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Long-Term Survivors

BREAST CANCER SURVIVOR/BRCA TEST
Would like some input on what others have done in regard to genetic testing. Has anybody, especially those diagnosed more than 10 years ago, decided NOT to have the BRCA testing done? A little background on me: I was diagnosed in 2005 with stage 1 breast cancer, had chemo and radiation. No other breast cancer in my family…
Throat Cancer
I am recently diagnosed with Throat cancer at age 85. Squamous Cell Carcinoma , starting at base of tongue. Probably stage 3. Will see Medical Onocologist and Radiation Onocologist next week 2-6-2019 to discuss my treatmentt options, if I choose to have treatments. I have read that Radiation treatment is brutal and also…
Cervical Cancer Survivor
I am a 17 year survivor and I would like to find others to discuss the side effects. I need to know if what I am going through is the same with others.
Anyone had Cataract Removal Surgery? I'd love to hear your experience
Hello, I recently had cataract removal surgery due to exposure to TBI and cyclosporine from a bone marrown transplant to treat ALL. So, my right eye went smoothly, no real issues. But my left eye lens ended up having to be repositioned (another surgery) and I was told that radiation exposure (although TBI is quite minimal)…
Tongue cancer
Newly diagnosed. Was hoping for some positive stories.
Living with cancer as a chronic condition
I am a breast cancer survivor and recently leaned that I have some cancerous lymph nodes and a small malignant sacral lession that are believed to be a metastatic recurrance of breast cancer. My onlcologist says it is very unlikely that this recurrance can be cured, but she is fairly optimistic that it can be controlled…
whole brain irradiation
Hi, My son is a survivor. He got leukemia when he was 5 years, in 2001. He had whole brain irradiation, high risk chemotherapy and, when he had a relapse of the disease he got a bone marrow transplantation. In total he got a high amount of irradiation to the whole brain - 36 Gy. Now he has difficulties in memory, finding…
Breast Cancer 24 years
I had Stage 3A breast cancer in February 1987. I had a 22 year remission and then had a recurrence (confirmed by biopsy) of the same original breast cancer--metastasized to my ribs. That was 2 years ago. I am doing well now on arimidex and zometa. But still fighting.
I have just completed
My second deacade of survival from stagec colon cancer. I was operated on 22/01/1998. My surgeon told me I would not survive any longer than three years because of the etreme aggression of the cancer. Itold him i don't die from cancer. He laughed, wished me well but suggested if there was stuff I wanted to do get it done…
Results of whold brain radiation
Looking for results of whole brain radiation. I have been told I need this.
Looking for LTS support groups in South Jersey/Philly Area
Hello everyone, My name is Matthew. I am 38 years old and a survivor of ALL Leukemia and Non-Hodgkin's lymphoma, dx'd when I was 5 and in remission since age 8. I also contracted Hepatitis-C via transfusions (though I am doing well with that, and about to begin treatment--something I have been dreaming of for more than a…
Untreated stress - source of relapse?
Hi! I am looking for an advanced psycho-oncologist. Inspired by ideas of Simontons, Siegel, Leshan, but they are no longer personaly available. Any ideas if it worth to try? Or names of other experts?
Multiple unrelated cancers
Does anyone know of any studies being done on multiple unrelated cancers? I have had renal cell (2001), bladder (2015), lung non small cell (2015) and liver small cell (2016). I also lost a brother, at the age of 30, 20 years ago to multiple myeloma, a sister had breast cancer 6 years ago and my mother had lung cancer,…
Blood Cancer - Polycthemia Vera
Hello everyone, I'm new here. I was just diagnosed with this blood cancer, polycthemia vera, April 2017. It's a rare cancer where your bone marrow makes too many red blood cells, platelets & sometimes white blood cells that causes your blood to get really thick which can cause blood clots, stroke, or a heart attack. This…
apricot kernels
is apricot kenels really work on cancer??? recently any one has tried??? yes then plz reply me
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
Any Survivors in Los Angeles area??
Hello! I have a dear friend that is battling stage 4 cervical cancer for the third time and it has just spread. She is young and vibrant and an overall amazing human being. She hasn't left the hospital in over a month and is feeling down and losing hope. Are there any Survivors on here in the Los Angeles area that would be…
ALL CANCER: New Diagnosis
I hope this is appropriate to post! I just shared this on my FB for family and friends. I have now had breast cancer # 36yrs, thyroid cancer at 38 (and met surgery 2x) brain cancer at 44 in 2005 and just had my 2nd craniotomy a few weeks ago....I found this very wise. I am an RN and always advocate for myself...BUT I know…
Introduction
I've been posting enough since I discovered (or, apparently, re-discovered) this site, and it's time I introduce myself. In Jan, 2006, I was diagnosed with testicular cancer. I had been coughing a lot, but back then, my allergies normally caused severe coughing starting around November, right when mine started, so I…
Have any of you long term survivors developed painful spots on your legs/hips?
I was diagnosed with fibromyalgia awhile ago but this painful spot thing is new and more painful than the overall fibro. I have two spots like this on my right leg and one especially up on the outer side of my hip that took me to the ER recently. It's not in the bone it seems to be in the flesh. It' so painful it makes my…
Daily pain from radiation burns for over one year
I have been having daily severe burning sensations from radiation I had over a year ago on my mastectomy area and arm. I have tried acupuncture, herbs, stem cell injections, and now hyperbaric oxygen. There seems to be little knowledge of this type of radiation damage, how it is measured and treated and I am desparately…
Social Security Disability
Hi, everyone. I have some questions and concerns regarding Social Security Disability, and I'd like to know if anyone else shares these concerns. First, I keep hearing that in 2017, benefits will be cut by 20% unless Congress does something to prevent that from happening. If that happens, assuming NO prices go up, I'll be…
Skincare and Beauty Products
Wishing I could be part of your ELITE group, as out of treatments only 1-1/2 yrs. Since you all are my "vision group", I'd appreciate some help on this subject. If anyone has answers and/or recommendations, surely you do ----- members of this special group. I've been so adamant researching on the foods I put in my mouth…
Story no Longer Available
Hello everyone
Hi everyone, My name is Liv and I am pretty new to this site. I was diagnosed with breast cancer a few years ago and had both chemo and radiation. I think the hardest part for me was to deal with the social and emotional side of the cancer recovery. Inspirational sites…
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
Two survivor households?
Just wondered if there are any survivors in a relationship with another cancer survivor? I had WT when I was very young. Five years ago my husband had thyroid cancer. I don't know if having survived it meant I was less scared or more scared for him, but I was pretty darn scared!
Finding a doctor for follow up care
Hello. I was dx WT at age 3 in remission for more than 30 years. I knew I had some lingering problems due to the cancer and treatment. Other problems I've discovered one at a time. As I get older I'd like to avoid more Cancer Surprises or at least be prepared for them. So I'm looking for a doctor who focuses on treatment…
Why won't Doctor address my Pain issues
It has been 2 years cancer free and for some reason My doctors seem reluctant to provide me with pain meds or even address my joint and muscle pain. Can anyone give me any advice on this subject. How does one obtain the proper pain meds without coming off as a drug seeking freak? Has anyone experienced thi type of behavior.
Finding Employment After SSDI & 17 Years Of Being a Stay At Home Mom in NJ
I am cancer free after being treated for stage 4 colon cancer for many years. Prior to diagnosis I was, & still am, a stay at home mom. My life always seems to erupt all at once, so to keep things consistent my marriage of 25 years just ended in divorce this month, my house is about to be sold with very little equity left…

Long-Term Survivors

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