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Jazzgirl
i take it you never made it to the Camino de Santiago they are showing a very good series in uk about a bunch of some celebs( british.. you won’t know them) who are walking the route.. I have not watched much of it yet so not sure if they are walking the whole route but suspect not its looks beautiful.. I don’t know If I…
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No cancer to Metastatic Cancer in 60 days? Help please!!
Hello All, I am new here and sorry for my long post but needed your help, please !! We are dealing with a major blow with regards to my dad health. Currently, he is been diagnose of cancer ( either Metastatic RCC or Metastatic Urothelial Carcinoma) it present in left kidney, adrenal, lymph nodes, liver and diaphragm which…
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Tomorrow is the big day! cheers!
thank you so much everyone for your support, answering my questions, and sharing your experience. I feel less anxious than I thought I would (will likely change by morning), and I'm so hungry! Today was a beautiful spring day in Oregon and I appreciated being able to feel the sun on my face. It's supposed to be warm…
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Need your input regarding Sutent medication
Hi, I would appreciate having your experience regarding the SUTENT medication. He should start soon after the biopsie. My husband is having a kidney cancer stage 4 (metastasis lungs + bones). Thanks for your help.
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Good News!
I just had a partial neph last Thursday, 3/22/18, for a 3.2 x 2.8 tumor, and it has been a rough week at times. The surgeon was confident he got it all, and said there were clear margins. I have been anxiously awaiting the pathology report. Well, he just called, and it is BENIGN! I can hardly believe it! I truly appreciate…
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Pizza and Beer
What in the world does this topic have to do with kidney cancer? Probably not a lot about cancer, but more about the people here that have been part of my journey. One of my hobbies is upland hunting (according to my wife it's a little more than a hobby). From the end of October through January, I rarely miss a weekend to…
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1st Follow Up
So....my first follow-up appointment is this Thursday! I had my scans and bloodwork last month, but don't see the oncologist until this week. I am not nervous, but not looking forward to it. I guess it is because it is just a reminder of all that has happened. The dreaded "we found something call", all of the appointments,…
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Just diagnosed
Not sure if this is all going to make sense, but i'm still a little in shock. I have had kidney stones for the past 15 years and have passed about 8-9 in that time. I had another bout at the end of January and thankfully had a CT scan in the ER and it showed not only a small stone, but also a complex cyst on my kidney. Saw…
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Checking in - genetic testing
Hello all - I wanted to take a moment to check in and say hello! Life has been pretty busy - I read often but do not always comment. You are all always on my mind. Recovery after my second surgery went quite well...back to work at five weeks and doing great. I get fatigued at times but that is to be expected after a…
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NED!
First scans since surgery 6 months ago came back clear!!!
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Anxiety?
Week 6 after surgery I started going to work for no more than 4 hrs / day Felling very tired after that Had some bloating for a couple of days with some discomfort and diarrhea ( 3 days). I visit my Dr and he told me it was lack of physical exercise Last 3 days Severe Muscle weakness that last 2 days Rash on my neck and…
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Got my second opinion
My urolgic oncologist is wonderful, but I decided to get a second opinion on my plan of care. My UO wanted to do a 6 month scan, a 2 year scan and then a 5 year scan. Then he says "That's it! Your all done!" like I'm magically cured. I decided to see a Medical Oncologist who specializes in RCC. Being as young as I am it…
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Thank you to the group
I got up in the wee hours because my back was bothing me, with additional anxiety around blood tests later this week. After 45 minutes of reading through many of your posts, I suddenly realized I hadn't thought about or felt my back in that whole time. Or been tweaked by my worry. Great feeling; great way to start the day!…
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Ablation
So my consultation for my ablation is Friday. I know it's just a consult but it makes me anxious. Although my DR seems to think that this is another primary tumor it's in my remaining kidney. I just can't believe my luck. I'm trying to keep my anxiety in check. I have my yearly "woman" appt on Wednesday. Before my cancer…
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Feeling Uneasy
Had partial right neph Sept 2016. Clear cell 3.5cm, stage 1A grade 2. Going for my review CT 12 Mar. After 1.5 years follow up I still got this worry. Is this normal feeling this way?
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Pancreatic Lesions
Diagnosed with RCC in 2014. 2cm. Partial nephrectomy. Stage 1. Contained in kidney. Just got report from most recent CT scans. 2 lesions, 5mm and 9mm appeared on pancreas. Weren't noted on previous year's MRI's. Can't see doctor for a week and a half. My understanding is that RCC very rarely spreads to pancreas. Hoping…
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NED me too!
I had my 4th follow up since surgery and I am still NED! Just wanted to share! Thanks for all of your help and encouragemenr.
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Rash
Week 6 after surgery I started going to work for no more than 4 hrs / day Felling very tired after that Had some bloating for a couple of days with some discomfort and diarrhea ( 3 days). I visit my Dr and he told me it was lack of physical exercise Last 3 days Severe Muscle weakness that last 2 days Rash on my neck and…
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Can cancer develop by kidney stones?
This might be a silly question, but a friend of mine just recently had another case of kidney stones. The last time she had kidney stones, she was able to just pass it. However, this time, it wasn't passing so she actually had to get a stent implanted in here. Then a couple weeks later, was able to get it removed. She was…
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Anyone else having trouble quitting smoking
I had a partial in March 2017 an I’m having a hard time quitting smoking, I’ll do good for a while an end up smok’ing for a couple of days an quit for a while an repeat.
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Anxiety?
Week 6 after surgery I started going to work for no more than 4 hrs / day Felling very tired after that Had some bloating for a couple of days with some discomfort and diarrhea ( 3 days). I visit my Dr and he told me it was lack of physical exercise Last 3 days Severe Muscle weakness that lasted 2 days Rash on my neck and…
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Onco-Anxiety
I recently posted this as a response to a thread but think it deserves to stand alone as a Forum topic to help others feeling the same. Here is a link to a recent essay written by psychiatrist, Adam Stern MD, who is also an instructor at Harvard Medical School. He was recently diagnosed with kidney cancer and eloquently…
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Pain
Hi.. some help please# Right kidney.. it was me who pushed Gp and made sure I was tested after being told several times i was just anxious 4.4 cm LPN .. chromie contained no mets 6mm clear margin had six month US and chest x Ray.. radiographers talked me through tests and said as far as they could see all clear but…
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2 days until Surgery
After a rollar coaster ride of scans tests and appointments my surgery date is almost here. On the 21st I will have my partial Neph on my left Kideney. Been a heck of a few months but I am ready to get this over with. Doctor thinks I will be ready to return to work on 4-20. Keeping my fingers crossed that all goes well and…
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Keywords?
Really doing everything i can to absorb as much information as possible before my surgery April 3rd. What is some of the keywords or abbreviations i should be looking for and understanding? Sorry if this a bit of a silly question.
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Update
My consult went very well. I expressed my concerns about the biopsy being unsuccessful and not having answers to what we were burning out. The DR said there will be a pathologist in the room with us that will verify that we have enough to send to pathology before they continue with the ablation. That made me feel good.…
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Test
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Help
Week 6 after surgery I started going to work for no more than 4 hrs / day Felling very tired after that Had some bloating for a couple of days with some discomfort and diarrhea ( 3 days). I visit my Dr and he told me it was lack of physical exercise ????? Last 3 days Severe Muscle weakness that last 2 days Now I am fine…
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three weeks our partial nec
Hello all! I remember when I was first diagnosed and had a certain fear (as I am sure we all have gone through) and this forum was such a godsend. My lesion was caught completely at random (basically checking for a UTI, which turned out to be prostatitis) and there it was. It was so early (it was in the 2cm range) and I…
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Financial Matters - health insurance
I've had a chronic disease my entire life, so I'm familiar with the importance of being financially savvy about health issues. I'm neither an insurance agent nor an attorney, but thought we all might benefit from some tips. Assumptions: You are a US citizen between the ages of 18-65, not covered by Medicare, or 18-26 not…