-
My Partial Nephrectomy Too Complex for da Vinci?
Scheduled for an OPEN left partial nephrectomy for a 4cm renal cell carcinoma in a few weeks. Really like my urologist. He is very skilled surgeon, listens to my questions and has a great bedside manor. He is telling me that he recommends that I have an open procedure instead of robotic because of the complexity of the…
-
No side effects
So it's day 4 with votrient and still no side effects. Is that normal? I'm not complaining but it's just strange. Does it take a while to get them? Just curious, thank you all for listening to my questions.
-
That black cloud keeps following me
So I posted something the other day about my concern with starting votrient and returning to work. Well work is not going to happen yet. I saw my doctors the other day after he read my scans from hospital visit this past Sunday I also have a metastatic lesion on my liver. So i am now stage 4, was told to still start the…
-
Votrient
I have to start taking 800 mg of votrient this week when it gets delivered. I have been out of work on disability since January having had my kidney removed because I had stage 3 cancer. Should I wait to see if I have any side effects before returning to work. I was a healthy 49 year old until this was found by accident in…
-
Trial
Anyone in this trial? Lirilumab plus Nivolumab.
-
Here's a switch: Freaking out the physician(s)
Before I had my surgery, I realized that the copy of my Advance Directive that most of my regular medical team had was -- oops -- just a tad out-of-date. As in, the people they were encouraged to chat with, should the need arise, had already gone on to their rewards (I'd encourage you to pause here and look on YouTube for…
-
I'm CRash.
52 year old dude. Last year, I too pissed blood. No other symptoms. My tumor on my left kidney was as big as an eggplant, when they cut it out. 9 months and 3 scans later, just learning to live before it's too late. Definitely a wake up call. i live in the southeastern US.
-
Bloodwork Questions
This is my first post to the Discussion Board. I was diagnosed with kidney cancer February 6, 2017 and had a successful left radical nephrectomy on Feb 20, 2017. The tumor was contained and was removed with the kidney without complications For which I am very thankfu. My recovery has gone great and I feel fantastic well…
-
Doesn't matter to me, but I care
I am 73 and on Medicare so my medical needs are taken care of. Wouldn't it be nice if none of our members had to worry about their medical hospital or presription costs. Instead of taking a step forward to universal health care it looks like we are about to take a big step back. Icemantoo
-
Hair problems with Votrient
I was diagnosed with kidney cancer in 2013 and after removing a 7 pound tumor and my kidney and spleen the doctors were sure they got it all and no follow up treatment was done. Three years later, almost to the date. I found out it was back in my lung and bones. After many test and a few months I was put on 800mg of…
-
33 diagnosed with 2.2cm Clear Cell Renal Carcinoma
Well never thought I would wind up here this early in my life! But Hi everyone, I was diagnosed with Clear Cell Renal Cell Carcinoma yesterday morning! I have cried and cried but I think I have cried all my tears out and now I am trying to be as positive as I can be about this whole situation that has been following me…
-
Hair Loss
I have an open radical nephrectomy in August. I was told that they got it all and that at this time I do not need any further treatment so I am not on any medications. I am finding that I am losing a lot of hair. My hair is now about 1/2 as thick as it use to be. Is it normal to have a lot of hair loss and is it going to…
-
Antibiotic Use May Damper the Efficacy of Checkpoint Inhibitors
I am just reposting a post from another forum, thinking some of us might be interested. ------------------------------------------------------------------------------------------------------------------ I just thought I would share this information, In essence, the article states that gut bacteria plays a key role in the…
-
Sitting here in the hospital
Well, we are sitting here after surgery and the surgeon said everything went perfectly. Am I worrying too much about something that he said? He said that they couldn't tell for sure if it was contained within the capsule. That only a pathologist can tell for sure. He even had the pathogist come into the OR. He said if…
-
Going to be a grandpa!
I wanted to share good news with my friends here. I just found out I'm going to have my first grandchild in September. Woohoo! Honestly, when I had my first tumor (and then the second two years after), I thought I wouldn't live to see a grandchild. When they told me, I must admit I cried. I think I'm going to be around to…
-
RCC for just over 1 year now, what treatments have worked for you?
Hi, I just found this discussion board and have been reading some of the stories. I was diagnosed with RCC a little over a year ago and had a left nephrectomy in December 2015. I have mets to the lungs. My first treatment was high dose IL2. It didn't work. Second treatment Votrient which worked about 7 months. Now I'm…
-
Contrast vs kidney function
Hi Kat23502, this one is for you (or anyone). How dangerous is IV contrast for kidneys? I read that single kidney owners should avoid it. 'Lefty' was working perfectly before its twin's demise. Should I be worried about contrast scans. I much prefer NO risk to calculated risk. Steve.
-
Spine mets?
hello everyone, i am new here and am awaiting my appointment with my surgeon, scheduled for Monday, for a 1.1 cm solid lesion of my right kidney. This was found incidentally 6 months ago when I had an MRI for back pain. My doctor failed to mention the kidney finding 6 months ago (grr) and only ordered a Ct scan last week…
-
My first CT Scan after surgery
I had my 1st CT scan yesterday after my radical Nephectomy of my right kidney 5 months ago which was all confined within my kidney. My doctor told me they got all the cancer and I needed no treatments, which I felt very lucky but still feeling very anxious they will find something else. I go to doctors next week to here…
-
First tests since surgery
Hi eveyone! I am going in tomorrow for renal ultrasound, chest X ray and blood work. These are the first tests since the removal of my kidney in the fall. Having a bit of scanxiety so I would appreciate any prayers, good vibes sent my way. I appreciate all of you.
-
Post-Op and No Energy!
I've just discovered these message boards while trying to do some research on what I should expect in regards to my energy levels. I am 4 weeks Post-Op Left Nephrectomy. The 3.7 cm mass in my left kidney was discovered quite by accident because I was having Gallbladder issues. A CT of the abdomen revealed the mass. Thank…
-
Welcome Zenmomma
Hi, I started a new topic for you. You can tell your story here. 4 months post op I'd expect you to be better than you describe, based on my own experience and that of others.
-
Can You Overthink Things?
I recently spoke with someone that had kidney cancer surgery a few years ago. He was peeing blood and went to the ER. The next day the urologist told him that this was bad. This is the same urologist that my husband has that is local, but not the one doing the surgery. Anyway, his was large and had attached to his liver.…
-
Large Complex Cystic Lesion, How Long Is Safe To Wait
Hi I am a 51 year old male, I had an ultra sound scan last week after six months of left flank pain and the radiologist's report says I have a large complex cystic lesion on my left kidney measuring 14.9 x 12.7 x 11.2cm with a large solid component measuring 2.4 x 6.5 x 2.8cm, the Radiologist has classed this as Bosniak…
-
A Week from Today
Well, my husband had his final bloodwork and tests today before the surgery next Monday. He is definitely not looking forward to that day arriving. I know each surgery is different but about how long did yours take? I read that it takes between 4 and 5 hours but we were told today that it is scheduled for only half that…
-
Googling
The only thing we don't want people to search for with google is survival stats for kidney cancer. Fair enough... But a blanket ban on googling anything is too strong a restriction. A lot of rubbish shows up on google searches but there are vast amounts of good information too. The pubmed database is searchable online, for…
-
Internal stitches popping out
Hi, I am new to this forum. I have had many surgeries over the last 43 years. In 2010 I had a partial nephrectomy to remove renal cell carcinoma. Labs were clear/clean edges. Jan 16th of this year I had another partial nephrectomy on my other kidney. This one was done with the robotic arm. Labs did not have clear edges.…
-
What to expect at 1st Cat Scan
Hi, I'm going for my 1st Cat Scan with contrast. I've had scans before for things other than my kidneys but never with contrast. I've got my vanilla flavored contrast beverage chilling in the fridge for tomorrow's scan. Any advice as how to get it all down? I'm worried I won't be able to finish it all. Anyone have any…
-
Hey Cabo You WIN
I stopped taking the CABO on Tuesday the side effects have made my daily life so miserable that I don't want to get out of bed. The pain in my esophagus has been the worst and it just keeps getting worse by the day. I spoke to my doctor and I told him I can't do this anymore even though it is working I am no longer happy,…
-
What to do...
Hubbie was diagnosed 1 year ago with stage 4 kidney cancer. Cabo made my husband violently ill, he also ended up with colitis from it. Had bad side effects from Votrient and Opdivio did nothing, the mets in his lungs progressed so now taking Affinitor. His MRI on Tuesday now shows 4 new met tumors in his brain, they want…