-Hodgkins and went through 4 months of treatment and is now in remission. We had wonderful care and amazing staff and support during treatment. However post-treatment, as we attempt to reastablish some normalcy, we have…
R-EPOCH if you are over the age of 70?
Hello! Has anyone over the age of 70 on this forum gotten R-EPOCH chemo? My Dad, who is 75, might have the chance to get R-EPOCH chemo. Is it too risky?
just diagnosed
My regular dr. had me get a CT Scan. Showed multiple places of probable lymphoma. Scared!!!! Having PET test tomorrow and was told would not be able to see oncologist until next week. Scared!!!!!
Fatigue
I am 70 years old and I was diagnosed with DLBCNHL back in June 2018. Started 6 rounds of RCHOP and 15 doses of Radiation finishing up by Thanksgiving. I think I was fairly lucky in that I had minimal side effects with just hair loss, tiredness and some Neuropathy. It took awhile to be sure treatment was successful…
Good Luck All
As Coronavirus nips at our heels May the road always rise to meet you May the wind always be at your back Coffee is for closers Lets go eat tacos Verily, verily Lets all go eat tacos

Lymphoma (Hodgkin and Non-Hodgkin)

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