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Wall Street Journal Article
Hi, There was a good article in the Wall Street Journal today (Dec. 10th) about cancer survivorship clinics and the developing field. It was a relief to hear about cancer centers now addressing the long term effects of treatment for former patients and the general public. Learning about Sloan Kettering in NYC was life…
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a little exercise tip
Hello everyone, my name is maggie and I am from over on the colon board. Six years since colon and two bouts with liver mets but still going. This year I really started to take my yoga classes seriously. I find that I am still feeling under threat from cancer....when it`s time for blood or a scan I get myself into a real…
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Post Chemo patients input needed!
Hi friends! Okay, so I KNOW that as the years go by (7 years out of treatment), I still experience "foggy" forgetful days...ugh, it can be frustrating. I just saw my oncologist who treated me for breast cancer and I tell her that it's really getting hard to concentrate some days and she tells me that they are still…
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Any LT survivors changed ways of living?
I'm not what you'd call a long-term survivor, but getting closer to the 1-1/2 year mark...hooray!!! Curious...did any of you make any big changes to your way of living? Such as foods (organic), grass-fed meats, no red meats, avoid sugars, certain vitamins, physical exercise, avoid household contaminants, etc. This is just…
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Reduce the sugar
After learning about how processed and refined foods are today, I am starting to believe what I've read about cancer causing foods. I'm going back to basics, meat and vegetables. Purchasing foods w/the smallest amount of ingredients aka natural. Too many preservatives, sugars and just plain bad food choices that don't…
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Looking for hope
My dad was dx w/ EC 9/2012. Just told.he now has cancer lesion on hip and spot on spine. Aly long time survivors with bone Mets? Terrified about whats ahead, especially chemo. He did alright the 1st time, it was rough though because.Esphogas was friend from radiation. He pulled through though.
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A Chance to change care to the better! Do you have an idea?
Greetings, co-survivors! Long story short, I had rare neck cancer (synovial sarcoma) when I was 15, now I am 31! Crazy trip that was, huh?.. So, I met this young scientist yesterday, he has been accepted on a team that will design innovative hospital beds! I had some ideas for him, for the better comfort of future…
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Scam trash lying about having cancer for money and else
How to verify if someone has Cancer or just lying? by paulamead on Sun Nov 28, 2010 12:47 PM Quote | Reply OK, I know all about the Hippa law, so this is why I have this question..... My twin brother was supposed to have had stage IV kidney cancer in 1997. This came at the time my husband and our children moved out of…
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23 Year Suvivor Here - ER visit - even more new symptoms and no answers
Sigh. Same old story. New symptoms, heavy duty symptoms, drive to the Emergency room, wait for hours, doctor looks at me like I'm nuts with symptoms, they take xrays and come back with new attitude after seeing them but NO ANSWERS. Finding of these last xrays was NOTHING, as usual, but then why am I having a new horrific…
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Did your Radiation Oncologist tell you that where the radiation hit is now, essentially, 20 yrs olde
Fist time posting here. I recieved my 54th and last treatment of radiation for Hodgkins Disease on April 8th, 1986. So that would be about 27 years ago when I was 25 years old, newly divorced and the mother of two toddlers. I have not had many problems, actually, since the radiation. I did go into menopause about 3 years…
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Colorectal cancer with mets to liver
Would like to know survival years with this cancer. My husband was diagnosed in July 2010 and is now on trial drug. He has had bowel resection and resection of liver, but tumours came back. Surgery not an option.
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Colon Cancer Stage 2b Survivors?? Anybody??
Just wondering how many colon cancer, stage 2B survivors are here? Did you do chemo or no? How long has it been since dx? How are you doing? Thank you!!!
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Inspirarational Quotes
I just got off of the phone with my aunt who is dealing with a rare form of liver cancer, she had just gott some not so great news, to summarize you either go with option 1 and accept death or go with option 2 and fight like hell for a 30-40% chance at getting to a point where surgery is an option. She is having a tough…
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docetaxel feedback
I guess you must have some experience with this drug. What are the dangers, besides the known toxicity? The side effects, any alternative herbals etc that might help potentiate treatment or ameliorate any side effects? Docetaxel is at the top of my sons chemo assay, so it's probably worth taking for at least a few…
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Stage 4 PanCan ...any advice/info...
Hi...anyone with PanCan have any info? My dad is getting treated at Sloan in NYC...started on folfurinox...now on GTX. Looking forward to hearing from someone...
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looking for hope for my mom
Hello. my name is heidi and my mother has just been diagnosed with stage 4 cancer. it all started when she sneezed and thought she cracked a rib last month,and a week later they gave her 2 years to live. we are all devastated. She's only 52;( she's the most active,sweet woman. Im not ready to lose my mom. I just wanted to…
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Early Menopause from cancer treatments
Anyone else experiencing early menopause due to their cancer treatment? I'm 38 and am interested in hearing about natural alternatives to hormone therapy for preventing Osteoporosis. 1200-1500 mg of calcium--check Vitamin D--check What are you doing? HRT should be referred to FART because that's all it made me do! And boy…
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Manual Lymphatic Drainage (MLD) Therapy
anyone heard of this type of therapy that is considered alternative medicine for lymphoma patients and is currently available at Spas, like Tucson, but is it recognized or acknowledged in the medical world since it's classified as an alternative medicine?
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port removal
I am getting my chemo port removed (a.k.a. "deportation") on Monday after 2 years of living most intimately with it. Has anyone had this done? What can I expect?
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relocation help needed
Im 55 years old 3x survivor . my wife and i want to relocate to fla we live in maine now i cant get a job been out of work for 3 years im stressed out but i have opps in fla but need help to relocate. is there help for survivors to better there lives and feel whole again. Im a 33 year survivor.
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Adhesions
Good Morning Long-Term Survivors, just wanted to know if anyone is dealing with adhesion pain? The adhesions in the breast are nothing, but the adhesions from the de-bulking surgery are what hurt. I know I should not be complaining. Things could be alot worse. I am trying to get some of the long-term survivors from the…
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Far away friend just diagnosed
Hi everyone, I got a call from my best friend in L.A. (I'm from Portland, OR) telling me she has been diagnosed with breast cancer. She is the first person close to me who has been diagnosed. I want so much to support her, but I'm not sure how since I live so far away. I'm kind of an organizational control freak and it's…
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New to the group
Hello everybody,this year it will be 20 years from dx of breast cancer,in January I was diagnosed with basal cell carcinoma on my face. I have long term side effects from chemo,and still gets afraid when I go for my yearly exams. I am curious if anybody that had chemo suffers of long term side effects.
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Osteosarcoma
Hi Long Terms! Anybody here a long term survivor of Osteosarcoma in the tibia?
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New to the Long-Term-Survivors group
I'm new to CSN as well as your group. I posted on the Head and neck cancers group first, because that was where my cancer was. I was first diagnosed and started treatment in June of 91. Chemotherapy and Radiation to my non-operable squamous cell cancer at the base of the tongue. Probably went through much of what everyone…
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Pacemakers and Testing
Was interested in how many of you have had to have pacemakers implanted due to cardiac issues after treatments? I had to have one implanted in 2005 because of severe atrial fibrulation that some cardiologists say is from heart damage from adriamycin (a chemo drug I had back in the early 90ties). Because of the pacemaker,…
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Looking for Pediatric Cancer Surviviors of All Ages....
Hello Everyone~ My name is Stacie and I am a pediatiric cancer survivior. At 16 I was diagnosed with Rhabdomayosarcoma and was given 6 months to live. Well it is now 17 years later and here I am. I have started this discussion topic because I would like to know your experieinces as a survivior. I was hoping that you would…
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22 year survivor
This could turn out to be the best site I have ever seen/posted to!! I am a 22 year pheochromocytoma survivor. I know, it's rare, and alot of people have never heard of it. I get that alot. However, it is very real!! I am post 6 surgeries to remove tumors, now surgery is no longer an option. Have had right adrenal gland,…
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Survivors of Primary Peritoneal Cancer
Sure would like to hear from someone who has survived PPC for over 5 years. Anyone out there? A few years ago, folks got lumped in with ovarian cancer -- were you one of them and you actually had primary peritoneal cancer? TexanByChoice (I'm also monitor conversations under Peritoneal Cancer)
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Genetically predisposed to cancer
I saw my oncologist recently and she told me she thinks I'm genetically predisposed to cancer as I've just recently been diagnosed with my third different cancer. The silver lining is that they've all been caught early enough. Wondering if any one else has heard this from their onco or any other Dr's? I have consult for…