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Long Term Effects of Chemotherapy
When a new drug or procedure comes out and the people writing the report or article then badmouth the previous drug or procedure in explaining it. However, when this happens, it is usually possible to get very interesting information on company's products from various company websites. They are competitors of course. Taxol…
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Joint/muscle pain-numbness
I've just completed 6 months of carboplatin/taxotere and while taking the chemo the onc also had me on steroids. Now that it's been 4 weeks since my last chemo treatment I'm suddenly having severe joint pain/muscle tenderness and the outside of my right leg (upper thigh) goes numb to the touch. I have some small numbness…
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scar
I have many scars on my body due to treatment and I am wondering how you all come to terms with it. Sometimes I feel that family members do not want to talk about the scars once you're in remission as they feel that the battle with cancer is over and done with, and that you should move on with life. It helps to share. Just…
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Cognitive losses--please help!
My mom (only 54 years old) has Primary Central Nervous System Lymphoma. She has undergone various chemo treatments for over three years. Now, there is no sign of the tumor, but she is suffering great losses due to the treatment. In the last 6 months my mom's congnitive abilities have drastically declined. She has…
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Inability to walk. and talk plainly. Mentation good.
Has anyone experienced trouble walking, balancing and speaking after receiving the drug Cytarabine? We were told it would pass but it has not. I am caretaker for my husband who requires 24 hr help..mainly because of his poor balance. It has been since May 2009 since he had his last Chemo. Also has anyone heard about a…
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Steriods
Has anyone been on steriods too long. I have been on them for months now and everytime I try to wean off I get some crazy side effect and have to start all over. Any info would be great.
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HELP;Finding an Appetite for mother.
My mother has no appetite; It's from the treatment?; &*She's not eatingggg, She would take a few bites of something; but than thats all. Shes been trying the [GMC] drinks she's been forcing those down; Only just recently to end up throwing up for the first time probably because of how the milk might of upsetted her empty…
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Fever
My sister was treated with 12 weeks of chemo (every 2 weeks) then followed up with 12 more weeks. She has been running a fever for 3 weeks now (less 3 days) and is hospitalized. All tests for infection are negative. This happened before at the end of her first 12 week chemo treatment. She is now so weak she can't walk, is…
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heart problem related to chemotherapy
Does anyone else have heart related problems for taking adriamycin? I just found out that it damaged my heart. I was put on Coreg. my heart is only functioning at 35 to 40%.
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Multiple side effects and now it's all piled up, AGAIN
It would take forever to go over all my side effects from a bone marrow transplant I had for NHL 18 years ago but some are heart damage, lung damage, osteoarthritis and fibromyalgia. Now I am getting other weird and scarey symptoms that I have never had before and the list of all the things it could be is just overwhelming…
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Neuropathy clinical trials
I'm new to the site. I just heard that there were clinical trials for Neuropathy. I have Neuropathy as a result of cisplatin chemo and developed it about two years ago. It was slowly going away and I had a second round of cancer and chemo again. This added to the Neuropathy that I already had, so I still have it. I notice…
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Nueroendocrine Carcinoma
My Dad turns 90 years old next month. He still works 6 days a week at the retirement center. He has never been sick with anything. Not even a cold. As far as my brother and I can remember, he never stayed home from work because of any "sickness" reason. Much to our surprise, he has just been diagnosed with nueroendocrine…
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Topotecan has anyone been on this drug?
I have to start this new regimentand the drug I will given the drug topotecan. I would like to know if anyone has been on this drug and how they did. Are the side effects any different than other chemo drugs.
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Cancer patients now protected under ADA
After attempts to amend Title VII of the Civil Rights Act to include cancer survivors (H.R. 1294/H.R. 1546) failed in the late 1980s, an expansion of the Americans with Disabilities Act (S. 3406) was signed into law this September to afford employment protection for cancer patients. What follows is the most clear and…
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Radiation?
I am going to start radiation to my stomach in a couple of weeks and wanted to know if anyone can share expierences, has any advice or complementary treatments that have helped you get through it. Any long term side effects? I made through Chemo with little to no short term side effects, I plan to do the same with…
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Lymphodema????????
Hi, do I have this Lymphodema? My right arm (where all lymph nodes were removed last dec) is fine for a while, then pretty much useless and so painful to the touch. It doesn't swell, go red or have lumps, but it feels like I have held it under a steam-roller for a couple of passes. Upper arm dead, elbow in agony and lower…
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muscle pain and stiffness long after treatment has ended.
I have muscle pain, stiffness and limited range of motion in all of the muscles that were radiated during my cancer treatment. I was treated over 8 years ago, and this is just now happening. They radiated my lower abdomen and pelvis, including my thighs. Has this happened to anyone else?
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Jaw Necrosis from long term use of Zometa
I hope that someone can help me get more info on the treatment of jaw necrosis. I had been taking zometa as part of my cancer treatment for about 8 years when I first started having problems. I noticed what I thought was a piece of tooth coming through the gum on my inside lower jaw, under my back molar. It didn't bother…
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Advice RE Chemo Treatment and Patients with Dementia?
Hello. My aunt was recently diagnosed with Uterine cancer, stage 3a. The Dr. says chemo is the next step in treatment, but as my aunt also has Lewy Body or AD dementia, I’m concerned about her getting the right treatment from a holistic approach. Any advice or information about chemo and dementia would be much appreciated!…
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Pain after Cancer
Next month will be 2 years since my double mastectomy. Cancer in the left, removal of the right for safety, mainly. I still have constant pain in my surgery area. It mostly feels as if several heavy people are sitting on my chest. Or like I'm wearing a bra 20 sizes too small. Am currently on O.C. 20mgs. 3 times per day…
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Ablation
I am heading towards ablation surgery and wondered how others felt about it all if they have had it? I know the procedure just wondering how real people felt about the procedure and whether it worked well for them or not. Thanks. Blessings, Blueroses
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Cancer Survivor - News Article
Recently, Dr. Tim Johnson of ABC news did a story on cancer survivors. It was broadcast on Sunday evening (May 31, 2009). It seems that another story has come out via the AP. For copyright worries, I won't copy the article here, but if you to their web site, and search the title, "Cancer Survivors Not Getting Needed…
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Memory and Cognitive Aftereffects of Treatments
Gulp, on Thursday this week I go for my results of my memory and cognitive testing that I had done a couple of months ago. I had the written tests and some oral ones as well at this Memory Clinic here and have yet to do the CT Scan of my brain but they say that that can wait a bit. I am interested but of course a little…
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Anyone with real gleevec experience for DFSP ?
I am really interested in talking to someone who has experienced Gleevec to cure DFSP especially. In all probability, the experience would be fairly recent. Mine in is my face, and it is my only option (and for it to work as well) in order to keep a straight face.... I understand it will also require me to stop all alchool…
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Appetite
I made a wonderful christmas Dinner for the whole family (and the dog and cat) then couldn't even face one forkfull...sigh! I nearly burst into tears thinking that I had just done an awful job of cooking (not unheard of). But apparently it was good, I just couldn't taste it. 5 months past chemo now, when will the end of my…
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Heart Disease and Cancer
I am 47M long term survivor of Hodgkin's Disease (1982). I have had a lot of side effects from the treatment that saved my life 25 years ago. The most difficult one has been heart disease. I have had stents put in to help the scarred arteries. The stents were defective and caused a clot which led to a heart attack. I…
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lower back degenerative disease
About 5 years ago I was moving to another province in Canada and woke up before the move with a pain in my lower back from HELL. Well, several trips to the ER later and they diagnosed me with lower back degenerative disease/arthritis. I had an autologus bone marrow transplant back in 1991 with total body radiation and…
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Managing late effects of treatment
As far as I can tell this category has not been visited for some time. IN light of that I thought I would start another thread at risk of bad form for this site: I am a 49 ish male who found myself here looking to understand some things going on with myself. As any story needs, a beggining: At the age 18 I had an acute…
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Body movement to porta-cath area
I get very little information from any medical personal about my porta-cath. It is supposed to stay in for 1 more year before it can be removed (in the event of a cancer reocurrance). Part of my recovery deals with getting exercise. I force myself through it, although my body fights it all the way. When distance walking…
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Lyrica?
Has anyone tried this drug Lyrica for peripheral neuropathy? I have just started on it. Any advice welcome.