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Fifteen Years on August 1, 2017
Some observations and a few thoughts: NED X 15 NBD X 15 Each of the 5 grandchildren has become 15 years older. No new ones. The 18 year old girl I met on the beach (Icewoman) will be 73 this fall. The survivor rates for each Stage of RCC have increased over the last 15 years.. Ice Tongs are no longer used for RCC Surgery.…
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Surgery tomorrow scared
tomorrow is doomsday how my husband calls it! We are to arrive at 7.30 to have the embolization done and then his surgery to remove his kidney and that nasty evil 15cm tumour! we are both scared! He keeps crying and I am just secretly hiding my tears cause I am trying to be strong for him and our 3 kids! I will be waiting…
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Just diagnosed..
I'm another newby - Just got diagnosed Wednesday, they found a 4cm tumor on my left kidney. I've been reading through many of your stories, and I find it interesting that many of you went in to get checked for stomach pain, and ended up finding out you had kidney cancer. That's exactly what happened to me - they gave me…
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Opinions would be greatly appreacited
Hi Everyone On October 5, 2012 I had surgery to remove my left kidney. 11CM Stage 3 Grade 3. The tumor had invaded the renal sinus and muscular veins, I was then 50 years old I had scan every three months for a year, then every six months and after 3 years once a year. In October of 2016 the scan disclosed three nodules in…
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Questions I hope to get some answers
Hi guys, haven't been on for a few weeks . Took a trip across country with my daughter, so inlaw and grandson to Disneyland. Had a great time. Doctor gave me a week off of Cabo while I was away, so that was good. Anyway to my newest questions. Before I went away I went to ER for abdominal pain. I had to follow up with a…
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2 wk post op.. diagnosis finally... and questions
so my randy is now 2.5 week laparoscopic total nephrectomy. So he does have one incision below he belly button about 3 inches where they could pull it out at. He had no drain placed, was sent home the next day. He is starting to come around but is completely exhausted. I mean literally sleeping all day? Is this normal?? He…
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Hello my friends!
I have been absent from here, but think of you often....read your messages when I get the chance. I wanted to let you know that today I went for my CT scan results....and Uncle Ned came to visit once again! I am now only scheduled for scans once a year. I feel very fortunate and blessed to receive such a good report....and…
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Apricot seeds -B17
Hi, anyone with more information or opinions about apricot seeds and cancer? I take great daily plant based supplements. I just do not, do not want the big bad Cancer wolf again.
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Cabo - maybe these tips will help someone..
I was treated with Sutent and Opdivo which only worked for me for a short time and then things got quite a bit worse. I then switched to Cabo and within days felt better, and started healing. My scan after 8 weeks showed significant decrease in my tumor sizes and my back mets pain almost went completely. I found a few…
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Cancer center visit to Moffitt
My three month scan was moved up because I was as yellow as tweety bird. Scans showed no new tumors in liver, only in lungs that stayed the same except one doubled in size to 2 cm. Not bad considering off sutent four months due to liver. I had five large tumors are in my liver. They radio emblized my liver in January which…
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Opdivo Psuedoprogression
Just an FYI. 'Got my first scans back recently after being on Opdivo for three months. Mixed results. Some things disappeared; new things appeared. Most alarming was a new 1.7cm lesion in my spine, yet no clinical symptoms. At present it's being attributed to psuedoprogression. Spooky nonetheless. 'Continuing with…
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Increase in creatine post partial kidney removal
My husband had renal cell carcinoma almost 3 years ago , he has had some issues with chronic unexplained anemia requiring iron transfusion over the last 18 months, today we saw his creative which was in the normal range at 55.4 in march and .7 are now 177.4 and 2.3. should we be concerned ? Should we contact the kidney…
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Tumor size
My tumor was a 9.0 cm, aggressive. pT2aNXMX, not sure what that means. But, I feel great now.
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July 17th, 2012 - today....
This time 5 years ago I was being wheeled into the ICU after a 'Full Right-Neph'. Thank you to this community for all the love & support; I pray that with 'God's Will' I'll be posting another one of these messages in another 5 years :) God Bless everyone!
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Last year at this time.....
I was an emotional wreck. My wife and I had just been told by my kidney doctor that I had a mass on the lower pole of my right kidney that appeared to be cancer. He told us that he'd make an appointment request with our local Urologist for follow-up and to expect a call from them in the next week or two. I was devastated.…
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Mind if I join the club?
Good morning, all. I've been diagnosed with RCC (left kidney, Stage 3) and am scheduled for a radical laparoscopic nephrectomy Aug. 9th. It's all a little surreal still, and I'm not certain it's sunk in completely, but I've been reading up anyway in an effort to be better-informed about any potential lifestyle changes…
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Collecting Duct Carcinoma and Cannabis Oil
Hi all, I'll introduce myself a bit, I'm a 45 year old male previously in good health although a smoker and drinker I was diagnosed with Stage III CDC on May 25th 2016. Initial prognosis was not good, the number of lymph nodes involved and their location made it inoperable. At 44 years old, with a 10 year old daughter and…
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Surgery Approaching Soon
In two weeks, my husband Mike will be having a full nephrectomy (robotic/laparoscopic). We received our packet of instructions for the surgery, and even though you can't eat or drink anything at all after midnight the evening before the surgery, he was told to drink a Gatorade the morning of the surgery to stay hydrated,…
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Kidney Cancer Online Information (A to Z)
Hi! I have to found this ebook or pamplet on internet all about Kidney Cancer. It is up to date to 2017. Hopefully it be useful to you all.... I find it very resourceful especially for first timer like me. https://view.flipdocs.com/html5/?id=10007570_339258&P=0#2
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Percutaneous cryablation
Does anybody know of a doctor near Knoxville or Atlanta that performs percutaneous Cryoblation? I am looking for a doctor that will do this procedure Thanks
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5 years ago
Five years ago this weekend, I was on top of the world. Life was going well. Work was amazing. I had just eaten at Taste of Vienna...and then got to watch the Nats rookie play his first game, and hit a double off the wall. Yeah, I was a little tired all the time, but figured that was because I was approaching 50. But, I…
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Votrient Side Effects
My husband started Votrient Saturday to treat Stage IV Clear Cell RCC and I wanted to see if anyone else has taken it. If so what side effects have you seen? Thanks
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3 months scan results not so good
after removal of huge tumour and left kidney we had scans! Today's results showed a small spot on his right kidney.... oncologist advised us to see if it grows over the next 3 months and if it does burn it with some kind of needle! I just broke down! I am so so scared! We just got through this and now just 3 months later…
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Scananxiety
in May 2017, I had a 1.2 cm, stage pt1a grade 1 with no vascular invasion clear cell rcc removed. I am coming up on my first 3 month follow up and very anxious. also, does anyone know what the chances of recurrence in other parts of the body? I am not sure I worded it right. Just nervous and looking for guidance. thanks
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Treatment after radical nephrectomy with sarcomatoid differentiation M0
Hello everyone I wonder if anyone knows what if any varieties of treatment are being delivered after radical nephrectomy with sarcomatoid differentiation and zero metastasis. I have been`put on a program with zero intervention and 12-weekly scans but hope to get on a trial. Are any interventions being delivered in this…
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Surgery today
Randy has his surgery this morning. Total nephrectomy. One step closer to finding out exactly what it is. Wish us luck!!
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Seeing the specialist tomorrow, contrast allergy question
Hello to all of you lovely people that have been keeping me somewhat sane while my kidney mass gets figured out. I had an MRI with contrast recently and was told if the mass looked stable, they would repeat the MRI in 6 months and I would see the doctor again at that time, in fact, I made the appointments already for…
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One month on votrient
well it's been one month on votrient, and I have to say so far so good. Only side effects that I've had are nausea, an occasional headache and some fatigue. I have been monitoring my blood pressure tho and it has been getting high the past few days . I'm not supposed to see doctor till the 24th, not sure if I should call…
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Frozen shoulder, ugg
Hi, newbie here, So, I had left kidney removed July 2016 due to RCC, gallbladder removal Aug 2016. Then Mar 2017 just lifted my left arm, immediate pain, waiting on MRI results, anyone else with shoulder problems?
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Blogs
Does anyone else here have a blog set up?? Or do y'all just use the discussion board for the day to day stuff in the life of a cancer patient?? Being a FNG here I'm trying to learn the ropes on the best ways to interact with folks. Do I start a new discussion when, "WHOO HOO!! My chilidog tastes like a chilidog instead of…