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Measurement on CT Scans
Do any of you know if there is only one measurement on the printed report of the CT scan if that is the largest measurement? Or where does that number come from? I am asking because my husband had his presurgery physical today and the doctor said his back pain is from having a little arthritis. He also had a chiropractor…
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Find Out the Pathology Report Results Tomorrow
Oh, the nerves are back in full force!! Not that they ever left. I have been trying to keep busy. First my son had the flu for a week and then my daughter for a week so that has filled the two week's time since my husband's surgery. He is doing really well. His biggest complaint by far was the gas. I have said all along…
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Worried sick
my husband was diagnosed with kidney cancer last week Tuesday! He received 8 blood transfusions and numerous ct scans to see if it has spread! As of now it is contained to his left kidney in a15cm large tumour! We are awaiting surgery this Friday or early next week to do an open kidney removal! His doctoe told us that the…
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Not sure what to do, hoping for some suggestions
I'm 50 and had an ultrasound for upper left abdominal/ flank pain. " Indeterminate nodule adjacent to the left kidney, extending towards the spleen". It is 1.5 cm. They suggested CT or MRI. I went with MRI, but because I have alergies, no contrast. MRI : "There are mulple tiny round, T2 high signal lesions throughout the…
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Scans Tomorrow
My quarterly scans are coming up tomorrow. These days I get my results a week after, but not this time because I have a business trip that came up next week. This business trip is going to put me right back where I was 4 1/2 years ago when my first tumor was found. I'm even staying at the same hotel. I did that on purpose.…
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Votrient. Done.
votrient. done. ~3 year run. next up: optivo.
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A couple of questions for current or past votrient users
I had a couple of questions in regard to votrient, I started today . I'm taking it at 7 am on an empty stomach, can I have coffee prior or wait the hour after. Also I take zanax usually only before bed, I am prescribed 4 a day .25 but I don't take them ( dr said I really should ) I'm pretty sure I discussed it with dr ,…
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Good News for all at Coffee this morning
We call ourselves the Bakery Family, because that's where we see one another...or all at the same time. If one is there, the next one joins in. Kathy had good results on her follow up CT scan for lung cancer treatment, which she has been undergoing for a year. Letha (age 84) had skin cancers on her scalp removed a week…
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Short
Not just my height.... I'm done on the phase 2 trial with Ibrunitib and Nivolumab. Lasted 56 days whooptie Doo I lasted for 2 cycles of 28 days each, 4 more Nivo injections, got scanned... and now have a big fat liver met, and a little larger lung mets since I began the trial, 56 days ago. And I might add, 18 more big fat…
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My Partial Nephrectomy Too Complex for da Vinci?
Scheduled for an OPEN left partial nephrectomy for a 4cm renal cell carcinoma in a few weeks. Really like my urologist. He is very skilled surgeon, listens to my questions and has a great bedside manor. He is telling me that he recommends that I have an open procedure instead of robotic because of the complexity of the…
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No side effects
So it's day 4 with votrient and still no side effects. Is that normal? I'm not complaining but it's just strange. Does it take a while to get them? Just curious, thank you all for listening to my questions.
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That black cloud keeps following me
So I posted something the other day about my concern with starting votrient and returning to work. Well work is not going to happen yet. I saw my doctors the other day after he read my scans from hospital visit this past Sunday I also have a metastatic lesion on my liver. So i am now stage 4, was told to still start the…
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Votrient
I have to start taking 800 mg of votrient this week when it gets delivered. I have been out of work on disability since January having had my kidney removed because I had stage 3 cancer. Should I wait to see if I have any side effects before returning to work. I was a healthy 49 year old until this was found by accident in…
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Trial
Anyone in this trial? Lirilumab plus Nivolumab.
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Here's a switch: Freaking out the physician(s)
Before I had my surgery, I realized that the copy of my Advance Directive that most of my regular medical team had was -- oops -- just a tad out-of-date. As in, the people they were encouraged to chat with, should the need arise, had already gone on to their rewards (I'd encourage you to pause here and look on YouTube for…
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I'm CRash.
52 year old dude. Last year, I too pissed blood. No other symptoms. My tumor on my left kidney was as big as an eggplant, when they cut it out. 9 months and 3 scans later, just learning to live before it's too late. Definitely a wake up call. i live in the southeastern US.
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Bloodwork Questions
This is my first post to the Discussion Board. I was diagnosed with kidney cancer February 6, 2017 and had a successful left radical nephrectomy on Feb 20, 2017. The tumor was contained and was removed with the kidney without complications For which I am very thankfu. My recovery has gone great and I feel fantastic well…
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Doesn't matter to me, but I care
I am 73 and on Medicare so my medical needs are taken care of. Wouldn't it be nice if none of our members had to worry about their medical hospital or presription costs. Instead of taking a step forward to universal health care it looks like we are about to take a big step back. Icemantoo
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Hair problems with Votrient
I was diagnosed with kidney cancer in 2013 and after removing a 7 pound tumor and my kidney and spleen the doctors were sure they got it all and no follow up treatment was done. Three years later, almost to the date. I found out it was back in my lung and bones. After many test and a few months I was put on 800mg of…
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33 diagnosed with 2.2cm Clear Cell Renal Carcinoma
Well never thought I would wind up here this early in my life! But Hi everyone, I was diagnosed with Clear Cell Renal Cell Carcinoma yesterday morning! I have cried and cried but I think I have cried all my tears out and now I am trying to be as positive as I can be about this whole situation that has been following me…
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Hair Loss
I have an open radical nephrectomy in August. I was told that they got it all and that at this time I do not need any further treatment so I am not on any medications. I am finding that I am losing a lot of hair. My hair is now about 1/2 as thick as it use to be. Is it normal to have a lot of hair loss and is it going to…
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Antibiotic Use May Damper the Efficacy of Checkpoint Inhibitors
I am just reposting a post from another forum, thinking some of us might be interested. ------------------------------------------------------------------------------------------------------------------ I just thought I would share this information, In essence, the article states that gut bacteria plays a key role in the…
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Sitting here in the hospital
Well, we are sitting here after surgery and the surgeon said everything went perfectly. Am I worrying too much about something that he said? He said that they couldn't tell for sure if it was contained within the capsule. That only a pathologist can tell for sure. He even had the pathogist come into the OR. He said if…
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Going to be a grandpa!
I wanted to share good news with my friends here. I just found out I'm going to have my first grandchild in September. Woohoo! Honestly, when I had my first tumor (and then the second two years after), I thought I wouldn't live to see a grandchild. When they told me, I must admit I cried. I think I'm going to be around to…
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RCC for just over 1 year now, what treatments have worked for you?
Hi, I just found this discussion board and have been reading some of the stories. I was diagnosed with RCC a little over a year ago and had a left nephrectomy in December 2015. I have mets to the lungs. My first treatment was high dose IL2. It didn't work. Second treatment Votrient which worked about 7 months. Now I'm…
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Contrast vs kidney function
Hi Kat23502, this one is for you (or anyone). How dangerous is IV contrast for kidneys? I read that single kidney owners should avoid it. 'Lefty' was working perfectly before its twin's demise. Should I be worried about contrast scans. I much prefer NO risk to calculated risk. Steve.
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Spine mets?
hello everyone, i am new here and am awaiting my appointment with my surgeon, scheduled for Monday, for a 1.1 cm solid lesion of my right kidney. This was found incidentally 6 months ago when I had an MRI for back pain. My doctor failed to mention the kidney finding 6 months ago (grr) and only ordered a Ct scan last week…
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My first CT Scan after surgery
I had my 1st CT scan yesterday after my radical Nephectomy of my right kidney 5 months ago which was all confined within my kidney. My doctor told me they got all the cancer and I needed no treatments, which I felt very lucky but still feeling very anxious they will find something else. I go to doctors next week to here…
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First tests since surgery
Hi eveyone! I am going in tomorrow for renal ultrasound, chest X ray and blood work. These are the first tests since the removal of my kidney in the fall. Having a bit of scanxiety so I would appreciate any prayers, good vibes sent my way. I appreciate all of you.
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Post-Op and No Energy!
I've just discovered these message boards while trying to do some research on what I should expect in regards to my energy levels. I am 4 weeks Post-Op Left Nephrectomy. The 3.7 cm mass in my left kidney was discovered quite by accident because I was having Gallbladder issues. A CT of the abdomen revealed the mass. Thank…