onc visit

vinny59
vinny59 Member Posts: 1,032
Hello everyone, I have my Onc visit tomorrow, you all know the drill, blood work, port flush. I also will be having my first PET scan scheduled...... dom dom dom!!!! a little nervious to say the least, because I have been feeling lousy the past week, mainly fatigued, I'm at work and I'm ready for bed by 9:00am, I start at 7:00am LMAO....... I know this is probably normal feeling this way, but that little voice in the back of my head keeps saying is it back. When I had head and neck cancer, once they removed the tumor, I had no doubt it was gone. With NHL, it's not the same feeling. Sorry to ramble............. Vinny
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Comments

  • yesyes2
    yesyes2 Member Posts: 591
    Know the feeling well
    Hi Vinny,

    I was just going to post a new thread asking how you were doing. I sure know that feeling of dread you are referring to. Just went through it two weeks ago with my latest CT scan.
    And the very first PET scan after completion of chem is the scariest of all. Just remember your body has been through hell and back and you are still in the recovery phase. You have lots of reasons for feeling fatigued besides cancer. And you went back to work so very soon after treatments.

    I'll be keeping all fingers and toes crossed for you and am looking forward to hearing nothing but good things from you upcoming PET.

    Just remember to take it one day at a time..........so what have you been cooking of late?

    Leslie
  • PA_grandma
    PA_grandma Member Posts: 48
    yesyes2 said:

    Know the feeling well
    Hi Vinny,

    I was just going to post a new thread asking how you were doing. I sure know that feeling of dread you are referring to. Just went through it two weeks ago with my latest CT scan.
    And the very first PET scan after completion of chem is the scariest of all. Just remember your body has been through hell and back and you are still in the recovery phase. You have lots of reasons for feeling fatigued besides cancer. And you went back to work so very soon after treatments.

    I'll be keeping all fingers and toes crossed for you and am looking forward to hearing nothing but good things from you upcoming PET.

    Just remember to take it one day at a time..........so what have you been cooking of late?

    Leslie

    To Vinny and Leslie
    I'm new here, so am just learning what's going on in your lives. My very best wishes to both of you!
    Will be following closely and hope to hear good news.

    Joyce
  • vinny59
    vinny59 Member Posts: 1,032

    To Vinny and Leslie
    I'm new here, so am just learning what's going on in your lives. My very best wishes to both of you!
    Will be following closely and hope to hear good news.

    Joyce

    thanks
    Welcome Joyce,and thank you, great bunch of people on this site! Hey Leslie what's up! thank's for the feed back, as far as cooking... for New year's i made Beef Wellington, Broil Lobster tails, and Twice baked potatoes. Oh with New York style Cheese Cake! all home made of course! hahahahahaha Vinny
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    vinny59 said:

    thanks
    Welcome Joyce,and thank you, great bunch of people on this site! Hey Leslie what's up! thank's for the feed back, as far as cooking... for New year's i made Beef Wellington, Broil Lobster tails, and Twice baked potatoes. Oh with New York style Cheese Cake! all home made of course! hahahahahaha Vinny

    WORRY
    Vinny,
    Try not to worry too much. Its so easy to say I know. Like Leslie was saying youare actually so soon out of treatment and then went back to work. Nothing wrong with wanting to get back to normal again. I know the tired feeling all to well. I amm not really 100% yet and been out over 3 months. Its close but not 100% yet. Those cooking dishes do sound so good. John FNHL-1-4A-5/10 REMISSION
  • vinny59
    vinny59 Member Posts: 1,032
    COBRA666 said:

    WORRY
    Vinny,
    Try not to worry too much. Its so easy to say I know. Like Leslie was saying youare actually so soon out of treatment and then went back to work. Nothing wrong with wanting to get back to normal again. I know the tired feeling all to well. I amm not really 100% yet and been out over 3 months. Its close but not 100% yet. Those cooking dishes do sound so good. John FNHL-1-4A-5/10 REMISSION

    Worry
    Hey John, you know me, it's going to be, what's it's going to be! but I'm feeling like maybe 40%, kinda suck's..... Vinny
  • allmost60
    allmost60 Member Posts: 3,178
    I hear ya buddy!
    Hi Vinny,
    I'm right there with ya! I won't know until the 25th if I'm even in remission, so I know all too well where your thinking is at. We just need to keep the faith, keep a sense of humor and hope for only the best! We will get there Vinny...I just know it! The New Years diner sounded absolutely yummy!!! Keep us posted and so will I..hang in there!
    Love...Sue (FNHL-2-3A-6/10)"WILL BE" in remission!!!!
  • vinny59
    vinny59 Member Posts: 1,032
    allmost60 said:

    I hear ya buddy!
    Hi Vinny,
    I'm right there with ya! I won't know until the 25th if I'm even in remission, so I know all too well where your thinking is at. We just need to keep the faith, keep a sense of humor and hope for only the best! We will get there Vinny...I just know it! The New Years diner sounded absolutely yummy!!! Keep us posted and so will I..hang in there!
    Love...Sue (FNHL-2-3A-6/10)"WILL BE" in remission!!!!

    hi!
    Hey Sue! You will be in remission!!! I will always keep the sense of humor!!!
  • merrywinner
    merrywinner Member Posts: 626
    Right there with ya Vinny!!!
    You took the words right out of my mouth. I am in the same boat. I am tired a lot or I tire easily and that worries me too. I go back for my 3rd CT since remission on the 28Th of this month and I'm anxious about it. They are all scary, my first one was scary, my second one was scarier and now I'm really scared for this one. I think it may be because more time has gone by between each one and I ask myself if I can be lucky yet a third time! Your post just hit home so closely I almost cried. Of course I think positively but there is that part of this process that tells me to be prepared for what may lie ahead. UUGGHHH! I wish you all the best and I'll be thinking about you. Mary
  • miss maggie
    miss maggie Member Posts: 929
    oncologist visit
    Hi Vinnie,

    Your feelings sound so familiar. You have been through so much. Don't beat yourself up. Add to the fact you returned to work. It might take awhile to get back to 100%, but you'll get there. Good luck tomorrow, jan 14.

    Love maggie
  • yesyes2
    yesyes2 Member Posts: 591

    Right there with ya Vinny!!!
    You took the words right out of my mouth. I am in the same boat. I am tired a lot or I tire easily and that worries me too. I go back for my 3rd CT since remission on the 28Th of this month and I'm anxious about it. They are all scary, my first one was scary, my second one was scarier and now I'm really scared for this one. I think it may be because more time has gone by between each one and I ask myself if I can be lucky yet a third time! Your post just hit home so closely I almost cried. Of course I think positively but there is that part of this process that tells me to be prepared for what may lie ahead. UUGGHHH! I wish you all the best and I'll be thinking about you. Mary

    Know how you feel
    Hi Mary,
    Good to hear from you and after reading your post I just felt I had to reply. I'm right there with you, Vinny and everyone else on the rising fear, dread, terror when it's time for my scans. You just express it so much better than I can. The worst is going in to get the results, dry mouth, heart pounding in ears and an inability to say anything near intelligent as I am stealing myself for the worst. I just went through this 2 weeks ago, with good results after needing an ultra sound on a question on CT about my spleen. Even though the Oncs say all is very good I'm still not so sure. I'm tired almost all the time, and I'm not working like you and Vinny are. I also have stomach problems again, like I did both other times. So I fret and my family thinks I'm crazy. We are so lucky to have the CSN family to listen to us and to care.
    Mary, we will be here for you every step of the way. We're the old hands here on the board as finished treatment about the same time. As we both near our one year anniversary there is both happiness at getting through the first year after treatment and also some worry about what will be ahead. All this along with keeping positive. You have been my inspiration as we travel this roller coaster ride called NHL.
    Leslie
  • vinny59
    vinny59 Member Posts: 1,032

    Right there with ya Vinny!!!
    You took the words right out of my mouth. I am in the same boat. I am tired a lot or I tire easily and that worries me too. I go back for my 3rd CT since remission on the 28Th of this month and I'm anxious about it. They are all scary, my first one was scary, my second one was scarier and now I'm really scared for this one. I think it may be because more time has gone by between each one and I ask myself if I can be lucky yet a third time! Your post just hit home so closely I almost cried. Of course I think positively but there is that part of this process that tells me to be prepared for what may lie ahead. UUGGHHH! I wish you all the best and I'll be thinking about you. Mary

    So True!!!
    Hey Mary, I can't agree more, I have a saying that I have stuck to in with dealing with cancer, hope for the best, expect the worst! I have never been disappointed yet!!!!! LMAO
  • vinny59
    vinny59 Member Posts: 1,032

    oncologist visit
    Hi Vinnie,

    Your feelings sound so familiar. You have been through so much. Don't beat yourself up. Add to the fact you returned to work. It might take awhile to get back to 100%, but you'll get there. Good luck tomorrow, jan 14.

    Love maggie

    thanks maggie
    Thanks Maggie, I know everyone on this site has been through this more then once. The doctors at the Univ. of Penn said that I will have a new "normal"...........
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    vinny59 said:

    thanks maggie
    Thanks Maggie, I know everyone on this site has been through this more then once. The doctors at the Univ. of Penn said that I will have a new "normal"...........

    Vinny
    If you didn't feel wierd and confused and tired before the appointment you would not be normal my friend!!

    It'll be ok. The weather is nasty, cold, nasty, snowy, crappy winter. That's why you're tired.....been shoveling?

    Give yourself a break.

    Talk to you soon!
    Beth
  • onlytoday
    onlytoday Member Posts: 609 Member
    dixiegirl said:

    Vinny
    If you didn't feel wierd and confused and tired before the appointment you would not be normal my friend!!

    It'll be ok. The weather is nasty, cold, nasty, snowy, crappy winter. That's why you're tired.....been shoveling?

    Give yourself a break.

    Talk to you soon!
    Beth

    Vinny
    Praying for you today (and every day)! I understand your feelings. Working is a challenge for me as well. I am sure now (hind sight!) that I went back to work too soon. I have now had 3 infections because of it. This latest one (intestinal) is a real challenge. So I'm out of work for a week to get better. Ugh.

    I understand the fatigue too. Maybe because we are trying so hard to be normal we just wear ourselves out. Our bodies are still healing, or trying too. Be kind to yourself and I am praying that is all there is to it and you have a positive Doc appt and negative tests!!

    Your New Years food sounds amazaing. My husband made sauerbraughten (sp) with ginger snap gravy this year for Christmas. Yum.

    Love,
    Donna

    NMZ NHL stage IV 05/10 REMISSION 1/11/11
  • vinny59
    vinny59 Member Posts: 1,032
    onlytoday said:

    Vinny
    Praying for you today (and every day)! I understand your feelings. Working is a challenge for me as well. I am sure now (hind sight!) that I went back to work too soon. I have now had 3 infections because of it. This latest one (intestinal) is a real challenge. So I'm out of work for a week to get better. Ugh.

    I understand the fatigue too. Maybe because we are trying so hard to be normal we just wear ourselves out. Our bodies are still healing, or trying too. Be kind to yourself and I am praying that is all there is to it and you have a positive Doc appt and negative tests!!

    Your New Years food sounds amazaing. My husband made sauerbraughten (sp) with ginger snap gravy this year for Christmas. Yum.

    Love,
    Donna

    NMZ NHL stage IV 05/10 REMISSION 1/11/11

    thanks
    Hey Donna, thanks for the response, you are so right, we strive to be normal to fast!
  • JoanieP
    JoanieP Member Posts: 573
    vinny59 said:

    thanks
    Hey Donna, thanks for the response, you are so right, we strive to be normal to fast!

    thinking of you
    Just said a prayer Vinny for good results. We talked at my cancer support group last night that the fear is always there. LET US KNOW.
  • tcvine
    tcvine Member Posts: 174
    Onc visit
    Hey Vinny,
    Sorry to be a little late in expressing my well-wishes for your onc visit yesterday.
    When do you get results?

    Along with everyone else, you have my very best wishes and I will be looking for your results.

    Tom (DLBCL-Stage 4-7/10-Remission)
  • vinny59
    vinny59 Member Posts: 1,032
    tcvine said:

    Onc visit
    Hey Vinny,
    Sorry to be a little late in expressing my well-wishes for your onc visit yesterday.
    When do you get results?

    Along with everyone else, you have my very best wishes and I will be looking for your results.

    Tom (DLBCL-Stage 4-7/10-Remission)

    hi!
    Hey Tom, I have my PET scan set for Jan. 25, as far as my Onc. visit it went well, my white counts are still on the low side, but better. She wants me to let her know if I have eye pain or headaches, forgot to ask her if that included hangovers! LMAO Vinny
  • truckingalong
    truckingalong Member Posts: 445 Member
    vinny59 said:

    hi!
    Hey Tom, I have my PET scan set for Jan. 25, as far as my Onc. visit it went well, my white counts are still on the low side, but better. She wants me to let her know if I have eye pain or headaches, forgot to ask her if that included hangovers! LMAO Vinny

    Am in the same boat
    Hi, Vinny,

    All this sounds very familiar unfortunately. I am approaching to my final 12th chemo and I am already thinking - oh I am going back to work etc etc. Too much expectations on ourselves - we gotta slow down!! But it is not easy. And then there is fear of the unknown future what will hold for us. Here I feel we can blow the fears away by sharing our thoughts - it is a blessing!

    With positive thoughts,
    Liz
  • miss maggie
    miss maggie Member Posts: 929
    vinny59 said:

    hi!
    Hey Tom, I have my PET scan set for Jan. 25, as far as my Onc. visit it went well, my white counts are still on the low side, but better. She wants me to let her know if I have eye pain or headaches, forgot to ask her if that included hangovers! LMAO Vinny

    LOL
    Good morning Vinnie,

    Great sense of humor. I will be thinking of you jan 25, and your following visit with the oncologist. Love your attitude, good for you. maggie