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Kidney Cancer

What happened?
first, Abuni, and , Amy, you have all my karma. Unbelievable. FLY. I've done great for a long time. But my cancer continues. Extensive growth, pain, brain tumors, vision, fatique, and comprehension limit everything. My only real goal is to be as pain free and independent as possible from this point on. My body won't quit…
Trying not to panic
Just received call from surgeon after radical nephrectomy last Tuesday. Expecting non-invasive, non-malignant tumor. Instead told stage 3 invasive urothelial carcinoma with 50% survival rate after chemo. Reading pathology report looks like 7.9cm tumor. What the hell do I do now???
Treatment working
I had my first scans after starting treatment. It was good news! Two tumors in my lungs have shrunk 37% and one tiny one is not visible. We are very happy and I will continue on this trial Cabo + pembrolizamab (keytruda). I am very cautiously optimistic. I know that TKIs only work for a while. My Dr explained that that is…
6 Months and NED
Had my first 6 month scans on the 6th. Went into the complex, had my CT done (w/wo contrast) and headed upstairs to an appointment with my surgeon. After about a 1/2 hour wait, I went into the exam room and sat down. About 3 minutes later, he walked in and said "Everything looks great". Nothing showed up on the CT.…
Opdivo/Yervoy
I was wondering who here has had a positive response to the opdivo/yervoy combo? Specifically on liver mets.
new kidney network member
hello, all. have only read about 20 posts but am appreciating all of them. finding that joy & yuk-yuks help me release stress about cancer. we had such a mighty fine belly laff from iceman's GIVING UP KIDNEY PIE comment, that it's my username. any kidney jokes, comics, funny stories, things kids say about the kidney that…
GFR
My latest gfr reading is 39 down from 45 in May. I had a partial nephrectomy in March. Should I be concerned? I am 77 years so maybe this is normal for my age.
Medication
Anyone know of a program where unopened medication can go to people who can't afford to buy it? I have an unopened botttle of 200mg Votrient a months supply and almost a full month of Lovenox blood thinning syringes. I was taking that 2x a day. I had to change from Votrient to Caboo. And from Lovenox to another blood…
1 year= 2 sets of scans
All NED I guess!!! I have one 4mm nodule that has stayed the same size now since the beginning and no one seems to worried about it so I will try and do the same! Thank you ALL for all the help along the way!!
A Farewell Tour - of sorts
Many of you may remember that the band The Who had a "Farewell Tour" in 1982. They had another one a few years later, and then later a "Final Farewell Tour." And they're still touring and playing today. With that in mind, I decided to do something while I'm still healthy enough to pull it off. I'm calling it my "First…
Pathology back
So pathology came back, as it turns out they took out a T1a clear cell carcinoma-g2. Somehow revisiting all my grief and worries now that the pathology has been confirmed... Paralysed by all the stars that lined up for things to work out for me and am the things that went well when things could've gone the other way.…
sorry not posted for ages
So had my six month scan in April and feel blessed to say it was NED, also i have been signed off by the lung specialist as the nodule that they were re scanning after 3 months and then again looking at on the six month scan they have now determined as imflammation/scarring from an infection in the past ! Ive seen a few…
I’m FREEZING! We’re watching my tumor right now...
I was diagnosed with papillary renal cell carcinoma quite by accident last year... the mass showed up on a lumbar spine MRI. The sharp-eyed radiologist at my favorite imaging center caught it and alerted my PCP, telling him to schedule me for a CT without/with contrast, as he felt “it was concerning for RCC”. He nailed it!…
Pain management in hospital lacking
so I had my partial nephrectomy this morning. Went well I was told. Mass might not even be RCC. Cyst removed as well. Great friendly staff at small hospital but the pain mgmt approach is confusing. maybe bec I said I was a “5”. They gave me 100 mg tramadol, few hours later 15 mg hydrocodone, then toradol 15 mg. no change…
My relay
Here is a link to my relay, if you would like to support. Anything is appreciated. http://main.acsevents.org/site/TR/RelayForLife/RFLCY18NCR?px=47755174&pg=personal&fr_id=87354 Thanks, Crash
Runners with only one kidney
Hi everyone. I am new to this site. Just diagnosed on June 22nd with kidney cancer (right kidney). I had radical nephrectomy on July 2nd and am recovering slowly. I have been an avid runner, which is how I found out about the cancer. I ran a race in hot Tennessee on June 20th and got severely dehydrated and ended up in…
Question on nausea
Hi all, I’ve got a 4.1 cm mass on the top of my kidney that I am scheduled to have removed in less than two weeks via robotic surgery. My outlook in that regards is likely quite good and while I am not looking forward to the surgery, I am not getting all that anxious about it And consider myself lucky that it was caught…
Four years cancerversary
Four years ago, I was diagnosed with an ugly 10cm monster, just few months after our first wedding anniversary and in my 30s. I was sure it would be impossible to survive. Three of my grandparents and my friend's son, all passed away few months post their diagnosis, so I imagined the same story would happen to me too and…
Inlyta (axititib) is working
I got my PET/CT scan results after two months on axititib as a 3rd-line treatment: bone mets have decreased in size and soft tissue mets have resolved. Praise God!
Sweet 16 today, 75 years young last week
some observations and a few thoughts: NED X 16 NBD X 16 Each of the 5 grandchildren has become 16 years older. No new ones. The 18 year old girl I met on the beach (Icewoman) will be 74 next monthl. The survivor rates for each Stage of RCC have increased over the last 16 years. Ice Tongs are no longer used for RCC Surgery.…
Hernias After Surgery
Have any of you had to deal with hernias after your surgery? I have lumps in my abdomen right around the points they went in laproascopically...I haven't had them diagnosed as hernias yet, but I'm pretty sure that's what's going on. Is this a common thing or am I just lucky? Thanks, Jim
Cabo and bone Pain, anyone?
Hi all, my moms on her third week of Cabo 60mg. And she seems to be having increased pain . I know joint pain is a SE, but her pain seems to be in the areas of where she’s has or had metastasis . Does it mean the drug is attacking it? Or is it progression ??The pain is pretty bad to the point she’s having trouble walking (…
newly diagnosed
Hello and I hope you all are doing well. On Monday, it was confirmed via CT abdomen that I have a 2cm RCC in the interpoar region of left kidney fully contained with no abdominal evidence of metastis. But, also a 0.3 cm pulmonary nodule that showed incidently in the right middle lobe. Follow up chest CT said no definite…
What's next.....
I just completed 12 weeks of aggressive treatment opdivo/yervoy. I was having joint pain and my oncologist wanted to be sure it's not due to my cancer. I had a radical nephrectomy 3/8/18 twot weeks later I suffered a PE and one and a half months later I found out my cancer had spread it deteriorated my spine invaded my…
Scans coming up too!!
There seem to be lots of us having scans around this time. I have my first scan after starting treatment this Friday. I am pretty nervous!! I know you all understand what this feels like. I am thrilled for Mark and Amy who have seen some success from their treatment. I am a bit jealous that I am not on ipi/nivo too! I know…
Fox
i check every day for any updates on Foxy; his last posts made clear how difficult it wa to post and sometime read. Has anyone had contact with him that they can share? Foxy means the world to me Sarah
Responding to treatment
I recently had scans to see if my treatment opdivo/yervoy is working. Prior to treatment I had nodules in both lungs lesion in groin liver and two large lesions on T spine and L spine. My scan showed my lungs were all clear and my groin was clear of metastatic disease. Lesions remain in my liver however they are smaller…
New Here
Good morning all, first I have been a lurker for 7 months and really appreicate the knowlage and compassion found on this forum. My situation: 65 YO male in good health diagnosed with Prostate cancer in 2016 and treated with SBRT in Nov 2016 which appears (at this time) to be sucessfull with virtualy no side effects.…
KIDNEY DISEASE!
OK, I put that in shouting-caps, because that's how the team reacts at the imagining center whenever I go there for a CT with and without contrast. They have my bloodwork, but as far as they are concerned? I have kidney disease, they are freaked, and the radiologist must be there, which impacts scheduling times. As far as…
Question
Question is there any chance that a removed kidney tumor of 4 cm , type 1 , grade 2 with clear margins can create a metastasis after 6 months??

Kidney Cancer

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