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Newbie here!
Hello! I'm new here, so I'll tell you a little my story. I'm 35 years old and living in Spain (there is why there are will be some differences in procedures and sorry for my english). About 8-10 years ago I was diagnosted with miomas in my uterus, and finally, in november 2016 I had practices total histerectomy (I still…
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Partial or full kidney removal
Hi, new here but not to cancer. It's only 1-3 percent of survivors of Breast cancer get a totally different type. As a precaution for breast cancer, you should probably know I had a double mastectomy although only the left breast was involved in the end. Now I have kidney cancer in my left kidney. Right kidney in good…
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Severe loss of weight
Hello. I am on here because I am desperately trying to find a way to help my Dad. He was diagnosed with stage 4 kidney cancer in June and it has metastasized to every organ. He has loss a significant amount of weight. In April he weighed 210; currently he is at 132 with clothes and shoes on. He has no appetite. The doctors…
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MRI new scan results today
impresion : Further interval increase in size of enhancing left upper pole renal neoplasm. Partial nephrectomy changes in right upper pole without recurrent enhancing mass.( had robotic partial nephrectomy rt kindey(8 1/2 hrs in surgery) in May 2015. At that that time renal cancer also detected in left kidney. Possitive…
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Second opinion. Who would you see?
My Mother in law is wanting me to see a nephrologist to get a second opinion. My Urologist wants to do a scan at 6 months, 2 years, then 5 years. Has anyone with clear cell RCC seen a nephrologist? Or should I look into seeing a Oncologist? Stephanie
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On my mind
I had a radical left nephrechtomy on 11/27/17. The mass was 2.5 cm stage t3a grade 2. No lymph nodes involved , clear margins. My Dr.felt first scan in july, six months after surgery was right for my situation. It was stage t3a because the tumor was located in the renal sinus. I hope he's right-what do you think?
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newly diagnosed mRCC
Hi there I am new to your forum and have been reading all your positive posts and kind words. My 2nd cat scan results came back today (1 year since radical nephrectomy) I have 9 nodules between both lungs and also have a pleural mestatasis. Not the best news I could have got, but looking forward to an appointment with an…
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Dealing with nerve pain.
I'm 7 weeks post op now. I'm still taking tramadol and ibuprofen to help with pain. I bend down wrong i get that cramping feeling or sharp pain near my incision site and deep with in from right side abdomen even to my back. ( I had a open right partial nephrectomy). It takes my breath away. I'm ready to just put this all…
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Do they find out about reccurence sooner than I have symptoms?
It's been 3 1/2 years since surgery, last C.T four months ago and clear results, all last years any little pain makes me worried, every pain reminds me of possible Cancer reccurence, well, after all clear C.T reports I'm much more confident now than ever, don't lose my mind over little pains and ashes. But it still comes…
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Chromie Testing
i am due my first six month scan after my LPN in Sept 17 i have been put on a low risk regime which means first scan will be a US panicking: 1) they find something 2) how much will a US really see 3) will it detect lymph nodes if swollen I will be demanding more tests after this... the fear is off the scale Annie
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Lungs feel weird
So a few days ago all of a sudden my lungs felt weird. I could be sitting or be walking didn’t matter. I can take deep breaths. Nothing raspy nothing hurts. It’s not all the time either. I wish I could explain it better. I am taking amoxicillin for a sinus infection and I take my anxiety medicine. I had my 3 month checkup…
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11 Days till surgery
Hi all, Well the count down has begun. 11 days till this will be over. (Permanently I hope). Trying to get everything in order, my sister is going to come and stay with me for two weeks. (I live by myself on my farm). Chest X-ray, EKG, and lab work is done. Have almost kicked the smoking habit..... Anyhow, did any of you…
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One year ago today.
One year to the day, just about this time......my wife was grtting ready to undergo her partial nephrectomy on her left kidney. Trying to decide who was more scared would be hard to do. Honestly, I think it was me. I'm the worrier. I'm the guy that goes over the what if's. I'm the guy that thinks 3 steps ahead of where I'm…
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Pathology. FINALLY!
After a two week wait the pathology finally came back and it seems to be good news! Carcinoma with negative margins present in a background of multiple cortical cysts Tumor size: 3.4 cm (smaller than we thought) Tumor Focality: Single Focus Histologic Grade: 2 Tumor Exension: Tumor limited to kidney Margins: All margins of…
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Anyone else have a mass on an Atrophic Kidney?
My right kidney is atrophic (about half the size of the Left). The Urologist believes it's only functioning about 5%. Because the left is a little larger than average, he believes it's been that way my whole life since that only happens when the other one never really worked. Anyhow, the mass started on the lower pole of…
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partial nephrectomy questions
64 year old male having partial nephrectomy next week. How bad is the after surgery pain? How long of a hospital stay did you have? If you had a drain tube how long was it kept in? WAs drain tube in side or back? How soon after surgery did they have you out of bed walking? Any responses much appreciated.
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News!
Life is busy and I’m ok with that! I have two bits of good news to share with my friends here. First, I am now officially a tenured professor! Getting tenure is incredibly exciting. However, getting a clear scan and officially moving from 3-6 months to yearly scans is even better! I hope you all are well. I may not post…
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My experience
In April 2017 I discovered a small growth on my face. I went to the skin doctor to have it removed. The doctor had the growth biopsied and it came back kidney cancer. I was then refered to an oncologist. The oncologist ordered several scans of my entire body. The ct scan showed a tumor in my left kidney. In May 2017 the…
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3 weeks post op. When does the pain end??
I'm 32 years old and I had a open partial nephrectomy on my right kidney. I'm a stay at home mom to my 2 yr old and also have a 5yr old. I'm still having pain above my incision site which is from mid abdomen to my flank side. Having rib, abdomen, and back pain. I'm trying not to take oxycodone but tylenol hasn't been…
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Best of times, worst of times
Life has been a bit of a wild, crazy time lately and this forum, as important as it is to me, had to go on the back burner for a while. It'll take me a while to catch up, for sure. I'll start with the worst of times, we lost 3 friends in 3 weeks. Talk about grieving, my goodness, my husband and I can't remember crying so…
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most effective treatment available
Nivo or votrient each morning? Maybe opioids or a bowl of sativa to soften the fear and distress? Then again several times a day prn? You gotta have enough but not too much. None of those remain as my first choice. Because I've got a better way. No script needed. No worry of an overdose. Every morning I make my way…
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Eight years on CSN
On the good side I continue to be Ned and my Kidney function has improved after losing a lot of weight. I will be 75 years young this Summer and 16 years NED a week later on August 1. On the other side dealing with non Kidney heath issues and recovering from a fall last spring. Hopefully I will be able to continue for…
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UTI issues after surgery
I am having issues with UTI infections. My latest urinalysis said i have Serratia marcescens. I am on one antibiitoc pill per day for a month to try and clear it up, but from what I read it doesn't reaact well to antibiotics. The symptoms are awful and I've had this for over a month now. Anyone else experience this?
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A quote to share to all you lovely people x
The devil whispered in my ear “ You are not strong enough to withstand the storm” Today I whispered in the devils ear “ I am the storm ”
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Finals on test results
From the 1st CT in Sept., I had the gift that kept on giving!!! Within the past two days, I got to review results of the gastroscopy and US follow-up on the mammogram. NO Cancer and come back in 3 months for a regular check. Talk about a 4 1/2 month emotional roller coaster. Besides the many visits to Dr's, the hospital…
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3 weeks after open partial
every day I feel better. Every now and then I have some minor headches and backaches but I sm sure is all related to the lack of exercise. Also , I am felling some pain around the incision area and goes all the way down to my pelvis. Its not allthe time and is like a burning sensatio in my skin.My dr told is normal unless…
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7 weeks since surgery
7 weeks y'all!!! And I'm on my second week back at work.. All is well and I feel wonderful! I haven't felt this good in 5 years. Fishing my first tournament this coming up Saturday. Been back in my boat the past two weekends and haven't had any issues since I started taking my multi vitamin and iron supplements. I've…
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Lump
Had a painful lump come up on my throat this weekend. Swollen glands are nothing new to me, but this one is painful and seems harder then normal. Probably smaller then I'm thinking but seems huge. Going to wait a couple days. Has me a little worried.
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Cabo
My Mom just Had her second spinal surgery on 2/13 to the C4&5, currently in rehab & started radiation today, 5 treatments needed.She will be starting Cabo 60mg as soon as she finishes Radiation . This is her first line of treatment since diagnosis on Dec 6, besides 2 surgeries and radiation. I've read about the side…
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My 6 week follow up
My follow up was good. I'm still having my right side flank pain and back pain. I'm hoping its mostly muscular. I started this morning doing some stretches and going to start yoga again. It feels like I have a gas bubble on my right side haha. I press on my lower back and I feel a sharp pain in my abdomen. I dunno, doctor…