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Diet and lifestyle that definitely helped healing during treatment
Hello all, First, sorry for my English, English is only my second language. I want to share with you our experience with breast cancer (and I truly hope it helps with most cancers). More than ever, after this experience, I know that cancer (like most disease), is the result of an imbalance in personal or family life,…
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The maze of disability insurance, Social Security and other insurance, can anyone shed some light?
I was diagnoised with NSCLC in January and stopped working the day before my left lung was removed (March 31'st). I am fortunate in that my employer has very good short and long term disability insurance, and thus far I have only lost a small portion of my income. I run out of short term disability on July 1st but will not…
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Covid-19
Hi all, I was wondering if any of you long times survivors were unlucky enough to catch the Coronavirus and how you coped with it?
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Long term side effects
Hello! 18 years ago I was diagnosed with and underwent treatment for Hodgkins Disease (chemo and radiation). I am so honored to be a survivor! Now, almost 20 years later I am having some major health issues and the more research I do, I seem to find that there are some long-term side effects to having had cancer…
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anyone had cataract removal after total body radiation and now have 24/7 eyepain? Stories about lasi
I am a 30 year survivor and even back then I was told that down the road I will have early arthritis from the total body radiation I had during my autologus bone marrow transplant plus will have to have early cataracts removed too. I had a lot more side effects than just those too but of course who would have thought I…
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Cancer Treatment of America Centers
Has anyone been and is it worth it? Steps to getting there?
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Andenocarcinoma mucinous stage 4 survivors
Is there anyone! I have a rare urachal cancer that spread to bladder dome, ovaries, peritoneal wall and upper and lower omentum. All visible cancer is removed with cytoreduction hipec. Scared! I will have follow up chemo to stomach. Is anyone experienced this cancer cell?
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I was wondering if any one has a chemo port line
Hi I have a chemo port line from cancer I had before as I said my doctors have no information on it and my records are unrecoverable to to coma and my identiy being changed. Well I think I am having complications from it I am having chest pains especially when I am mesing with it. Its like my heart is having a hard time…
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last posted in 2014 but back to check in
Luckily I received an email notification today that I had a message waiting here. I had several as I haven't been posting as I transitioned to closed FaceBook groups for HD repercussions, late effects and Breast Cancer after HL and others. I thought many times I need to update everyone on my exit but never did sadly. It…
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BREAST CANCER SURVIVOR/BRCA TEST
Would like some input on what others have done in regard to genetic testing. Has anybody, especially those diagnosed more than 10 years ago, decided NOT to have the BRCA testing done? A little background on me: I was diagnosed in 2005 with stage 1 breast cancer, had chemo and radiation. No other breast cancer in my family…
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Throat Cancer
I am recently diagnosed with Throat cancer at age 85. Squamous Cell Carcinoma , starting at base of tongue. Probably stage 3. Will see Medical Onocologist and Radiation Onocologist next week 2-6-2019 to discuss my treatmentt options, if I choose to have treatments. I have read that Radiation treatment is brutal and also…
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Cervical Cancer Survivor
I am a 17 year survivor and I would like to find others to discuss the side effects. I need to know if what I am going through is the same with others.
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Anyone had Cataract Removal Surgery? I'd love to hear your experience
Hello, I recently had cataract removal surgery due to exposure to TBI and cyclosporine from a bone marrown transplant to treat ALL. So, my right eye went smoothly, no real issues. But my left eye lens ended up having to be repositioned (another surgery) and I was told that radiation exposure (although TBI is quite minimal)…
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Tongue cancer
Newly diagnosed. Was hoping for some positive stories.
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Living with cancer as a chronic condition
I am a breast cancer survivor and recently leaned that I have some cancerous lymph nodes and a small malignant sacral lession that are believed to be a metastatic recurrance of breast cancer. My onlcologist says it is very unlikely that this recurrance can be cured, but she is fairly optimistic that it can be controlled…
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whole brain irradiation
Hi, My son is a survivor. He got leukemia when he was 5 years, in 2001. He had whole brain irradiation, high risk chemotherapy and, when he had a relapse of the disease he got a bone marrow transplantation. In total he got a high amount of irradiation to the whole brain - 36 Gy. Now he has difficulties in memory, finding…
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Breast Cancer 24 years
I had Stage 3A breast cancer in February 1987. I had a 22 year remission and then had a recurrence (confirmed by biopsy) of the same original breast cancer--metastasized to my ribs. That was 2 years ago. I am doing well now on arimidex and zometa. But still fighting.
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I have just completed
My second deacade of survival from stagec colon cancer. I was operated on 22/01/1998. My surgeon told me I would not survive any longer than three years because of the etreme aggression of the cancer. Itold him i don't die from cancer. He laughed, wished me well but suggested if there was stuff I wanted to do get it done…
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Results of whold brain radiation
Looking for results of whole brain radiation. I have been told I need this.
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Looking for LTS support groups in South Jersey/Philly Area
Hello everyone, My name is Matthew. I am 38 years old and a survivor of ALL Leukemia and Non-Hodgkin's lymphoma, dx'd when I was 5 and in remission since age 8. I also contracted Hepatitis-C via transfusions (though I am doing well with that, and about to begin treatment--something I have been dreaming of for more than a…
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Untreated stress - source of relapse?
Hi! I am looking for an advanced psycho-oncologist. Inspired by ideas of Simontons, Siegel, Leshan, but they are no longer personaly available. Any ideas if it worth to try? Or names of other experts?
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Multiple unrelated cancers
Does anyone know of any studies being done on multiple unrelated cancers? I have had renal cell (2001), bladder (2015), lung non small cell (2015) and liver small cell (2016). I also lost a brother, at the age of 30, 20 years ago to multiple myeloma, a sister had breast cancer 6 years ago and my mother had lung cancer,…
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Blood Cancer - Polycthemia Vera
Hello everyone, I'm new here. I was just diagnosed with this blood cancer, polycthemia vera, April 2017. It's a rare cancer where your bone marrow makes too many red blood cells, platelets & sometimes white blood cells that causes your blood to get really thick which can cause blood clots, stroke, or a heart attack. This…
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apricot kernels
is apricot kenels really work on cancer??? recently any one has tried??? yes then plz reply me
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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Any Survivors in Los Angeles area??
Hello! I have a dear friend that is battling stage 4 cervical cancer for the third time and it has just spread. She is young and vibrant and an overall amazing human being. She hasn't left the hospital in over a month and is feeling down and losing hope. Are there any Survivors on here in the Los Angeles area that would be…
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ALL CANCER: New Diagnosis
I hope this is appropriate to post! I just shared this on my FB for family and friends. I have now had breast cancer # 36yrs, thyroid cancer at 38 (and met surgery 2x) brain cancer at 44 in 2005 and just had my 2nd craniotomy a few weeks ago....I found this very wise. I am an RN and always advocate for myself...BUT I know…
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Introduction
I've been posting enough since I discovered (or, apparently, re-discovered) this site, and it's time I introduce myself. In Jan, 2006, I was diagnosed with testicular cancer. I had been coughing a lot, but back then, my allergies normally caused severe coughing starting around November, right when mine started, so I…
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Have any of you long term survivors developed painful spots on your legs/hips?
I was diagnosed with fibromyalgia awhile ago but this painful spot thing is new and more painful than the overall fibro. I have two spots like this on my right leg and one especially up on the outer side of my hip that took me to the ER recently. It's not in the bone it seems to be in the flesh. It' so painful it makes my…
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Daily pain from radiation burns for over one year
I have been having daily severe burning sensations from radiation I had over a year ago on my mastectomy area and arm. I have tried acupuncture, herbs, stem cell injections, and now hyperbaric oxygen. There seems to be little knowledge of this type of radiation damage, how it is measured and treated and I am desparately…