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Shower Phobia
Because (hopefully) some of you will understand. Since my surgery, I completely HATE taking a shower and have to psyche myself up for a few minutes before I can take one. My surgery was one month ago today (2.19) and, really, considering there was a complication, I've been healing really well. But, because of that…
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Should I be seeing oncologist
Hi, I had my left kidney removed due to cancer July 2016, my urologist said everything was clear. I had a 9 cm tumor, stage 2. I have only seen the urologist since surgery, he orders every 6 months CT scans, and says, see you in 6 months. Should I be seeing a specialist, my urologist is great, buy, extremely busy, and I…
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Once upon a time.....
Seven years to the day, I woke up to be told, "Congratulations Mr Fox. We got it all!" Only to be told a few weeks later that I probably won't make it through the summer. But here I am. Please everyone, get second opinions. 4 cancer centers told me that they could not help me. The 5th saved my life. Good luck happens to…
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Nephrectomy scheduled- feeling anxious
This is my first time posting on the boards, although I've been lurking since February. In July 2017 I thought I was having gallbladder issues. I had an ultrasound done and they discovered an atrophic right kidney (congenital, it's only 5.5 cm). My left kidney is a little larger (12.5 cm). At the bottom pole of the right…
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Who would have thought - searching for information
Apologize for the length in advance- What started as hematuria and diagnosis of a UTI has turned in so much more. About two weeks ago had a strange feeling and notice blood in the urine. I work in the business office of a large medical organzation and went to our urgent care. The provider seemed concerned as I did not have…
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Moderate surgery risk
I was just diagnosed less than 2 weeks ago with a 3.2x2.8 cm mass in my left kidney. I am scheduled for surgery 3/22/18. I am diabetic (type2) and have high blood pressure, and mitral valve regurg. My mass was found incidentally during an ultrasound to see why my blood pressure kept going up despite multiple meds. I was…
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It's finally done
Hi all, Had my surgery on Monday. Everything is kindof a blur.... I do know that the Dr. had to clamp the artery for 27 minutes. My sister was with me and she said the Dr told her that the "fat cap" on the top of the tumor, was unaffected and was in one peice when removed with the tumor and he was very pleased about that.…
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Bloating. Constipation
week 5 after surgery developing some disconfort on belly, constipation... I fell full all the time even with water I asked my dr and he told me that maybe its for all the pain meds sometimes I feel I am going to explode anybody else with same symtoms?
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Let's talk
Let share our experience with others ....who did you find you have cancer? did you have any symptoms ? what kind of treatment you had ? tell us how you feel? Do you worry about your future? Let's talk
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Newbie here!
Hello! I'm new here, so I'll tell you a little my story. I'm 35 years old and living in Spain (there is why there are will be some differences in procedures and sorry for my english). About 8-10 years ago I was diagnosted with miomas in my uterus, and finally, in november 2016 I had practices total histerectomy (I still…
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Partial or full kidney removal
Hi, new here but not to cancer. It's only 1-3 percent of survivors of Breast cancer get a totally different type. As a precaution for breast cancer, you should probably know I had a double mastectomy although only the left breast was involved in the end. Now I have kidney cancer in my left kidney. Right kidney in good…
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Severe loss of weight
Hello. I am on here because I am desperately trying to find a way to help my Dad. He was diagnosed with stage 4 kidney cancer in June and it has metastasized to every organ. He has loss a significant amount of weight. In April he weighed 210; currently he is at 132 with clothes and shoes on. He has no appetite. The doctors…
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MRI new scan results today
impresion : Further interval increase in size of enhancing left upper pole renal neoplasm. Partial nephrectomy changes in right upper pole without recurrent enhancing mass.( had robotic partial nephrectomy rt kindey(8 1/2 hrs in surgery) in May 2015. At that that time renal cancer also detected in left kidney. Possitive…
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Second opinion. Who would you see?
My Mother in law is wanting me to see a nephrologist to get a second opinion. My Urologist wants to do a scan at 6 months, 2 years, then 5 years. Has anyone with clear cell RCC seen a nephrologist? Or should I look into seeing a Oncologist? Stephanie
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On my mind
I had a radical left nephrechtomy on 11/27/17. The mass was 2.5 cm stage t3a grade 2. No lymph nodes involved , clear margins. My Dr.felt first scan in july, six months after surgery was right for my situation. It was stage t3a because the tumor was located in the renal sinus. I hope he's right-what do you think?
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newly diagnosed mRCC
Hi there I am new to your forum and have been reading all your positive posts and kind words. My 2nd cat scan results came back today (1 year since radical nephrectomy) I have 9 nodules between both lungs and also have a pleural mestatasis. Not the best news I could have got, but looking forward to an appointment with an…
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Dealing with nerve pain.
I'm 7 weeks post op now. I'm still taking tramadol and ibuprofen to help with pain. I bend down wrong i get that cramping feeling or sharp pain near my incision site and deep with in from right side abdomen even to my back. ( I had a open right partial nephrectomy). It takes my breath away. I'm ready to just put this all…
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Do they find out about reccurence sooner than I have symptoms?
It's been 3 1/2 years since surgery, last C.T four months ago and clear results, all last years any little pain makes me worried, every pain reminds me of possible Cancer reccurence, well, after all clear C.T reports I'm much more confident now than ever, don't lose my mind over little pains and ashes. But it still comes…
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Chromie Testing
i am due my first six month scan after my LPN in Sept 17 i have been put on a low risk regime which means first scan will be a US panicking: 1) they find something 2) how much will a US really see 3) will it detect lymph nodes if swollen I will be demanding more tests after this... the fear is off the scale Annie
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Lungs feel weird
So a few days ago all of a sudden my lungs felt weird. I could be sitting or be walking didn’t matter. I can take deep breaths. Nothing raspy nothing hurts. It’s not all the time either. I wish I could explain it better. I am taking amoxicillin for a sinus infection and I take my anxiety medicine. I had my 3 month checkup…
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11 Days till surgery
Hi all, Well the count down has begun. 11 days till this will be over. (Permanently I hope). Trying to get everything in order, my sister is going to come and stay with me for two weeks. (I live by myself on my farm). Chest X-ray, EKG, and lab work is done. Have almost kicked the smoking habit..... Anyhow, did any of you…
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One year ago today.
One year to the day, just about this time......my wife was grtting ready to undergo her partial nephrectomy on her left kidney. Trying to decide who was more scared would be hard to do. Honestly, I think it was me. I'm the worrier. I'm the guy that goes over the what if's. I'm the guy that thinks 3 steps ahead of where I'm…
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Pathology. FINALLY!
After a two week wait the pathology finally came back and it seems to be good news! Carcinoma with negative margins present in a background of multiple cortical cysts Tumor size: 3.4 cm (smaller than we thought) Tumor Focality: Single Focus Histologic Grade: 2 Tumor Exension: Tumor limited to kidney Margins: All margins of…
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Anyone else have a mass on an Atrophic Kidney?
My right kidney is atrophic (about half the size of the Left). The Urologist believes it's only functioning about 5%. Because the left is a little larger than average, he believes it's been that way my whole life since that only happens when the other one never really worked. Anyhow, the mass started on the lower pole of…
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partial nephrectomy questions
64 year old male having partial nephrectomy next week. How bad is the after surgery pain? How long of a hospital stay did you have? If you had a drain tube how long was it kept in? WAs drain tube in side or back? How soon after surgery did they have you out of bed walking? Any responses much appreciated.
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News!
Life is busy and I’m ok with that! I have two bits of good news to share with my friends here. First, I am now officially a tenured professor! Getting tenure is incredibly exciting. However, getting a clear scan and officially moving from 3-6 months to yearly scans is even better! I hope you all are well. I may not post…
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My experience
In April 2017 I discovered a small growth on my face. I went to the skin doctor to have it removed. The doctor had the growth biopsied and it came back kidney cancer. I was then refered to an oncologist. The oncologist ordered several scans of my entire body. The ct scan showed a tumor in my left kidney. In May 2017 the…
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3 weeks post op. When does the pain end??
I'm 32 years old and I had a open partial nephrectomy on my right kidney. I'm a stay at home mom to my 2 yr old and also have a 5yr old. I'm still having pain above my incision site which is from mid abdomen to my flank side. Having rib, abdomen, and back pain. I'm trying not to take oxycodone but tylenol hasn't been…
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Best of times, worst of times
Life has been a bit of a wild, crazy time lately and this forum, as important as it is to me, had to go on the back burner for a while. It'll take me a while to catch up, for sure. I'll start with the worst of times, we lost 3 friends in 3 weeks. Talk about grieving, my goodness, my husband and I can't remember crying so…
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most effective treatment available
Nivo or votrient each morning? Maybe opioids or a bowl of sativa to soften the fear and distress? Then again several times a day prn? You gotta have enough but not too much. None of those remain as my first choice. Because I've got a better way. No script needed. No worry of an overdose. Every morning I make my way…