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Surgery Approaching Soon
In two weeks, my husband Mike will be having a full nephrectomy (robotic/laparoscopic). We received our packet of instructions for the surgery, and even though you can't eat or drink anything at all after midnight the evening before the surgery, he was told to drink a Gatorade the morning of the surgery to stay hydrated,…
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Kidney Cancer Online Information (A to Z)
Hi! I have to found this ebook or pamplet on internet all about Kidney Cancer. It is up to date to 2017. Hopefully it be useful to you all.... I find it very resourceful especially for first timer like me. https://view.flipdocs.com/html5/?id=10007570_339258&P=0#2
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Percutaneous cryablation
Does anybody know of a doctor near Knoxville or Atlanta that performs percutaneous Cryoblation? I am looking for a doctor that will do this procedure Thanks
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5 years ago
Five years ago this weekend, I was on top of the world. Life was going well. Work was amazing. I had just eaten at Taste of Vienna...and then got to watch the Nats rookie play his first game, and hit a double off the wall. Yeah, I was a little tired all the time, but figured that was because I was approaching 50. But, I…
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Votrient Side Effects
My husband started Votrient Saturday to treat Stage IV Clear Cell RCC and I wanted to see if anyone else has taken it. If so what side effects have you seen? Thanks
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3 months scan results not so good
after removal of huge tumour and left kidney we had scans! Today's results showed a small spot on his right kidney.... oncologist advised us to see if it grows over the next 3 months and if it does burn it with some kind of needle! I just broke down! I am so so scared! We just got through this and now just 3 months later…
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Scananxiety
in May 2017, I had a 1.2 cm, stage pt1a grade 1 with no vascular invasion clear cell rcc removed. I am coming up on my first 3 month follow up and very anxious. also, does anyone know what the chances of recurrence in other parts of the body? I am not sure I worded it right. Just nervous and looking for guidance. thanks
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Treatment after radical nephrectomy with sarcomatoid differentiation M0
Hello everyone I wonder if anyone knows what if any varieties of treatment are being delivered after radical nephrectomy with sarcomatoid differentiation and zero metastasis. I have been`put on a program with zero intervention and 12-weekly scans but hope to get on a trial. Are any interventions being delivered in this…
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Surgery today
Randy has his surgery this morning. Total nephrectomy. One step closer to finding out exactly what it is. Wish us luck!!
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Seeing the specialist tomorrow, contrast allergy question
Hello to all of you lovely people that have been keeping me somewhat sane while my kidney mass gets figured out. I had an MRI with contrast recently and was told if the mass looked stable, they would repeat the MRI in 6 months and I would see the doctor again at that time, in fact, I made the appointments already for…
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One month on votrient
well it's been one month on votrient, and I have to say so far so good. Only side effects that I've had are nausea, an occasional headache and some fatigue. I have been monitoring my blood pressure tho and it has been getting high the past few days . I'm not supposed to see doctor till the 24th, not sure if I should call…
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Frozen shoulder, ugg
Hi, newbie here, So, I had left kidney removed July 2016 due to RCC, gallbladder removal Aug 2016. Then Mar 2017 just lifted my left arm, immediate pain, waiting on MRI results, anyone else with shoulder problems?
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Blogs
Does anyone else here have a blog set up?? Or do y'all just use the discussion board for the day to day stuff in the life of a cancer patient?? Being a FNG here I'm trying to learn the ropes on the best ways to interact with folks. Do I start a new discussion when, "WHOO HOO!! My chilidog tastes like a chilidog instead of…
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1st post-surgery scan - lung nodule
I had my nephrectomy in late January. Tumor was about 8-9cm, I'm not sure of the grade/stage, but there were some anomolies. It looked like it might be two cancers, regular RCC and something else that was more aggressive. Clear margins and everything was looking good. Then I had my first post-surgery scans Saturday and…
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Clean Scans
I had a partial neph almost 13 months ago, so I just had my second round of monitoring tests. Chest x-ray on July 3rd was "unremarkable" (a lovely word to read on an x-ray). I had my CT scan yesterday and my surgeon just sent the results - everything looked great. Since it was an abdominal scan (and since I've had other…
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Anyone been diagnosed with this type of rcc
Hello. My husband had a biopsy of his kidney tumor and he was diagnosed with Clear Cell Papillary Renal Cell Carcinoma. This is not the same as either classic papillary or clear cell rcc. From the American Journal of Surgical Pathology...... "This tumor has immunophenotypic and genetic profiles distinct from those of…
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Laparoscopic partial kidney nephrectomy on t1b
Hi! Dear All, I was diagnosis last year (2016) by ultrasound during my yearly annual medical check up. They found a mass of size 3.5cm. I thought it was not serious matter, just cysts or kidney stone. Recently, i just taken a CT scan (finally), revealed the tumor had growth to 4.6cm and confirmed is RCC. After i joined…
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Bad news yesterday
so yesterday was my 29 th wedding anniversary and isle t it in the emergency room. I have been having pain in the right side of my chest and abdomen and finally after 2 days no sleep I went to ER. Well 8 hrs later a scared to death PA came in room to tell me that my cancer has spread more. It was probably what was causing…
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Connect with caregivers
I've been in this for a long time now. Almost 10 years as a caregiver & my fatigue is getting the better of me. I am a woman in my 40's and would like to connect offline with other caregivers with similar profile. I have not visited any support groups yet because I'm afraid those caregivers may be caring for patients who…
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Long Term Recovery Healing
I am a 56 year old male and 10 weeks post robotic partial left nephrectomy to remove a 4 cm oncocytoma. I see lots of accounts of recovery in the hours or weeks following recovery but little about long term. My recovery has been very good in that my strength and stamina are probably 80-85% of what I was before surgery.…
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Help, going to surgery!
Hello everyone, very glad to have found this website. Well done to you all! I wish to just brief my situation with hopes to get a few replies. I am due for surgery next week, full nephrectomy and now possible lymph node removal. I was diagnosed over a year ago, but due to the complexities of other extremely serious…
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Partial Nephrectomy Yesterday
i am home today after having a partial done yesterday (lap). I wanted to share my experiences. I was home in like 24 hours from time of surgery. Amazing how things went so smoothly. They wanted me out of the hospital! It wasn't as scary as I imagined it to be. Much less painful Too. Surgeon told me that it went well and he…
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Finally Had the Nerve to Read the Test Results
and the doctor's notes read -- CT/PET scan looks good, no cancer is found Thank you guys for helping me have the courage to read the online scan results before the appointment next week!! The radiologist note does mention scar tissue at the surgery site but it doesn't appear as a malignant formation. I am trying not to…
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Second Opinion
While I'm waiting to have the partial nephectomy I of course have been coming up with new things to worry about. The latest is "should I get a second opinion before they take out part of my kidney". I'm pretty sure that the partial nephectomy is the standard treatment that they will all recomend but should I go to another…
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What to expect during Recovery from partial laparoscopic nephrectomy-
what should I expect during recovery from a laparoscopic partial nephrectomy? The Dr said I'd b in the hospital 3-4 days and probably feeling pretty normal in about 4 weeks. I'm 45 and not in great physical shape but not to bad either. I have a 10 year old and 17 year old at home but at that age they're pretty self…
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Sutent to Opdivo
My liver functions all screwed up and have to get off Sutent after two years. Going onto Opdivo end of next month. Can anyone tell me their experience? Thanks, Michael
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What's For Dinner This Weekend??
Earlier this week I made a roast taters and sweet pepper dish that She Who Must Be Obeyed really loved... 5-6 med sized taters, skinned of you prefer, chunked to bite size. Chunk enough multi-colored bell/sweet chilies to make an appx 50/50 ratio to the taters. Olive oil to coat and salt, pepper, onion and garlic powder to…
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Going cross country will on cabo
I have been fighting the side effect game with Cabo for a few months now and my daughter asked me to take a trip across country from ny to ca. I've told her no because I feel like crap 50 % of the time and Don't wanna be a burden to anyone . My husband says I should go but I think it's to much. I just don't think they…
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Three Years NED
I have not been active on these boards in a while. While I have been fine, I have been dealing with both of my brothers having different forms of cancer. Younger brother who lives alone had throat cancer, and fortunately, he is doing well after surgery. Older brother is still dealing with a rare lymphoma and tumors in his…
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Update on my treatment
Hi there - long time, no post. Wanted to give an update since it's been a while. I'm the 29 year old (now 30) with papillary RCC from HLRCC. I started on the PAPMET trial in September taking Cabo after the cancer metastasized to my liver, lungs and lymph nodes despite the nephrectomy and adrenalectomy. I did have to reduce…