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Long-Term Survivors

Experiences to share with new patients
Hello everyone, as people who have dealt with cancer over the years, we can perhaps share our experiences and tips to others who might benefit from our stories
25 years cancer free but now....?
Hi all, I am a 56-yr-old male and this goes out to all cancer survivors. I had Hodgkin's lymphoma in the late 80s/early 90s, with surgery, radiation and chemo treatments. Then I was in remission/cure for 25 years. Last year, on the actual month of my 25th anniversary of being cancer free, a scan being done for something…
When people are not being supportive
I don't think my spouse is really suited to support me in my fight against cancer. It has been mostly me supporting her, and I have grown weary of it. It is like she is the one with cancer, but she is healthy as can be. I have taken care of everything for her financially. At this point I need to spend my money on myself…
Long-Term Survival and PTSD/Depression
Hi fellow survivors. We are a lucky bunch. I feel lucky. In 2010 I was diagnosed with a violently aggressive Diffuse Large B-Cell Non-Hodgkins Lymphoma, went through dose-dense chemo, radiation and other madness. And I survived. I have no fear of it ever coming back. And... I'm not angry or sad that I got sick. I am…
Multiple cancer diagnosis
Hello to all, I am a 51 yr old male that has just recently been diagnosed with a 3rd cancer. Had testicular in 1998, then diagnosed with CML in 2015 and recently adenocarcinoma in April 2021. I am curious if my situation is rare or common with the multiple diagnosis in one individual. Any info or comments is appreciated…
Stage 3 and 4 diagnosis
I'm a uterine stage 3C cancer survivor, approaching my 2-year marker post treatments. As my little mind starts churning on "will it come back or won't it", I thought I'd ask the LT Survivors a few questions. What type of cancer, stage were you, did you have any recurrences, time frame from diagnosis and today and how are…
Diet and lifestyle that definitely helped healing during treatment
Hello all, First, sorry for my English, English is only my second language. I want to share with you our experience with breast cancer (and I truly hope it helps with most cancers). More than ever, after this experience, I know that cancer (like most disease), is the result of an imbalance in personal or family life,…
The maze of disability insurance, Social Security and other insurance, can anyone shed some light?
I was diagnoised with NSCLC in January and stopped working the day before my left lung was removed (March 31'st). I am fortunate in that my employer has very good short and long term disability insurance, and thus far I have only lost a small portion of my income. I run out of short term disability on July 1st but will not…
Covid-19
Hi all, I was wondering if any of you long times survivors were unlucky enough to catch the Coronavirus and how you coped with it?
Long term side effects
Hello! 18 years ago I was diagnosed with and underwent treatment for Hodgkins Disease (chemo and radiation). I am so honored to be a survivor! Now, almost 20 years later I am having some major health issues and the more research I do, I seem to find that there are some long-term side effects to having had cancer…
anyone had cataract removal after total body radiation and now have 24/7 eyepain? Stories about lasi
I am a 30 year survivor and even back then I was told that down the road I will have early arthritis from the total body radiation I had during my autologus bone marrow transplant plus will have to have early cataracts removed too. I had a lot more side effects than just those too but of course who would have thought I…
Cancer Treatment of America Centers
Has anyone been and is it worth it? Steps to getting there?
Andenocarcinoma mucinous stage 4 survivors
Is there anyone! I have a rare urachal cancer that spread to bladder dome, ovaries, peritoneal wall and upper and lower omentum. All visible cancer is removed with cytoreduction hipec. Scared! I will have follow up chemo to stomach. Is anyone experienced this cancer cell?
I was wondering if any one has a chemo port line
Hi I have a chemo port line from cancer I had before as I said my doctors have no information on it and my records are unrecoverable to to coma and my identiy being changed. Well I think I am having complications from it I am having chest pains especially when I am mesing with it. Its like my heart is having a hard time…
last posted in 2014 but back to check in
Luckily I received an email notification today that I had a message waiting here. I had several as I haven't been posting as I transitioned to closed FaceBook groups for HD repercussions, late effects and Breast Cancer after HL and others. I thought many times I need to update everyone on my exit but never did sadly. It…
BREAST CANCER SURVIVOR/BRCA TEST
Would like some input on what others have done in regard to genetic testing. Has anybody, especially those diagnosed more than 10 years ago, decided NOT to have the BRCA testing done? A little background on me: I was diagnosed in 2005 with stage 1 breast cancer, had chemo and radiation. No other breast cancer in my family…
Throat Cancer
I am recently diagnosed with Throat cancer at age 85. Squamous Cell Carcinoma , starting at base of tongue. Probably stage 3. Will see Medical Onocologist and Radiation Onocologist next week 2-6-2019 to discuss my treatmentt options, if I choose to have treatments. I have read that Radiation treatment is brutal and also…
Cervical Cancer Survivor
I am a 17 year survivor and I would like to find others to discuss the side effects. I need to know if what I am going through is the same with others.
Anyone had Cataract Removal Surgery? I'd love to hear your experience
Hello, I recently had cataract removal surgery due to exposure to TBI and cyclosporine from a bone marrown transplant to treat ALL. So, my right eye went smoothly, no real issues. But my left eye lens ended up having to be repositioned (another surgery) and I was told that radiation exposure (although TBI is quite minimal)…
Tongue cancer
Newly diagnosed. Was hoping for some positive stories.
Living with cancer as a chronic condition
I am a breast cancer survivor and recently leaned that I have some cancerous lymph nodes and a small malignant sacral lession that are believed to be a metastatic recurrance of breast cancer. My onlcologist says it is very unlikely that this recurrance can be cured, but she is fairly optimistic that it can be controlled…
whole brain irradiation
Hi, My son is a survivor. He got leukemia when he was 5 years, in 2001. He had whole brain irradiation, high risk chemotherapy and, when he had a relapse of the disease he got a bone marrow transplantation. In total he got a high amount of irradiation to the whole brain - 36 Gy. Now he has difficulties in memory, finding…
Breast Cancer 24 years
I had Stage 3A breast cancer in February 1987. I had a 22 year remission and then had a recurrence (confirmed by biopsy) of the same original breast cancer--metastasized to my ribs. That was 2 years ago. I am doing well now on arimidex and zometa. But still fighting.
I have just completed
My second deacade of survival from stagec colon cancer. I was operated on 22/01/1998. My surgeon told me I would not survive any longer than three years because of the etreme aggression of the cancer. Itold him i don't die from cancer. He laughed, wished me well but suggested if there was stuff I wanted to do get it done…
Results of whold brain radiation
Looking for results of whole brain radiation. I have been told I need this.
Looking for LTS support groups in South Jersey/Philly Area
Hello everyone, My name is Matthew. I am 38 years old and a survivor of ALL Leukemia and Non-Hodgkin's lymphoma, dx'd when I was 5 and in remission since age 8. I also contracted Hepatitis-C via transfusions (though I am doing well with that, and about to begin treatment--something I have been dreaming of for more than a…
Untreated stress - source of relapse?
Hi! I am looking for an advanced psycho-oncologist. Inspired by ideas of Simontons, Siegel, Leshan, but they are no longer personaly available. Any ideas if it worth to try? Or names of other experts?
Multiple unrelated cancers
Does anyone know of any studies being done on multiple unrelated cancers? I have had renal cell (2001), bladder (2015), lung non small cell (2015) and liver small cell (2016). I also lost a brother, at the age of 30, 20 years ago to multiple myeloma, a sister had breast cancer 6 years ago and my mother had lung cancer,…
Blood Cancer - Polycthemia Vera
Hello everyone, I'm new here. I was just diagnosed with this blood cancer, polycthemia vera, April 2017. It's a rare cancer where your bone marrow makes too many red blood cells, platelets & sometimes white blood cells that causes your blood to get really thick which can cause blood clots, stroke, or a heart attack. This…
apricot kernels
is apricot kenels really work on cancer??? recently any one has tried??? yes then plz reply me

Long-Term Survivors

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