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Duvelisib Drug Trial for Refractory T-Cell Lymphomas
Just thought I would post that my husband started a Phase II Drug Trial yesterday to treat his refractory PTCL-NOS. The Protocol TItle is Phase II Trial of Duvelisib in Combination with Either Romidepsin or Bortezombid in Relapsed/Refractory T-Cell Lymphomas. My husband was diagnosed with prostate cancer in April 2016. The…
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3 yrs +
Hello! I'm still here! As most of you know I'm 3 years post auto SCT. I just received the results from yet another CT scan. I now have them every 6 months. My oncologist mentioned changing to every 12 months, but with a blink of my eye we stayed at every 6 months. I think the CT News was good, however there is something…
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28 Year Survivor Non-Hodgkins Lymphoma
Today is 28 years I beat the disease it also marks 5 year brain tumor survivor. I just want to know if anyone else is a childhood survivor of this disease. I was first diagnosed in 1985 as a 13 year old kid. I would just like to share my post cancer issues due to the kimo and radiation I endured during my 24 months of…
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My daughter is in remission after Burkitts L. Have some questions
Hello everyone, i am kinda new to this forum stuff. My daughter was diagnosed with Burkitts lymphoma in September 2017 and after 3 long intense months of chemo we got the great news that the cancer cells and tumor she had were dead/dying. She is now 6 and 2 years into remission. We go in for a routine checkup in 3 weeks…
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Relapsed aggressive NHL - Stage 4
My father was diagnosed with stage 2 aggressive NHL in intenstinal region 4 years back, tumor was so large that it blocked the motion in the intestines, so it was removed by surgery. After that he was subjected to 4 cycles of RCHOP chemotherapy and then the PET/CT scan showed complete remission. He was supposed to be given…
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Treatment for NLPHL in abdomen only
I am searching for folks who have been or are being currently treated for nodular lymphocyte predominant Hodgkins lymphoma. Because this exists only in my abdomen (mesentery lining around small intestines), doctors do not recommend radiation therapy (because of the risk of secondary cancers). One doctor recommends R-CHOP,…
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SMZL splenic marginal zone lymphoma
A new thread for this topic. The old 2010 thread is hard to follow.
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Splenic Marginal Zone Lymphoma
I was just recently diagnosed with SMZL and would love to connect with others with the same diagnosis. I am interested to find out the treatment plans-pros and cons, etc.
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splenic marginal zone lymphoma
I'm 44 years old and have recently been diagnosed with splenic marginal zone lymphoma, a form of NHL that is low grade, stage iv. My cancer presents itself in the spleen and bone marrow only. I have been told several forms of treatment for this and because it is rare, I am wondering if anyone out there has this particular…
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TV Personality Dies Rapidly of Undiagnosed NHL
https://www.foxcarolina.com/sports/espn-reporter-edward-aschoff-s-fianc-e-says-non-hodgkin/article_9ed7e5ac-7eaa-5a4c-b960-f47f54c2bd96.html
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Mid-Maintenance Rituxan Reactions
I am being treated with Rituxan-only for relapsed NLPHL, currently one year into maintenance stage after initial weekly infusions (4x). After no reactions at all to Rituxan, I appear to be having reaction issues for the first time, with itching/prickly feeling in random places and general feeling of sickness. PET/CT was…
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Advice for a New Caregiver
My mom was admitted into the ER on her birthday for pneumonia. Three ER visits and two lung drainage later, it turns out it wasn't pneumonia. Yes, cancer sucks but living in the unknown was so much worst. She took to treatment well which I am extremely thankful for, the only issue was her stress level. I know finances has…
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3 weeks since completion of 6r of R-chop DLCBL
I'm now exactly 3 weeks since completing the 6th round of r-chop for stage 4 DLCBL. I'm 46 and was reasonably fit up until diagnosis but have lost some fitness over the past year as main tumor site was affecting exercise (I didn't see a health professional as thought it was a work injury). I'm now trying to build up…
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R-EPOCH
Hi, I'm new to the board and am wondering if anyone else is or has been on R-EPOCH. I have primary mediastinal b-call lymphoma, stage 4, and have had one round of chemo so far. I'm wondering what other people's experiences and side effects have been with this particular chemo regimen.
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The old gray mare ...,
She ain't what she used to be ..... and neither is this forum. What happened? Is everyone suddenly hypersensitive?
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11 years later, terrified of recurrance
Hi Everyone, I'm new here and desperately seeking some support. Life has thrown a curve ball or two and suddenly I find that my anxiety and depression over recurrance are absolutely crushing to the point I can hardly function. I've read some of the conversations here and feel a slight sense of comfort, so I'm really hoping…
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Last Treatment
Hi I'm currently writing this in the hospital during my last planned treaatment. I was diagnosed with stage III NHL six months ago, and the fight was mentally straining but I was fortunate enough to not get the common side effects that my doctors mentioned (nausea, metalic taste, blood infusions required). My treatment has…
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Conjunctiva MALT Lymphoma
I hope this is okay. I thought since I've had trouble finding others with ocular cancer I'd post my story to-date for future readers. At a regular optometrist check up in May I was told I had bad inflammation in my eyes due to allergies. I used steroid drops for three weeks for inflammation. At a follow up visit my left…
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Checking in
Hi all just wanted to let you all know I'm still here reading your post. I had my last Rituxan treatment in August. Those 2 years seem to have flown by. I had my CT last week of head neck face and chest all clear. New scans again in 6 months. So many changes this past year we sold our home (2400 sq ft) in Oct (raised 6…
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Frustration
Hello. So a little about my journey; I'm a 24 year old female who has been healthy, active person up until 3-4 months ago. I started to have drenching night sweats where I would wake up soaked in sweat but not be hot; I didn't think much about them and tossed it to the side. They started to happen more frequently (a couple…
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Increasing pain and lack of mobility
Hi guys. Hoping for some inspiration. I am one year and a couple months out of RCHOP x 6 with MTX X 4 for stage 4 dlbcl. Achieved remission. My issue is the following: My shoulders, knee, both wrists and several other places are in constant pain. I have gone from jogging, hiking, bike riding to just being able to walk with…
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4 Days Post CVP
Hello, My name is Nicole. My 59 year old healthy mother has just had her first round of six CVP cycles. Today is day 4 post her first infusion. There were no complications, discomfort or pain during her session. Her port worked well and she remained in incredibly high spirits. Appetite has not been a concern, nor has her…
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potential new treatment for relapsed DLBCL
https://lymphomanewstoday.com/2019/11/14/fda-fast-track-status-triumviras-t-cell-therapy-tac01-cd19-dlbcl/
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Afraid of reoccurrence
Hi. I've never wrote on a site before. I want someone to talk to and don't want to keep bothering my loved ones with complaints or admit out loud what I am really scared of. I'm 38 now but when I was 20/21 and 29 weeks pregnant I had only 1 swollen clavicle node and abso no other symptoms. I was diagnosed w/ Hodgkins stage…
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Swollen lymph node clavicle
Hi, I'm a new member not new to cancer. diagnosed with fnhl stage 2a and ovarian cancer 3C in 2015. Radiation to abdomen for the fnhl in 2017 I actually just had my onc appt in October. Bloods were good along with CT. a few days ago I noticed swelling (one side) by my clavicle bone. i do have a call into onc but thought…
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Follow Up PET scans
i have not been n here for a few years and it is wonderful to see so many on the “old gang” on here..it has been 4 yrs since treatment with no signs of reoccurrence..I need some advice though. I went with my friend to see her oncologist Friday as she is 7 years past breast cancer, hiking working full time in the woods…
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2019 Seattle T-Cell Lymphoma/Leukemia patient seminar
It's that time of year (once) again. Dr. Andrei Shustov, founder of the T Cell Leukemia Lymphoma Foundation, internationally known T-Cell Leukemia and Lymphoma researcher and clinical specialist, will conduct a free patient education seminar in Seattle on Saturday, December 14th, 2018. It begins at 8:30 Am and runs through…
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hey Po..... just wondering
Are you going to the California Lymphoma Workshop in Redondo Bch this Sat.? I know you do attend many of them? Since it's only a short flight for us, we decided to go. There is a Q&A session if anyone has any pressing ??? Becky
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Organ Donation
I was told that because of my lymphoma I cannot donate organs upon my death. I had been told previously that the corneas were an exception but Virginia says that is not rhe case. Anyone know about this topic? https://www.youtube.com/watch?v=JfBdMXhpQnU Greatest songwriter ofall time. Mark Twain + Shakespeare + Dylan x 10 =…
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Lymphoma Symptoms, Seeing ENT Monday
Hi all. I hope everyone is doing well. I hope this type of post is allowed. About 4 months ago I noticed a swollen node right behind my ear. Went to my doctor who said it was a cyst and not to worry about it. Last week I noticed it had gotten bigger and I had another one behind my other ear. Also one on my neck. Went to…