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Irrational thoughts...
Hello friends. Just fighting some irrational thoughts right now and admisttedly know 5% about this stuff compared to the wise people on this board. Feb 26 had a partial to remove a less than 2cm lesion. Leading up to surgery, of course I was freaking out but the original urologist and then the meeting with my eventual…
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Papillary Renal Cell Carcinoma Type II, Grade 3
Hello Everyone, Just found the forums yesterday and so thankful to have done so. I have read many of your stories, the heartaches and the victories. So glad to have found you all. I'm 3 weeks out from a radical nephrectomy with a 12 cm tumor, and the cancer spread into the renal vein and up to the Inferior Vena Cava and…
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Accidental discovery of 6cm tumor
Dear All, First of all , Please excuse my English. My 34 years old husband has been disgnosed with 6cm tumor in his left kidney, the doctor proposed 2 options : * Surgery by Robot : Waiting list for 2 Months * Normal Surgery which can be done next week. The doctor prefers the robot procedure, but 2 months looks very far…
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Finally approved
You guys probably won't understand this. I have a friend who had kidney cancer years ago and it went to his brain. He has been a major help getting me through this. After my surgery, I had bad dizzy spells and always wanted them to scan my brain. Just once, to look and be sure. After 2 or 3 other attempts, it has finally…
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Diet and nutrition...
Hello all. I know many of you have sought out nutritionists in your post op kidney cancer lifestyles. I have also started researching things myself. Other than the obvious of leafy greens, lower sodium foods, etc., does anyone have any advice for some basic foods/dietary advice that are good for people who are in our…
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Can't stand the waiting!
I had ultra sound because of blood in urine, I have a 8cm solid renal mass on left kindey and 3 small csyt on right Kidney. had MRI yesterday 3/31/2018. I have been having pain for 3-4 months and under left breast and middle of breast lower. Doctor said it was gerd and have been taking medicine for that for years. Im…
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Good day for labs
I had good report from nephrologist after my bloodwork (renal function panel). I'd like creatinine to be a little lower and EGFR a bit higher, but the doc was pleased and so am I. I've really been watching nutrition and weight for the renal function and for blood pressure and it's nice to see results. She said going…
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Jazz girl
I don’t know if you ever made it to the Camino de Santiago. They are showing a program on British TV at the minute about a bunch of celebs (British so you don’t know them) who are attempting to walk to Santiago. It does look very beautiful. I have not watch Much so I’m not quite sure if they are walking the full route but…
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Rockspin
Sorry I am reply here so you don’t hijack Dev’s topic. Sorry to hear you have this going on mets to breast is very uncommon so I would be very surprised if it was that given the size and stage of your original diagnosis which leaves possibility that it is a separate breast cancer. I pray to God it not. but it also could be…
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Jazzgirl
i take it you never made it to the Camino de Santiago they are showing a very good series in uk about a bunch of some celebs( british.. you won’t know them) who are walking the route.. I have not watched much of it yet so not sure if they are walking the whole route but suspect not its looks beautiful.. I don’t know If I…
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No cancer to Metastatic Cancer in 60 days? Help please!!
Hello All, I am new here and sorry for my long post but needed your help, please !! We are dealing with a major blow with regards to my dad health. Currently, he is been diagnose of cancer ( either Metastatic RCC or Metastatic Urothelial Carcinoma) it present in left kidney, adrenal, lymph nodes, liver and diaphragm which…
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Tomorrow is the big day! cheers!
thank you so much everyone for your support, answering my questions, and sharing your experience. I feel less anxious than I thought I would (will likely change by morning), and I'm so hungry! Today was a beautiful spring day in Oregon and I appreciated being able to feel the sun on my face. It's supposed to be warm…
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Need your input regarding Sutent medication
Hi, I would appreciate having your experience regarding the SUTENT medication. He should start soon after the biopsie. My husband is having a kidney cancer stage 4 (metastasis lungs + bones). Thanks for your help.
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Good News!
I just had a partial neph last Thursday, 3/22/18, for a 3.2 x 2.8 tumor, and it has been a rough week at times. The surgeon was confident he got it all, and said there were clear margins. I have been anxiously awaiting the pathology report. Well, he just called, and it is BENIGN! I can hardly believe it! I truly appreciate…
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Pizza and Beer
What in the world does this topic have to do with kidney cancer? Probably not a lot about cancer, but more about the people here that have been part of my journey. One of my hobbies is upland hunting (according to my wife it's a little more than a hobby). From the end of October through January, I rarely miss a weekend to…
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1st Follow Up
So....my first follow-up appointment is this Thursday! I had my scans and bloodwork last month, but don't see the oncologist until this week. I am not nervous, but not looking forward to it. I guess it is because it is just a reminder of all that has happened. The dreaded "we found something call", all of the appointments,…
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Just diagnosed
Not sure if this is all going to make sense, but i'm still a little in shock. I have had kidney stones for the past 15 years and have passed about 8-9 in that time. I had another bout at the end of January and thankfully had a CT scan in the ER and it showed not only a small stone, but also a complex cyst on my kidney. Saw…
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Checking in - genetic testing
Hello all - I wanted to take a moment to check in and say hello! Life has been pretty busy - I read often but do not always comment. You are all always on my mind. Recovery after my second surgery went quite well...back to work at five weeks and doing great. I get fatigued at times but that is to be expected after a…
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NED!
First scans since surgery 6 months ago came back clear!!!
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Anxiety?
Week 6 after surgery I started going to work for no more than 4 hrs / day Felling very tired after that Had some bloating for a couple of days with some discomfort and diarrhea ( 3 days). I visit my Dr and he told me it was lack of physical exercise Last 3 days Severe Muscle weakness that last 2 days Rash on my neck and…
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Got my second opinion
My urolgic oncologist is wonderful, but I decided to get a second opinion on my plan of care. My UO wanted to do a 6 month scan, a 2 year scan and then a 5 year scan. Then he says "That's it! Your all done!" like I'm magically cured. I decided to see a Medical Oncologist who specializes in RCC. Being as young as I am it…
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Thank you to the group
I got up in the wee hours because my back was bothing me, with additional anxiety around blood tests later this week. After 45 minutes of reading through many of your posts, I suddenly realized I hadn't thought about or felt my back in that whole time. Or been tweaked by my worry. Great feeling; great way to start the day!…
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Ablation
So my consultation for my ablation is Friday. I know it's just a consult but it makes me anxious. Although my DR seems to think that this is another primary tumor it's in my remaining kidney. I just can't believe my luck. I'm trying to keep my anxiety in check. I have my yearly "woman" appt on Wednesday. Before my cancer…
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Feeling Uneasy
Had partial right neph Sept 2016. Clear cell 3.5cm, stage 1A grade 2. Going for my review CT 12 Mar. After 1.5 years follow up I still got this worry. Is this normal feeling this way?
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Pancreatic Lesions
Diagnosed with RCC in 2014. 2cm. Partial nephrectomy. Stage 1. Contained in kidney. Just got report from most recent CT scans. 2 lesions, 5mm and 9mm appeared on pancreas. Weren't noted on previous year's MRI's. Can't see doctor for a week and a half. My understanding is that RCC very rarely spreads to pancreas. Hoping…
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NED me too!
I had my 4th follow up since surgery and I am still NED! Just wanted to share! Thanks for all of your help and encouragemenr.
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Rash
Week 6 after surgery I started going to work for no more than 4 hrs / day Felling very tired after that Had some bloating for a couple of days with some discomfort and diarrhea ( 3 days). I visit my Dr and he told me it was lack of physical exercise Last 3 days Severe Muscle weakness that last 2 days Rash on my neck and…
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Can cancer develop by kidney stones?
This might be a silly question, but a friend of mine just recently had another case of kidney stones. The last time she had kidney stones, she was able to just pass it. However, this time, it wasn't passing so she actually had to get a stent implanted in here. Then a couple weeks later, was able to get it removed. She was…
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Anyone else having trouble quitting smoking
I had a partial in March 2017 an I’m having a hard time quitting smoking, I’ll do good for a while an end up smok’ing for a couple of days an quit for a while an repeat.
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Anxiety?
Week 6 after surgery I started going to work for no more than 4 hrs / day Felling very tired after that Had some bloating for a couple of days with some discomfort and diarrhea ( 3 days). I visit my Dr and he told me it was lack of physical exercise Last 3 days Severe Muscle weakness that lasted 2 days Rash on my neck and…