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Another NED
US and chest x Ray all clear surgeon says I am on right route and other things like the tiredness and wobbly legs will settle scary Thing is after all the anxiety you become immune to the good news it might sink in over the next few days Annie
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Post Op Kidney Function Percentages
How long after surgery has it taken for your kidney function to regulate? I'm almost seven weeks out now - right after surgery I was at 37% (a radical neph on my left kidney). Both myuruologist and nephrologist agreed that my number was low because of trauma I had during surgery complications and that it would rise. The…
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Taking Cabometyx 60 mg day
EDITED: To remove post. I guess it was just a stupid question. Sorry.
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Thank you, everyone!
I'm new here but have been reading your posts for a couple of months. I filled out my profile page so won't reiterate here but have surgery date of June 29, 2018. I can't emphasize enough how much this board has meant to me. You have answered all of my questions and calmed most of my fears. Just want to post a huge THANK…
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Surgery tomorrow
Tomorrow I will finally be having surgery. I think the wait is the worst. I will let you know whether or not it is better than a colon resection which I had 2 years ago. Been so busy this past week am looking forward to a rest. haha if Your so inclined please send prayers.
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Coffee the Good Guy or the Bad Guy!
Just readed the news on California imposed "Cancer warning on Starbuck coffee, caused me to check on the coffee and kidney cancer risk. Gosh! And i found this study https://www.ncbi.nlm.nih.gov/pubmed/28647866 This study conclusions: Consumption of caffeinated coffee is associated with reduced risk of RCC, while…
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2 Weeks since the surgery
Hi all, It has now been two weeks since my discharge from the hospital. I am doing great, the nausea has finally abated (mostly) and everything appears to be working. I have not taken any pain meds for about 4 days and that has helped alot! Now, I just need to be careful not to overdo. Thank you all for your words of…
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Just random thoughts
So my ablation is scheduled for a week from today and I can't help but feel my anxiety growing. I am not fearful however I am nervous. Of course I have asked all the questions and weighed all the odds but yet the feelings still arise. During the last month I have had my first set of post op scans, a mammogram, my annual…
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CT scan shows small "consider malignant until proven otherwise" spot
The urologist is on vacation. While we wait until next Tuesday, can anyone explain what the Hounsfield units mean and what we may be looking at as a next step. We aren't in panic mode- just trying to understand what the likely next steps are (no big deal, wait and watch, remove part of it, etc). A little history - he had…
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Chromophobe.
My son just had his 6th year scans for renal cell chromophobe T1a. All has been well. His urologist told him he was done with yearly scans and tests. Have most you you with a stage 1 been followed longer?
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Supplements
I am currently not taking any supplement except I do take tumeric I am considering adding bosmeric and maybe vitamin D. My Dr hasn't said one way or another that I should or should not take anything except to avoid multi vitamins. Any thoughts??? Cin
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What do I expect?
I am new to the group. Just joined today. I received a dx of a 1.4 cm hereogeneous enhancing mass off the upper pole of the left kidney, suspicious for small enhancing neoplasm on 3/21/18. I am lucky to have gotten an appointment for tomorrow and I'm really looking for advice. What am I to expect at my first appointment?…
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Irrational thoughts...
Hello friends. Just fighting some irrational thoughts right now and admisttedly know 5% about this stuff compared to the wise people on this board. Feb 26 had a partial to remove a less than 2cm lesion. Leading up to surgery, of course I was freaking out but the original urologist and then the meeting with my eventual…
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Papillary Renal Cell Carcinoma Type II, Grade 3
Hello Everyone, Just found the forums yesterday and so thankful to have done so. I have read many of your stories, the heartaches and the victories. So glad to have found you all. I'm 3 weeks out from a radical nephrectomy with a 12 cm tumor, and the cancer spread into the renal vein and up to the Inferior Vena Cava and…
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Accidental discovery of 6cm tumor
Dear All, First of all , Please excuse my English. My 34 years old husband has been disgnosed with 6cm tumor in his left kidney, the doctor proposed 2 options : * Surgery by Robot : Waiting list for 2 Months * Normal Surgery which can be done next week. The doctor prefers the robot procedure, but 2 months looks very far…
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Finally approved
You guys probably won't understand this. I have a friend who had kidney cancer years ago and it went to his brain. He has been a major help getting me through this. After my surgery, I had bad dizzy spells and always wanted them to scan my brain. Just once, to look and be sure. After 2 or 3 other attempts, it has finally…
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Diet and nutrition...
Hello all. I know many of you have sought out nutritionists in your post op kidney cancer lifestyles. I have also started researching things myself. Other than the obvious of leafy greens, lower sodium foods, etc., does anyone have any advice for some basic foods/dietary advice that are good for people who are in our…
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Can't stand the waiting!
I had ultra sound because of blood in urine, I have a 8cm solid renal mass on left kindey and 3 small csyt on right Kidney. had MRI yesterday 3/31/2018. I have been having pain for 3-4 months and under left breast and middle of breast lower. Doctor said it was gerd and have been taking medicine for that for years. Im…
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Good day for labs
I had good report from nephrologist after my bloodwork (renal function panel). I'd like creatinine to be a little lower and EGFR a bit higher, but the doc was pleased and so am I. I've really been watching nutrition and weight for the renal function and for blood pressure and it's nice to see results. She said going…
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Jazz girl
I don’t know if you ever made it to the Camino de Santiago. They are showing a program on British TV at the minute about a bunch of celebs (British so you don’t know them) who are attempting to walk to Santiago. It does look very beautiful. I have not watch Much so I’m not quite sure if they are walking the full route but…
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Rockspin
Sorry I am reply here so you don’t hijack Dev’s topic. Sorry to hear you have this going on mets to breast is very uncommon so I would be very surprised if it was that given the size and stage of your original diagnosis which leaves possibility that it is a separate breast cancer. I pray to God it not. but it also could be…
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Jazzgirl
i take it you never made it to the Camino de Santiago they are showing a very good series in uk about a bunch of some celebs( british.. you won’t know them) who are walking the route.. I have not watched much of it yet so not sure if they are walking the whole route but suspect not its looks beautiful.. I don’t know If I…
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No cancer to Metastatic Cancer in 60 days? Help please!!
Hello All, I am new here and sorry for my long post but needed your help, please !! We are dealing with a major blow with regards to my dad health. Currently, he is been diagnose of cancer ( either Metastatic RCC or Metastatic Urothelial Carcinoma) it present in left kidney, adrenal, lymph nodes, liver and diaphragm which…
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Tomorrow is the big day! cheers!
thank you so much everyone for your support, answering my questions, and sharing your experience. I feel less anxious than I thought I would (will likely change by morning), and I'm so hungry! Today was a beautiful spring day in Oregon and I appreciated being able to feel the sun on my face. It's supposed to be warm…
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Need your input regarding Sutent medication
Hi, I would appreciate having your experience regarding the SUTENT medication. He should start soon after the biopsie. My husband is having a kidney cancer stage 4 (metastasis lungs + bones). Thanks for your help.
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Good News!
I just had a partial neph last Thursday, 3/22/18, for a 3.2 x 2.8 tumor, and it has been a rough week at times. The surgeon was confident he got it all, and said there were clear margins. I have been anxiously awaiting the pathology report. Well, he just called, and it is BENIGN! I can hardly believe it! I truly appreciate…
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Pizza and Beer
What in the world does this topic have to do with kidney cancer? Probably not a lot about cancer, but more about the people here that have been part of my journey. One of my hobbies is upland hunting (according to my wife it's a little more than a hobby). From the end of October through January, I rarely miss a weekend to…
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1st Follow Up
So....my first follow-up appointment is this Thursday! I had my scans and bloodwork last month, but don't see the oncologist until this week. I am not nervous, but not looking forward to it. I guess it is because it is just a reminder of all that has happened. The dreaded "we found something call", all of the appointments,…
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Just diagnosed
Not sure if this is all going to make sense, but i'm still a little in shock. I have had kidney stones for the past 15 years and have passed about 8-9 in that time. I had another bout at the end of January and thankfully had a CT scan in the ER and it showed not only a small stone, but also a complex cyst on my kidney. Saw…
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Checking in - genetic testing
Hello all - I wanted to take a moment to check in and say hello! Life has been pretty busy - I read often but do not always comment. You are all always on my mind. Recovery after my second surgery went quite well...back to work at five weeks and doing great. I get fatigued at times but that is to be expected after a…