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Stage 4 PanCan ...any advice/info...
Hi...anyone with PanCan have any info? My dad is getting treated at Sloan in NYC...started on folfurinox...now on GTX. Looking forward to hearing from someone...
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looking for hope for my mom
Hello. my name is heidi and my mother has just been diagnosed with stage 4 cancer. it all started when she sneezed and thought she cracked a rib last month,and a week later they gave her 2 years to live. we are all devastated. She's only 52;( she's the most active,sweet woman. Im not ready to lose my mom. I just wanted to…
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Early Menopause from cancer treatments
Anyone else experiencing early menopause due to their cancer treatment? I'm 38 and am interested in hearing about natural alternatives to hormone therapy for preventing Osteoporosis. 1200-1500 mg of calcium--check Vitamin D--check What are you doing? HRT should be referred to FART because that's all it made me do! And boy…
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Manual Lymphatic Drainage (MLD) Therapy
anyone heard of this type of therapy that is considered alternative medicine for lymphoma patients and is currently available at Spas, like Tucson, but is it recognized or acknowledged in the medical world since it's classified as an alternative medicine?
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port removal
I am getting my chemo port removed (a.k.a. "deportation") on Monday after 2 years of living most intimately with it. Has anyone had this done? What can I expect?
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relocation help needed
Im 55 years old 3x survivor . my wife and i want to relocate to fla we live in maine now i cant get a job been out of work for 3 years im stressed out but i have opps in fla but need help to relocate. is there help for survivors to better there lives and feel whole again. Im a 33 year survivor.
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Adhesions
Good Morning Long-Term Survivors, just wanted to know if anyone is dealing with adhesion pain? The adhesions in the breast are nothing, but the adhesions from the de-bulking surgery are what hurt. I know I should not be complaining. Things could be alot worse. I am trying to get some of the long-term survivors from the…
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Far away friend just diagnosed
Hi everyone, I got a call from my best friend in L.A. (I'm from Portland, OR) telling me she has been diagnosed with breast cancer. She is the first person close to me who has been diagnosed. I want so much to support her, but I'm not sure how since I live so far away. I'm kind of an organizational control freak and it's…
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New to the group
Hello everybody,this year it will be 20 years from dx of breast cancer,in January I was diagnosed with basal cell carcinoma on my face. I have long term side effects from chemo,and still gets afraid when I go for my yearly exams. I am curious if anybody that had chemo suffers of long term side effects.
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Osteosarcoma
Hi Long Terms! Anybody here a long term survivor of Osteosarcoma in the tibia?
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New to the Long-Term-Survivors group
I'm new to CSN as well as your group. I posted on the Head and neck cancers group first, because that was where my cancer was. I was first diagnosed and started treatment in June of 91. Chemotherapy and Radiation to my non-operable squamous cell cancer at the base of the tongue. Probably went through much of what everyone…
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Pacemakers and Testing
Was interested in how many of you have had to have pacemakers implanted due to cardiac issues after treatments? I had to have one implanted in 2005 because of severe atrial fibrulation that some cardiologists say is from heart damage from adriamycin (a chemo drug I had back in the early 90ties). Because of the pacemaker,…
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Looking for Pediatric Cancer Surviviors of All Ages....
Hello Everyone~ My name is Stacie and I am a pediatiric cancer survivior. At 16 I was diagnosed with Rhabdomayosarcoma and was given 6 months to live. Well it is now 17 years later and here I am. I have started this discussion topic because I would like to know your experieinces as a survivior. I was hoping that you would…
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22 year survivor
This could turn out to be the best site I have ever seen/posted to!! I am a 22 year pheochromocytoma survivor. I know, it's rare, and alot of people have never heard of it. I get that alot. However, it is very real!! I am post 6 surgeries to remove tumors, now surgery is no longer an option. Have had right adrenal gland,…
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Survivors of Primary Peritoneal Cancer
Sure would like to hear from someone who has survived PPC for over 5 years. Anyone out there? A few years ago, folks got lumped in with ovarian cancer -- were you one of them and you actually had primary peritoneal cancer? TexanByChoice (I'm also monitor conversations under Peritoneal Cancer)
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Genetically predisposed to cancer
I saw my oncologist recently and she told me she thinks I'm genetically predisposed to cancer as I've just recently been diagnosed with my third different cancer. The silver lining is that they've all been caught early enough. Wondering if any one else has heard this from their onco or any other Dr's? I have consult for…
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New to group-3 rd time with cancer
Hi, I'm new to this group, so glad to have found it! I'm a 37 yr survivor; HD 74, thyroid cancer 2006, just dx'd with breat cancer this year. My question is has any one ever applied for disability because of long term effects of having had cancer? Thanks!
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Things to look forward to...
Things to look forward to... I don't know if I oughta' be posting here or not, since I'm only four years post-DX and surgery, not five. I guess I'm a "survivor" (so far, anyway), since I haven't been abused by cancer for four years (since surgery). They said I would be gone in 3 to 5 years even with chemo, and without,…
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9 Years Today. Hooray !
I am 9 yrs out of a bladder cancer dx and 2 yrs out of a melanoma, stage 0, scare. I sure do appreciate all the beauty of nature, the kindness of strangers, and the warmth of close family and good friends. Life is good and I'm going to try to keep it that way.
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survivor of childhood medulloblastoma
My daughter is a 22 year survivor of medulloblastoma. She had a minor auto accident and when they did a CT scan they said they saw a small pill sized something. I am worried. Could this be nothing?
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Any LTS with cancers due to 25 years after total body radiation
Hi- The past 3 years , I have had thyroid cancer & salivary cancer as well as battleing skin cancer all due to the Total Body Radiation I rec in May 1985 for my Leukemia relapsed ALL) during my Bone Marrow Transplant What a double edged sword - never got leukemia again but so muck more has happenned.. Yes they still do…
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Low Dose Naltrexone and Cancer - please read.
Low Dose Naltrexone is not accepted as "standard of care" for Cancer treatment currently, but patients should be aware that nearly 60% who use LDN do not die from their disease, compared to two or three percent with chemotherapy. I suggest anyone faced with Cancer to try LDN first under either Dr. Burt Berkson or Dr. Terry…
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Coping with Survivor's guilt.....
Any tips that get you thru? Hugs, Kathi
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Long term survivor GBM STAGE IV TODAY IS YEAR AFTER SUGERY BACK IN 2006
Feel like I have been there and done it through the 5 years living with this cancer Temador 6 weeks radiation CPT-11 WITH AVASTIN Bone Marrow sample spinal tap countles labs for blood samples, 2 rounds of Gamma Knife surgery but still here and enjoying life to my fullest capabilities. Yes my left side has shut down. I am…
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Ned Land ?
He's a character in 20,000 Leagues Under the Sea. But I thought it'd be really cool if we all could live on an island called Ned Land. And nobody ever gets kicked off cause nobody gets disease on Ned Land.
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Diet Changes
Hi there... I am a Stage IV Rectal Cancer Survior - not long term yet but that's my goal. I wanted to know your thoughts on changing the diet to beat cancer - such as no white bread or pasta, no sugar, etc. I have heard mixed things about this. Even a doctor told me there is no reason to give us sugar because everything we…
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Guilty
I was married for 26 years. We were happy for most of the time. Than suddenly the world turned around my husband was diagnosed with Chronic Lymphatic Leukemia.He was in the hospital for a few months fighting to stay alive. On top of cancer his kidneys failed. I found the oncologist. Went to appointments with him. Made sure…
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scan time again
hi all i dont post alot but i do lurke.i came to this board even if i am only a 2 year survivor.i just need a place to go and get away from the ones still in treatment for colon cancer.my question to all the long term survivors is...do you ever get over the fear when it comes time to having your yearly testing.i let it get…
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Employment Advice: If you’re a hero, why are you hiding it?
My sister gave me an article from a newspaper about looking for work after surviving cancer. I thought it was worth posting here for other heroes to read. by Eli Amdur Over the last few weeks I spoke with five interesting people who had five things in common. Here are the first four. They are all cancer survivors, they are…
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Well I Guess I am Going To Join The Long Term Survivors Group
Hello, my name is Paula. I have had a Stage I breast cancer 20 years ago, Stage I breast cancer 4 years ago, Stage I breast cancer 3 years ago, and Stage 2 ovarian cancer 2 years ago. All primaries. I mostly hang around on those boards, but 99.9% of those people are in active treatment or have had re-occurances. I am NED…