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Long-Term Survivors

Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
NPC met to bone
When I first get NPC, I was staged 4b. It was treated with 3 rounds of chemo of cisplatin and 5FU and than 33times imrt with 3 rounds of cisplatin. After the treatment was done, I had a blood test after eight weeks and the ebv dna reading is 337. The doctor say that it may drop a bit more in a month so I did the blood test…
anniversary
Another anniversary. End year 14 still ca free,Cheers Ron,crc stage111c 6/13 nodes.
Diet and Exercise. Did you change it? Work less? What do you think helped you to survive?
I am 18 months NED and of course looking for "the answer". I know there isn't really one but I'm curious to what people have changed in their lives. I have friends who changed diet and didn't make it, I have friends who exercised and didn't make it. I didn't have any friends who did both. I also have friends who changed…
Seeking infomation about Rheumatiod arthritis after non hodgkin's lymphoma
Hello there, my names Mike. I was first diagnosed with Non Hodgkin's Lymphoma in 1994, right after my 21st birthday. Between 1994-2005 I've had 3 rounds of chemo and eventually a stem cell replacement. I've been cancer free ever since!!! My problem is for about the last 10 years I've suffered from horrible joint…
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today and sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a…
Stories and Experiences
Hi everyone, My name is David, and am new to the forums. I recently lost my mom to non-small cell lung cancer. She was diagnosed with Stage IV lung cancer in November 2012 and fought bravely for nearly a year before she passed in September 2013. Needless to say it's been a tough couple of months for the whole family. Going…
Severe Aortic Stenosis Due to Radiation for Childhood Cancer
I am a 35 year cancer survivor looking for other long term childhood cancer survivors who had radiation (to the chest or mantle) and have been diagnosed with severe aortic stenosis (as a long term side affect from the radiation) and need a valave replacement but are considered high risk (due to lung capacity because of…
Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
Any hair loss or thinning issues after being cancer free?
Hi everyone just curious to know if anyone has experienced any issues with hair loss or thinning after treatment that seemed to be out if the blue? I've had tests and so far nothing wrong and no other symptoms. My hair is baby fine and falls out when I wash it or brush it and has been going on a few years. It is easily…
celebrate 50 year survivor
My mom will be a 50 year survivor of cervical cancer in 2012. Additionally, she had breast cancer 12 years ago. She is an amazing 85 year old who looks 10 or 20 years younger than her age. She bowls in 2 leagues and carries an average between 140 and 150. She recently bowled a 537 series. What can I do to publicize this…
Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
NPC and still alive
Like most of you I use to be afraid what if my C comes back but after having NPC 3 times I now just put my life in the hands of my Lord and friend Jesus. My first treatment was in late 2002 to Jan of 2003, then again a second time in Feb 2004. After my second radiation and chemo it just about left me dead but God gave my…
Following long term survivors - why don't they?
I am a 23 year long term survivor of NHL and like another poster on this site I too have had problems with being followed by oncology long after treatments. That old idea that after 5 years you are home free alot of us can attest isn't the case as far as side effects go and for me they have kept me down ever since initial…
Wall Street Journal Article
Hi, There was a good article in the Wall Street Journal today (Dec. 10th) about cancer survivorship clinics and the developing field. It was a relief to hear about cancer centers now addressing the long term effects of treatment for former patients and the general public. Learning about Sloan Kettering in NYC was life…
5-year ACC parotid survivor ---
Well, I've almost made it to my 5-year post op 'all-clear' status....question is....I had NO treatments after surgery, only 1 PET scan.....should my ENT have exercised more options of CT/PET/MRI to finalize my '5-year, all clear' status?
a little exercise tip
Hello everyone, my name is maggie and I am from over on the colon board. Six years since colon and two bouts with liver mets but still going. This year I really started to take my yoga classes seriously. I find that I am still feeling under threat from cancer....when it`s time for blood or a scan I get myself into a real…
Post Chemo patients input needed!
Hi friends! Okay, so I KNOW that as the years go by (7 years out of treatment), I still experience "foggy" forgetful days...ugh, it can be frustrating. I just saw my oncologist who treated me for breast cancer and I tell her that it's really getting hard to concentrate some days and she tells me that they are still…
Any LT survivors changed ways of living?
I'm not what you'd call a long-term survivor, but getting closer to the 1-1/2 year mark...hooray!!! Curious...did any of you make any big changes to your way of living? Such as foods (organic), grass-fed meats, no red meats, avoid sugars, certain vitamins, physical exercise, avoid household contaminants, etc. This is just…
Reduce the sugar
After learning about how processed and refined foods are today, I am starting to believe what I've read about cancer causing foods. I'm going back to basics, meat and vegetables. Purchasing foods w/the smallest amount of ingredients aka natural. Too many preservatives, sugars and just plain bad food choices that don't…
Looking for hope
My dad was dx w/ EC 9/2012. Just told.he now has cancer lesion on hip and spot on spine. Aly long time survivors with bone Mets? Terrified about whats ahead, especially chemo. He did alright the 1st time, it was rough though because.Esphogas was friend from radiation. He pulled through though.
A Chance to change care to the better! Do you have an idea?
Greetings, co-survivors! Long story short, I had rare neck cancer (synovial sarcoma) when I was 15, now I am 31! Crazy trip that was, huh?.. So, I met this young scientist yesterday, he has been accepted on a team that will design innovative hospital beds! I had some ideas for him, for the better comfort of future…
Scam trash lying about having cancer for money and else
How to verify if someone has Cancer or just lying? by paulamead on Sun Nov 28, 2010 12:47 PM Quote | Reply OK, I know all about the Hippa law, so this is why I have this question..... My twin brother was supposed to have had stage IV kidney cancer in 1997. This came at the time my husband and our children moved out of…
23 Year Suvivor Here - ER visit - even more new symptoms and no answers
Sigh. Same old story. New symptoms, heavy duty symptoms, drive to the Emergency room, wait for hours, doctor looks at me like I'm nuts with symptoms, they take xrays and come back with new attitude after seeing them but NO ANSWERS. Finding of these last xrays was NOTHING, as usual, but then why am I having a new horrific…
Did your Radiation Oncologist tell you that where the radiation hit is now, essentially, 20 yrs olde
Fist time posting here. I recieved my 54th and last treatment of radiation for Hodgkins Disease on April 8th, 1986. So that would be about 27 years ago when I was 25 years old, newly divorced and the mother of two toddlers. I have not had many problems, actually, since the radiation. I did go into menopause about 3 years…
Colorectal cancer with mets to liver
Would like to know survival years with this cancer. My husband was diagnosed in July 2010 and is now on trial drug. He has had bowel resection and resection of liver, but tumours came back. Surgery not an option.
Colon Cancer Stage 2b Survivors?? Anybody??
Just wondering how many colon cancer, stage 2B survivors are here? Did you do chemo or no? How long has it been since dx? How are you doing? Thank you!!!
Inspirarational Quotes
I just got off of the phone with my aunt who is dealing with a rare form of liver cancer, she had just gott some not so great news, to summarize you either go with option 1 and accept death or go with option 2 and fight like hell for a 30-40% chance at getting to a point where surgery is an option. She is having a tough…
docetaxel feedback
I guess you must have some experience with this drug. What are the dangers, besides the known toxicity? The side effects, any alternative herbals etc that might help potentiate treatment or ameliorate any side effects? Docetaxel is at the top of my sons chemo assay, so it's probably worth taking for at least a few…

Long-Term Survivors

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