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Kidney Cancer

Connect with caregivers
I've been in this for a long time now. Almost 10 years as a caregiver & my fatigue is getting the better of me. I am a woman in my 40's and would like to connect offline with other caregivers with similar profile. I have not visited any support groups yet because I'm afraid those caregivers may be caring for patients who…
Long Term Recovery Healing
I am a 56 year old male and 10 weeks post robotic partial left nephrectomy to remove a 4 cm oncocytoma. I see lots of accounts of recovery in the hours or weeks following recovery but little about long term. My recovery has been very good in that my strength and stamina are probably 80-85% of what I was before surgery.…
Help, going to surgery!
Hello everyone, very glad to have found this website. Well done to you all! I wish to just brief my situation with hopes to get a few replies. I am due for surgery next week, full nephrectomy and now possible lymph node removal. I was diagnosed over a year ago, but due to the complexities of other extremely serious…
Partial Nephrectomy Yesterday
i am home today after having a partial done yesterday (lap). I wanted to share my experiences. I was home in like 24 hours from time of surgery. Amazing how things went so smoothly. They wanted me out of the hospital! It wasn't as scary as I imagined it to be. Much less painful Too. Surgeon told me that it went well and he…
Finally Had the Nerve to Read the Test Results
and the doctor's notes read -- CT/PET scan looks good, no cancer is found Thank you guys for helping me have the courage to read the online scan results before the appointment next week!! The radiologist note does mention scar tissue at the surgery site but it doesn't appear as a malignant formation. I am trying not to…
Second Opinion
While I'm waiting to have the partial nephectomy I of course have been coming up with new things to worry about. The latest is "should I get a second opinion before they take out part of my kidney". I'm pretty sure that the partial nephectomy is the standard treatment that they will all recomend but should I go to another…
What to expect during Recovery from partial laparoscopic nephrectomy-
what should I expect during recovery from a laparoscopic partial nephrectomy? The Dr said I'd b in the hospital 3-4 days and probably feeling pretty normal in about 4 weeks. I'm 45 and not in great physical shape but not to bad either. I have a 10 year old and 17 year old at home but at that age they're pretty self…
Sutent to Opdivo
My liver functions all screwed up and have to get off Sutent after two years. Going onto Opdivo end of next month. Can anyone tell me their experience? Thanks, Michael
What's For Dinner This Weekend??
Earlier this week I made a roast taters and sweet pepper dish that She Who Must Be Obeyed really loved... 5-6 med sized taters, skinned of you prefer, chunked to bite size. Chunk enough multi-colored bell/sweet chilies to make an appx 50/50 ratio to the taters. Olive oil to coat and salt, pepper, onion and garlic powder to…
Going cross country will on cabo
I have been fighting the side effect game with Cabo for a few months now and my daughter asked me to take a trip across country from ny to ca. I've told her no because I feel like crap 50 % of the time and Don't wanna be a burden to anyone . My husband says I should go but I think it's to much. I just don't think they…
Three Years NED
I have not been active on these boards in a while. While I have been fine, I have been dealing with both of my brothers having different forms of cancer. Younger brother who lives alone had throat cancer, and fortunately, he is doing well after surgery. Older brother is still dealing with a rare lymphoma and tumors in his…
Update on my treatment
Hi there - long time, no post. Wanted to give an update since it's been a while. I'm the 29 year old (now 30) with papillary RCC from HLRCC. I started on the PAPMET trial in September taking Cabo after the cancer metastasized to my liver, lungs and lymph nodes despite the nephrectomy and adrenalectomy. I did have to reduce…
Cabozantinib
Hi, I’m a 47 male from the Uk, and I was diagnosed in december2016 with Renal Cell Cancer, with secondary’s spread to my right arm and a spot on my Vertebrae. My left kidney was removed followed by two week’s radiotherapy. I then started on Sutent 37.5mg 4-2 cycle. After 2 cycles, I was scanned and the cancer has now…
Cabo update
Well I am going into month 3 on 60 mg Cabo. Not having fun yet but learning how to deal with side effects. I've learned unfortunately if I want to have the slightest bit of normalcy I can not eat before I go out. If I have errands to do I need to do them in the morning because I'm worn out from doing nothing. I'm…
Do You Look at Test Results?
My husband has his first scans next week since having his right kidney removed in March. Worried doesn't even begin to describe what I am feeling but I know that you all can understand that. He doesn't see the doctor until the following week. His results should be in the patient portal before then but I am not sure if we…
Talked with a neighbor
A very good man. Of course we discussed my health. I stated that at least I know what I'm going to die from. He answered that that wasn't true. Because maybe I might get hit by a bus tomorrow. I decided not to put a song in his head. It's the first time I've heard that comment in a while.
Awaiting kidney cancer diagnosis
I have created this page for information for myself and my fiancé. He is our patient here. We are 26 years old and just can't catch a break. Recently he had a collapsed lung and was diagnosed with bleb disease and underwent surgery to resect the blebs in his left lung. Just so happened to catch a solid mass on his right…
Two Weeks
Being that waiting is not my strong suit, ESPECIALLY where RCC is concerned, I feel like I'm missing something being on Opdivo. While on Votrient, I felt like I was doing something every day to kick "Bob's" @$$. "Bob" being The Wife's and my name for the annoyances in our life... But from what I've read here most everyone…
Movies You Like And Your Major Gripe About It
Godzilla, 1998. The first Apache AH-64 chase thru the streets of NYFC. They lose Godzilla and he winds up taking out 2 choppers and the last makes a run for it, and gets chased thru the streets. Then as the pilot reports he's lost the target, Godzilla comes up from the street and snaps the chopper off from the rotor on…
Gout after removal of kidney
Has anyone who never had gout before been diagnosed after removal of a kidney? I am 6yrs post surgery for stage 3 kidney cancer and now I have had to bouts of gout. Because I a m not getting rid of uric acid. I am going to start a nephrologist havent before had one. I am 69 yrs old and still working. I have hypothytoidism…
Nearly 2 years now, About to get radiation (1st round)
My progression has been slowed by cabo or just luck, but I have progression now that is beginning to effect me. 3 Lymph nodes, 1 in my neck, 1 Back and 1 abdomen. My neck one has grown to 5.5 cm and is pressing my carteroid, larynx, thyroid. My abdomen is pinching my IVC and other vessels causing blood fow obstruction. I…
Long term drug effectiveness
I have had great success with Votrient. The RCC had come back twice in my chest and Votrient has been very effective in controlling it. Obviously, I'm very happy about that. It's been about 18 months under the Votrient treatment. Whether it's Votrient or some other chemo drug, what are some stories from our group as to…
Oncocytoma with necrosis??
Our docs have been back and forth for 3 weeks now with diagnosis, it has been sent out to the Mayo and various other places who "are scratching their heads". This morning we got a call to celebrate, said that it's an oncocytoma and referred us to a surgeon at UPMC shadyside in Pittsburgh. When they did his biopsy they told…
Desparate for Advice on Nexavar (Sorafenib) Side Effects
Hi and hope everyone is doing great. My husband started Nexavar 2 weeks ago and has developed a severe body rash and extremely painful blisters on his feet. We are looking for some advice on how to make him feel better as he is starting a new job after being off for the past 1 1/2 years and cannot afford to pass up this…
Scanxiety
Getting my next follow up scan tomorrow. I'm just feeling ....eery. I know the first one (right after procedure) was fine, but what if it comes back? What if the last scan was wrong? Anyone else have these feelings?
New Here. Confused by differing radiology reports
In June I had a CT scan with contrast for suspected diverticulitis. it turned out that there was a 3cm solid mass on my right kidney & multiple sub cm cysts. There was a 1.6 cm mildly complex cyst on the left. I was referred to a urologist who told me that the left cyst was probably just a cyst but that we'd watch it. He…
Follow Up Scans Revisited
I had a ct scan on Thursday and Today I got my first NED... But, it might be my last because apparently no further scans are required (except an ultrasound in six months to 'monitor renal bed'). Now isn't that strange? I assumed I'd get a similar follow up protocol to you North Americans. Are there any other Australians…
RCC Chromophobe
It is almost that time again when I get my scans to see if the cancer is still gone and I start thinking (and worrying) about it. My doctor said RCC Chromophobe rarely reoccurs and I shouldn't worry about it but I am just curious if there is anyone out there that has a similar diagnosis with recurrance? I was 38 years old…
Donna??
Has anyone heard from Donna (hardo718)? I sent her a pm about a week ago and haven't heard back from her. She was last online on May 16. Stub
Advice
I am looking for advice. For about 1.5 years i had imaging that showed a possible Bosniak 2f cyst, we watched for almost 2 years with no change at all. On May 2nd, a 1.2cm clear cell rcc was removed from my right kidney. My urologist told me that everything went well and it was gone. He said it was so small that they…

Kidney Cancer

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